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Questions About Wheelchairs/Components in General, and Specifically for TiLite Aero Z

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  • Welcome K4olin, I have Dysautonomia as well.
    Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

    I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

    Comment


    • Wow! you are lucky to have Chas on your side sleuthing this out. He just justified titanium, and since this is your first chair, you will need one that can be what we call dialed in. The deminsions you gave are probably not the ones you will be happy with, but with a fully adjustable chair...(ICON is another, don't know about weight limit,) your chair can be made to fit.
      I have had periodic paralysis all my life. I lost my ability to walk in 2011 beginning with a spinal block, which was used for a hip fracture caused by periodic paralysis.

      Comment


      • Originally posted by nonoise View Post
        Wow! you are lucky to have Chas on your side sleuthing this out. He just justified titanium. . .
        Be very careful!! I may have either justified titanium or made TiLite a non option. I don't know enough to be sure . . .

        First BCBS needs to agree a K0005 is indicated, then they need to rule out other maufacturers who may make a HeavyDuty K0005. I've just been brainstorming - not stating facts.
        Chas
        TiLite TR3
        Dual-Axle TR3 with RioMobility DragonFly
        I am a person with mild/moderate hexaparesis (impaired movement in 4 limbs, head, & torso) caused by RRMS w/TM C7&T7 incomplete.

        "I know you think you understand what you thought I said, but what I don't think you realize is that what you heard is not what I meant."
        <
        UNKNOWN AUTHOR>

        Comment


        • Icon = 265#

          [ATTACH]55613[/ATTACH]
          Chas
          TiLite TR3
          Dual-Axle TR3 with RioMobility DragonFly
          I am a person with mild/moderate hexaparesis (impaired movement in 4 limbs, head, & torso) caused by RRMS w/TM C7&T7 incomplete.

          "I know you think you understand what you thought I said, but what I don't think you realize is that what you heard is not what I meant."
          <
          UNKNOWN AUTHOR>

          Comment


          • Over time there have been questions about what the differences are between frames: Power Adaptable, Reinforced and Heavy Duty. I just made a post to see if TiLite can give more information in relation to this post and the questions that I and others have had (to the best of my recollection). See the Manufacturer & Vendor Forum > TiLite Wheelchairs > Frame differences: Power Adaptable, Reinforced and Heavy Duty

            Originally posted by k4olin View Post
            My ATP said that the Reinforced Frame means all the tubes are thicker than they otherwise would be and its also covered in case we do end up adding a SmartDrive later
            Partner of an incredible stroke survivor. Limitations: hemiparesis and neglect (functional paralysis and complete lack of awareness on one side). Equipment: TiLite ZRA 2 and 2GX, Spinergy ZX-1, RioMobility Firefly. Knowledge: relative newbie for high-level equipment (2012), but willing to try to help others who are new with similar limitations (definitely not a guru, but inquisitive).

            Comment


            • Although I think you probably will require a Heavy Duty frame, as opposed to a Reinforced Frame or a standard titanium frame, here are some comparisons on prices:
              • Aero Z unreinforced aluminum $2,195 vs. ZRA unreinforced titanium $2,995 ($800 more)
              • Aero Z unreinforced aluminum $2,195 vs. Aero Z unreinforced titanium $3,490 ($1295 more)
              • Aero Z unreinforced titanium $3,490 vs. ZRA unreinforced titanium $2,995 ($495 less)
              • Aero Z reinforced aluminum $2,495 vs. ZRA unreinforced titanium $2,995 ($500 more)
              • Aero Z reinforced aluminum $2,495 vs. ZRA reinforced titanium $3,295 ($800 more)
              • Aero Z reinforced aluminum $2,495 vs. ZRA heavy duty titanium $3,395 ($900 more)


              I noticed that you are getting a Varilite Evolution 20x20 cushion, but your seat dimensions are listed as 20" wide X 19" deep. I don't know if it is possible, but have you considered going to 20" wide X 20" deep frame?
              • Aero Z reinforced aluminum $2,495 vs. ZRA heavy duty 20" wide X 20" deep titanium $2,995 ($500 more)


              Here is the information from the ZRA order form for the Heavy Duty Frame. The only conflict I see is the Swing away tubular arm rests 11"-14":
              Heavy Duty Frame (300 Pound Weight Limit. No charge when 20? Rear Seat Width A and 20? Seat Depth B are selected. Includes Tension Adjustable by Straps Back Upholstery. Requires Angle Adjustable Footrest, Folding Aluminum Adjustable Height Backrest, Aluminum Front Wheels, and Shadow, Spinergy Spox or LX Rear Wheels. Not available with SuperLite Edition, Carbon Fiber Camber Tube, Slipstream Fork, Velcro Adjustable Upholstery, Swing Away Tubular Armrest or Swing Away Flip Back Tubular Armrest.)
              Examples like this, where private insurance follows CMS / Medicare by not allowing HCPCS code K0009, is exactly why I wrote the post: The future of titanium wheelchairs? People should have choices based on the complete configuration, without having to forgo an entire chair just because of it's frame material! OK, I'll get off my soap-box .

              Originally posted by k4olin View Post
              Titanium isn't an option... i've been told there is no way my insurance would cover the cost, and its not in my budget to eat the 1200$ difference.
              Last edited by elarson; 08-29-2014, 08:54 AM.
              Partner of an incredible stroke survivor. Limitations: hemiparesis and neglect (functional paralysis and complete lack of awareness on one side). Equipment: TiLite ZRA 2 and 2GX, Spinergy ZX-1, RioMobility Firefly. Knowledge: relative newbie for high-level equipment (2012), but willing to try to help others who are new with similar limitations (definitely not a guru, but inquisitive).

