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    #31
    Originally posted by Mitchitsu View Post

    Wow... Incredible. Obviously it is just one person and very anecdotal. But I am fairly incomplete and even small amounts of exercise makes an enormous difference. 20 minutes a day on a treadmill got me from a very weak left leg and a right leg that could not take steps at all to being able to walk pretty easily with a walker for short distances. If I ramped that up to multiple hours a day, I'm sure the sky would be the limit. Especially if I can add in some other training as well.
    He has a bunch of case studies that can be downloaded at his website:

    http://www.coordination-dynamics-the...blications.htm

    The ones you would be interested in start in 2002.
    Last edited by crabbyshark; 16 Jul 2022, 5:17 PM.

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      #32
      Originally posted by 6 Shooter View Post
      Thanks for the posts. Got plan B and maybe C in my head which will slowly unfold throughout the rest of this year and maybe next. Will keep up the supplements and maybe add another or two which I already know about. Will also continue the Serrapeptase for maybe a total of one year and watch to see what happens.

      As for the bladder issue, asked my son if he could control any muscles in his lower abdoman. He answered NO, but he did say that when doing cathing, he first inhails a bunch of air, holds it, then leans forward to put pressure on his lower abdoman, and then the pee flows out much quicker. Did not ask about the same for bowel movements. I try not to press for answers often, maybe just once a year or so.
      The main device Dr. Schalow uses is called a Giger MD.

      I found his youtube profile and you can see the different exercises he has people do, including using a Giger MD.

      https://www.youtube.com/user/GiselherSchalow/videos

      The Giger MD costs like $10,000 new so a friend and I built one ourselves. Haha. I can try to get you pictures of it if you want.

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        #33
        Originally posted by crabbyshark View Post

        He has a bunch of case studies that can be downloaded at his website:

        http://www.coordination-dynamics-the...blications.htm

        The ones you would be interested in start in 2002.
        Damn, thanks a lot!!!!

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          #34
          Crabby--Send a PM and I will provide my email address. Thanks a bunch.

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            #35
            I’m on Serapeptesse 120k daily now, will see if something comes up in a few months time

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              #36
              Just be careful about the amount of Serrapeptase (think around 160 mg per day max) and taking on an absolute empty stomach and then no food at all for the next 3 hours or so. Will say that my son has taken in the types 1 & 3 Collagen each morning with his Serrapeptase capsules witn no adverse stomach reactions. Also think a 6 month trial or more would be reasonable. Just do not know yet whether the Serrapeptase is slowly breaking down the SCI scar tissue as yet. In my mind at this point, with no adverse side effects noticable up to this point, we will try for a test period of maybe 6-9 months or more. And, he is still on the nerve growth supplements as well. Assuming the scar tissue around the injury is slowly being dissolved, then the spinal cord nerves will begin to slowly grow back and no one knows how long that may take to allow the body to make the connections.

              Best of luck and stay alert for any advese effects.

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                #37
                So I’m 2 weeks on it, I take it in the morning on empty stomach and don’t eat for 30 min after. No side effects whatsoever. Thinking of doubling my dose now to 240k

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                  #38
                  Would increase slowly. My son now takes 180 mg in the morning with no adverse side effects. You might be OK with waiting 30 minutes, but have read that at least 1 hour would be better for full absorption out of the stomach before food. You can experiment a little and just be alert to any side effects. Would be helpful if you post any negative or positive effects. Not sure anyone knows just where the body will begin to dissolve/remove scar tissue first. If you have had covid in the past, have read that it does create some blood clots in various organs in the body and that may be the first area the Serrapeptase attacks. So, the process may take longer than expected. Think my son must be taking it for 6 months or so now.

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                    #39
                    Have moved on to Plan B. My son is still taking the 4 nerve growth factor supplements daily along with still taking in Serrapeptase daily. Will continue these supplements indefinitely as I see no harm and have now started Plan B as well.

