Wanting to set this up as a separate subject. Below is what I had written months ago in the SCI net USA section.
On September 7, 2021, I wrote: Did an Internet search on nerve growth factor a month + ago to learn more about the subject and found this. Search on the website re wild thyself and look for: supplement to increase nerve growth factor. It looked promising and seemed to be worth a shot at possibly improving my son's paralysis. We are planning a 6- month test of the 4 supplements. The article suggests more along the lines of brain and the mental function, but does mention chronic or acute trauma without specifics. Bottom line, we have begun a twice a day regime with the 4 supplements suggested without any side effects notable as yet. Will say that the links were a little tricky and for several, had to go directly to the manufacture listed on the bottle.
Maybe this link would work better. http://www.rewildthyself.com/supplem...-growth-factor
If anyone has seen this 2014 article and has known of someone trying this supplement routine, would be helpful to reply and discuss.
On November 11, 2021, I wrote: Sparky831--I now also am not able to open that rewildthyself article on nerve growth factor. For some unknown reason, it has been deleted from their website. So, suggest you look here for more information and supplements that may help to improve a spinal cord injury. 9 Nerve Growth Factor (NGF) Effects + What May Increase It - SelfHacked
Will say that it has been about 3 months with a trial of the 4 supplements suggested in that nerve growth factor article dated back to 2014. The 4 supplements suggested are: Japanese Ashitaba, Acetyl-L-Carnitine Arginate, Lions Mane, and Bromelain. My son has been on those 4 supplements at twice per day. Nothing negative at all to report up to this point. And, have not noticed anything specifically positive either. Am planning on a 6 month trial, and may go to a 12-month trial with a chance to give it our best shot. I would have replied in the message section but could not find any way in that area to click on anywhere to create a reply to your message.
Today, I have an update after 10 months. My son's injury was at C6 as we were told after surgery in 2006. His C6 level of injury has allowed for strong biceps and shoulder muscles, elbow extension, wrists up and down, and neck rotation. However, in 16 years post, he has never had any functional triceps. He could lift his arms above his head, but could not raise his forearms up or down but by maybe an inch or two. Triceps to move the forearm up and down against gravity are a C7 function. His triceps muscle had no nerve innervation. The other day, I asked him while sitting in his wheelchair to raise his arms above his head. Then asked him to raise his forearms up. I saw each forearm go straight up above his head. OMG! He now has functioning triceps muscles and will get him to begin to use those muscles a little every day to get them stronger. At that moment, I said 3 words; something is changing!!
For the last 2 months, in addition to the nerve growth factor supplements, I added Serrapeptase every morning. If you do not know its benefits, suggest you look them up. One of the multiple benefits of Serrapeptase is that when taken internally, the supplement goes to work in the bloodstream to locate and dissolve scar tissue. The active ingredient was determined from the silkworm who has to dissolve its casing to free from it. The spinal cord does not have much blood supply like the brain, but does have some. So, do not know what or how his C7 triceps function started to work. That is not important to me, but the fact that it is now working is a Gift from God and will assist in his independent functionality.
He has now gained function below his original injury level (C6 to C7), 16 years post. Do not know if this is common or very uncommon. If anyone has had any similar experiences of gaining function below the original injury, would be interested in posts of your experience and what functional gains have occurred. A review of a spinal cord chart indicates that a change at the next level down would be C8 that would show finger movements, which he has very little of.
On September 7, 2021, I wrote: Did an Internet search on nerve growth factor a month + ago to learn more about the subject and found this. Search on the website re wild thyself and look for: supplement to increase nerve growth factor. It looked promising and seemed to be worth a shot at possibly improving my son's paralysis. We are planning a 6- month test of the 4 supplements. The article suggests more along the lines of brain and the mental function, but does mention chronic or acute trauma without specifics. Bottom line, we have begun a twice a day regime with the 4 supplements suggested without any side effects notable as yet. Will say that the links were a little tricky and for several, had to go directly to the manufacture listed on the bottle.
Maybe this link would work better. http://www.rewildthyself.com/supplem...-growth-factor
If anyone has seen this 2014 article and has known of someone trying this supplement routine, would be helpful to reply and discuss.
On November 11, 2021, I wrote: Sparky831--I now also am not able to open that rewildthyself article on nerve growth factor. For some unknown reason, it has been deleted from their website. So, suggest you look here for more information and supplements that may help to improve a spinal cord injury. 9 Nerve Growth Factor (NGF) Effects + What May Increase It - SelfHacked
Will say that it has been about 3 months with a trial of the 4 supplements suggested in that nerve growth factor article dated back to 2014. The 4 supplements suggested are: Japanese Ashitaba, Acetyl-L-Carnitine Arginate, Lions Mane, and Bromelain. My son has been on those 4 supplements at twice per day. Nothing negative at all to report up to this point. And, have not noticed anything specifically positive either. Am planning on a 6 month trial, and may go to a 12-month trial with a chance to give it our best shot. I would have replied in the message section but could not find any way in that area to click on anywhere to create a reply to your message.
Today, I have an update after 10 months. My son's injury was at C6 as we were told after surgery in 2006. His C6 level of injury has allowed for strong biceps and shoulder muscles, elbow extension, wrists up and down, and neck rotation. However, in 16 years post, he has never had any functional triceps. He could lift his arms above his head, but could not raise his forearms up or down but by maybe an inch or two. Triceps to move the forearm up and down against gravity are a C7 function. His triceps muscle had no nerve innervation. The other day, I asked him while sitting in his wheelchair to raise his arms above his head. Then asked him to raise his forearms up. I saw each forearm go straight up above his head. OMG! He now has functioning triceps muscles and will get him to begin to use those muscles a little every day to get them stronger. At that moment, I said 3 words; something is changing!!
For the last 2 months, in addition to the nerve growth factor supplements, I added Serrapeptase every morning. If you do not know its benefits, suggest you look them up. One of the multiple benefits of Serrapeptase is that when taken internally, the supplement goes to work in the bloodstream to locate and dissolve scar tissue. The active ingredient was determined from the silkworm who has to dissolve its casing to free from it. The spinal cord does not have much blood supply like the brain, but does have some. So, do not know what or how his C7 triceps function started to work. That is not important to me, but the fact that it is now working is a Gift from God and will assist in his independent functionality.
He has now gained function below his original injury level (C6 to C7), 16 years post. Do not know if this is common or very uncommon. If anyone has had any similar experiences of gaining function below the original injury, would be interested in posts of your experience and what functional gains have occurred. A review of a spinal cord chart indicates that a change at the next level down would be C8 that would show finger movements, which he has very little of.
Comment