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    I'd say that ZX1 Is more quad friendly, I don't think that the smart drive could be operated by any quadriplegic
    C5/C6 Complete since 08/22/09

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      Jenn, just suck it up and go out and buy a ramp van! I was about 55 (11 years ago) when I got sick of taking the chair apart and hauling my ass across the seat & pulling the chair in behind me. as much as I hated the idea, I bought a used Grand Caravan from a dealer in Georgia, and have never looked back. My life (as far as transport) is much simpler now.
      Don - Grad Student Emeritus
      T3 ASIA A 27 years post injury

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        I know .. holding out for another five years at least - hopefully ten. Gotta temper that cost with still working, paying mortgage etc.
        Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

        T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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          That has been exactly our thinking Patrick. We traded in a Permobil Corpus C350 powerchair for a TiLite ZRA with a ZX1. Although we don't have the ZX1, I don't think we will regret the decision. For people like my husband, who has hemiparesis, this opens up a whole new world of possibilities for him.

          We got a really good budget for equipment, because even with all the bells and whistles, this combination was much cheaper for the government than a powerchair, and also to maintain.

          We had hoped to get a FreeWheel, but can't find any reasonable way to attach it. I think my husband is going to really need it to manage cobblestones and brick roads. I've been looking into other possibilites, and there just aren't any out there that I can find. If you are curious, please see our webpage: All-Terrain Third Wheel Options (the bottom half shows what is on the market currently)

          Last night I went through our budget again and realized that we can probably (just) afford a Rio Mobility Firefly along with a ZX1. The idea is to use the ZX1 for some situations and the Firefly for others. My husband needs assistance for transfers with the car, and there may be times when it's easier for me to deal with the Firefly (much lighter). What is also nice is that we will be able to use the Firefly with a 2GX folding chair, which is not possible with the ZX1.

          I'm also hoping to be able to use the attachment for the Firefly to make a third wheel attachment for use with the ZX1. Probably it will be best to buy a completely separate attachment for it if we figure soemthing out, but this will give us something to work with while we try to figure it out.

          Here are some very rough (angles are wrong) Photoshopped images with the Rio Mobility Firefly in normal power mode and a mockup as a third wheel all terrain wheel for use with the ZX1 power-add on. Of course, all the details will need to be figured out, but this is to give a rough idea of what I am thinking about.


          Originally posted by Patrick Madsen View Post
          Sure beats a 30K powerchair weighing hundreds of pounds lol. Considering what those power wheels with their limitations and weight cost, the ZX isn't that far out of line. Spinergy is like any other company; they'll gouge us for whatever they can get.

          If power is something you need yet reluctant to give up the luxury of a lightweight manual; the ZX is, imo, the way to go. I can't say enough about the ease and simplicity of mine. It is so powerful going over grass or loose gravel. When adding a Freewheel to mine, it has nver been stuck, even in shallow loose snow.
          Last edited by elarson; 30 May 2013, 5:26 PM. Reason: fixed typo's / links
          Partner of an incredible stroke survivor. Limitations: hemiparesis and neglect (functional paralysis and complete lack of awareness on one side). Equipment: TiLite ZRA 2 and 2GX, Spinergy ZX-1, RioMobility Firefly. Knowledge: relative newbie for high-level equipment (2012), but willing to try to help others who are new with similar limitations (definitely not a guru, but inquisitive).

          Comment


            Or from what I hear, people with hemiparesis (hemiplegia, once sided paralysis). That is what is so cool about the ZX1.
            Originally posted by Mac85 View Post
            I'd say that ZX1 Is more quad friendly, I don't think that the smart drive could be operated by any quadriplegic
            Partner of an incredible stroke survivor. Limitations: hemiparesis and neglect (functional paralysis and complete lack of awareness on one side). Equipment: TiLite ZRA 2 and 2GX, Spinergy ZX-1, RioMobility Firefly. Knowledge: relative newbie for high-level equipment (2012), but willing to try to help others who are new with similar limitations (definitely not a guru, but inquisitive).

            Comment


              I really hope you end up with a system that works exceptionly well for you as I don't believe anyone has worked so hard weighing their vast number of options and waited so long through so many changes to the designs and costs of the equipment you so desperately need.

              Unfortunately I require a powerchair but am very fortunate to know that I can purchase an excelent, barely used Permobil with all the bells and whistles on it, throw on a set of snow tires and for 5 or 6 grand, drive around 20 miles at 6 miles an hour or so almost anywhere I want. But everyone has different needs and abilities.

              The absolute best of luck to you folks.
              Last edited by forestranger52; 26 May 2013, 8:04 PM.
              C 5/6 Comp.
              No Tri's or hand function.

