Announcement

Collapse
No announcement yet.

Highlights and (My Reasons for) Hope from 2006

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • #46
    Originally posted by DA
    what about no DA?
    How could they forget you. A happy, happy 2007 to you to, DA.
    Step up, stand up for:
    http://www.stepnow.org

    'He not busy being born is busy dying." <Bob Dylan>

    Comment


    • #47
      Originally posted by artsyguy1954
      How could they forget you. A happy, happy 2007 to you to, DA.
      thank you...you too and hopefully we all can have a good 2007 with some super news on the cure. keep your fingers crossed.

      Comment


      • #48
        Originally posted by adi_chicago
        when i read your post tears came off from my eyes.trust me when i was in coma i had a dream a male from asia touched me and told me to walk .
        i walked and i said thank you sir.i thought that dr.huang was the male, i was wrong.
        maybe you are the one.help us please.and one more time i will like to thank you for this great site.keeps sci and people who cares united .
        when i saw the sky opened and jesus my coma ends.
        i belive in science ,but after my experiences i belive in god too.
        all the best and a happy new year.
        Adi, given that over half of the people in the world come from Asia and about half of them are male, your comatose brain may well have been right, that the first therapies to restore function in people with chronic spinal cord injury may be developed by an Asian male. Your brain has about a 25% chance of being right. Having spent much of the last six months in Asia, I am very impressed by the number of very smart people here who have gone into science. They are willing to work very hard and often take very different approaches to biological phenomena. Unlike the trend in western science which has become more and more reductionist, many Asian scientists view the central nervous system more empirically and holistically. But, there are also many great scientists in the United States, Canada, Europe, and Israel. Science is only as good as the scientists. Regarding "god", it is not possible to study life and not be awed by the beauty, simplicity, and diversity of life. The more we know about life, the more incredible it is. For example, we often take our bodies for granted and it is not until that something is not working that we realize the wonderful things that our bodies do without fuss or fanfare. Fixing our bodies is one of the greatest challenges that we face. I am very grateful to be at the right place and time to help a little. Wise.

        Originally posted by kate
        Wise, you are one of our big reasons for hope in 2007
        Happy birthday and thank you for another year of progress. All I have to do is imagine what it would be like if there were no CC, no Keck Center, no ChinaSCINet, no Dr. Young . . . and I remember what despair feels like. Your fans in the Pacific Northwest are sending you love and good energy! kate
        ps--also, one of these days, you're going to get a copy of my book in the mail, too.
        kate, thank you. As you know, the Pacific Northwest has many very special people. Bruce and you have been such a joy to know. I treasure the time that I spent with you, Bruce, Cass, Lexi (Tbird), and others in Seattle. If there were no CC, there would not have been ChinaSCINet. I would probably not have had the opportunity to meet you and never would have known what I had missed. That would be really sad indeed. I am really looking forward to reading your book. I am proud to know you. Wise.

        Originally posted by rfbdorf
        Not only brilliant, unselfish and hard working, but also a helluva nice guy. I sure hope I can meet you some day, Wise.
        新年快樂 并 生日快樂
        - Richard
        Richard, we will meet. I know it. Patricia Morton and I have been talking about doing a traveling "Open House" after my sabbatical in Asia. Wise.

        Originally posted by Adrian
        It is so much easier to be optomistic when someone with your expertise makes statements like that and then backs them them up with clearly presented summaries of reasons to be optomistic. Thanks!
        Adrian, thank you. Wise.

        Originally posted by Jenlongdon
        Dr. Young, I woke up this morning paralyzed and hopeless. It doesn't happen often but when it does... I had a tradition of hiking Camelback Mountain every New Year's morning. The rest of the group went and thought of me at the top but it's not the same.

        I hold out hope that I will climb that mountain again. The deal is I'll get myself up, they have to get me down. LOL.

        When you first posted this message, I printed it and keep it close, I emailed it to every SCI and every advocate that I know. NOW is the time to work harder than ever.

        You gave me the hope that I need to keep going. I'm ready to fight on. More letters, more fundraisers, more research studies. Thank you.
        Jenlongdon, you are absolutely right "NOW is the time to work harder than ever". There is so much to do. In my acceptance speech for the Richard H. Shindell Chair in Neuroscience last month, I ended with the following thoughts about CareCure, which might be appropriate to share:
        When I came to Rutgers, I started a web site for the spinal cord injury community. Originally called spinewire.com and now carecure.org, this web site has become a virtual home to over 12,000 people who come daily to find out about care and cure of spinal cord injury. I spend 8 hours a day on this web site and have written nearly 25,000 posts to the community. I have learned much from the people on the site. I thought that I might share one recent post.

