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    #31
    thanks! we are doing ours on wed the 8th
    Aspergers,hypotonic CP, Autonomic Issues.

    Disney OBSESSED family

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      #32
      Hi, Hopefully not too late for you but in general the one most used and recommended here is the handicare hippo and an even better one is the handicare rhino. However it is no longer available here in europe and only for US so you are in luck. It has tilt and goes up and down. It is often used with an x-panda seating system. Is an indoor/outdoor chair and really robust so kind of ticks all boxes. WE did come across a twister-cant remember proper brand and it lowered to the ground so child could play on grass. wish i had info at fingertips but don't. apologies for forgetting to send on info and good luck tomorrow.
      Not sure how your childs communication is like but the alex power chair which unfortunately appears to be adult can integrate a communication system into th.e controller. ( R.Net system compatible with omni plus communication system.
      Take care, Sonia.

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        #33
        Originally posted by noirin's mum View Post
        Hey Gordy, Havn't been on for a while, Loved the info about sit ski in scotland-very doable for us distance wise, glad you all loved it. and great idea about the scooter-i see your boy is a lot more confident than my girl-she still has anti-tippers-but they are going higher!

        Pity this forum didn't take off much-thought there were more of us out there.
        I've not been posting too much recently, but still reading lots!

        Scooter is still working really well. Managed to find a much better way of connecting the scooter to the footrest (a door hinge, as simple as that!). Now works really well on grass as well as tracks, and he can go scarily fast on sealed surfaces! I discovered someone else has a video on youtube using the same hinge mechanism...except he uses an even more powerful scooter!

        He does use anti-tippers, they are just tilted upwards when he uses the scooter (no danger of tipping when the weight of the scooter is attached!). Ti-lite's anti-tippers are pretty good at folding up out of the way really easily/quickly (which also helps if you want to put the chair in a car seat instead of the boot).

        Now looking into sit-skiing in real snow in New Zealand, hopefully this year...

        Also thinking about another chair (Icon looks interesting!), as he's growing far too quickly!

        And looking at getting some electric power added to his handcycle, now that I've realised how hard handcycling is (particularly uphill...).

        As for the forum not taking off, at least there is some info here for any new folk...I think we both know that the info would have been of some use had it been available for us when all this started...

        WCmom, sorry, but my experience with power chairs is nil (although my idea about the electrification of my son's handcycle could ideally be replicated on a wheelchair, but that's probably not a good recommendation for anyone else yet until I see if it will work!)...hope your assessment went well.
        Gordon, father of son who became t6 paraplegic at the age of 4 in 2007 as a result of surgery to remove a spinal tumour.

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          #34
          http://www.tricyclefetish.com/angele...ke-p-1535.html

          Small child's handcycle...might be useful for someone very young.

          More discussion here: /forum/showthread.php?t=201421
          Gordon, father of son who became t6 paraplegic at the age of 4 in 2007 as a result of surgery to remove a spinal tumour.

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            #35
            Freedom Cycles are awesome. They have funding for those who need assistance
            For those who are handy, build a Universal Exercise Cage
            Adaptive rock climbing walls for kids are also easy to install and relatively cheap
            -PM me if you want to see pictures

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              #36
              As some of you already know, my son now has a Firefly electric attachment. I've been saying how good it is, but thought I needed to provide some video evidence, so here goes:

              http://youtu.be/IKC6co9bLvs
              http://youtu.be/fUky4vJj52s
              http://youtu.be/q8glvYwc4T8

              Enjoy...I've been having fun with a new GoPro camera...can you tell?!?
              Last edited by Gordy1; 14 Apr 2013, 10:16 AM.
              Gordon, father of son who became t6 paraplegic at the age of 4 in 2007 as a result of surgery to remove a spinal tumour.

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                #37
                Hase is a German bicycle and tricycle company. They make hand cycles and trailers for kids, but one particularly interesting bike is a tandem bike with a front hand cycle and a rear pedal position so an AB parent can cycle together with a non-AB kid.
                Played with bombs- No SCI, Brain Damage enough that I require a chair and a caregiver.

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                  #38
                  Great video's Gordy. He really does go fast on that and get around great. I can see why he might make you nervous sometimes. Also looks like you are enjoying your new camera. Thanks for posting.
                  Partner of an incredible stroke survivor. Limitations: hemiparesis and neglect (functional paralysis and complete lack of awareness on one side). Equipment: TiLite ZRA 2 and 2GX, Spinergy ZX-1, RioMobility Firefly. Knowledge: relative newbie for high-level equipment (2012), but willing to try to help others who are new with similar limitations (definitely not a guru, but inquisitive).