              Far better it is to try mighty things, to win glorious triumphs, even though checkered by failure. Than to take rank with those poor spirits who neither enjoy much or suffer much, because they live in the grey twilight that knows neither victory or defeat.

              Teddy Roosevelt

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                Originally posted by lynnifer View Post
                The one thing about the ZX-1 though is that it weighs too much for me to be able to lift into the trunk of my car ... isn't it 70lbs?

                The Smart Drive is 11lbs.
                Thats not total weight, there are 2 parts to the smart drive and together they're about 20 lbs. The heavier part is around 11 with the other around 8-9 lbs.

                Same issue is a major one for me, I can't lift something that weighs 70's and I can't afford a vehicle to transport it (or a powerchair.)
                Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

                I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

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                  Originally posted by elarson View Post
                  We had hoped to get a FreeWheel, but can't find any reasonable way to attach it. I think my husband is going to really need it to manage cobblestones and brick roads. I've been looking into other possibilites, and there just aren't any out there that I can find. If you are curious, please see our webpage: All-Terrain Third Wheel Options (the bottom half shows what is on the market currently)

                  Last night I went through our budget again and realized that we can probably (just) afford a Rio Mobility Firefly along with a ZX1. The idea is to use the ZX1 for some situationas and the Firefly for others. My husband needs assistance for transfers with the car, and there may be times when it's easier for me to deal with the Firefly (much lighter). What is also nice is that we will be able to use the Firefly with a 2GX folding chair, which is not possible with the ZX1.

                  I'm also hoping to be able to use the attachment for the Firefly to make a third wheel attachment for use with the ZX1. Probably it will be best to buy a completely separate attachment for it if we figure soemthing out, but this will give us something to work with while we try to figure it out.
                  Have a look here: http://www.youtube.com/watch?v=uiPEFtYDP4Y

                  This attachment would be fairly easy to make by someone with basic welding skills or maybe by a bike shop.

                  The website here: http://www.hopp.lv/ Does not seem to have a link to purchase or see it in more detail, but I don't speak Latvian so maybe it is in there somewhere.

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                    For those with cars, it would be really simple just to either buy or have a small rack made for it. the rack could be like one for a scooter or made smaller. The machine is fairly narrow.

                    There shouldn't be a problem attaching the Freewheel to a Tilite E. If it's a folder, I think Pat has figured out a desing for one. It sure would make going over cobble stones much easier on the rider and the ZX.

                    I'm concerned with your husband being hemiparisis handling a firefly safely. With the ZX he has more control because of where the controls is located. With a firefly it takes more strength and balance to steer it.

                    Comment


                      Thank you forestranger52. I just cried when I read this. It's 03:00 in the morning and I've been up late all week trying to sort out options. I sometimes wonder if it is just me, or are the solutions we are looking for just so impossible? I refuse to believe that, and it really helps to have some positive empathetic encouragement.

                      Certainly stroke survivors with hemiparesis/hemipleigia are not so uncommon, but for some reason the equipment market does not consider it worthwhile to find solutions for this group. Here are the numbers for strokes from the CDC:
                      Every year, more than 795,000 people in the United States have a stroke. About 610,000 of these are first or new strokes. One in four are recurrent strokes.
                      I could not find any equavalent stastics for SCI, but I have to believe that we are not alone in the stroke community and that it is a significant number of people not getting the equipment they need. Unfortunately, I've never found any good equipment sites in the stroke or hemiparesis/hemipleigia community, and so really appreciate all the help and support from the SCI community (thank you all!).

                      Being paralized sucks, whether it is from a certain point in your body vertically in the case of SCI, or horizontally in the case of stroke. My husband had strokes after his intestine twisted and then erupted at the age of 47. Unfortunately, I think most equipment for stroke survivors is based on someone being elderly and frail before they had their strokes. That is just not always the case, and it is becoming more extreme as more and more even younger people have strokes.

                      BTW, Well done that you can get a "barely used Permobil with all the bells and whistles on it, throw on a set of snow tires and for 5 or 6 grand". How the process works in many countries here in Europe make that pretty much impossible.

                      Originally posted by forestranger52 View Post
                      I really hope you end up with a system that works exceptionly well for you as I don't believe anyone has worked so hard weighing their vast number of options and waited so long through so many changes to the designs and costs of the equipment you so desperately need.

                      Unfortunately I require a powerchair but am very fortunate to know that I can purchase an excelent, barely used Permobil with all the bells and whistles on it, throw on a set of snow tires and for 5 or 6 grand, drive around 20 miles at 6 miles an hour or so almost anywhere I want. But everyone has different needs and abilities.

                      The absolute best of luck to you folks.
                      Partner of an incredible stroke survivor. Limitations: hemiparesis and neglect (functional paralysis and complete lack of awareness on one side). Equipment: TiLite ZRA 2 and 2GX, Spinergy ZX-1, RioMobility Firefly. Knowledge: relative newbie for high-level equipment (2012), but willing to try to help others who are new with similar limitations (definitely not a guru, but inquisitive).