        Two days ago, somebody posted a story about a University of Central Florida physicist by the name of Costas Efthimiou who did a simple calculation to show that vampires are a mathematical impossibility. He assumed that the first vampire appeared in 1600, bit and converted 1 victim per month, who in turn bit one victim a month. The exponential series showed that in less than 3 years, the entire population of the world would be vampires.

        It occurred to me that the same mathematical logic could be applied to what we do at the W. M. Keck Center. If each of us converted only one person per month and gave hope to that person, and the person in turn transfected one person a month to have hope, in less than 4 years, we will have converted the whole population of over 5 billion people on this earth. That is what we must do.
        Originally posted by schmeky
        Dr. Young, You have always been cautiously optimistic in the past. This is the first time I can recall you being assertively confident. Thanx for all you have done and will continue to do.
        schmeky, caution is the armor of scientists and hope is our Achilles heel. That is one of the reasons why we scientists so zealously hide that aspect of ourselves. While most people would consider a p-value of 0.50 (i.e. a 50% chance of that something may be false) to be pretty good odds, scientists have been trained to ignore phenomena that have a p-value greater than 0.05 (i.e. a 5% chance that something may be false or due to chance). The goal of clinical trials, for example, is to optimize the therapy until it generates results that have a p-value of less than 0.05 of being due to chance or control conditions. However, p<0.05 situations are very rare. Most of the important and difficult decisions in life involve p>0.5 situations, when there is not sufficient information for a slam-dunk decision but a lot may be at stake. A while ago, I realized that I was not particularly good at p>0.5 decision-making. Most poker decisions at p>0.50 and so I have been practicing poker (Texas Holdem No Limit) on my Blackberry, to learn how to make such decisions. When playing poker, the decision to bet can be based on optimism concerning what your hand may become or pessimism concerning what your opponent's hand may become to beat you. If you play too cautiously, i.e. bet only when you have sure winners, you will lose because sure winners come too seldom. Of course, if you play too optimistically, you will also lose because luck does not favor optimists or nice guys. Playing poker has helped me to balance hope and caution. Actually, playing against machines and algorithms has been easy. Most programs are too conservative and it is easy to bluff them. Wise.

        Originally posted by DA
        what about no DA?
        Happy New Year, my friend. Wise.

        Originally posted by chaz19
        Jen -- I echo your sentiments. I too printed up Dr. Young's notes sent it to every SCI I know and all of my friends and family to spread the optimism and deep feelings of gratitude that I have.

        John Smith wrote to me a few days ago, and I believe summed up my family and I feelings perfectly ..."Dr. Young, as usual, gave us the stiff drink of hope we needed."

        Thanks for the stiff drink Dr. Young.

        I also have been noticing a change in the way people view science and research pertaining to a cure -- especially receiving letters and greetings around the holidaze... I received a car just yesterday that said "we believe that medical breakthroughs are coming" and this was from a family that has very little understanding of science or research.

        Between Dr. Young's words and my belief in the collective unconscious -- I'm excited to about this new year.!!!

        happy new year everyone
        Chaz, happy new year to you. What a great analogy. We all need to be bartenders at times and give each other good stiff drinks of hope. It is good to hear that you are transfecting others. Wise.

        Originally posted by Lisa P
        Dr Young -- While I don't log in very often, I check the site frequently and the best news is to see that you have posted. Thank you so much for all you do to keep our spirits up and focused on the progress being made. One question: In the clinical studies that you cite and the procedures that are being done, what has the effect been on neuropathic pain?
        Lisa, thank you. The studies that I cited did not emphasize neuropathic pain and I was remiss in not having addressed the subject of pain in my message. Let me try to correct that.
        Neuropathic pain. The good news so far in the clinical trials is that none of the therapies tested to date appears to cause or increase neuropathic pain. This was one of the worries that many scientists have. I have long worried that one of the consequences of regeneration may be pain, due to inappropriate connections. To date, this fear has not come true in any clinical trial. It is interesting that olfactory ensheathing glial cell transplants do cause dysesthesia (spontaneous abnormal sensations) and allodynia (hypersensitivity to touch) transiently in the recovering dermatomes. No news is good news in this regard. The yet unanswered question is whether any of the treatments will reduce or eliminate neuropathic pain. Several years ago, Dr. Carlstedt at the Royal Orthopedic Hospital at Stanmore in London reported that insertion of avulsed peripheral nerves into the spinal cord will eliminate the pain associated with brachial plexus injuries. Why this occurs is not understood. However, I have since been wondering whether or not peripheral nerve re-routing has the general property of increasing plasticity of the spinal cord and whether increasing plasticity may be the answer for neuropathic pain. This is of course highly speculative but, given the remarkable ability of the spinal cord to adapt, we should regard neuropathic pain as something that we should be able to treat by encouraging plasticity and rewiring of circuits in the spinal cord.

