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When is it too much spasticity?

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  • #16
    17 yrs ago I started taking 20 mg baclofen x 6 everyday.
    Which took away all tone & spasms.
    I cut back to 4 times a day and they still don't move much.
    I've lost most of my calf & thigh muscles.
    I'm afraid if I do start having spasms with my legs they'll move me,
    and I can't reposition myself in place.
    They use to kick my bottom crooked in my wc and I couldn't fix myself back.
    sigpic

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    • #17
      It's been 2 yrs of no bad tone or spasticity until a couple months ago...it's like november describes I can't even stretch my legs out straight in front of me they fight me to the death. I definitely need to stretch more but i can't really get the full r.o.m like i need. I can't do transfers independently the way my tone is right now, my legs are kicking against me when i lift them, and my adductor muscles fight me when i try to pull my legs apart. I'd only need the bear minimum of baclofan. what are some side effects and how common are they?
      Courage, it would seem, is nothing less than the power to overcome danger, misfortune, fear, injustice, while continuing to affirm inwardly that life with all its sorrows is good; that everything is meaningful even if in a sense beyond our understanding; and that there is always tomorrow.
      -Dorothy Thompson

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      • #18
        Big side effect of oral baclofen is sleepiness.
        T7-8 since Feb 2005

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        • #19
          Spinning my legs eliminates that stiffening tone. That and the standing frame help keep me off any medications.
          If you can ever get your hands on a Motomed or similar device it is worth it.

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          • #20
            Originally posted by alpentalic
            Spinning my legs eliminates that stiffening tone. That and the standing frame help keep me off any medications.
            If you can ever get your hands on a Motomed or similar device it is worth it.
            How do you use that? It looks a lot like a fes bike w/o the stim. Does it mechanically pedal and your legs kind of "follow" it?
            T7-8 since Feb 2005

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            • #21
              Originally posted by sjean423
              How do you use that? It looks a lot like a fes bike w/o the stim. Does it mechanically pedal and your legs kind of "follow" it?
              It will pedal for you (and detect spasms and adjust to settle them) at whatever speed you want.

              Or, if you have even the slightest leg function, you can spin the pedals yourself and increase the difficulty. Back when there was just a flicker of movement in my legs, I could spin in gear 0. The arm attachment is pretty sweet too, gives your upper body a workout and a stretch. I've heard of insurance approving the rather high cost.

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              • #22
                Also, calcium and magnesium deficiencies are a cause of spasms and cramps (obviously SCI is the main problem here). I take a lower dose 2:1 cal/mag supplement every day and it helps. Taurine supposedly helps with the night-twitches but I haven't tried it. Staying hydrated helps too..

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                • #23
                  You guys probably tried this already but I'll throw out my sure fire spazz/tone fixes...

                  Make sure you dont have to take a dump (or make yourself fart), that is the cause of unwanted muscle action in me. Not too sure if you guys are using the chemical method of pooping, but from my recollection my spazz/tone stopped dramatically after going to a reflex-type of pooping. I didnt do the chemical routine too much so I cant say for sure though. And finally, if tone is locking things up, take a deep breath and exhale fully, tone will subside shortly afterwards. This stuff works pretty good for me, no medications at all floating though my T6 system.

                  Ok, end of my bizarre SCI tips.

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                  • #24
                    @andy: reflex method? Can you DM me please?

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                    • #25
                      My standing frame doesn't do a thing for my spasticity. The FES is the only thing that works for me and then only for 3 or 4 hours.

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                      • #26
                        I would love to know I have the spams they trigger when go to transfer I just have to wait for them to relax fighting thelegs they win I lose. clonis at night wakes me up I feel like a vibrating machine

                        I stand 6 days a week 1/2 hr iprone at night 1/2 hr tried to sleep prone but no go. I finally found a way to use my power trainer which I think will help at least it feels good on my legs but dam I am out of shape

                        but I am going to keep it up

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