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Desperately need help with wheelchair positioning

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  • #16
    That's a great plan! You'll be able to compare what you know with others and have empirical evidence to make choices if the info suggests you're mistreating your cheeks!

    By the way, did you know asphalt is not a rectal disease?
    69yo male T12 complete since 1995
    NW NJ

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    • #17
      Noted the back to seat angle is greater than 90deg. This will make you tend to slide out of it.

      Add some dump by raising the back wheels which lowers the back and then lock the backrest a bit more forward.
      http://zagam.net/

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      • #18
        Originally posted by SequinScandal View Post
        First off hello everyone! Its been a long time since I?ve posted here. Hope everyone is doing well. I don?t even know where to begin. I?ve been paralyzed now over 10 years and I?ve never really had a chair that I felt was a good fit for me. I think this one is the worse. I feel like I sit on top of my chair instead of in it, if that makes sense. The first two photos are me sitting in the chair without the cushion. I wish i could sit that deep into the chair with the cushion. Is that even possible? I have no idea what adjustments to ask for and these DMEs never seem to know what they?re doing. I also have a hard time pushing and have calloused palms because of it. Any suggestions would be great. Thank you
        You have had plenty of good, qualified advice. Here is my 2c.
        Here is my Aero T after cutting and stretching. I may have adjusted the dump a fraction more since this image. My finger tips are at centre of the axle and the COG is near enough to where I am comfortable with. When seated, your knees need to be above your hips. How much is up to you and your O.T.
        The castor fork adjustment is an interesting adventure and has been attended to post this image. As you can see, they are way out. Even after stiffening with heavier grade than OE urethane elastomers, I am still not sold on the suspension.
        IMO the early stuff is easier to adjust but can be a bugger to maintain. These Aero T units are a solid fix.
        I think that this is the type of aspect you want, or near to it.
        Attached Files
        Last edited by slow_runner; 08-05-2018, 04:41 AM.

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        • #19
          Hi SequinScandal
          I know a lot of the comments are about dump, but in looking at the photos (very helpful), I'm wondering if you have a rigid seat instead of an adjustable fabric seat. I don't see any straps holding seat material in the side view photo.
          If so, have you considered an adjustable seat fabric (I believe it's the "standard seat" with a chair) that you can lower, using the velcro straps that come with it? It seems such an adjustment would allow you to "sink into" the seat cushion instead of being perched on top of it. How tall are you? Maybe such an adjustment would help if you are tall, for instance, from shoulder to hip. If you go this route, I'd try lowering the rear of the seat material to see if you can achieve some amount of dump. Your fingertips would be a bit closer to the axle on the wheel.

          I also noticed that in your bare feet your heels are not touching the footrest - that may be a preference thing as I'm guessing they would touch if you had shoes or heels on. But just thinking if your footrest was a bit higher you lap would be more level.

          Definitely agree a seating clinic may help you. A pressure map could tell if the low profile cushion you prefer is protecting your butt. I'm not sure a seating clinic would work on possible adjustments to the chair. Suggest you specifically ask for both issues in setting up your appointment.
          Meanwhile, it goes without saying that a daily skin check is so important, and hope it's in your routine.
          Hope you let us know how it goes.

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          • #20
            Originally posted by slow_runner View Post
            You have had plenty of good, qualified advice. Here is my 2c.
            Here is my Aero T after cutting and stretching. I may have adjusted the dump a fraction more since this image. My finger tips are at centre of the axle and the COG is near enough to where I am comfortable with. When seated, your knees need to be above your hips. How much is up to you and your O.T.
            The castor fork adjustment is an interesting adventure and has been attended to post this image. As you can see, they are way out. Even after stiffening with heavier grade than OE urethane elastomers, I am still not sold on the suspension.
            IMO the early stuff is easier to adjust but can be a bugger to maintain. These Aero T units are a solid fix.
            I think that this is the type of aspect you want, or near to it.
            Ah yes this looks like the same amount of dump i had before i told him to remove it. But even with that amount i was slouching a lot. I guess i need to try a bit more dump and the seat more forward

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            • #21
              Looks like you're "sacral sitting", too. Don't know how common (or avoidable) that is for a T1, but it can be a problem for sure. I need a little dump and squeeze (<90deg back angle) to maintain proper lumbar lordosis and have my hips not rotated under when sitting. A visit to a seating clinic is a great idea.
              "I have great faith in fools; self-confidence my friends call it." - Edgar Allen Poe

              "If you only know your side of an issue, you know nothing." -John Stuart Mill, On Liberty

              "Even what those with the greatest reputation for knowing it all claim to understand and defend are but opinions..." -Heraclitus, Fragments

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              • #22
                Originally posted by triumph View Post
                Hi SequinScandal
                I know a lot of the comments are about dump, but in looking at the photos (very helpful), I'm wondering if you have a rigid seat instead of an adjustable fabric seat. I don't see any straps holding seat material in the side view photo.
                If so, have you considered an adjustable seat fabric (I believe it's the "standard seat" with a chair) that you can lower, using the velcro straps that come with it? It seems such an adjustment would allow you to "sink into" the seat cushion instead of being perched on top of it. How tall are you? Maybe such an adjustment would help if you are tall, for instance, from shoulder to hip. If you go this route, I'd try lowering the rear of the seat material to see if you can achieve some amount of dump. Your fingertips would be a bit closer to the axle on the wheel.

                I also noticed that in your bare feet your heels are not touching the footrest - that may be a preference thing as I'm guessing they would touch if you had shoes or heels on. But just thinking if your footrest was a bit higher you lap would be more level.

