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    Keep updating Zoki.

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      Originally posted by zoki83 View Post
      Guys keep your eyes out for Melbourne in terms of chronic SCI research. Here we now have Dr. Davies and his team at the Florey, along with the work that StepAhead is doing (I am actually on the board of that organisation). It will be interesting to watch the competition between these two groups. As for the people that have all of a sudden think that Decorin does not work, all I will say is that Dr.Davies main focus right now is on his Decorin work, and if people have seen his result with astrocytes, you only need to think a little logically to figure out why he is focusing on something else when astrocytes showed such good results! I can't say anything else...

      Zoki, a question ...I have been following stepaheads website for years, still periodically checking it but there hasn't been much updated info on that site for years and for the "current research projects" pages: the dates for completion have all came and went with no news...I get their e-newsletter but their website is horribly neglected. Can anything be done about that?
      "That's not smog! It's SMUG!! " - randy marsh, southpark

      "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


      2010 SCINet Clinical Trial Support Squad Member
      Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

      Comment


        Originally posted by GRAMMY View Post
        Looks like Australia will be the new chronic sci research mecca.
        You are being facetious?

        Comment


          Yes, I guess so. To spell it out again...people here donated a great deal of money thinking a chronic rat experiment was going to take place for proof in principal of a therapy and in nearly 8 years from this thread inception it never did. Davies now relocates and winds up in the land down under where Giles Plant has left to come to Stanford and reported on the efficacy of Decorin a year and half ago. In this latest study, Dr. Giles Plant of Stanford showed Decorin infusion did improve tissue sparing, reduced spinal tissue cavitation and increased transplanted cell survivability as compared to controls... but disappointing were the results that showed Decorin did NOT increase axonal outgrowth from that achieved by human bone marrow stromal cells. (That's not good news for those awaiting a chronic therapy containing Decorin.) I highly doubt it will suddenly become a great interest for a "chronic" therapy given those results. The Aussie's spent $936,000 over 3 years for that project.

          If it held more promise this past decade there would be more than two labs (1 patent holder doing tiny cuts on acute model experiments & one doing un-replicated student projects for chronic showing this protein has restricted effects on the promotion of axon growth and would require other combined NTF treatments). We have yet to ever see a Davies "chronic" lab experiment, but maybe they'll see it suddenly happen in Australia (it's just that we never saw it happening in the USA). It'll take more than a lab relocation package to get me excited about a Decorin therapy for chronic. I think the whole Decorin piece was overblown and I'm doubtful at this point that anything will ever come of it (therapy wise) from Australia or the UK either one... http://www.ncbi.nlm.nih.gov/pubmed/23867131
          Last edited by GRAMMY; 16 Jan 2015, 2:18 PM.
          http://spinalcordresearchandadvocacy.wordpress.com/

          Comment


            Thank you so kindly for giving me such an insight into the work that has been done! I apologise for posting such nonsense, as how could I be stupid enough to give a very little insight into what is happening down here (thats if anything at all is happening, since it is not in the mighty USA!) After this post I will ban myself from this forum simply because I post utter stupidity! Goodluck to all and all the best!

            And Giles Plant of Stanford? I never knew he went back A SECOND TIME? When did this happen? Lol

            Comment


              Originally posted by zoki83 View Post
              And Giles Plant of Stanford? I never knew he went back A SECOND TIME? When did this happen? Lol
              Yes, Lol for sure. Here's your sign.

              (Current Research) Project 1 Completion: November, 2010 (50 months ago)

              Giles Plant Laboratory Stanford School of Medicine: Neurosurgery
              http://spinalcordresearchandadvocacy.wordpress.com/

              Comment


                Originally posted by GRAMMY View Post
                Yes, I guess so. To spell it out again...people here donated a great deal of money thinking a chronic rat experiment was going to take place for proof in principal of a therapy and in nearly 8 years from this thread inception it never did.
                ...
                Do you think people would have the right to ask to get thier money back?

                Paolo
                In God we trust; all others bring data. - Edwards Deming

                Comment


                  Originally posted by zoki83 View Post
                  Thank you so kindly for giving me such an insight into the work that has been done! I apologise for posting such nonsense, as how could I be stupid enough to give a very little insight into what is happening down here (thats if anything at all is happening, since it is not in the mighty USA!) After this post I will ban myself from this forum simply because I post utter stupidity! Goodluck to all and all the best!

                  And Giles Plant of Stanford? I never knew he went back A SECOND TIME? When did this happen? Lol
                  I think I know how you feel. LOL!

                  Paolo
                  In God we trust; all others bring data. - Edwards Deming

                  Comment


                    Originally posted by paolocipolla View Post
                    Do you think people would have the right to ask to get thier money back?