                      Comment


                        Thanks Jeff B. Unfortunately that does not meet most of our requirements. We also have a cantilever frame (ZRA), which would make that pretty much impossible.

                        To be quite honest, I just also can't see doing that to a beautiful titanium wheelchair.

                        Originally posted by Jeff B View Post
                        Have a look here: http://www.youtube.com/watch?v=uiPEFtYDP4Y

                        This attachment would be fairly easy to make by someone with basic welding skills or maybe by a bike shop.

                        The website here: http://www.hopp.lv/ Does not seem to have a link to purchase or see it in more detail, but I don't speak Latvian so maybe it is in there somewhere.
                        Partner of an incredible stroke survivor. Limitations: hemiparesis and neglect (functional paralysis and complete lack of awareness on one side). Equipment: TiLite ZRA 2 and 2GX, Spinergy ZX-1, RioMobility Firefly. Knowledge: relative newbie for high-level equipment (2012), but willing to try to help others who are new with similar limitations (definitely not a guru, but inquisitive).

                        Comment


                          I forgot about the ZRA frame. It might still be workable if you used four push to lock brake brackets mounted to the frame under the seat to hold the outside rails of the bracket. The whole bracket could then be easily removed with an Allen key.

                          It could also be made in unpainted aluminum with a more attractive spoked wheel.

                          It's too bad the options on your web page are so overpriced. Some of them look like they would work well but how they can justify $1000 plus for some aluminum tubes, brackets and a small bike wheel is beyond my understanding.

                          Comment


                            Originally posted by elarson View Post
                            Unfortunately, I think most equipment for stroke survivors is based on someone being elderly and frail before they had their strokes. That is just not always the case, and it is becoming more extreme as more and more even younger people have strokes.
                            A friend of mine actually had a stroke as a baby. As a result she's never had any use of her left arm, which is contracted with her elbow at about a 90 degree angle. She's also had some issues with her left leg being shorter and some structural problems (not sure if they're related to the stroke as well) and last year had to have a bunch of surgeries. She was really panicked about how to get around after the surgeries, and asked me for a lot of advice. Some of the advice I gave her I got from reading your experiences. She had never even thought of propelling a wheelchair with one hand and one foot for example.
                            Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

                            I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

                            Comment


                              Originally posted by lynnifer View Post
                              So for a person who breaks down their chair like I do ... unreasonable to take to the mall or any place where I expect to wheel some distance.

                              Darn.
                              If I was a para I would be leaning more towards the smartdrive, especially if I drove a car. You just need a bit of help sometimes. Carry a small bungee cord and you can sling it up out of the way under your chair when you don't need it or it runs out of power or breaks. If that happens with ZX1 you have to get somebody strong enough to move it for you to get it to the shop ( I still want one though). I can't see a way to take the smartdrive on and off by myself so it is of limited use to me.

                              Just a freewheel gives you a ton of coast on smooth flat surfaces like the mall. One good push will take you the width of a storefront or more As a para you can easily take it off if you are in a tight store and hang it on the perch. It will more sidewalk and parking lot speeds faster as well and is pretty good on lawns for visting friend's bbqs etc.

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                                Originally posted by Patrick Madsen View Post
                                For those with cars, it would be really simple just to either buy or have a small rack made for it. the rack could be like one for a scooter or made smaller. The machine is fairly narrow.

                                There shouldn't be a problem attaching the Freewheel to a Tilite E. If it's a folder, I think Pat has figured out a desing for one. It sure would make going over cobble stones much easier on the rider and the ZX.
                                For me I just don't have the money for a small rack. I'm going to be trying to get the power assist and a lift (speedilift, doesn't require any structural vehicle change) covered through vocational rehab. And if they don't cover it I'll be in a bit of a catch 22, unable to go back to school or hold down a job without being more independent, and unable to purchase my own products for increased independence without a job.

                                I could have fought for a powerchair when I was getting my chair, but I wanted increased activity and independence and it wouldn't have given either since I'd be stuck at home with no way to transport. The DME also said I wouldn't have been able to get one covered if I'd wanted since medicaid only cares about in home use. I do keep my eyes open for a donated powerchair that would be functional to walk the dogs, maybe get to the close grocery store, and possibly use paratransit for special outings. But paratransit is too expensive (and the time adds an additional problem, they say to prepare 90 minutes per transit trip) for regular use.

                                She has a ZRA with flip up footrests, so the standard mount won't work. And Pat just said the other day that the new folding mount wouldn't work with a ZRA. They have a folding tilite as their backup chair, but she's been trying to find a solution for the ZRA.
                                Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

                                I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

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