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    Standing stored in spinal cord

    I've heard the theory that the ability to walk is stored in the spinal cord and the brain sends a signal down to the spinal cord to waqlk. Recently after weening off both antidepressants for nuero pain and baclofen I've started standing without the need to block my knees or hips!!

    First I was thinking that it was spastic muscle keeping my knees from buckling and hips in line, but now I'm not so sure. The feeling is very different from spasms. It's as if my body is on auto-pilot to hold joints in place to stand. This is the first time in over 6 years that I have stood up without any frames or braces and I can balance with one hand!

    I'm really encouraged as I have been standing for many minutes at a time several times a day and also am feeling new sore muscles as a result. These are core muscles that haven't been worked in years even though I do extensive workouts on stationary bikes, elliptical trainers, handbikes and (of course) FreeWheeling!

    So, I'm thinking about this theory that the complex action of standing is stored somewhere Below my injury (C6/7). And the take away is to try and stand with out relying on braces or frames to see if your body responds. Food for thought.

    Pat

    www.gofreewheel.com

    #2
    Now, that is a good theory. The picture of you standing, looks very much like I did at first. Than I had this baked out hippy theory, [think back to the late 60's early 70's] "Let it go, relax, let it all go" being from that weird era, and as time went by, it really did, ummmm,,,,,,, flow....

    Now I deal with the Atlantic ocean, and it doesn't always cooperate, and as we all know has a mind of it's own. No balance apperatus in the world can compare. That, along with the automatic things that should be happening make it a real challange. In general it has helped, there is something lurking in other areas, not really gone, but dormant, and without regular feeling that once triggered them. Kind of like an employee that did too much too soon, of somehting, and is forever just short of a lost cause. Maybe one day he, she, will get it togther again.

    I have my goood days, and I have days where, I've slipped my disco. Followed by a day where everthing is good again. I can't explain it, it's weird, but I'm working with it, rather than against it. Makes life interesting for sure.

    You are right about the meds, the less I take, the better it gets.Too musch one day and everything is in a downward spiral, and it never gets better. I lay off them put up with what ever is bothering me and I;m back on track.

    Comment


      #3
      Looks great, Pat!

      Keep up the hard work!


      Eric Harness, CSCS
      Founder/President
      Neuro Ex, Inc
      Adaptive Performance and Neuro Recovery

      Comment


        #4
        Originally posted by patd View Post
        I've heard the theory that the ability to walk is stored in the spinal cord and the brain sends a signal down to the spinal cord to waqlk. Recently after weening off both antidepressants for nuero pain and baclofen I've started standing without the need to block my knees or hips!!

        First I was thinking that it was spastic muscle keeping my knees from buckling and hips in line, but now I'm not so sure. The feeling is very different from spasms. It's as if my body is on auto-pilot to hold joints in place to stand. This is the first time in over 6 years that I have stood up without any frames or braces and I can balance with one hand!

        I'm really encouraged as I have been standing for many minutes at a time several times a day and also am feeling new sore muscles as a result. These are core muscles that haven't been worked in years even though I do extensive workouts on stationary bikes, elliptical trainers, handbikes and (of course) FreeWheeling!

        So, I'm thinking about this theory that the complex action of standing is stored somewhere Below my injury (C6/7). And the take away is to try and stand with out relying on braces or frames to see if your body responds. Food for thought.

        Pat

        www.gofreewheel.com
        This is awesome.

        Comment


          #5
          AWESOME JOB.I think you're right about the meds.I hate taking them.Keep going bro.
          Be yourself!!!
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          Comment


            #6
            That's great Pat. I hope you can continue to improve. Good stuff.
            Please donate a dollar a day at http://justadollarplease.org.
            Copy and paste this message to the bottom of your signature.

            Thanks!

            Comment


              #7
              look good ! keep it up, brother...

              Comment


                #8
                Yeah!
                C 5/6 Comp.
                No Tri's or hand function.

                Far better it is to try mighty things, to win glorious triumphs, even though checkered by failure. Than to take rank with those poor spirits who neither enjoy much or suffer much, because they live in the grey twilight that knows neither victory or defeat.

                Teddy Roosevelt

                Comment


                  #9
                  Really impressive Pat. Do you just stand up from your chair and can you walk/take steps too.
                  A dolla makes me holla, honey boo boo! - borrowed from Honey boo boo child

                  Comment


                    #10
                    Thanks evertyone, like I said, I'm encouraged!

                    WTF, yeah I can use either the counters or a walker to grab with my hands and lift up, like a doing a dip. Make sure your brakes are on! I concentrate on straightening my hips while I push up and due to lack of feeling it's so strange to be "lifted" by muscles I can't feel (yet), but who am I to complain!!

                    Just this morning, I am overwhelmed with sore muscles in areas I haven't felt for 6 years. It's uncomfortable as I believe this soreness ellicits new spasticity, but I know that is just something to work through. Turns out I am tall and there is a lot of dust on the top of my refridgerator!

                    Pat

                    www.gofreewheel.com

                    Comment


                      #11
                      Great job Pat!! Keep working on it.

                      Comment


                        #12
                        Awesome. The balance with which you do that is impressive. Only needing to hold at your sides with what appears to be relative ease makes me think your have quite good trunk muscle control.
                        As a complete para, I can stand a bit in a walker by relying on spasms and upper body. But if I tried that, I most definitely would be spasm-sabotaged to the floor.
                        I know you workout hard, so I was wondering if that trunk control has increased to a point where you could do that or have you had the control since your injury and just now have been attempting stuff like this? Thanks.

                        f
                        ight

                        Comment


                          #13
                          donz, thanks, That is a great question!

                          Right now I would say that the ability to stand like I am now has always been there. I'm over 6 yrs post. However, I believe it has been masked by baclofen. And it doesn't take much! I have been turning my pump down for over 2 years and every time I turn it down I feel something new.

                          At present my pump is at 25 ugms a day. That's almost turned off. But I'm finding it has a big effect. So, again, I think the take away is to work to get off all meds and try different things to see what your body will do. (I know this is MUCH easier said than done)

                          Today was probably the biggest day of return feeling in 6 years. I'm standing for several minutes at a time and this is really making core muscles sore and I'm feeling stuff I haven't felt since before my sci.

                          I've been on quite a road where I feel something new everyday. I mean, it's been years of this. But the fact is as I reduce meds, I feel more. It is uncomfortable as burning is the first part of feeling new sensations, but after toughing that out for days WITHOUT meds, it's as if the nerves settle into a semi normal state. It's worth the brutal burning because I stay encouraged.

                          Pat

                          www.gofreewheel.com

                          Comment


                            #14
                            Pat - may I ask you what other meds you are on other than Baclofen in your pump? Do you take meds for neuropathic burning like neurontin?

                            Comment


                              #15
                              No, I don't take anything. I stopped the anti-deppressants which took care of the burning I felt at the base of my spne years ago. I found that that burning feeling was no longer there. Now, as new sensations pop up, I feel burning and what I call nuclear pins and needles. But instead of masking these feelings by taking meds I work through them with excercise and relaxation techniques. This is not easy or comfortable. After a few days there is usually a break and something new always seems to show up.

                              Pat

                              www.gofreewheel.com

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