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    My brother

    I am looking for some kind of powerchair for my brother will be 21 in June of 2012. He has a spinal cord injury. I think he is a C4/5. He suffered it about 3 years ago. He has a powerchair currently, but finds it difficult to use.

    He always complained of neck pain and usually likes to rest his neck. He can talk and speak fine not the best singer tho. Another problem he has is major muscle spasms and limited hand control ability making it very frustrating to use a joystick. Is there some kind of control system he could use that wouldn't involve using his hands? He usually likes to also have his phone with him, but has no were to really place it.

    I'm looking for the chair my of brother's dreams just to make his life a little bit easier. Do you have any suggestions for any kind of char that has tilt/recline that has all of the features I listed able?


    Thanks I hope you can help.

    #2
    What is your brother's insurance? I assume he is now on Medicare? If so, he needs to have a wheelchair evaluation by a PT or OT who is RESNA certified. They will determine what his specific needs are, and recommend a specific brand, model, and features. They will then write the medical letter of necessity for the wheelchair, which his physician must sign to submit to the insurance company for approval. Even if he has other insurance, many insurance companies use the same regulations as Medicare for durable medical equipment (DME).

    Only when it is approved should the chair actually be ordered. A chair like your brother needs could easily run $25,000 if you were to purchase it out of pocket.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

    Comment


      #3
      Originally posted by SCI-Nurse View Post
      What is your brother's insurance? I assume he is now on Medicare? If so, he needs to have a wheelchair evaluation by a PT or OT who is RESNA certified. They will determine what his specific needs are, and recommend a specific brand, model, and features. They will then write the medical letter of necessity for the wheelchair, which his physician must sign to submit to the insurance company for approval. Even if he has other insurance, many insurance companies use the same regulations as Medicare for durable medical equipment (DME).

      Only when it is approved should the chair actually be ordered. A chair like your brother needs could easily run $25,000 if you were to purchase it out of pocket.

      (KLD)
      Oh wow that is a bit surprising. His old chair we just got off the market. I don't know for how much. I am not sure what kind of insurance he is on or any of that information. So he would have to go through all of this to get a chair at low cost? I am not saying cost is a concern I just want what is best for my bro. Another concern is I have is his how tall he is, he is over 6 feet.

      Comment


        #4
        no that wont work getting one that hasnt been fitted for him especially. and it is really bad for his bottom in the long run.

        a chair made for him would be a easy for him to use, because his head will be supported right, and controls specific for his needs. they have sip and puff devices for people who cant use their hands at all, or my friend with Ms, has a set up that she uses only 2 fingers to control. her chair can raise up almost like she is standing, and it lays back so she can nap, or rest her bottom.

        Comment


          #5
          Horse... then cart.

          Meaning, first thing your brother needs is a proper evaluation. There are many different types of driver controls out there. I wouldn't even begin to recommend one without doing a full evaluation on your brother.

          You are being vague on his funding. If he has insurance or medicare, your first step is to go to a seating clinic to be evaluated. If (for whatever reason) you are paying cash, I still recommend a proper evaluation. You could get a therapist or rehab specialist (on the side) to make their recommendations for less $$ then going to a facility.

          Post where you are in the country and ask for your neighbors to make recommendations where or who to go to. If you are anywhere near So. California, I would be happy to meet you

          Comment


            #6
            Originally posted by jody View Post
            no that wont work getting one that hasnt been fitted for him especially. and it is really bad for his bottom in the long run.

            a chair made for him would be a easy for him to use, because his head will be supported right, and controls specific for his needs. they have sip and puff devices for people who cant use their hands at all, or my friend with Ms, has a set up that she uses only 2 fingers to control. her chair can raise up almost like she is standing, and it lays back so she can nap, or rest her bottom.
            Why would it be bad for his bottom in the long run and Yes, I have heard of the sip and puff before how that does that work? Also does it take a lot of energy to use? Also, how can you hook that up to a powerchair. I understand what you are saying and mean. What kind of chair does your friend have?

