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    #16
    Trying to get her into Shirley Ryan day rehab.

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      #17
      I got a alternating air mattress off Amazon for about 50.00 made by drive medical. I can set the mattress from soft to very firm. I have been on the same one for just over 3 years. Have not had any pressure sores.

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        #18
        Originally posted by Lavender lady View Post
        I got a alternating air mattress off Amazon for about 50.00 made by drive medical. I can set the mattress from soft to very firm. I have been on the same one for just over 3 years. Have not had any pressure sores.
        You are lucky. Those devices have no scientific evidence of effectiveness.

        (KLD)
        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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          #19
          Works great for me, spent several days in a hotel bed and woke stiff every morning since did not bring it. Also feel very stiff and sore if I forget to turn it on.

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            #20
            Very difficult time for you both, Crannible. It sounds like you are up for the task as you are reaching out for help.
            Husband and I, both paralyzed and elderly, have "hospital type" beds (resisted them for years) that we cannot function without. I must put up the head of the bed and grab the side rail to sit up in the morning. I flatten the bed and then manipulate the up/down feature to transfer in or out of my wheelchair - doing a "gravity transfer" where you are always going downward doing the transfer. One suggestion is to consider the aging process and to look at any equipment that will be needed in the coming months/years, such as tub/shower bench.
            I must use adult protection briefs for overnight, so I don't have to get out of bed to urinate at night. However, it is important to have a waterproof pad laying on top of the sheet to catch any overflow or drip. We purchased several of these through amazon - they are about 3'X3', the white side is absorbent and lays directly under the person, while the blue side is waterproof, thus protecting the bedsheet. Depending how often your laundry is done, you may want a few of these. These type of pads also come much larger, mattress size, and we rarely use the ones we have of those.

            In regard to female urinals: Some months ago I was unable to transfer to the toilet during daytime. During this 2 month period I ordered about 10 different female urinals to attempt to use while in my wheelchair. None of them were workable for me. In addition I would not have been able to use them in bed due to the maneuvering necessary to use them successfully. Thus, I have stayed with the "overnight briefs" with waterproof bedpad, and an intensive home PT and OT program helped me again be able to transfer to the toilet in daytime.

            If there is a Patient Advocate at the rehab. center, suggest you meet with this person. Perhaps they are called Discharge Planner. Anyway, get their name and phone number and dump ALL questions and concerns onto this person whose job it is to secure a good transition from rehab to home. If you find yourself at a loss for handling some of this, reach out and call this person. A trusted family member or friend can also be a "go to" person to discuss concerns or issues and ponder solutions. This website, CareCure is an invaluable help as well!
            Very best to you and your wife!

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              #21
              Thank you everyone who has contributed. My wife came home for a home assessment and after lying in our old queen size bed wants to try a new mattress on our bed. The therapists recommended a pillow top mattress, firm and felt memory foam was not a good choice. I can see her being immobile in a memory foam mattress from what I have heard of them. This is a big expense. I hope I am not being confused by the wonderful idea that we can still use a traditional bed. As I understand it adjustable frames work best with foam mattresses so I can’t do that. Transfers will not be super easy but she is getting better. Hoping this works. Thank you more than I can say for showing interest.

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                #22
                Originally posted by Crannible View Post
                Thank you everyone who has contributed. My wife came home for a home assessment and after lying in our old queen size bed wants to try a new mattress on our bed. The therapists recommended a pillow top mattress, firm and felt memory foam was not a good choice. I can see her being immobile in a memory foam mattress from what I have heard of them. This is a big expense. I hope I am not being confused by the wonderful idea that we can still use a traditional bed. As I understand it adjustable frames work best with foam mattresses so I can’t do that. Transfers will not be super easy but she is getting better. Hoping this works. Thank you more than I can say for showing interest.
                Not all foams are memory foam. If you are not considering a sleep number bed, look into natural latex foam rubber (about 6 inches thick). Latex foam works very well on adjustable beds (head and foot adjustment), and does not have the problems memory foam has. Another and less expensive alternative is polyurethane foam. Some manufactures layer various densities of poly foam together to create zones of firmness. Poly foams tend to compress and not rebound from pressure with use and time and need to be replaced more frequently than natural latex foam.

