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    dr young
    i'm undergoing decompress surgery soon.pls tell me the best option for SCT.
    C4-5,incomplete, 27th Dec.2000

    Comment


    • uti

      Originally posted by wheelie-boy
      I just can't deal with the UTI's anymore. They have substantially taken a toll on me. I work everyday and it's very uncomfortable to have to wear some sort of serentity pad or whatever so I don't pee all over people's couch's in the studio. And not to mention I have to wear clothes that go over my jeans or pants somewhat. ( actually this is a fad right now so that's a plus) It's just so ridiculous. Maybe we can get BBS back again at the very least.

      Spidergirl,

      Have you ever tried Mandelamine? It makes your urine acidic so nothing can grow in there. I used to have chronic UTI's untill I started taking this stuff.
      What is Mandelamine.Is it medicine and how much to be taken

      Comment


      • I am emotionally and physically drained, and devoid of any relief, at this point I don't know much of anything, since I gave up following research back in 2004. Are we close to any closure??

        Comment


        • Originally posted by damagedgoods
          I am emotionally and physically drained, and devoid of any relief, at this point I don't know much of anything, since I gave up following research back in 2004. Are we close to any closure??
          No, not until we have media exposure and this becomes household and only through the media will this happen.....not many in this community understand Hollywood the way we do. CR did but since he has died this injury has been long forgotten. I also believe several people also didn't understand the injury even when he was alive. Some of us will try to do the best we can in whatever fashion we choose too. And, of course, we need a new President, u should know that Mr. Harvard.

          Listen, injury or not, we are all damagedgoods...doesn't mean we don't deserve to be happy.

          It was nice too see you yesterday, stay optimistic!!...

          I believe something will give us a better quality of life so we don't have to deal w/ borrowing and exchanges like we do. love ya,
          Birds Fly in Flocks, but Eagles Fly Alone...

          Comment


          • I am as skeptical as anyone on this site. That being said, I actually believe there is a doctor who is making some progress. It's not going to happen in the U.S. though (at least not for many more years).The risk can never be removed from this process.Therefore, the FDA will hamstring any efforts with safety questions/ requirements. They will make it impossible for the science to progress (within the U.S.). If the FDA was the governing body of NASA, a rocket never would have lifted off the launch pad.

            Those serious about curative therapies should be thinking outside the United States. The U.S. may have some of the brightest scientist in the world. However, between the political climate & the FDA they have their hands tied behind their backs.

            If your counting on a change in the next administration to make any difference for the advancement of regenerative therapies, I believe you will be disappointed. Washington houses the greatest population of two-faced individuals.

            Comment


            • Clinical Trials

              Hello all, I really don't understand the details of all this, so please excuse the mistake if this is common knowledge already. But ICORD, which is associated with UBC Research (Vancouver, Canada) has a notice for human clinical trials and some information. Here is the link if you're interested:
              http://www.icord.org/iccp.html

              Cheers

              Comment


              • it means we're getting closer to trials than we ever have. iirc, the MP is in translational mode now, preparing standards, etc for trials, and trials have become an increasingly popular word in the biz now.

                but they are just that. so don't expect miracles on a 1st round of trials, although I'd guess they might yield some astonishing results given the amount of pre trial prep that's been going on/part of the process...

                it'll take time (years) to confirm results, tune dosages/techniques before any mainstream "cure" hits the streets w/ins. co's willing to ante up.

                you kids might have a pretty good shot at some kind of improvements, but I think us oldsters are condemmed to die as is. oh well. it is what it is...

                rob

                Comment


                • rvr,

                  Yes, the clinical trial process is long and tenous, but thankfully things are beginning.
                  Last edited by Schmeky; 10-02-2007, 11:59 AM.

                  Comment


                  • Originally posted by Schmeky
                    rvr,

                    Yes, the clinical trial process is long and tenous, and things are just beginning. I have said before I would be OK with my SCI if I knew my children and their children could see relief from this condition in my lifetime.