                    Have found a Body Rejuvenation Specialist in Los Angeles who has a one-of-a-kind BRS milli-current machine that she helped build and has been using for the last 20+ years with amazing results covering a variety of serious medical problems. My son had six, 2-hour treatments over a period of 4 days. The machine has 2 probes with Q-tips inserted and dipped in water that are used to make deep penetrations into the skin. If the patient does not feel any reaction to the probes, then there is no underlining scaring, atrophied muscles, or dead/injured cells, OR there is damage, but very deep. However, if the patient feels sharp pains at the tips of the probes, kinda like very sharp/intense needle feelings that are very painful and felt deep in the muscles, tendons, dead cells, or damaged nerves. Then, the result is immediate reversal of the abnormality at that spot. The machine will differentiate between healthy vs damage/dead. It ignores healthy, but repairs damage/dead scar tissue and returns it to normal function. The treatments are non-invasive and do not penetrate through the skin. However, it will leave deep temporary dimple marks in the skin for a minute or so. The goal is to re-establish the connection of the brain through the damaged spinal cord to the rest of the trunk, buttocks, arms, hands, fingers, legs, and feet.


                    With a C6 incomplete damaged SCI, 16 years post, the probing was everywhere from the brain, neck, back, shoulders, spine, trunk, abdomen, buttocks, forearms, hands, fingers, legs, feet, and toes. Probing every inch or so will cause very red marks and lots of blood flow to the area at the surface and deep into the tissue, muscles, and nerves. Getting the intense needle feeling is when healing and repair is being accomplished deep into the tissue. And, the feeling is very intense to the point of needing to maybe bite down on a piece of wood or plastic.

                    The first day's treatment was the most painful, needle feeling wise. The next 3 days of treatment was less so as noticed by me, or maybe more tolerable as my son knew what to expect and just gutted it out. Basically, pain is gain!! And, the body rejuvenation specialist was asking him for a verbal response every time she moved the probes an inch or so every 5-8 seconds. She was pleased to know that the intense needle sensation was felt as progress was being made to reverse the underlying damage/atrophy.

                    My son’s injury is C5/C6/C7. On Day 1, the needle feeling extended on the spine down to level T2. Down to T6 on Day 3. And, there was some light needle feeling at the coccyx level (bottom of the spine) on Day 4. Will honestly say what I observed is not what my son noticed/experienced in terms of functional gain. An observer will notice visible changes occurring on the spot while the patient may be experiencing spasm movements or indicate that nothing has changed. On the first day, lots of leg spasms while laying on stomach and/or sides. By the 4th day, my son was laying on his stomach receiving 2 hours of intense needle feelings everywhere without hardly any leg spasms. Hand and finger movements are now much more placid. He now has full range of wrists up and down. For 16 years, my son used kinesis, wrist extension upward, to grip a glass or pick up something very light in weight. He had some wrist movement down, but not fully. Due to years of wrist up extension, fingers became very stiff and curved to aid in holding a glass. When placing his hands and fingers very flat on a mat, he needed some help to pry some of his fingers open into a fully flat position. He had very atrophied thumb and finger muscles. After treatment, hand and fingers are now more supple and he is beginning to move his thumb and first 3 fingers back and forth. He is trying to do that with his mind, but will have to practice every day to view hand and finger movements to increase movement and rebuild the muscles in the forearm. Increased sensitivity/sensation in the skin previously dead due to his SCI will also aid in speeding up the previously atrophied muscle movements. At least the brain is now re-learning where these body parts are now located. Thumb muscle strengthening and placidity is now much better than before which was non-existent. It is not perfect or fully functional thus far, but we are heading in the right direction with slow, improved movements.

                    He has lots of work ahead to practice daily to move hands, fingers, and thumbs to increase muscle strength and range of motion. Will be getting out the standing frame again to practice hip movements fore and aft, plus rotation. For food, now on the Mediterranean diet to eat lots of protein, no beer, no coffee, and drink lots and lots of water which will get the body nutrients flowing into the repaired areas. He will begin trying to pee and poop in the shower to begin to regain control of that function as well.

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                      #40
                      My theory, and I can be wrong, is that the blood supply issues that every SCI person develope after the injury, hampered his recovery. Now, with Serrapeptase and the new therapy improving bloodflow, he can regain movement and sensation through undamaged connections that were too weak before to fire. This is why completes can take Serrapeptase for months and feel nothing.