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                    #39
                    Any feedback? It has been recommended that my daughter, who is 9 and has UCMD, start using a power-assist wheelchair like the e-motion that I have linked to here. We have been using a medical stroller to get her around, but the time has come to make the full transition into a wheelchair, and the docs would like to see her in this, rather than a joystick-controlled chair. She still has a lot of upper body strength, and they want her to get some exercise by pushing herself around in a chair rather than just using a joystick. Does anyone have any experience with these or a similar product? Any input is appreciated...thanks!

                    http://www.frankmobility.com/e-motion.php

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                      #40
                      Many people here are e-Motion users. Just be aware that the wheels will weigh a lot with the e-Motions in place, and if the batteries die, pushing that chair manually will be VERY difficult, esp. for a 9 year old.

                      What brand of manual chair does she have, or is she getting?

                      Many people here (and many of my clients) like the Smart Drive better than the e-Motion for add-on power assist. You should take a look at that, and ideally have a trial of use, before you decide which way to go.

                      http://max-mobility.com/

                      It is also important that she be taught correct wheelchair pushing ergonomics, ideally by a therapist. There is a lot of evidence that wheelchair set up and learning the proper ergonomic techniques goes a long way to helping preserve shoulder integrity and prevent should pain long-term with wheelchair use. Here is an excellent resource on this:

                      http://www.pva.org/atf/cf/%7BCA2A0FF...Upper_Limb.pdf

                      (KLD)
                      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                        #41
                        Thanks for that link, that product looks wonderful. I gave them a call about that Smart Drive earlier today, hopefully I will get a call back soon, so I have some kind of comparison to the e-motion she tried the other day. Like you had mentioned, the weight of those wheels kinda raised an eyebrow for me here, and I'd love to have a better option.

                        *sigh* Ergonomic techniques huh? Ugh. So much I hadn't thought of...and I'm sure there's a whole lot more I'm not thinking of just yet. Your input is really appreciated, thank you for that...

                        If anyone else that uses the e-motion or any other system wants to chime in with the pros and cons of what they've found, please...feel free!

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                          #42
                          Hi there! Like it was stated before, a big drawback to the E-Motion wheels is that they weigh a whole lot. The Smart Drive system is great, but some clients who have come in with it mention that you must break on the wheels pretty hard to stop once it gets going. There's a newer system out there called the Tailwind that seems to be pretty good.
                          http://www.clintonrivermedical.com/
                          As far as personal additions to wheels, if it hasn't been mentioned already, light up scooter (Or skateboard/roller blade) wheels work great in place of castors!
                          http://www.amazon.com/Light-up-Scoot.../dp/B0026LNDFU
                          The resource posted by SCI-Nurse is great regarding the shoulder ergonomics. Too many times have we seen clients come in without knowledge of how to protect their shoulders! All else fails, work the reverse movements of pushing wheels. Hope this helps!

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                            #43
                            Thanks for that! I was on the phone today with the rep for the Tailwind, and it seems like a perfect chair for her. The features on it are great , and he went over it all with me for about a half-hour...REALLy nice people there...

                            Over the next few days we are going to figure out how to get a meeting together so my daughter can try it out...I'm really liking this one from what I'm seeing.

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                              #44
                              If she only needs power assist in some situations, another to consider might be the Spinergy ZX-1. It connects to the camber tube of a manual chair to make it work like a joystick controlled power chair and can be easily dis-connected when not needed. Here is a video:



                              There are a few of us on the forums who have it, and you can find more information by searching "ZX-1". Spinergy put it on the market last summer, but still does not have a lot of information on their website. You can get it from an on-line dealer like Bike-on.com or Sportaid.com.

                              Originally posted by Fast Joey View Post
                              If anyone else that uses the e-motion or any other system wants to chime in with the pros and cons of what they've found, please...feel free!
                              Partner of an incredible stroke survivor. Limitations: hemiparesis and neglect (functional paralysis and complete lack of awareness on one side). Equipment: TiLite ZRA 2 and 2GX, Spinergy ZX-1, RioMobility Firefly. Knowledge: relative newbie for high-level equipment (2012), but willing to try to help others who are new with similar limitations (definitely not a guru, but inquisitive).

                              Comment


                                #45
                                Thanks for that link, that one looks great for down the road sometime, but not just yet. Docs don't want her a using a joystick...not until it is absolutely necessary. Plus, we need a chair that will fold up small enough to get in our vehicles.

                                I have an appointment to have her try the Tailwind on 5/5, they are bringing it straight to me at my home to try, which I thought was great of them. As for the Smartdrive, they didn't seem too happy to try and help, they wanted me to drive two hours to go see it...ugh. No thanks.

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