Announcement

Collapse
No announcement yet.

Questions About Wheelchairs/Components in General, and Specifically for TiLite Aero Z

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    #46
    No need to apologize. Having been where you are, I'm sure I speak for all of us - we are eager to help Having a poor chair is horrid. You'll learn a lot, and pass it on someday.

    Tilite's wheel price is per pair.

    I'd trust a tire shop far more with push rims than I'd trust most DMEs with anything. The DMEs will do it for you, but they'll charge more than a bike shop and not do as good a job. Personally, I would rather pay a bike shop to work with my wheels&tires than have a typical DMEs do it for free.

    VA provides my mobility equipment. The first thing the VA's DMEs did on my brand new chair was not know how to install hub locks, which were shipped separately. I borrowed their tools and installed them in their lobby. Subsequently, I would take my tools along whenever I needed work done. I would clearly write on their work order that they provided only the parts and no labor. Now the VA bypasses their DMEs, and drop ships parts directly to me (e.g., Jay3 back, luggage carriers, FreeWheel, MagicWheels, footrest, new tires). Did I mention I don't trust DMEs to work on my chair?

    Oh the bike shop will not be able to help with QR axles. You're on your own for that. Bike-on.com is a great resource for that and wheels and tires, etc. Several chair-user members of CCC work for BikeOn. They know what they're doing. Wheelchaircushionsage.com is also a member for good cushion advice. Tilite also posts on CCC, as does Roho.

    Link for some axle choices. Everyday chairs use 1/2" axles. A few specialty chairs (e.g., Ruby) use 5/8" axles. AeroZ uses 1/2".
    Last edited by chasmengr; 10 Aug 2014, 11:15 PM.
    Chas
    TiLite TR3
    Dual-Axle TR3 with RioMobility DragonFly
    I am a person with mild/moderate hexaparesis (impaired movement in 4 limbs, head, & torso) caused by RRMS w/TM C7&T7 incomplete.

    "I know you think you understand what you thought I said, but what I don't think you realize is that what you heard is not what I meant."
    <
    UNKNOWN AUTHOR>

    Comment


      #47
      Originally posted by chasmengr View Post
      No need to apologize. Having been where you are, I'm sure I speak for all of us - we are eager to help Having a poor chair is horrid. You'll learn a lot, and pass it on someday.

      Tilite's wheel price is per pair.

      I'd trust a tire shop far more with push rims than I'd trust most DMEs with anything. The DMEs will do it for you, but they'll charge more than a bike shop and not do as good a job. Personally, I would rather pay a bike shop to work with my wheels&tires than have a DMEs do it for free.

      VA provides my mobility equipment. The first thing the VA's DMEs did on my brand new chair was not know how to install hub locks, which were shipped separately. I borrowed their tools and installed them in their lobby. Subsequently, I would take my tools along whenever I needed work done. I would clearly write on their work order that they provided only the parts and no labor. Now the VA bypasses their DMEs, and drop ships parts directly to me (e.g., Jay3 back, luggage carriers, FreeWheel, MagicWheels, footrest, new tires). Did I mention I don't trust DMEs to work on my chair?
      So you're saying I should trust DMEs with my entire life. Got it.

      My chair wasn't ready when I was discharged from the hospital, so we argued with them and got them to provide a loaner until it was done (because they had sworn that it would be done in time). While I had it, I only used it in my house (I hadn't yet begun physical therapy). One day, sitting at the computer, the tire just went flat. It didn't blow out, but it went from full to flat in about a minute.

      They came to fix it, and had no idea what they were doing. My dad had to do all the work, too. Just like you, he wouldn't sign the paperwork either, since they didn't actually do anything. God, he was pissed, haha.

      At this point, if I can get the CAD they had worked up, I'm wondering how difficult it would be to just submit it to my insurance myself and order everything on my own, haha. It'd be great if that would work, but I can't even imagine the clusterfuck that would ensue.

      I'm going to start looking into bike shops around here and make some calls. Out of the things I want, the rear wheels would be the only huge extra expense, so if the rest of it can be taken care of and I can get them to order nice tires, too, I'll get the rims myself and just have the tires switched over. I feel confident I can handle that, haha.

      Now, if they'd just call me back...