        Originally posted by rdf
        I want to add my appreciation for what you have chosen to do with your life, Wise. It's quite a sacrifice and committment to do what you do, and maintain and answer questions here, also. Here's to 2007, and good news to come.

        Regarding the nerve rerouting for bladder control, to me this is amazing. For many, it will make sci that much easier to live with. Are there any doctors currently doing this procedure, besides the ones who have operated on BeeBee's son Kevin? Does this proecedure have to be FDA approved?

        And if it works with the bladder so successfully in China, 80% or so, is there a chance it will also work with the anal sphincter, allowing for control of bowel movements?

        Or, is it even possible to reroute nerves to accomplish long distance innervation of other body muscles and organs?

        Meaning, can we reroute nerves to accomplish erections? To make our legs move so they won't atrophy?

        Is it possible I guess I'm saying to reroute a nerve, so that if we, for instance, rubbed our hips, that a rerouted nerve would stimulate our legs to straighten out, and bend with reflexive action?

        Don't worry about answering all the questions, Wise, I'm just kind of musing out loud...but is what I've said remotely possible considering the advancement and acceptance of nerve rerouting?

        Thanks for the time you spend to help us out, you'll surely be appreciated by a higher source, if you so believe in such...as you do from all of us at this time in our lives.

        Happy New Year to you, Wise.
        rdf, I had asked Dr. Xiao whether or not his patients recover erection, ejaculation, and other sexual functions. He apparently is not sure about sexual function although he said that some of his patients showed improved anal continence after the procedure. Dr. Zhang has told me that he has re-routed nerves from above the injury site to the bladder with some restoration of sexual function but most of his followups emphasize motor function. I believe that this is something that should be studied closely in the patients that are being done in the United States.

        Wise.
        Last edited by Wise Young; 01-02-2007, 12:53 AM.

        Comment


        • #49
          Originally posted by DA
          what about no DA?
          , but hey, maybe we'll see you at the bonfire
          A good friend is someone who will come to bail you out of jail. A TRUE friend is the guy sitting next to you behind the same set of bars saying, "boy we sure f*cked up this time huh?"

          Comment


          • #50
            Originally posted by Wise Young
            Highlights and (My Reasons for) Hope from 2006
            Wise Young, Ph.D., M.D.
            W. M. Keck Center for Collaborative Neuroscience, Rutgers University
            (Writing from the Hong Kong University where I am a visiting professor)

            I believe that a cure for spinal cord injury is not only on its way but will arrive sooner rather than later.
            What does this mean? That we will soon be able to end this HELLISH SUFFERING CONDITION? Can we be chimed in here. I am lost with everything this is disgusting. If you believe that a chronic cure will be here in 10 or 20 years please tell us so I know what I am in store for. I refuse to be strung along. I want to go about living my life and have some honest answers. I am getting sick and tired of browsing this sight during my work days. I want to give money and help the CHRONIC CURE. Where is that? I am still searching.
            Birds Fly in Flocks, but Eagles Fly Alone...

            Comment


            • #51
              You SHOULD go on with your life, and live it as fully as is possible. Don't put life on hold, no one can say WHEN a cure is coming. Do like most of us do, slug it out in the real world, being thankful you have what you do. Appreciate each waking moment and share it with those you love. Look around, smell the roses, get out in nature and away from the concrete jungle, THAT is what sucks the life outta you. This FALSE world that we have created around us, that revolves around money, I, what I can own, how much can I get without giving; this consumerist society is NOT life.
              Life comes from love, family, friends and this thing called experience.
              Personally, I think that living in Beverly has destroyed your perspective on what things are of TRUE value in this world. No, I'm not trying to be smart, just trying to get another human to let go a skewed value system, and not be sucked into the despair that overcomes those who have battles with health and hardship.
              Hang in there, and while you are hanging, swing a little bit, you don't have to stay in one spot, when the cure comes, it will find you

