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Ten frequently asked questions concerning cure of spinal cord injury

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  • Hi Wlaney, well that sucks. it's so early it's hard to say how she'll turn out, if she's not in a top SCI spinal cord injury center you'll want to check them out, i know theres a couple of them in TX and someone here should point them out. ask a lot of questions and do a lot of reading. after she's stablized good hard physicall therapy is so important.

    sorry you gotta be here
    http://justadollarplease.org/

    2010 SCINet Clinical Trial Support Squad Member

    "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

    .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

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    • Originally posted by Wlaney
      Recently (last Saturday) a close friend of mine had a severe accident rafting down a river near San Antonio, TX. She suffered a spinal cord injury. The MRI and CAT scan came back negative for a broken back or neck. Thats the good news. There is swelling on her spinal cord and she has no feeling from her belly button down. She did have steroid shots immediately after the accident. I saw her yesterday and she seemed to be in decent spirits.

      I am seeking advise for what is going to happen next... what types of therapy, medicines, etc... Also answers to thinks like... how long (average) and of course will she walk again?
      wlaney, you will need to get some more information.

      Spinal cord injury is very variable. If your friend has any feeling around her anus or ability to contract her anal sphincter, this would suggest that she is "incomplete" and she is likely to recover substantially. However, recovery takes many months. If she has not been already, she may need surgery to stablize her fracture site. All of this will be very disruptive and she will go through the roller coaster ride of emotions associated with spinal cord injury. In the coming months, she will need a lot of support for friends and family. She will need or reorganize her life. In the meantime, many researchers are trying to find therapies that restore function. As you can perhaps see, there are many people who would like to see these therapies arrive sooner rather than later. I believe that there will be therapies that restore substantial function to people with spinal cord injury.

      Wise.

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      • Dr. Young Thank You

        Dr. Young
        you are a great inspiration for us, please continue your mission
        I am certain that the cure will come and we will celebrate ...
        Regards,
        Joanna

        Comment


        • Would sexual function be restored

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          • Quote Wise: "As you can perhaps see, there are many people who would like to see these therapies arrive sooner rather than later."

            Well this seems understandable. Every month, every year that goes past without a cure is time lost to sci - time when one is unable to partake in so many of life's pleasures and the freedom to go wherever one wishes.

            The worry is that this will not happen in our life times or within in a reasonable timeframe to enjoy the benefits - nevertheless let's hope that there is always some sector of the medical research establishment trying to achieve the goal of sci repair so at least future generations can benefit.

            Comment


            • Originally posted by Christopher Paddon
              Quote Wise: "As you can perhaps see, there are many people who would like to see these therapies arrive sooner rather than later."

              Well this seems understandable. Every month, every year that goes past without a cure is time lost to sci - time when one is unable to partake in so many of life's pleasures and the freedom to go wherever one wishes.

              The worry is that this will not happen in our life times or within in a reasonable timeframe to enjoy the benefits - nevertheless let's hope that there is always some sector of the medical research establishment trying to achieve the goal of sci repair so at least future generations can benefit.
              Christopher, may I suggest that there is much to do to make sure that clinical trials are started in New Zealand? Wise.

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              • My niece has the right attitude....

                Dr. Young,
                My niece was injured while practicing gymnastics. Dislocated her c3-& 4. She initially had no feeling below her neck. Now, 2 months after her injury, she has feeling in her back muscles and the ability to feel pin pricks in her upper arms and legs. She also knows when she moves her bowels and can tell you if her shoes are too tight. Dr. Young - just how encouraging are these signs at this point of her recovery? My niece is a fighter.....she was initially depressed but now feels lucky just to be alive. She has hope and is determined to walk again.
                At one point she was off the vent for 3-4 minutes at a time but had a set back with pneumonia.

                Thanks again for everything you do.
                Last edited by Uncle Steve; 09-22-2005, 04:21 PM.

                Comment


                • Originally posted by Uncle Steve
                  Dr. Young,
                  My niece was injured while practicing gymnastics. Dislocated her c3-& 4. She initially had no feeling below her neck. Now, 2 months after her injury, she has feeling in her back muscles and the ability to feel pin pricks in her upper arms and legs. She also knows when she moves her bowels and can tell you if her shoes are too tight. Dr. Young - just how encouraging are these signs at this point of her recovery? My niece is a fighter.....she was initially depressed but now feels lucky just to be alive. She has hope and is determined to walk again.
                  At one point she was off the vent for 3-4 minutes at a time but had a set back with pneumonia.