                    Paolo
                    No. Donations, gifts and contributions were made without strings being attached. There was no binding agreements. And why not pose your customer service question to zoki83 since they just announced that you are getting what you donated money for down in Australia?

                    Zoki83 knows how you feel and could surely check out how the extended warranty cards read at Foley for you. She's wanting to post here about the new competition between StepAhead and the Foley group with Davies leading the way on a Decorin sci therapy. (It's not about guarantees on your donated money to Davies from long ago Paolo. Isn't it about time to finally let those pennies go or must you always thrive on revenge and hatred for the world?) Get over it already.

                    Last edited by GRAMMY; 20 Jan 2015, 2:36 AM.
                    http://spinalcordresearchandadvocacy.wordpress.com/

                    Comment


                      I would imagine they spent the money

                      Originally posted by paolocipolla View Post
                      Do you think people would have the right to ask to get thier money back?

                      Paolo

                      Comment


                        Originally posted by GRAMMY View Post
                        Why not pose that customer service question to zoki83 since they just announced to you that you are getting what you donated money for down in Australia?
                        I asked you because I wasn't sure about what you meant to say. If you prefer not to answer it's ok.

                        Paolo
                        In God we trust; all others bring data. - Edwards Deming

                        Comment


                          Originally posted by c473s View Post
                          I would imagine they spent the money
                          Yes, his donation was probably spent long ago.
                          http://spinalcordresearchandadvocacy.wordpress.com/

                          Comment


                            Originally posted by paolocipolla View Post
                            I asked you because I wasn't sure about what you meant to say. If you prefer not to answer it's ok.

                            Paolo
                            You don't think I said what I meant to say? I'm always as clear as mud. I answered but perhaps then it's more about me not saying something you're wanting to hear as usual. You're at least consistent so I always know the very next ploy and your same old game plan.

                            No, the community doesn't need sci orgs assigned to do some kind of a donation retrieval servicing for you. (Yes, as usual I can already see that next brilliant notion coming from a mile away in your next post to me so I'll cut to the chase. You can forget about assigning your complaint to others to take care of. I don't have time nor interest). However, if you're one to insist your personal citizen rights were violated and feel the need for financial restitution after all these years, it would behoove you to just pay for a private attorney in Italy to assist you on how best to retrieve your contribution and exert whatever rights you have down in Australia. That's what you pay attorney's for. It's not of interest nor the responsibility of a non-profit sci org volunteer to take care of these kinds of complaints for you nor create scorched earth actions for the future of this community. It makes no sense to be destructive and waste time. Start your own sci org to assign your silly missions to.

                            The Davies project proposals had never been run past a scientific advisory board and there was never any signed agreements nor oversights of your contribution in the first place. You made a free will contribution, gift or donation over the internet. It turned out to be an unfortunate situation but it's over now and people learned a lot from what happened many years ago.

                            Son, common sense simply dictates that you best get real busy making a case for yourself with substantial evidence of wrong doing if you're going to insist on making a big stink about him owing you a refund from Australia. For starters you can go find copies of your statue of limitations, copies of the research proposals with appropriate dated signatures, equipment/pharmaceutical and live animal inventory, quarterly data reports, final peer reviews, financial transaction receipts, pertinent publications/declined journal papers, email exchanges, lab notices and employee schedules for your attorney if you feel the need for vindication. You could do all of that as a project to kill some time for shits and giggles if you have nothing else to do in life but chase about doing these ludicrous missions of havoc.
                            Last edited by GRAMMY; 23 Jan 2015, 3:57 PM.
                            http://spinalcordresearchandadvocacy.wordpress.com/

                            Comment


                              Originally posted by GRAMMY View Post
                              You don't think I said what I meant to say? Perhaps it's about me not saying what you want to hear.

                              My post wasn't about your donation or trying to predict what your rights should be when making a donation. However, if you have concerns about your citizen rights or financial restitution you feel you are due from someone, then it would obviously be best for you to contact an attorney in Italy to assist you on how to retrieve your donation from a resident now living in Australia.
                              I'm not a lawyer Paolo but I would suggest that you retain an Italian, Australian and a U.S. attorney. Maybe you should get an international attorney to manage your team of lawyers.

                              Comment


                                Originally posted by zoki83 View Post
                                Thank you so kindly for giving me such an insight into the work that has been done! I apologise for posting such nonsense, as how could I be stupid enough to give a very little insight into what is happening down here (thats if anything at all is happening, since it is not in the mighty USA!) After this post I will ban myself from this forum simply because I post utter stupidity! Goodluck to all and all the best!

                                And Giles Plant of Stanford? I never knew he went back A SECOND TIME? When did this happen? Lol

                                When you realize you have swallowed the bait hook, line and sinker please come back and let us know! If Davies proves us Americans to be ungrateful jack-asses please feel free to rub it in.

                                Comment

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