              https://www.facebook.com/john.baxter.1213986

              Comment


              • #52
                One more thing, I, like youself, and all the others, really miss being able bodied and ALL that it entails. None of us WANT to stay this way, I hope.
                We all get discouraged, it is to be expected.
                One thing I learned early on, try to bring joy and happiness to others. In so doing, you will be lifted up also. I guarantee it.
                May your days be filled with that which makes you happy and your nights with much needed rest in preparation for the NEXT day's adventures

                https://www.facebook.com/john.baxter.1213986

                Comment


                • #53
                  Originally posted by spidergirl
                  What does this mean? That we will soon be able to end this HELLISH SUFFERING CONDITION? Can we be chimed in here. I am lost with everything this is disgusting. If you believe that a chronic cure will be here in 10 or 20 years please tell us so I know what I am in store for. I refuse to be strung along. I want to go about living my life and have some honest answers. I am getting sick and tired of browsing this sight during my work days. I want to give money and help the CHRONIC CURE. Where is that? I am still searching.
                  He's not going to give you a date or be more specific Spider. He can't, none of us can. I believe a chronic treatment will be here sooner rather than later too but can't say exactly when. Maybe you should give CC a break for a while if browsing this site upsets you so. You should most definitely get on with your life.

                  Comment


                  • #54
                    I respectfully disagree antiquity... The post right after Spiders was full of great words of wisdom. Perhaps she is not asking for you to echoe Dr. Youngs words, yet asking for some concrete answers if they are available, if not then at minimum she will get this from whom she asks, possibly..?.. In anycase, it is important for unity to fall into play at times like this.. This year is full of optimisum and we need each and every soldier out on the battle field asking and demanding for answers imo as if we do not demand a cure to be found, it NEVER will!!!! With this being said, let us unite together and hold one another when the other is down, one day you may also find yourself or others in this situation and we would be there for you if need be.. I myself am currently STILL looking for EXACT answers so that i may use them to help science move at rapid speeds in hopes that clinical trials come into fruition "sooner rather than never". I will conclude knowing that I am doing all that i know to do and will be bringing this imparative information into the highlights of others hearts through the use of the media.. This is all i know to do as a cure will/has been found. Right now is the time to demand answers to this catastrophic condition that we are made to live in, i believe in miracles..
                    Godspeed~
                    Susan
                    www.sciwalker.com

                    Comment


                    • #55
                      Originally posted by CapnGimp
                      You SHOULD go on with your life, and live it as fully as is possible. Don't put life on hold, no one can say WHEN a cure is coming. Do like most of us do, slug it out in the real world, being thankful you have what you do. Appreciate each waking moment and share it with those you love. Look around, smell the roses, get out in nature and away from the concrete jungle, THAT is what sucks the life outta you. This FALSE world that we have created around us, that revolves around money, I, what I can own, how much can I get without giving; this consumerist society is NOT life.
                      Life comes from love, family, friends and this thing called experience.
                      Personally, I think that living in Beverly has destroyed your perspective on what things are of TRUE value in this world. No, I'm not trying to be smart, just trying to get another human to let go a skewed value system, and not be sucked into the despair that overcomes those who have battles with health and hardship.
                      Hang in there, and while you are hanging, swing a little bit, you don't have to stay in one spot, when the cure comes, it will find you
                      uh oh... I think you just made it onto SG's blacklist.

                      Nonetheless, I agree & I'm glad someone else said it.

                      Comment


                      • #56
                        Nobody will tell you, "wait a minute, yes, cure will arrives in october 2008", nobody can predict this. Medical research isn´t a exact science, depends of many factors and it can fail.
                        Today we can have a therapy that could be promise and after two years of research and finally test it in clinical trial don´t work.
                        Many people are searching answers that nodoby can give them.

                        Excuse my english.
                        -Ramps in buildings are necessary, but it would be usefull to have another ones for people (mind/heart).....

                        -Hoc non pereo habebo fortior me

                        Comment


                        • #57
                          Originally posted by Susan Fajt
                          Perhaps she is not asking for you to echoe Dr. Youngs words, yet asking for some concrete answers if they are available...
                          There's absolutely nothing the matter with that. You know the answers she, and [hopefully] everyone else here wants, aren't concrete. Therein lies the frustration.

                          I generally agree w/ your post, although it's going to take more effort than simply making demands. That obviously hasn't been an effective approach thus far.