              Comment


              • Originally posted by k4olin View Post
                The PT is now writing the letter for the insurance (BCBS through my employer) to get all approved.
                If it is any encouragement, my first Titanium TRA was covered through the same insurance you have. What policy (or just self-insured administered-by) in comparison is a mystery however. My PT at the time really did a good job writing the letter. I cant say if it could be repeated, as there is a dearth of literate PTs or wheelchair 'specialists' I have found after my initial inpatient rehab experience. So I just bought my following Ti chairs. I think the 'will never cover' excuse is just laziness so whatever slug you might have the misfortune of dealing with doesn't have to bother to write a LMN. But that's my jaded view, lol.

                Good luck with getting your Ti chair however!

                Comment


                • Originally posted by elarson View Post
                  Over time there have been questions about what the differences are between frames: Power Adaptable, Reinforced and Heavy Duty. I just made a post to see if TiLite can give more information in relation to this post and the questions that I and others have had (to the best of my recollection). See the Manufacturer & Vendor Forum > TiLite Wheelchairs > Frame differences: Power Adaptable, Reinforced and Heavy Duty
                  Excellent question, glad you posted it. As a reference point, I had opportunity to directly compare a series 1 TR 'regular' and 'reinforced' frame as part of a warranty replacement. The difference was a flange tube was welded in the tubing where before there was a bare drilled hole supporting the backrest load (which in turn cracked at the stress-riser bare hole that was drilled). Pics follow:

                  Click image for larger version

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                  Comment


                  • I own an Aero Z, have for 11 months. I love the chair. I am thinking about Matte Black for the next one. Mine is fairly basic (A medicaid funded build). I have spoked wheels and the Everyday Gray tires, Salsa Red. I have been very happy with my wheelchair and it has been reliable. The tires will be changed out for either Schwalbe Right Runs or the Kenda court tires, am thinking about Natural-Fit handrims as an upgrade and going to a different back soon (I like the Ride Designs Java Tall Back). I do have push handles due to spina bifida/cerebral palsy and being a short distance walker (mainly wheel when out). I have a T6/T7 very incomplete lesion. I love TiLite and their custom fit and totally awesome customer service. I would gladly own another Aero Z again without reservation.

                    Comment


                    • Hey, everyone. I see there has been some activity in this thread over the last few days and I'm excited to read through it.

                      I haven't been ignoring the site -- not that anyone has noticed, haha -- I've just been pretty busy lately. I want to thank everyone for their continued input, though.

                      My chair quest is at an apparent standstill at the moment. On the 14th of August I received an email from the DME's assistant telling me they were making the changes I wanted to the report, then sending it to the therapist to get approved, then to insurance, yadda yadda, and they'd be in touch.

                      It's been radio silence ever since. What is that, two weeks? Ugh.

                      Comment


                      • It may take some time to get thru insurance some times months. Be patient
                        T6 Incomplete due to a Spinal cord infarction July 2009

                        Comment


                        • Hey, everyone.

                          Sorry I never made it back with updates the last time I said I was going to. I've been pretty busy lately, with both things for me and others. This message is also going to be short, but I said I would back and I try to stick to my word.

                          Not that it really matters, but yeah, haha.

                          So, this process has been a pain. Smashms, the month (or was it two) I mentioned the last time I was here was just them trying to get the order form right. We hadn't even gotten to the insurance submission stage because they kept screwing things up.

                          That being said, it has apparently been submitted. Everything was approved except the Spinergy LXs. Based on both looks and the performance reviews I read online, I decided to come out of pocket for those, but it hurt, haha.

                          You all convinced me and I went with the Marathon tires. Don't make me regret this!

                          Also, a couple of you (~Lin and elarson, I believe) will be happy to know that I did in fact get 25'' wheels. That wasn't something they originally told me, but it was on the order form. Ugh.

                          So, yeah, we'll see. I'm not entirely convinced their won't be mistakes when it arrives, and if there are, I'm not taking the chair, obviously. I'll try to check back soon, and I definitely will once I have it.

                          I hope everyone is well. Thanks again for your input.

                          Comment


                          • Probably mean me and Qtipi, maybe it was elarson too though lol.

                            But the 25s should be YOUR decision. All of this should be your decision. Especially since you're going to pay for the spinergys out of pocket! Make sure you WANT the 25s, and if you don't take care of it now. Otherwise there may be some charge once they've arrived. Though if you never agreed to 25s they should cover the mistake. I had wheels come with full size natural fits before which wasn't what I'd ordered, and had to be swapped out after I'd gotten the chair.

                            I hope you finally get your chair soon! I'm stuck in the same hell with my new chair the Icon right now. I can't get answers about whats going on. I've had it and am going up the ladder to find a superior today.
                            Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

                            I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

                            Comment


                            • Glad to hear that things are moving along. Keep us posted when you get it.
                              Partner of an incredible stroke survivor. Limitations: hemiparesis and neglect (functional paralysis and complete lack of awareness on one side). Equipment: TiLite ZRA 2 and 2GX, Spinergy ZX-1, RioMobility Firefly. Knowledge: relative newbie for high-level equipment (2012), but willing to try to help others who are new with similar limitations (definitely not a guru, but inquisitive).

                              Comment


                              • DME called - I'm getting my Aero Z on monday.
                                SInce this is my first chair (dysautonomia, so i can only stand for a couple minutes) I'll ask.. any tips on things to check or ask the DME?
                                --------------------------------
                                TiLite Aero Z since 10/2014
                                I have Dysautonomia which results in the inability to stand or walk for more than a couple of minutes.

                                Comment

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