      Comment


        #48
        Originally posted by User Name View Post
        And they'd know how to put the push rims back on, too? If I couldn't find a bike shop to do it, do you think the DME would do it for me? Do you think I could have them order the wheels from this site and have it all put together for me when I pick it up? I know you don't know for sure, but do you think it's even worth asking?
        Just thought I'd ask for clarification on this one. Are you thinking about having push rims swapped from one set of wheels to another? Because there are sometimes compatibility issues there--different numbers of tabs and bolts (or rivnuts) at different intervals. You can't necessarily fit the push rims from a generic wheel set onto Spinergies, for instance. But if you're just thinking about tyre changes, the push rims don't have to come off for that at all.

        Comment


          #49
          Originally posted by Smashms View Post
          I have an aero r but love TiLite chairs in general. My quickie was never right and broke within the first months of me using it. Now onto your questions armrests depending on your level of injury are not necessary and handles are not necessary as well. Cushion i would recommend a roho they are the best out there i think. But you have 4 more years on me. Spinergy wheels are the best i think but do not go with solids. I did and now regret it because i cannot change them due to the cost. Scissor locks i have and they work great. And soft rolls are great.
          My Quickie wasn't right for me at all, but I have to say that it was put together well. It's been 8 years and it's still in one piece -- same tires (though the tread is gone and the insides are showing; and I know they didn't make the tire, but still), even the flip-away footrest is still together, though my heels drag on the ground (and have since day one).

          Yeah, I'm not getting armrests or handles. There's no way. I was just using them as an example, because I'm still debating on getting the anti-tippers until I get used to using such a dramatically different chair. But, once I was used to it, I want them gone and no sign they were ever there.

          Same with side guards. The ones I have now don't have a speck of dirt on them, but the new chair may be different. I like the idea of not having them, but don't know if I'll need them. Again, if I don't, I'd like them gone.

          I always thought it would be a pain to have to check your air pressure and risk getting a flat, but everyone keeps saying that air are the way to go. I'm definitely going to have to reconsider.

          That's another thing: When I demo'ed the chair, I asked if they were air tires, because I loved them. So smooth, barely any effort (though they told me that the way my chair is set up, it's taking like 5x the strength it should to move it, so anything would feel better), and after telling him my concerns with air, he told me they were solids. I'm staring to think they were air, though.

          I'm glad you're in a chair you love, now. And thanks for the reply.

          Comment


            #50
            Originally posted by QTiPi View Post
            Just thought I'd ask for clarification on this one. Are you thinking about having push rims swapped from one set of wheels to another? Because there are sometimes compatibility issues there--different numbers of tabs and bolts (or rivnuts) at different intervals. You can't necessarily fit the push rims from a generic wheel set onto Spinergies, for instance. But if you're just thinking about tyre changes, the push rims don't have to come off for that at all.
            Thank you for bringing this up, QTiPi. I was just getting ready to reply to your other posts, too.

            So, let's say I buy those Twin-Stars from that site. They don't come with a tire and push rims already on them, correct? If not, which is what I assume, are you saying that chances are I will need to buy a second set of push rims for them, too? What's the easiest way to tell which push rims are compatible with which wheels before ordering them? Because, the push rims I'm looking at on that site don't specify any compatabilities.

            The tires, yes, that was my plan. I was hoping I could get a relatively nice set through the DME/insurance, and then just have them taken off the stock wheels and put on whatever I buy. If not, I would buy separate tires of course, but the former would be cheaper.

            Comment


              #51
              Originally posted by QTiPi View Post
              I don't have an Aero Z but have trialled one in the past (and should have gone for it) and am currently in the process of ordering a ZRA.

              Marathons ARE listed on the current Aero Z order form--top of page 6, '24" (540), 25" (559) and 26" (590) Schwalbe(R) Marathon Plus Evolution (Not available with Mag Rear Wheels)....$125'. That's them. $125 is a bit more than you'd pay for the tyres alone ordered from SportAid or somewhere, but they're not all that easy to fit so I'd be quite comfortable paying a bit extra to have TiLite do that. I think these would be great tyres for you as they're reasonably puncture-proof, black, with some tread but not too much, and high pressure. (You should look to invest in an appropriate tyre pump or air compressor if you don't have one already.)