                          Comment


                          • #58
                            Originally posted by Susan Fajt
                            I respectfully disagree antiquity... The post right after Spiders was full of great words of wisdom. Perhaps she is not asking for you to echoe Dr. Youngs words, yet asking for some concrete answers if they are available, if not then at minimum she will get this from whom she asks, possibly..?.. In anycase, it is important for unity to fall into play at times like this.. This year is full of optimisum and we need each and every soldier out on the battle field asking and demanding for answers imo as if we do not demand a cure to be found, it NEVER will!!!! With this being said, let us unite together and hold one another when the other is down, one day you may also find yourself or others in this situation and we would be there for you if need be.. I myself am currently STILL looking for EXACT answers so that i may use them to help science move at rapid speeds in hopes that clinical trials come into fruition "sooner rather than never". I will conclude knowing that I am doing all that i know to do and will be bringing this imparative information into the highlights of others hearts through the use of the media.. This is all i know to do as a cure will/has been found. Right now is the time to demand answers to this catastrophic condition that we are made to live in, i believe in miracles..

                            I'm not sure what aspect of what I said is upsetting you but nothing in my response suggested that we shouldn't ask questions or have hope. What I said was that neither Wise, myself, nor anyone can offer an exact date for when the cure will be here. We can only surmise based on what's currently going on in the field and based on that, the cure will be here sooner rather than later. That is an optimistic outlook btw.

                            If Spider is tired of coming here everyday, which she indicated, then she should take a break. She should also get on with her life which is also positive advice.

                            As for me being down, I don't come to the cure forum for a pick-me-up. No one should. I've been spinal cord injured for 28 years so my expectations are grounded. I don't expect Wise to hand out cure dates nor do I hold him responsible for my mental states.

                            The cure is a process and it is coming but it won't happen overnight. Sorry, concrete answers regarding the cure date aren't available.

                            Comment


                            • #59
                              Agreed w/all..

                              Even though there is no "concrete" answers, it should not mean that a suitable time table should not be established imo.. This might be a good goal to set as it would give strength to our cause. I vote 2007. (small grin & laughing a little.)

                              Scotttt--- It's a NEW approach.. lmao.
                              Also, you only copied half of my sentence. Here is the rest... "if not then at minimum she will get this from whom she asks, possibly..?.."

                              Seneca- I agree, we should have hope and ask questions! My "surmising" can only go so far.... I appreciate your optimism very much and also hope for answers that will possible one day set me free from this prison of paralysis, until then i will always *try* and smell the roses so long that i may reach them from this wheelchair.
                              Last edited by Susan Fajt; 01-24-2007, 03:26 PM.
                              Godspeed~
                              Susan
                              www.sciwalker.com

                              Comment


                              • #60
                                I don't think any of you people have any idea what your talking about. I don't think anyone asked for ducks to come out of the woodwork from their pond and stick their beaks where they don't belong. I think that is something you need to take up with your religion/church.

                                Gimp, thanks for your pep talk- good words of wisdom that perhaps took you many years to actually come to terms with yourself. I have moved on with my life and am learning too but I am not going to just disregard myself from the SCI community because it needs me, my voice, and my support. I cannot help where I am from or grew up or my social economic background. We all have too deal with our own situations the way they are. You have no idea what people in la la land think when they see a young girl in a wheelchair...its not the norm. I will say though it gives me an advantage in some ways too make more noise when and if I choose too.

                                Personally, I think that this whole ESC has nothing to do with the church or the arrogance these religious nuts. Its crooked politicians that see no funneling of money thru the tunnel for this. If there was, we would probably have the cure. Do you honestly think all that money to going to Aids in Africa or do you think middle men or getting cut off and perhaps even drug lords. If stem cells was a shady business we would probably have it here now big time. It's the crooked politicians that are holding this back because they don't make a dime off of it. I don't think our problem lies with the church. I think the scientists need to PROVE a cure and than let the floodgates open from there.....because crooked or not- the U.S. will not say NO too any cure period.

                                Susan and I are 100% on the same page, we will both continue to fight and push for answers until we get them because we are NOT GIMPS, and we refuse too be.

                                I will demand all the answers I dam please too. It is my right as a citizen of the U.S - I pledged my allegiance!
                                Last edited by spidergirl; 01-24-2007, 06:16 PM.
                                Birds Fly in Flocks, but Eagles Fly Alone...

                                Comment

                                Working...
                                X