Announcement

Collapse
No announcement yet.

Opinions wanted

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Opinions wanted

    of all the companies or entities looking to get a credible treatment to the people... Who do you THINK is on track to offer a real treatment first... Time wise
    Just curious what yall think
    "That's not smog! It's SMUG!! " - randy marsh, southpark

    "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


    2010 SCINet Clinical Trial Support Squad Member
    Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

  • #2
    is it even fair to ask this yet
    "That's not smog! It's SMUG!! " - randy marsh, southpark

    "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


    2010 SCINet Clinical Trial Support Squad Member
    Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

    Comment


    • #3
      In my opinion i think it will take a breakthrough that will likely have nothing to do with SCI research. It will probably be a series of unpredictable events, like an army of tech geeks in a lab fifty years from now develops technology to print tiny nano robots. Twenty years after that another team accidentally discovers a way to build live nerves from scratch while working on an unrelated project. Ten years later a medical device company starts work on a project to combine the two tech companies ideas. After ten or twenty years of animal testing and another five to twenty years convincing the FDA, the cure goes live to those who can afford several lifetimes worth of savings to pay for it. Over the next ten years prices drop to the point that insurance companies can cover it without going bankrupt.

      SCI cure is a breakthrough unlike any that have yet been achieved by modern medicine (at least it would be if we went from near zero today to a true cure for chronic injuries where the nerve is completely destroyed). It will require several leaps in technology and I doubt anyone could accurately predict where the real innovation will come from, but I’ll bet my baby nephew’s grandchildren are in the retirement home before humans have a realistic path to a cure... not sure how I’m going to collect on this bet now that I think about it, so I guess i ought to withdraw my wager.

      Comment


      • #4
        I feel bad for posting in the cure forum, I probably should re-restrain myself from doing so like I used to for the first five or ten years post injury... I know I'm a big pessimist. But your post popped up in my feed from the home page and your title seemed to be inviting an honest, non-delusional answer... anyway this is just my opinion, I'm no expert in SCI research.

        Comment


        • #5
          i AM looking for your honest opinion, no matter what it is... It's interesting to me
          "That's not smog! It's SMUG!! " - randy marsh, southpark

          "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


          2010 SCINet Clinical Trial Support Squad Member
          Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

          Comment


          • #6
            Let us look it this way...a spinal cord injury is a lot like many cables have been severed. See the attached photo.

            Some how, all of those colored wires have to find the right pair of colored wires with which to pair. What are the odds?

            Not sure why the jpeg isn't showing up as a picture rather than a link???? Is this something new? I downloaded and posted the jpeg as I always do?
            Attached Files
            Last edited by gjnl; 11-07-2018, 12:21 AM.

            Comment


            • #7
              Agreed with funklab. If you have spinal cord injury - whether traumatic or non-traumatic - you're going to die with it. I'm sorry but believe me, this paralyzed-at-12-years-old person never thought she'd still be here in this chair at 46.
              Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

              T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

              Comment


              • #8
                Getting back to the question,

                There is an investment report that documents the answer, for 30 companies:
                https://www.researchandmarkets.com/r...pinal_cord?w=4

                Unfortunately it costs $2K which has put me off. However if you click on the Companies Mentioned tab it gives you an idea of who is doing what.

                This doesn't include any of the estim companies, which could be 2 years away if they receive investment, and much longer if they don't.

                Comment


                • #9
                  Originally posted by niallel View Post
                  Getting back to the question,

                  There is an investment report that documents the answer, for 30 companies:
                  https://www.researchandmarkets.com/r...pinal_cord?w=4

                  Unfortunately it costs $2K which has put me off. However if you click on the Companies Mentioned tab it gives you an idea of who is doing what.

                  This doesn't include any of the estim companies, which could be 2 years away if they receive investment, and much longer if they don't.
                  I'd save the 2k and build my own spreadsheet of information links off that list of companies working in the field. Much of what these companies are doing can be intensely searched and compiled without purchasing the expensive report. (Most of them people haven't heard of). It just takes time to search and compile.
                  http://spinalcordresearchandadvocacy.wordpress.com/

                  Comment


                  • #10
                    Originally posted by GRAMMY View Post
                    I'd save the 2k and build my own spreadsheet of information links off that list of companies working in the field. Much of what these companies are doing can be intensely searched and compiled without purchasing the expensive report. (Most of them people haven't heard of). It just takes time to search and compile.
                    I thought that too, it would give an idea of what they were working on. I made a start and a lot of them probably don't hold much interest for us.

                    I've seen reports like this before for other sectors and they are worth the money if you are financially investing in the sector.
                    The analyst will have had access to senior people at the companies and will have much more info than available in public reports - however I bet it's not the kind of info we would be interested in regarding clinical benefits.

                    I've asked if there is non-profit pricing, if so I might get it to see if the info is relevant.

                    Comment


                    • #11
                      <= 5 years: exoskeletons will be more available (maybe even fully controlled by our brains), the brain and CNS will be much better understood than today, a simple nano breakthrough could be a game changer

                      Comment


                      • #12
                        Jerry Silver's peptide would open the door for cell therapy to connect the damaged ends:

                        https://www.nervgenpharma.com/technology

                        Comment


                        • #13
                          Originally posted by funklab View Post
                          I feel bad for posting in the cure forum, I probably should re-restrain myself from doing so like I used to for the first five or ten years post injury... I know I'm a big pessimist. But your post popped up in my feed from the home page and your title seemed to be inviting an honest, non-delusional answer... anyway this is just my opinion, I'm no expert in SCI research.
                          Don't feel bad. I think you're being real...I agree with you. In my opinion, an exogenous cure is an eventuality. An endogenous cure is very far away. Here, I am defining an exogenous cure as a technical interface between brain and limb. You can define that however you'd like. In the near future, we're more likely to see better and more reasonable prostheses. Maybe even to the point where the tech can be developed to the extent that something can be embedded which will "take over" the duties of the disrupted spinal cord. NOTE: we're slowly seeing such a trend in the AR field in the sense that perception is the function that is being enhanced.
                          No one ever became unsuccessful by helping others out

                          Comment


                          • #14
                            Common misconception is that it will be one thing. One breakthrough that will cure it all. More likely the cure will come from a combination of many different approaches and hard, hard work in the gym. That is everything that we see right now that have any credibility. Since every spinal cord injury is different it might be that different things will work better in different circumstances. From the evidence we have right now I think electrically induced muscle contractions do have some interesting potential in how it affects the lesion. This should be first to yield any real results in whichever form. Preferably non invasive. Of course we are talking decades away. Nobody really knows how many decades.

                            Comment

                            Working...
                            X