              Your anxiety about this process is natural and most likely for the best. While many of the people working in the field genuinely want you to be delighted with your new chair, very few will actually take the time (and have the knowledge!) to get everything 100% right. You should take the time to learn how the measurements are done and do your own measuring, don't just believe that they know what they're doing. Perhaps they do, but there are enough bad apples that you shouldn't assume that YOUR apple is most likely a good one. (If you are happy with the length and geometry of the chair you currently use--or if you LOVE the demo chair in these respects--check out this info on Occupied Frame Length, which is a way of comparing chairs. https://picasaweb.google.com/1124921...?noredirect=1# You can request that TiLite include this measurement on your CAD so you can compare. If so, you'll need to instruct your DME what to ask for, as s/he won't know.)

              Sideguards are personal preference, but they aren't generally a bad idea. They do help to keep your clothes clean, especially in winter (some people use their guards only in winter), they give you a way of holding in extra fabric like a heavy coat, and they mean if you run a narrow chair (or you yourself get wider!) you can keep using the chair without a lot of rubbing against the wheels.

              Don't get push handles if you don't want or need them. Provided you get the 4" deep rigidizer bar, you can always buy aftermarket bolt-on push handles if you have an injury or something that means you're going to need to be pushed for a while. IMHO you should get this rigidizer bar anyway, because as others have mentioned it works better with solid backs, and also because there are other things you might want to bolt on to it which can't be bolted on to the rounded one. Eg if you use a FreeWheel it can be stored on a 'perch' on the rigidizer bar. (If you don't have a FreeWheel, do look into them. If you plan to use a FreeWheel, this should also factor into your choice of footrests.)

              If your insurance won't cover 'fancy' wheels, don't feel at all bad about getting the no-cost wheels (TiLite Shadows) with a view to buying the wheels you actually want from SportAid, BikeOn, Round Betty, or somewhere else online. Both Spinergy LX and Round Betty Dinos can be ordered with black hubs and spokes. With the Spinergies it's a special order and costs extra; with the Round Bettys it appears to be a no-cost option, and SportAid offers black-with-black Dinos as a standard option. In the meantime, the Shadows have a reasonably low-key black look, with matte black spokes and a black hub. The hub has a sticker you can probably remove without too much difficulty.

              Many folks working in this field have an unquestioned belief that 24" wheels are normal and suitable for all adults and larger wheels are only for "tall guys" or some other special group. As several of us smaller women on this board will tell you, there are other reasons for preferring larger wheels--like improved reach! If you have the opportunity to try bigger wheels before you pull the trigger on this purchase, I recommend it.

              Cushions are vital, both for health and for wheelchair fit. If you take measurements based on your existing cushion and then order the chair with a new cushion which is noticeably thinner or thicker, the fit of your chair will be off. This sounds blatantly obvious, but I've fallen afoul of OTs who think they can find me the right cushion AFTER the chair's arrived. If you're sticking with the same cushion you have currently, because it works for you and doesn't cause problems, then you can ignore this paragraph.

              I'm cheap. If I had your level of hand/arm function, I would choose from the no-cost wheel lock options and buy an alternative aftermarket if I didn't like them after a couple of months.

              I really recommend taking your time, double-checking everything, working on the assumption that the 'experts' mean well but aren't necessarily as expert as they make out, ensuring you have a paper trail so you can prove that, for instance, you did not want push handles and should not have to pay for them if they turn up, requesting your CAD and posting it here for comment.

              This is a difficult process and can be extremely frustrating--but not as frustrating as getting a shiny new chair that you can't or don't want to USE. Best of luck!
              Yeah, I saw they were listed, but I was originally looking for a solid tire. Everyone has been telling me that's a bad plan, though, so I am currently re-thinking it, haha. It just seems like there's a lot that could go wrong with air, even though I understand they are much smoother.

              Thank you for that link. I'm going to look at it shortly.

              Yeah, that's why I'm considering getting the side guards (even though I like the look better without them) because, having never used this particular chair before, I don't know how tight it'll be. As for the handles, yeah, I'm standing (figuratively speaking, of course) firm and not getting them, haha. I said I wanted the back bar in the beginning and I'll be damned if they don't get it. I was just using the handles as an example of how this has gone so far.

              If insurance doesn't approve it, I will definitely check out those sites. Thank you.

              As for the bigger wheels, that leads me to another issue I have: I haven't been able to try much, and won't be able to. I don't know if you saw earlier, but I'm 6'4'', so for either reasoning, I might like the bigger wheels, haha.

              If I ever get a call back, the first thing I'm bringing up will be getting my CAD. Thank you!

