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Stem Cell Therapy In Muscular Dystrophy

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  • Thank you Keeping On. Yes, hope to hear from Dr. Young soon. His inputs are always valuable. I will keep you updated on the dates as soon as I finalize them and also the progress as well.

    Originally posted by keeping on View Post
    FSHER, good luck with the treatment you are going to get. We all hope for the best and that it can be long lasting. Wise should answere you and tell you if this treatment would interfer with any other potential therpies. Again, good luck and keep us abreast.

    keeping on

    Comment


    • FSH and Bone marrow stem cells

      Dear Dr. Young and everyone,

      My trial which was scheduled for last month has got postponed to this month. It will mostly happen in the next 2 weeks. So will you posted.

      Dr Young,

      were you able to find some more details on this subject as you had mentioned? Appreciate any inputs. Also, as I had asked earlier, do you foresee any risks/side-effects or any aspect you feel I should be aware of before going into the surgical procedure?

      Request you to reply when you get a chance.

      thanks,
      Samuel


      Originally posted by Wise Young View Post
      Samuel, it is a possibility that this treatment approach may work with FSH MD because the genetic deficit is not expressed in all of the cells of the body. There have long been speculations that it may be possible to inject myoblasts from unaffected muscles to the muscles of the shoulder girdle in FSH. I understand that the effects of such injections have been mostly temporary.

      I have not seen any published data concerning the efficacy of injecting autologous bone marrow cells into affected muscles of FSHMD. Let me look it up and post more on this subject.

      Wise.

      Comment


      • new medicine for md

        Dear Dr. Young and everyone,
        I have read on the net, there is a new medicine for muscular dystrophy, by the name of ataluren. made by genzyne laboratory, there is a lot of contradictory information about it, on the net. some say it is available, some say it has been taken of from sale, and some it is on trial, can you tell me if its on sale. and is it safe,and where can i get it from, because some chinese laboratories are announcing it on the net.

        Comment


        • Originally posted by hb179 View Post
          My dear aarenjames and sravan,
          Please take note of the DATE when dr Rajeev Goyal posted on the forum…. APRIL 2006 …. After a few posting dr Rajeev goyal is not active on this forum and as far as I know he did not take the treatment from dr geeta shroff.

          Now, about Geeta Shroff’s treatment, I want to tell each and everybody that I have not seen a single case of improvement or getting any kind of relief from her till today to ANY Muscular dystrophy person (I am not commenting on other disease being treated by her) Even today Geeta shroff gives false assurances to desperate seekers…. I would advice a straight NO to take her treatment even if it is free… simply because ITS NOT WORKING FOR MD… Rest, its your money, spend it wisely as it is the only resource which will be needed for your future survival.

          Regards
          hb
          thank you my friend hb if I didn't see your post I could now go to Dr. Geeta she give me the same what you talking about it ( no guaranty ) with cost 45000$ , I was so worry .. I send friend in india to ask about Dr. Geeta and the result this :
          I have done some research and it seems there is a lot of uncertainty about the methods Dr. Geeta Shroff uses to cure her patients. Normally all doctors publish there results about stem cell research but she has not. So it is very difficult to be certain if any procedure she does will work or not.

          PLZZ you know any hospital in this world can cure the MD buy stem cell ?
          I found this center too ( Chaitanya Stem Cell Center) they say can cure my MD & this is the cost http://chaitanyastemcell.com/medical_tourism.php


          what you think about them ?

          Comment


          • Bmd

            Dear Samuel,

            Hope your treatment went on well and you have got good results .. Could you please share the details of the doctor and on the results so that I could also consult him for my BMD.

            Thanks a lot for Dr Wise and everyone for sharing so much details regarding stem cell therapy and the research that is going on. I heard about a stem cell center named "International Stem Cell Services" in Bangalore, India who are providing stem cell therapy using Cord blood cells & bone marrow. I do not have much information now but have scheduled an appointment with them next week when I hope to know more details regarding their therapy. Anybody have heard about this before?