                      More complication after chronic spinal cord injury: impairment of blood flow, which could be potentially restored for functional improvement
                      https://jxym.amegroups.com/article/view/4207/5048

                      Keep pushing!
                      HOC NON PEREO HABEBO FORTIOR ME

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                        #41
                        Can certainly agree with your theory. Have seen but cannot find an old MRI view of my son's C5/6/7 injury. He has metal scaffold like hardware attached to his vertebra where the front of C6 got broken into pieces. Also viewable was the specific spinal cord which shape at C6 became narrowed and looked like an hourglass shape. From that view, I could easily understand that some or many of the spinal cord nerves became crushed, or torn, or swollen/damaged to death by inflammation and even necrosis. Loss of blood supply in the area could have caused considerable damage as well. Kinda like a pressure sore where the skin dies when denied a blood supply. And, the nerves exiting the spinal cord at that area had to have had considerable trauma as well. When the spinal cord is damaged in the neck, or anywhere for that matter, the signal to the body parts below injury are broken as all SCIs are aware. I recall Dr Wise mentioning in some of his seminars that he has seen functional recovery below the injury site IF just 10% of the remaining spinal cord is still undamaged and in tack.

                        In my son's case, am thinking that the treatments are causing the brain to locate where the intense needle pains are coming from and functional movements are then possible. Part of the problem is also 16 years of atrophy of muscles, nerves, and joints which must also be woken up to complete the circuit and allow for the brain to begin to command movements. One other point is that the brain also seems to be aware of and need sensory feelings in the skin along the way to control muscle movements. So, sensory feeling has to be repaired along with muscle regrowth, and nerve damage repair. Watching that process begin in 4 days was an amazing experience. Watching muscles in the forearms from elbows to wrists, which were slightly concaved, swell up and become more round and inflated within a few minutes is almost unbelievable. Further, don't know for a fact, but likely the sharp needle feelings may be actually breaking up scar tissue below the skin surface. Thus, my reasoning for continuing to use Serrapeptase to locate and dissolve dead/damaged tissue, ligaments, tendons, muscle, etc. Also, time will tell whether the hourglass spinal cord begins to regrow, repair, and reconnect at the damaged location.

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                          #42
                          This is the website for the body rejuvenation center we went to in Los Angeles Testimonials (bodyrejuvenationsystem.com) Scroll down on the testimonial page to view before and after photos of various treatments provided. Our situation was unique in that Milly Ng was treating my son with a spinal cord injury at C5-6-and 7 for just the second SCI patient. A few photos below of the procedure.

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                          • SCI-Nurse
                            SCI-Nurse commented
                            Editing a comment
                            Testimonials are not science. I bet they charged you an arm and a leg for this "treatment". Also, having this done will most likely rule the person out as a subject for future legitimate research studies (which don't charge any money) such as Dr. Young's stem cell research project. (KLD)

                          #43


                          First off, I never mentioned the word science. It is an experiment at my expense, not yours. And, you are not the caregiver or managing a household with a quadriplegic. My narrative explains a process we went through, period. Photos show the process to achieve a possible result. Others on this SCI website have posted as have I about trips to China for stem cells, magnetic therapy, nerve growth supplements, exercises and exercise equipment without being berated. IMHO, your opinion is irrelevant.

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                          • SCI-Nurse
                            SCI-Nurse commented
                            Editing a comment
                            We maintain a science-based forum here. Quackery and non-scientifically based "treatments" are not supported by this forum. Moderators are looking at posts and commenting for this reason. This is not an "opinion" but a comment made from my evidence-based practice and delegation of that authority here as a moderator. (KLD)

                          #44
                          Hummm. Please explain how the following CareCure forum topics, such as: Brain Injury, Care, Caregiving, Computers, Equipment & Supplies, Exercise & Recovery, Family, Food, Exercise & Recovery, Housing & Home Design, etc. are "science-based". These topics are listed on this forum and users post their problems, experiences, observations, suggestions, solutions, and questions to other users, all the time.

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                          • SCI-Nurse
                            SCI-Nurse commented
                            Editing a comment
                            Questions posted for the moderators are answered with evidence-based (scientific) information. (KLD)

                          #45
                          Working on being able to post a video of treatment at the LA body rejuvenation center in LA.
                          Last edited by 6 Shooter; 29 Nov 2022, 10:07 AM.

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