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How close are they to a cure?Question for an MD or Nurse or anyone who might know

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  • How close are they to a cure?Question for an MD or Nurse or anyone who might know

    I know there is still alot of testing being done. I have read stories of different types of treatment. I also know that politics is slowing it in the U.S. I am wondering, have they found a cure and we just can't use it yet or are they not sure what will work? Also, there have been different time frames for a cure mentioned. Are we looking at a matter of a few years or are we talking decades? I know these sound like silly questions that there is no answer to, but some things I read sound so sure of a cure soon and others say we have so far to go.

  • #2
    Better find yourself a nice chair and something good to watch, cuz
    it's gonna be a while.

    Comment


    • #3
      the question is better asked, "when will they release the cure?"
      enough research has been done to reverse paralysis in chronic injury.

      Comment


      • #4
        Originally posted by Dr. Young on July of 2004:

        If funding were made available, I think that some of third generation therapies will be available as soon as 8 years from now. That would make it 2012.
        __________________________________________________ ___________

        Here's the link:

        /forum/showthread.php?t=19747


        In 2006, Dr. Young indicated efficacy (proof of concept) could occur in the next 3 years (2009). Dr. Guest with the Miami Project indicated proof of efficacy could occur within the next 5 years (2011).

        Sometimes I think this forum should be called the Care-Cure-When.

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        • #5
          2007+8=2015

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          • #6
            Dr. Young also mentioned, that he thinks a cure will be here sooner rather than later, did many of you miss that part?
            A good friend is someone who will come to bail you out of jail. A TRUE friend is the guy sitting next to you behind the same set of bars saying, "boy we sure f*cked up this time huh?"

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            • #7
              Originally posted by Rollin Rick
              Dr. Young also mentioned, that he thinks a cure will be here sooner rather than later, did many of you miss that part?
              Sooner can mean anything. Not to down play the statement but sooner could mean 8 years rather than 15...

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              • #8
                Crybaby2025,

                Plant a slow growing tree today and you will have shade to enjoy your celebratory beverage when "THE" cure comes.

                More realistic in the short term is development of treatments that will yield quality of life enhancements to those with SCI.
                Foolish

                "We have met the enemy and he is us."-POGO.

                "I have great faith in fools; self-confidence my friends call it."~Edgar Allan Poe

                "Dream big, you might never wake up!"- Snoop Dogg

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                • #9
                  The foundation knowledge needed to provide a cure is already there. We have not yet worked out how to use that knowledge as effectively as we need to and the inevitable time delay between working it out and it being available en masse, means that we are looking at 2020, at least, before it is available in all but a very few elite establishments.

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                  • #10
                    Here here Foolish.

                    Although I'm pulling for "the cure," right now I would settle for bowel and bladder function. There is a procedure that may take us there in trials right now. I am involved in some Estim projects that I find very exciting. No, it's not "the cure" but in short order, I may be able to stand up in the grocery store to reach the top shelf or trigger the stim and stand up to transfer or just pull down my pants! That too will greatly enhance my quality of life.

                    I don't always understand the care vs cure argument. I want both. Until the cure comes and I can get rid of this chair, I want someone working on making my days in it, however many that may be, easier.

                    In the meantime, we must work to preserve our bodies and be as healthy as possible so that when the time comes, we'll be eligible for the treatments. So, ROM and weightbearing, etc. are critical
                    My blog: Living Life at Butt Level

                    Ignite Phoenix #9 - Wheelchairs and Wisdom: Living Life at Butt Level

                    "I will not die an unlived life. I will not live in fear of falling or catching fire. I choose to inhabit my days, to allow my living to open me, to make me less afraid, more accessible, to loosen my heart until it becomes a wing, a torch, a promise. I choose to risk my significance; to live so that which comes to me as seed goes to the next as blossom and that which comes to me as blossom, goes on as fruit."

                    Dawna Markova Author of Open Mind.

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                    • #11
                      Originally posted by jenlongdon
                      Here here Foolish.

                      Although I'm pulling for "the cure," right now I would settle for bowel and bladder function. There is a procedure that may take us there in trials right now. I am involved in some Estim projects that I find very exciting. No, it's not "the cure" but in short order, I may be able to stand up in the grocery store to reach the top shelf or trigger the stim and stand up to transfer or just pull down my pants! That too will greatly enhance my quality of life.

                      I don't always understand the care vs cure argument. I want both. Until the cure comes and I can get rid of this chair, I want someone working on making my days in it, however many that may be, easier.

                      In the meantime, we must work to preserve our bodies and be as healthy as possible so that when the time comes, we'll be eligible for the treatments. So, ROM and weightbearing, etc. are critical
                      Well said!
                      Foolish

                      "We have met the enemy and he is us."-POGO.

                      "I have great faith in fools; self-confidence my friends call it."~Edgar Allan Poe

                      "Dream big, you might never wake up!"- Snoop Dogg

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                      • #12
                        All that we know is what information is released to us by some researchers, not all. Anything could happen.
                        Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

                        T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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                        • #13
                          We need to start clinical trials now not later right now. Clinical trials are the fastest and safest way to find out if treatments really work . If they make the first step, only progress we will see nothing will stop progress. I don't know why our country is waiting.Let's go America! Stop fooling around, my butt is tire of sitting down, I want to get up and stretch a little.

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                          • #14
                            Originally posted by lynnifer
                            All that we know is what information is released to us by some researchers, not all. Anything could happen.
                            I completely agree with you on that. They just tell you little pieces they are not going to show all of their cards just yet. They are waiting to they have the Royal flush. I completely agree with DA also.
                            keiffer66

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                            • #15
                              I can hear the frustration in your messages. It makes me feel less alone as I am surrounded by people who could not possibly understand the full spectrum of shit we deal with. They think it's just about not being able to walk.We all know it is so much more, as if not walking wasn't bad enough. Thank you for taking time to respond to my frustrations.

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