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Getting closer to a cure!

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    Originally posted by Vindex View Post
    Look up Dr. Justin Brown listen at Mass General Hospital
    While I was in inpatient at Spaulding rehab last year Dr Brown came by and did rounds to meet with all of the various SCI patients. For all of us quads he seemed to highly recommend the surgery, and that we get it very quickly. At the time it felt a little bit like a high-pressure salesman in an environment where I wasn't really sure what was happening - still swirling in the confusion in desperation of a recent injury. As a result, I didn't go forward with it. Now, a little over a year out from my injury, I wonder if I made the right choice. Some of the other patients signed up and have had varying levels of results. But certainly, the promise that it holds seems appealing in hindsight, now that I've come to terms with the fact that I'm unlikely to get my hands back by natural means. The grass is always greener, I suppose!

    It's also worth noting that, at the time, some of my therapists were a little unsure about his work as well. So I didn't feel super confident in his procedure. But now, talking to those same therapists, they've come around and think he's the real deal.
    C5/6 complete (maybe) circa June 2018


      No closer to a cure.

      We are no closer to a cure today than 30 years ago.

      When I got injured in 1987 my rehab doctor told me in 8 years (1995) there will be a cure. That was almost a quarter of century ago.

      I have not seen one walking para or quad paralyzed cured from any type of surgery or therapy(s).

      Pick up the shattered pieces of your life and move forward. Live life like you have no disability. Still run after all of your dreams, ambitions and goals in life. Don't stop running!

      I will go to my grave paralyzed.

      In my honest opinion.

      "We must overcome difficulties rather than being overcome by difficulties."


        Originally posted by Mize View Post
        While this won't help complete quads, as you must have some spared function to transform into grasp
        Not true. Complete/Incomplete is irrelevant here.