                Definitely agree a seating clinic may help you. A pressure map could tell if the low profile cushion you prefer is protecting your butt. I'm not sure a seating clinic would work on possible adjustments to the chair. Suggest you specifically ask for both issues in setting up your appointment.
                Meanwhile, it goes without saying that a daily skin check is so important, and hope it's in your routine.
                Hope you let us know how it goes.
                Hey! No I’ve never even heard of this kind of seat. Can you explain more? Or show me a pic please. I’m 5’7. The only thing that keeps my cushion on the seat is the Velcro on the bottom. Yes I’m actually very active I’ve recently lost 30 pounds. I check my butt everyday. No pressure sores so far in 12 years but i do have a lot of natural cushion to work with thankfully lol

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                • #23
                  Originally posted by Oddity View Post
                  Looks like you're "sacral sitting", too. Don't know how common (or avoidable) that is for a T1, but it can be a problem for sure. I need a little dump and squeeze (<90deg back angle) to maintain proper lumbar lordosis and have my hips not rotated under when sitting. A visit to a seating clinic is a great idea.
                  Yes! This is exactly how I’m siting and i hate it. My stomach looks so much flatter when I’m sitting more upright. I know that sounds a bit vain, but I hate the para belly so much.

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                  • #24
                    Originally posted by SequinScandal View Post
                    Hey! No I?ve never even heard of this kind of seat. Can you explain more? Or show me a pic please. I?m 5?7. The only thing that keeps my cushion on the seat is the Velcro on the bottom. Yes I?m actually very active I?ve recently lost 30 pounds. I check my butt everyday. No pressure sores so far in 12 years but i do have a lot of natural cushion to work with thankfully lol
                    Sometimes for folks with 'natural cushion' this can cause you to need to compensate with a cushion that's higher in the front, like the Contour XS, to keep your femurs level and not sliding forward.
                    "I have great faith in fools; self-confidence my friends call it." - Edgar Allen Poe

                    "If you only know your side of an issue, you know nothing." -John Stuart Mill, On Liberty

                    "Even what those with the greatest reputation for knowing it all claim to understand and defend are but opinions..." -Heraclitus, Fragments

                    Comment


                    • #25
                      You definitely need more dump and looks like you could benefit from raising your footplate. Do your feet no get swollen? Judging by your camber tube set up you might be able to get more dump adjustment. Private message me your ti lite serial number. I can log onto Ti lites website and view the specs on your chair. I work for a dme in arizona. I have a couple of ideals that might help. I am also a chair user 25 years T-10 para.

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                      • #26
                        Originally posted by nmireles View Post
                        You definitely need more dump and looks like you could benefit from raising your footplate. Do your feet no get swollen? Judging by your camber tube set up you might be able to get more dump adjustment. Private message me your ti lite serial number. I can log onto Ti lites website and view the specs on your chair. I work for a dme in arizona. I have a couple of ideals that might help. I am also a chair user 25 years T-10 para.

                        Sent ya a message

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                        • #27
                          Dump first.
                          Adjust back angle forward after that.
                          Adjust foot plate. Height and angle. Next.
                          Adjust front casters last.
                          Do them one at a time and take it for a ride. If its good go on to the next adjustment. That way you can tell if it helped or not.
                          What ROHO did you have? Did anyone ever show you how to adjust it properly? Most people sit on top of their ROHO like a beach ball. You need a friend to adjust it correctly. A good friend. They need to get behind you and put their hand between your butt and the cushion. They should be feeling your butt and the seat with very little extra air. That way you sit "down" in the ROHO.

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                          • #28
                            Some great suggestions here. I will throw in two more and you might not like them.

                            1. Have you ever used or considered using armrests? I am t/2 and when I got in a chair in 78' they were pretty much standard. I will say they have helped a lot with posture and stability. Some simple swing aways that can be removed if you don't want them on. If I am going for a wheel around the neighborhood, walk the dog etc. I can just take them off and put them on my outside table. It's just a thought if you've never used them. I don't run with a lot of dump for a few reasons , if you can get away with it ( dump) maybe you want to keep it minimalist.

                            2. My other suggestion, again, because of our levels, and seeing your age in profile, if I had it to do again after 40 years I would wear an abdominal binder sometimes, from the onset, nothing big and bulky, a six (6) inch one makes a significant difference for me. Doesn't have to be all day everyday, just something inexpensive to try when you want it. Between gravity, aging, organs settling and atrophied abdominal muscles a simple and inexpensive binder can make a difference in para / quad gut and again, add stability and posture.. I didn't use one for many years but now I have a few inexpensive ones around and they come in handy. I wish I had started earleir.

                            Just some thoughts, good luck.
                            Last edited by ChesBay; 08-06-2018, 12:07 AM.

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                            • #29
                              Sorry I've had no luck trying to post pictures after several attempts. My TiLite seat has black straps that keep it in place underneath the seat with velcro. In order to adjust the "slump" of the seat, one would turn the chair over and loosen/tighten those velcro straps. On my chair I have done these adjustments over the years as needed. Most recently I used a slightly higher cushion and found my slide-transfer to toilet was a bit more difficult so I loosened the front of the seat material just enough to help my cushion sink in and not obstruct transfer. I cannot lift up to do a transfer, so the front seat adjustment works for me.

                              Maybe some others here can comment on whether they have adjustable seat material on their chairs. I always thought a rigid seat was a special order add-on. I'm guessing that's what you have?

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                              • #30
                                Originally posted by triumph View Post
                                Sorry I've had no luck trying to post pictures after several attempts.
                                Hi Triumph. I hope that I am not trying to teach you to suck eggs here.

                                Go to the go advanced reply option. scroll down and you will find the manage attachment

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