            Regards,

            Pradeep

            Originally posted by Fsher View Post
            Dear Dr. Young,

            I read your below reply against Bone Marrow Stem Cell Therapy. SInce the last conversation, there is a doctor in Mumbai, India who is implementing the below therapy (with 50% success rate claims) for different MD patients. THe procedure is similar to what was highlighted in the below thread:

            1. Retrieving the bone marrow from the patient himself/herself in the operation theatre

            2. Harvesting the stem cells from the collected bone marrow.

            3. Hours later, inject them DIRECTLY Into the skeletal muscles

            The doctor claims to have 50% success rate in the sense that further progression is arrested, which itself is a huge achievement i would think. I am contemplating this treatment for my FSH MD (I am 40 years old). I wanted your valuable inputs in knowing the below details, if you can spare a few minutes of your valuable time:

            1. Do you have any experience or knowledge of such treatment being done with fair level of success in any other countries?

            2. Since its the patients own bone marrow stem cells being used, are there ANY RISKS to the patient in case the procedure is NOT successful?

            3. Would you recommend in trying this treatment, especially if there are NO risks involved?

            Your inputs will be very useful to me in making up mind and more importantly in knowing the risks involved!

            regards,
            Samuel

            Comment


            • If there was a therapy that worked, the whole world would know about it. You should not be spending money on a unproven treatment. It will not help you.

              Comment


              • Request for Muscular Dystrophy specialists in India

                Dear Friends,

                I am looking for phone numbers/email ID's of specialists in Muscualr Dystrophy (Neurologists) in India. I would like to provide their information to my friends who are suffering from MD and as well as i would like to send regular research updates to them. I would appreciate your kind response.

                Thanks,
                Guddati

                Comment


                • Originally posted by bassam500 View Post
                  thank you my friend hb if I didn't see your post I could now go to Dr. Geeta she give me the same what you talking about it ( no guaranty ) with cost 45000$ , I was so worry .. I send friend in india to ask about Dr. Geeta and the result this :
                  I have done some research and it seems there is a lot of uncertainty about the methods Dr. Geeta Shroff uses to cure her patients. Normally all doctors publish there results about stem cell research but she has not. So it is very difficult to be certain if any procedure she does will work or not.

                  PLZZ you know any hospital in this world can cure the MD buy stem cell ?
                  I found this center too ( Chaitanya Stem Cell Center) they say can cure my MD & this is the cost http://chaitanyastemcell.com/medical_tourism.php


                  what you think about them ?

                  Huge inflation in India: the prices seem to have gone through $20k, $30k and now $45k!
                  2010 SCINet Clinical Trial Support Squad Member
                  Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature.

                  Comment


                  • Finding where can take stem cell treatment for congenital myopathy

                    Hello Friends,
                    Through internet I search some topic "stemcell and muscular dystrophy", I see some hospital in China they have treated muscular dystrophy patients.
                    My son has congenital myopathy, outside symtons are similar with Muscular dystrophy but the cause matter from differrence.
                    We can not wait until have proven stem cell treatment because of the status of patient, if anybody have experience please share with me where can make stem cell treatment for this illness?
                    Many thanks,
                    Phan
                    phanthiep1(at) gmail dot com

                    Comment


                    • Originally posted by Phanthi View Post
                      Hello Friends,
                      Through internet I search some topic "stemcell and muscular dystrophy", I see some hospital in China they have treated muscular dystrophy patients.
                      My son has congenital myopathy, outside symtons are similar with Muscular dystrophy but the cause matter from differrence.
                      We can not wait until have proven stem cell treatment because of the status of patient, if anybody have experience please share with me where can make stem cell treatment for this illness?
                      Many thanks,
                      Phan
                      phanthiep1(at) gmail dot com
                      The cure you seek in my opinion does not exist today

                      Comment

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