            As you can see I am pretty much clueless when it comes to this stuff.

            Originally posted by jakeyboy1 View Post
            Horse... then cart.

            Meaning, first thing your brother needs is a proper evaluation. There are many different types of driver controls out there. I wouldn't even begin to recommend one without doing a full evaluation on your brother.

            You are being vague on his funding. If he has insurance or medicare, your first step is to go to a seating clinic to be evaluated. If (for whatever reason) you are paying cash, I still recommend a proper evaluation. You could get a therapist or rehab specialist (on the side) to make their recommendations for less $$ then going to a facility.

            Post where you are in the country and ask for your neighbors to make recommendations where or who to go to. If you are anywhere near So. California, I would be happy to meet you
            Well, right now he has a joystick and he has some problems using it. He finds it a bit difficult to use when his hands aren't working right on a specific day. I mean we have good days and bad days. I suppose he should get evaluated then aswell. Also, we live in Pennsylvania.

            Comment


              #7
              does he have medicare? he can get evaluated at jefferson magee. or Doylestown hospital has a good group of physiatrist, that is the kind of dr that prescribes equipment and such.

              Comment


                #8
                Originally posted by jody View Post
                does he have medicare? he can get evaluated at jefferson magee. or Doylestown hospital has a good group of physiatrist, that is the kind of dr that prescribes equipment and such.
                I believe he does. I am not sure. I mean his current chair we just picked up online.

                Also, I have been looking at the Quickie Pulse 6, but it has joystick control.

                Comment


                  #9
                  his bottom is especially vulnerable to pressure sores since simply because he has a spinal cord injury. he has no muscle to pad over the bones, a person with sci has delicate skin that can break down. so changing positions often pressure relief and special seating are very important as pressures sores are a threat to life.

                  his chair will be paid for if it is prescribed by a proper Dr. What county do you live in? there are many here from pa, I lived there for 20 years until recently, so someone can offer suggestions to a good place for you to go.

                  Comment


                    #10
                    Originally posted by jody View Post
                    his bottom is especially vulnerable to pressure sores since simply because he has a spinal cord injury. he has no muscle to pad over the bones, a person with sci has delicate skin that can break down. so changing positions often pressure relief and special seating are very important as pressures sores are a threat to life.

                    his chair will be paid for if it is prescribed by a proper Dr. What county do you live in? there are many here from pa, I lived there for 20 years until recently, so someone can offer suggestions to a good place for you to go.
                    He never really gets pressure sores. I mean his chair has tilt so it can recline maybe thats why? Also the only real that annoys him is his muscle spasms and that joystick.

                    Comment


                      #11
                      welcome to care cure.
                      please tell your brother he is invited to join care cure and that this place is full of good people who know what his challenges are.

                      Also there is a dr here who is top notch, Dr Wise Young. ....if only we could clone him (kidding) and nurses who are wonderful and smart, as well to give advice, and make living more possibe and even enjoyable.

                      I have some questions if you dont mind,
                      when was your brother injured, and where did he go for care?
                      Does he see a Dr who treats people with spinal cord injury? an sci dr?
                      did he get any rehab, and last can he use a computer? there sip and puff computers, and voice programs so he can communicate easily even with low hand function.

                      thank you so much for looking after your brother like you are doing. you're a good brother.

                      Comment


                        #12
                        Originally posted by jody View Post
                        welcome to care cure.
                        please tell your brother he is invited to join care cure and that this place is full of good people who know what his challenges are.

                        Also there is a dr here who is top notch, Dr Wise Young. ....if only we could clone him (kidding) and nurses who are wonderful and smart, as well to give advice, and make living more possibe and even enjoyable.

                        I have some questions if you dont mind,
                        when was your brother injured, and where did he go for care?
                        Does he see a Dr who treats people with spinal cord injury? an sci dr?
                        did he get any rehab, and last can he use a computer? there sip and puff computers, and voice programs so he can communicate easily even with low hand function.