                    I have managed to give up the hope of recovery at my age and I have finally learned to cope with life as a paraplegic as best I can. I just hope my generation will be the last to have to live like this.
                    your kids and grand kids are a multigenerational SCI family? wtf do you guys do for fun? jump out of 3rd story windows at 3mos old?
                    rob

                    Comment


                    • Originally posted by rvr
                      your kids and grand kids are a multigenerational SCI family? wtf do you guys do for fun? jump out of 3rd story windows at 3mos old?
                      OK,Schmecky, we get it... you have expressed your views NUMEROUS times : repetitive, boring,and in fact really immaterial! You have accepted your sad lot, good for you: I really could not care less!!

                      I visit the site to get updates on ongoing research and/or clinical trials. I am interested in facts and I really really do not care to read about anyone's subjective opinion, particularly when it is negative. Nothing good has ever been achieved by being negative! Let us stick to the facts, good or bad.

                      Thank you Dr. Young and all those who are actually doing something to bring about a cure.
                      gretchen 1

                      Comment


                      • Originally posted by rvr
                        your kids and grand kids are a multigenerational SCI family? wtf do you guys do for fun? jump out of 3rd story windows at 3mos old?
                        OK,Schmecky, we get it... you have expressed your views NUMEROUS times : repetitive, boring,and in fact really immaterial! You have accepted your sad lot, good for you: I really could not care less!!

                        I visit the site to get updates on ongoing research and/or clinical trials. I am interested in facts and I really really do not care to read about anyone's subjective opinion, particularly when it is negative. Nothing good has ever been achieved by being negative! Let us stick to the facts, good or bad.

                        Thank you Dr. Young and all those who are actually doing something to bring about a cure.
                        gretchen 1

                        Comment


                        • EPO VS Methylprednisolone

                          EPO VS Methylprednisolone

                          Clinical trial to investigate the efficacy of EPO to treat traumatic SCI will start mid october in Italy. The projet is a multicenter faze 3 study,12 Spinal Unit will participate to the trial. 100 patient will be enrolled in 21 months. 50 of them will receive methilprednisolone and 50 will receive EPO.
                          Patient mast be between 18 and 65 years old, level between C5 and T12, asia A or B. Administration of EPO or MP mast be done within 8 hrs of lesion.

                          The study will be coordinated from the spinal unit of the “Niguarda” Hospital in Milan, Italy.

                          Given the situation here in Italy I consider this a Super news!

                          I also know that a faze 1 clinical trial for CRONICS should start in a few months involving transplantation of fetal neural stem cell. As I know more I will post.

                          Paolo
                          In God we trust; all others bring data. - Edwards Deming

                          Comment


                          • Great and very interesting Paolo,

                            Seems like quite a few things are happening on the SCI frontier in Italy. 12 spinal units is also a lot.

                            There must be a token here somewhat; I just opened up a bottle of Sambuca Dei Cesari before I saw this post of yours

                            Comment


                            • Originally posted by Leif
                              Great and very interesting Paolo,

                              Seems like quite a few things are happening on the SCI frontier in Italy. 12 spinal units is also a lot.

                              There must be a token here somewhat; I just opened up a bottle of Sambuca Dei Cesari before I saw this post of yours
                              I hope I'll have the chance to shere a bottle with you in the future!

                              Yep 12 spinal unit that collaborate is a very positive thing! I hope they will become part of a eurpenan network in the future, I am thinking at the nogo antibody clinical trial here.

                              Ciao

                              Paolo
                              In God we trust; all others bring data. - Edwards Deming

                              Comment


                              • Yes, 12 is a lot, and like you say imagine if having some collaborating over the borders, then one could run several trials at the same time.

                                The neural cell trial for chronics is special, the first ever in the West I would guess.

                                Super news like you wrote, thanks for posting. A Sambuca toast for that!

                                Comment

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