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                  #23
                  The adjustable bed I posted above can be ordered with a variety of different mattresses:

                  Adjustable Bed Mattresses come in your choice of Air, Innerspring, Memory Foam and Latex Foam.
                  My parents had the innerspring with a topper.

                  You can put a Biogard AFT or Geomatt over a regular mattress for pressure reduction, and just put it on her side of the bed (they come in twin size and are easily trimmed).

                  I would also recommend a fabric non-disposable incontinence pad for on top of the sheets for her, as mentioned above. Here is an example: https://www.amazon.com/dp/B06XSYV6CF...d_w=pTI2e&th=1

                  (KLD)
                  The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                    #24
                    I agree with the pad, I put a towel over mine since I tend to sweat at night. Very seldom need the pad but it is whole bunch easier to change the towel every few days than changing sheets.

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                      #25
                      Help. I am incredibly distraught. My bed is a disaster. Yesterday was my wife’s first day home and everything went wrong. The firm mattress with adjustable frame is too big, too hard, she is in terrible pain. Her back since laminectomy surgery has been terribly painful. Does anybody know how I can get a good hospital style bed with alternating mattress? I may have to do this. I am falling apart. They said she was ready to come home. They did a home visit. Now that she is home no furniture is comfortable for her to sit on and the bed is bad. Her inability to get up and pee is keeping me up all night. I will be honest, though I know people have worse conditions, we are failing and life is feeling worthless to me. I don’t know how to cope.

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                        #26
                        What is your insurance? Most insurances follow Medicare guidelines for specialty/pressure reducing mattresses, either alternating air overlays or true loss air loss mattresses. If you want to purchase an overlay on your own, they are not very expensive, and can be bought on Amazon. Just to be clear though, they are primarily a comfort item and don't significantly reduce pressure ulcer risk. A low air loss mattress would have to replace her mattress entirely, and would need to be put on a hospital bed type frame.

                        Here is some examples of an overlays:

                        https://www.amazon.com/Tcare-Alterna...g+air+mattress

                        https://www.amazon.com/Drive-Medical...g+air+mattress

                        This type would probably not offer the same comfort level, but is cheaper:

                        https://www.amazon.com/Alternating-M...mattress&psc=1

                        Of course there is also the option of using a foam overlay as well, such as these:

                        https://www.amazon.com/Therapeutic-S...ywords=geomatt

                        https://www.healthproductsexpress.co...ealthcare.html

                        (KLD)
                        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                          #27
                          Did you try to get a female urinal she can use in bed? Has she been evaluated for having a neurogenic bladder? Is she on any medication for her bladder? If she limits her fluid intake after 6PM, she should not need to pee more often than once during the night. If she is having to go as often as every hour or two, this is something that needs to be evaluated by a urologist, hopefully as an outpatient at Shirley Ryan Ability Lab. How soon does she have an appointment there?

                          (KLD)
                          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                            #28
                            I discussed female urinals in my post - not that easy to use and if your wife is having pain might be too difficult for use.

                            Have you considered overnight protection briefs along with a waterproof pad (explained in my post)? With this set-up she would not need to get up at night or manipulate a female urinal....just go ahead and pee. In the morning use wipes or shower to cleanse skin.
                            Yes, what SCI nurse said about bladder/urologic consultation, but for immediate help consider the overnight briefs.

                            Do you have anyone in the family or friends that you can discuss what's going on? You are not alone on this. Time to reach out.

                            It might help to keep a journal/spiral notebook to jot down what's happening or new each day of this "rough patch". You will be amazed at the progress as the days go by.

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