                        thank you so much for looking after your brother like you are doing. you're a good brother.
                        He was injured in 2008 after car accident. I was car that was following him. You know we were just teens and just driving around and we were going home after we went for a nice swim in the lake. This one driver basically hit him head on. Causing his truck to go off the road. Once I saw that they were going to hit I called 911 as fast as I could before it even happened. All I remember was help help. After that I couldn't tell you what happened. I believe he went somewhere in Philadelphia.

                        We have a little family doctor we go to all the time. My uncle tries to work with him all the time. He can speak fine he can talk all the time. I think sip and puff would be the best option for him. He doesn't use a computer all that often. He has no triceps and basically no flexing in his arms. He can use his index finger, but he finds it really difficult to use a joystick. Especially if he is having muscle spasms in his arms.

                        Comment


                          #13
                          I would guess he was at jefferson, and people say that is the best place. I found it to be wonderful as far as good care and good Dr's go.

                          I went there to be fitted for my braces, and other reasons.

                          It may be good to get a referral from his regular Dr to see a physiatrist there.
                          They will set it up in his Dr's office if you request it. then he can get set up with a sci doc that he should see every year or if he is having problems or changes. It's been a couple years since he was evaluated, and it really is important for him to be checked out by an sci doc once in a while.

                          does he have caregivers who check his skin every day? for redness or any start of a problem? if not, you might do some research on preventing pressure sores and such.
                          once a sore develops especially on the butt they are a pain to get rid of so careful prevention is important.

                          You can ask the nurses here anything, they are very good at keeping people here healthy.
                          I really hope you look in to getting your brother properly seated so he can get around as well as possible with his abilities.

                          also look at what is happening in the stem cell research and trials, who knows he may qualify for a trial somewhere and if he did His having a sci Doctor would be important to that too.
                          Last edited by jody; 21 Dec 2011, 3:14 PM. Reason: terrible spelling

                          Comment


                            #14
                            He may need something like this. SCI_OTR Is our forums seating specialist. He can give you examples are all sorts of chairs for different levels of injury. Good luck getting it figured out
                            C-5/6, 7-9-2000
                            Scottsdale, AZ

                            Make the best out of today because yesterday is gone and tomorrow may never come. Nobody knows that better than those of us that have almost died from spinal cord injury.

                            Comment


                              #15
                              Originally posted by rybread View Post
                              He may need something like this. SCI_OTR Is our forums seating specialist. He can give you examples are all sorts of chairs for different levels of injury. Good luck getting it figured out
                              Yes, I think that would be perfect. A lot of head support, good controls. He wouldn't really have to use the joystick then. Which is one of his biggest problems. I wonder if that foodrest could be moved or not like angled or something. Thats amazing.

                              Originally posted by jody View Post
                              I would guess he was at jefferson, and people say that is the best place. I found it to be wonderful as far as good care and good Dr's go.

                              I went there to be fitted for my braces, and other reasons.

                              It may be good to get a referral from his regular Dr to see a physiatrist there.
                              They will set it up in his Dr's office if you request it. then he can get set up with a sci doc that he should see every year or if he is having problems or changes. It's been a couple years since he was evaluated, and it really is important for him to be checked out by an sci doc once in a while.

                              does he have caregivers who check his skin every day? for redness or any start of a problem? if not, you might do some research on preventing pressure sores and such.
                              once a sore develops especially on the butt they are a pain to get rid of so careful prevention is important.

                              You can ask the nurses here anything, they are very good at keeping people here healthy.
                              I really hope you look in to getting your brother properly seated so he can get around as well as possible with his abilities.

                              also look at what is happening in the stem cell research and trials, who knows he may qualify for a trial somewhere and if he did His having a sci Doctor would be important to that too.
                              His skin looks amazing. I mean I think it looks really good It is not red at all. I mean my brother can eat pretty well. I mean also, the biggest problem is his muscle spasms. I mean if he would have like a major spasms that would push him forward he would basically be stuck. I mean he has a lot of trouble holding and touching things. He told me also that sometimes he feels like his toes are moving, but they aren't.

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