                  Thanks again for everything you do.
                  Uncle Steve, I am so sorry to hear about your niece. I think that what you describe are very hopeful signs. I am optimistic that she will get more back. The only way that I know of dealing with the situation is to take it a step at a time. She needs to get off her respirator. If she needs help with phrenic nerve or diaphragm stimulation, she should do it. The next step is to get home, to utilize whatever technologies that are available (computers, FES stimulation, etc.) to become as independent as possible and to keep her body from deteriorating as a result of the injury. She still has much recovery ahead of her but it will be slow. In the meantime, she should know that there are many scientists who are working their hearts out day and night to achieve therapies that will restore function.

                  Wise.

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                  • Any Suggession for me Dr. Wise

                    Dearest Dr. Wise


                    Hope you will be fine. It is always encouraging to e-mail you and take guideline. As you may know i am 26 and SCI patient ( L1 Fracture ). Walking very well but have lost feelings of bladder, bowel and sexual function.


                    As every time you help us so please let me know if there is any treatment in the world which i can get and recover. As you say there vis lot of going in China so please tell me if any treatment in your eyes for my kind of injury. There are lot of treatments as Dr. Kleinbloesem in turkey and Dr. Yihua An in china. Also you said about another center in Tienjin China showing good results with Schwan cells. Please help me because your advise can make my life worthwhile. If you think i should wait still then also tell.


                    Sincerely

                    Jawaid

                    Comment


                    • Jawaid,

                      The discussions here on this forum represent the best information that I know concerning various therapies that are being tried around the world. Given you situation, I would be patient and wait until therapies are proven before trying them. You are walking.

                      Wise.

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                      • Originally posted by Wise Young
                        Uncle Steve, I am so sorry to hear about your niece. I think that what you describe are very hopeful signs. I am optimistic that she will get more back. The only way that I know of dealing with the situation is to take it a step at a time. She needs to get off her respirator. If she needs help with phrenic nerve or diaphragm stimulation, she should do it. The next step is to get home, to utilize whatever technologies that are available (computers, FES stimulation, etc.) to become as independent as possible and to keep her body from deteriorating as a result of the injury. She still has much recovery ahead of her but it will be slow. In the meantime, she should know that there are many scientists who are working their hearts out day and night to achieve therapies that will restore function.

                        Wise.
                        Dr. Young,
                        My brother mentioned that my niece is currently on medication to help stimulate her diaphragm. In your opinion, is there any medication that you feel is better than another? Also, have you seen more success with a particular type of therapy over another to help the phrenic nerve?
                        (www.samanthaslusak.com).
                        http://www.wtsp.com/news/news.aspx?storyid=18986
                        Thanks.

                        Comment


                        • Originally posted by Uncle Steve
                          Dr. Young,
                          My brother mentioned that my niece is currently on medication to help stimulate her diaphragm. In your opinion, is there any medication that you feel is better than another? Also, have you seen more success with a particular type of therapy over another to help the phrenic nerve?
                          (www.samanthaslusak.com).
                          http://www.wtsp.com/news/news.aspx?storyid=18986
                          Thanks.
                          Is the drug called theophylline? There is some discussion about it at this topic
                          http://carecure.org/forum/archive/in...p/t-38417.html

                          Comment


                          • Originally posted by Wise Young
                            Is the drug called theophylline? There is some discussion about it at this topic
                            http://carecure.org/forum/archive/in...p/t-38417.html
                            Dr. Young,
                            Yes, she's on theophylline. I'm glad for that.
                            One more follow up question.....
                            Ever since the accident my niece has had low blood presure. Dizzy spells when she sits upright. Is there a better solution to bring her levels up than salt tablets?
                            Thanks again.
                            Uncle Steve
                            www.samanthaslusak.com

                            Comment


                            • Originally posted by Uncle Steve
                              Dr. Young,
                              Yes, she's on theophylline. I'm glad for that.
                              One more follow up question.....
                              Ever since the accident my niece has had low blood presure. Dizzy spells when she sits upright. Is there a better solution to bring her levels up than salt tablets?
                              Thanks again.
                              Uncle Steve
                              www.samanthaslusak.com
                              Uncle Steve,

                              This is common. Spinal cord injury compromises the blood pressure reflex that the body initiates when a person sits or stands up. She just needs to be systematically brought to the vertical position slowly and progressively so that the reflex recovers. This happens with many people after cervical spinal cord injury and I hope that others will comment about this. It will get better.

                              Wise.

                              Comment


                              • Timeline of goals

                                I wonder if someone could post a timeline of steps or goals on the way to achieving a treatment or “cure” for SCI. What are the obstacles that need to be overcome? I realize a big question is "How does something like a stem cell know to produce the correct cell?" This is a concern that needs to be addressed first. What other options are being developed? How far along are researchers? In the U.S. and abroad?

                                Or if there is something like this already, where is it?

                                Thanks.
                                Last edited by aton; 10-04-2005, 01:47 PM.

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