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Cervical possibilities for later scinetusa trials

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    #16
    Update: my baclofan pump disqualifies me from their current trial.... My pump is actually on a really low dose, I wonder if I shoot an e-mail asking if I can ween off the baclofan pump THEN apply
    "That's not smog! It's SMUG!! " - randy marsh, southpark

    "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


    2010 SCINet Clinical Trial Support Squad Member
    Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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      #17
      Originally posted by lunasicc42 View Post
      Update: my baclofan pump disqualifies me from their current trial.... My pump is actually on a really low dose, I wonder if I shoot an e-mail asking if I can ween off the baclofan pump THEN apply
      You get very bad spasms?

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        #18
        Originally posted by Sparky831 View Post
        You get very bad spasms?
        i honestly don't remember... I have had this baclofan pump for like 15 years and it manages my spasms excellently, I barely get spasms but I don't know how they would be without the pump... If they would be manageable or not
        "That's not smog! It's SMUG!! " - randy marsh, southpark

        "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


        2010 SCINet Clinical Trial Support Squad Member
        Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

        Comment


          #19
          Originally posted by lunasicc42 View Post
          i honestly don't remember... I have had this baclofan pump for like 15 years and it manages my spasms excellently, I barely get spasms but I don't know how they would be without the pump... If they would be manageable or not
          I always believe spasms are kind of good as they kind of exercise your legs and stomach. I have moderate spams and only take Baclofan by mouth 2x a day they also tend to help me sometimes. I've heard stories though of some people having very severe spams to the point they cant be on a wheelchair or even sleep at night. I guess we have to find a balance in between.

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