              Comment


                #52
                Trivia: I believe TiLite owns Out-Front (Who makes Shadow and Twin Star wheels as well as some pushrims and locks).

                Also, Tilite will not provide a CAD drawing until after a chair is formally ordered.
                Chas
                TiLite TR3
                Dual-Axle TR3 with RioMobility DragonFly
                I am a person with mild/moderate hexaparesis (impaired movement in 4 limbs, head, & torso) caused by RRMS w/TM C7&T7 incomplete.

                "I know you think you understand what you thought I said, but what I don't think you realize is that what you heard is not what I meant."
                <
                UNKNOWN AUTHOR>

                Comment


                  #53
                  Originally posted by User Name View Post
                  . . .Yeah, that's why I'm considering getting the side guards (even though I like the look better without them) because, having never used this particular chair before, I don't know how tight it'll be. . .
                  To check for comfortable/proper seat width/tightness, sit on the floor dressed as you would be normally (e.g., full pockets, jacket, etc.) with one hip against a door. Set a large book on end vertically against your other hip, and have someone measure your seated width (between the door and book).
                  Chas
                  TiLite TR3
                  Dual-Axle TR3 with RioMobility DragonFly
                  I am a person with mild/moderate hexaparesis (impaired movement in 4 limbs, head, & torso) caused by RRMS w/TM C7&T7 incomplete.

                  "I know you think you understand what you thought I said, but what I don't think you realize is that what you heard is not what I meant."
                  <
                  UNKNOWN AUTHOR>

                  Comment


                    #54
                    Originally posted by chasmengr View Post
                    Trivia: I believe TiLite owns Out-Front (Who makes Shadow and Twin Star wheels as well as some pushrims and locks).
                    You know, the more I think about it, the more it pisses me off.

                    They trotted this beautiful looking chair (save the colors, haha) out with all of this really nice stuff on it. It had really soft push rims, the tires were smooth, the wheels looked great, I was able to cross the entire room with one half-assed push. I loved it.

                    Not once do they mention that literally everything about it is not what you are going to receive, unless you're willing to pony up a lot of cash.

                    Can you imagine going to buy a car, and you test drive it, and you love it, and you tell them that is the care you want. And when it's delivered, you get a car that is kind-of-sort-of the car that you wanted, but without all of the things that made you love it in the first place, and all of the chances have been made at the dealer's discretion without asking for your input at all? And somehow you're in the wrong if you question the process?

                    It's wrong. Even if that's how they've done things for as long as wheelchairs have been sold, I just don't agree with it. Even if the changes being made are only cosmetic (which we both know isn't the case; different components change how the chair feels and works), it's still wrong because these things basically become a part of us. They need to represent us, and for that to happen, they need to look how we want them to look. Could they imagine dressing in an outfit they absolutely hated every single day of the week? I bet not.

                    Sorry for the little rant. I'm been hardcore researching this stuff for the past week and a half or so, and getting ignored by them so much, it just has me pissed off.

                    I really do appreciate all your (and everyone else) input, though.

                    Comment


                      #55
                      Originally posted by QTiPi View Post
                      Just thought I'd ask for clarification on this one. Are you thinking about having push rims swapped from one set of wheels to another? Because there are sometimes compatibility issues there--different numbers of tabs and bolts (or rivnuts) at different intervals. You can't necessarily fit the push rims from a generic wheel set onto Spinergies, for instance. But if you're just thinking about tyre changes, the push rims don't have to come off for that at all.
                      Great comment!

                      From Out-Front's order form: the Shadow and Gold Twin Star both use 6-pt tab mount handrims:

                      Click image for larger version

Name:	wheels.JPG
Views:	1
Size:	41.6 KB
ID:	2657949
                      Chas
                      TiLite TR3
                      Dual-Axle TR3 with RioMobility DragonFly
                      I am a person with mild/moderate hexaparesis (impaired movement in 4 limbs, head, & torso) caused by RRMS w/TM C7&T7 incomplete.

                      "I know you think you understand what you thought I said, but what I don't think you realize is that what you heard is not what I meant."
                      <
                      UNKNOWN AUTHOR>

                      Comment


                        #56
                        Originally posted by User Name View Post
                        You know, the more I think about it, the more it pisses me off . . .
                        Sorry for the little rant. . . .
                        I really do appreciate all your (and everyone else) input, though.
                        Yep.
                        No need to be sorry.
                        You're most welcome. We've all been there, which is why we're so eager and willing to help.

