Announcement

Collapse
No announcement yet.

My brother

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    #16
    I'm sorry but I a having a difficult time believing you...a hospital would not just discharge a c4-5 spinal cord injured young man without a wheelchair, unless they might have put him in a manual and family decided, without understanding his needs, to put him in a chair he was not measured for...as for having a family doc, I would think a sci patient would be over his head, your brother is very, very lucky he has not had any skin issues, perhaps he could be admitted to a rehab hospital and take advantage of all they have to offer. Have not meant in any way to offend you, but this just sounds a bit far fetched...

    Comment


      #17
      Originally posted by madmaddmother View Post
      I'm sorry but I a having a difficult time believing you...a hospital would not just discharge a c4-5 spinal cord injured young man without a wheelchair, unless they might have put him in a manual and family decided, without understanding his needs, to put him in a chair he was not measured for...as for having a family doc, I would think a sci patient would be over his head, your brother is very, very lucky he has not had any skin issues, perhaps he could be admitted to a rehab hospital and take advantage of all they have to offer. Have not meant in any way to offend you, but this just sounds a bit far fetched...
      He has a powerchair, but I am looking for one to fit his needs a bit more. I know what he needs and his chair is fine, the biggest problem is operating it. His skin looks just as good as mine and I am fully functional. It is the same color and everything. You didn't offend me at all. I am completely new with this, and trying to understand it a bit more. I just want what is best for my brother. Him and I were never really close, but we are getting a lot closer now.

      Comment


        #18
        Or possibly this..

        https://www.carecure.net/forum/showthread.php?t=142155




        How a sip-n-puff works is described in this thread.

        Comment


          #19
          all the bellls and whistles that one.

          Comment


            #20
            Originally posted by SCI_OTR View Post
            Or possibly this..

            https://www.carecure.net/forum/showthread.php?t=142155




            How a sip-n-puff works is described in this thread.
            I know this perfect chair. How could I make something like this happen? Also, I was reading the thread several times I still don't know how the sip and puff really works still. I am still a bit confused and I have questions. Like how can it be hooked to the chair? Is it like a usb cord for a mouse to computer? Is it the same kind of concept?

            But, that chair would meet all of his needs.

            Comment


              #21
              Originally posted by Kylekenball View Post
              I know what he needs and his chair is fine, the biggest problem is operating it.
              Sounds like a contradiction to me. I've never said a chair is fine for an individual's needs if they are unable to operate it.

              Originally posted by Kylekenball View Post
              Also, I was reading the thread several times I still don't know how the sip and puff really works still.
              I'd be hard pressed to elaborate much more than I did in this post...

              https://www.carecure.net/forum/showp...35&postcount=3

              Other than to throw in the fact that sip-n-puff driving is programmed through the powerchair's electronics (provided the powerchair was ordered with higher-end expandable electronics). In other words, it's integrated into the firmware and can only be enabled/adjusted through specialized software or a hand held programmer by someone who knows what they are doing.

              Invacare models also require a separate sip-n-puff digital interface module (i.e a "black box") that the tubing plugs into. Permobil, Quickie, and Quantum require an LCD display similar to the display found on the sip-n-puff TDX SR in the above pic. These components contain the pneumatic switch that generates the digital switch input from the the sip-n-puff tubing attaches to.

              In other words, it's not a simple do it yourself add on. Depending on the specific configuration of his powerchair the entire driving system may need to be switched out.

              Originally posted by Kylekenball View Post
              I know this perfect chair. How could I make something like this happen?
              High tech systems like this are expensive and the decision about whether a powerchair needs to be configured for an alternative driving system versus a joystick is made at the time the powerchair is prescribed.

              Unlike custom ultralights, which many CC members have learned to spec out themselves using CC as a resource so they can bypass the local DME, a complex powerchairs such as this must be done with the collaborative involvement of a team of specialists.
              Last edited by SCI_OTR; 21 Dec 2011, 11:27 PM.

              Comment


                #22
                Originally posted by SCI_OTR View Post
                Sounds like a contradiction to me. I've never said a chair is fine for an individual's needs if they are unable to operate it.