                        Note: You've only just begun to learn. I'm still learning. Life in a wheelchair needs to be as fun as possible - the equipment is part of us - it's our legs for heavens sake. ABs (Able Bodies) just don't get it (or very, very few do).

                        A properly configured chair will set you free beyond your wildest imaginings. Obtaining one is far more complex and personal than buying most anything else. It's taken me four years of tweaking a great chair to get it configured nearly perfectly. I'm actually a bit nervous about transferring all my adjustable-chair (AeroZ) tweaks/settings to a non-adjustable TR.
                        Last edited by chasmengr; 11 Aug 2014, 12:07 AM.
                        Chas
                        TiLite TR3
                        Dual-Axle TR3 with RioMobility DragonFly
                        I am a person with mild/moderate hexaparesis (impaired movement in 4 limbs, head, & torso) caused by RRMS w/TM C7&T7 incomplete.

                        "I know you think you understand what you thought I said, but what I don't think you realize is that what you heard is not what I meant."
                        <
                        UNKNOWN AUTHOR>

                        Comment


                          #57
                          Originally posted by chasmengr View Post
                          Also, Tilite will not provide a CAD drawing until after a chair is formally ordered.
                          The DME claims that nothing has been ordered yet, and was supposed to call me to go over stuff before doing so. Hopefully that is the case and if nothing else I can get that.

                          Thank you for letting me know the time frame, though.

                          Comment


                            #58
                            Originally posted by chasmengr View Post
                            Yep.
                            No need to be sorry.
                            You're most welcome. We've all been there, which is why we're so eager and willing to help.
                            Oh yeah, get this one, too.

                            So, I don't know if you read that story of all the stuff that's happened, but when he left the home visit, he said, "Your job in the next two weeks is to choose a color. That's all you need to do." Do you think he had any type of swatch he could show me, or pictures of how the colors actually look on a chair? Nope. He said, "Well, they change them a lot. You can probably find something online."

                            Holy shit.

                            Also, going back to the "showing off really nice chairs even though most people couldn't get it" thing for one quick moment, I just wanted to add that showing them off is fine. I even understand that they were probably sent that chair and didn't even purposefully put those components on it. But, be fair and honest and just tell people that those things are more, right up front. Don't let them fall in love with it and then just briefly gloss over it, worse yet, not say it at all.
                            Last edited by User Name; 11 Aug 2014, 12:09 AM.

                            Comment


                              #59
                              I edited my previous post while you were typing.
                              Chas
                              TiLite TR3
                              Dual-Axle TR3 with RioMobility DragonFly
                              I am a person with mild/moderate hexaparesis (impaired movement in 4 limbs, head, & torso) caused by RRMS w/TM C7&T7 incomplete.

                              "I know you think you understand what you thought I said, but what I don't think you realize is that what you heard is not what I meant."
                              <
                              UNKNOWN AUTHOR>

                              Comment


                                #60
                                Originally posted by User Name View Post
                                Oh yeah, get this one, too.

                                So, I don't know if you read that story of all the stuff that's happened
                                I did.
                                Originally posted by User Name View Post
                                , but when he left the home visit, he said, "Your job in the next two weeks is to choose a color. That's all you need to do." Do you think he had any type of swatch he could show me, or pictures of how the colors actually look on a chair? Nope. He said, "Well, they change them a lot. You can probably find something online."

                                Holy shit.

                                Also, going back to the "showing off really nice chairs even though most people couldn't get it" thing for one quick moment, I just wanted to add that showing them off is fine. I even understand that they were probably sent that chair and didn't even purposefully put those components on it. But, be fair and honest and just tell people that those things are more, right up front. Don't let them fall in love with it and then just briefly gloss over it, worse yet, not say it at all.
                                Yep . . . don't trust him!! He doesn't have a clue
                                Chas
                                TiLite TR3
                                Dual-Axle TR3 with RioMobility DragonFly
                                I am a person with mild/moderate hexaparesis (impaired movement in 4 limbs, head, & torso) caused by RRMS w/TM C7&T7 incomplete.

                                "I know you think you understand what you thought I said, but what I don't think you realize is that what you heard is not what I meant."
                                <
                                UNKNOWN AUTHOR>

                                Comment

                                Working...
                                X