                I think this would be fine for him. I mean, he has everything. If it has tilt and it has controls that don't involve use of the hands then he is good. I mean, he has a horrible time using a joystick. He complains about it a lot. To bad I can't go to a Walmart and pick this up.

                I'd be hard pressed to elaborate much more than I did in this post...

                https://www.carecure.net/forum/showp...35&postcount=3

                Other than to throw in the fact that sip-n-puff driving is programmed through the powerchair's electronics (provided the powerchair was ordered with higher-end expandable electronics). In other words, it's integrated into the firmware and can only be enabled/adjusted through specialized software or a hand held programmer by someone who knows what they are doing.

                Invacare models also require a separate sip-n-puff digital interface module (i.e a "black box") that the tubing plugs into. Permobil, Quickie, and Quantum require an LCD display similar to the display found on the sip-n-puff TDX SR in the above pic. These components contain the pneumatic switch that generates the digital switch input from the the sip-n-puff tubing attaches to.

                In other words, it's not a simple do it yourself add on. Depending on the specific configuration of his powerchair the entire driving system may need to be switched out.

                High tech systems like this are expensive and the decision about whether a powerchair needs to be configured for an alternative driving system versus a joystick is made at the time the powerchair is prescribed.

                Unlike custom ultralights, which many CC members have learned to spec out themselves using CC as a resource so they can bypass the local DME, a complex powerchairs such as this must be done with the collaborative involvement of a team of specialists.
                I understand what you are saying. So, I personally wouldn't to able to add a sip and puff device to a chair. It would have then be custom and by a professional?


                I really do apologize. I am really trying to learn and understand what you are saying. I mean I'm not really all that bright of a person. I have no real clue about powerchairs all that much.

                Comment


                  #23
                  how come you are againts taking him to get evaluated and proplerly fitted for seating that could make both your job and his job(living as well as he can) easier?

                  and does he have access to a computer and dragon voice activated software? some people who are quads, are able to use a touch pad, or use a chopstick with a laptop to type and use a computer.

                  Comment


                    #24
                    this poster makes no sense.
                    Wife of Chad (C4/5 since 1988), mom of a great teenager

                    Comment


                      #25
                      Originally posted by jody View Post
                      how come you are againts taking him to get evaluated and proplerly fitted for seating that could make both your job and his job(living as well as he can) easier?

                      and does he have access to a computer and dragon voice activated software? some people who are quads, are able to use a touch pad, or use a chopstick with a laptop to type and use a computer.
                      I suppose it would be the best option to get him evaluated. I guess that I'm scared that we are going to receive bad news or that he is not improving. But, like you said, he hasn't been in the 2-3 years. I suppose you are correct he should be evaluated and fitted for a chair for his safety.

                      Comment


                        #26
                        it isnt just about the chair, the average Dr doesnt know how to care for someone at his level.

                        I have a regular gp, and no sci doc, but their are none available to me where I live, and I am not as reliant on others for care as your brother is.

                        Your location makes available to you some of the best sci doctors and rehab in the country,
                        you dont need to be afraid of getting him evaluated. and you may find resorces you didnt know were available.

                        Good wishes and good luck to you and your family.

                        Comment


                          #27
                          Originally posted by jody View Post
                          it isnt just about the chair, the average Dr doesnt know how to care for someone at his level.

                          I have a regular gp, and no sci doc, but their are none available to me where I live, and I am not as reliant on others for care as your brother is.

                          Your location makes available to you some of the best sci doctors and rehab in the country,
                          you dont need to be afraid of getting him evaluated. and you may find resorces you didnt know were available.

                          Good wishes and good luck to you and your family.
                          Yes, I understand what you are saying. Also, I think my friend's truck wouldn't have been following his, I think he would have died. I mean my brother and I use to fight all the time. But, I really do care about him and I would like to the best of my ability to talk to my mother and get him to see a SCI doctor.

                          Comment


                            #28
                            its easy, just ask his Gp for a referral to a physiatrist next time you go to the DR.
                            it is done electronically. they may even set up the appointment for you.

                            Comment


                              #29
                              Im sorry but my bullsh!t meter is about to explode.

                              Comment

                              Working...
                              X