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  • #31
    Originally posted by Mize View Post
    The latest ChABC + oNPCs paper is out and the results, provided the can be repeated and extended to multiple treatments in humans, are huge news for younger SCIs. This was an animal study where a single treatment (2 injections one week apart) measurably and statistically improved function in rats that were 6 weeks post injury. It's a very thorough paper.

    Too bad I'm not younger as this could be something in 20 years.
    Link?
    "That's not smog! It's SMUG!! " - randy marsh, southpark

    "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


    2010 SCINet Clinical Trial Support Squad Member
    Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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    • #32
      Originally posted by lunasicc42 View Post
      Link?

      https://spinalcordresearchandadvocac...l-cord-injury/
      http://spinalcordresearchandadvocacy.wordpress.com/

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      • #33
        Sorry, I was on my phone multitasking and didn't provide the link. Personally, if you're an SCI or have a loved one who is and you're not signed up for GRAMMY's email updates then you should be. Best way to keep on top of what's going on in SCI cure research. Anyway, my oldest son is a microbiologist so I sent the link to him to read as well. Assuming that multiple treatments are an option that produces ongoing improvements...
        T3 complete since Sept 2015.

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        • #34
          I signed my rat up for the news letter. He seems excited.

          Originally posted by Mize View Post
          Sorry, I was on my phone multitasking and didn't provide the link. Personally, if you're an SCI or have a loved one who is and you're not signed up for GRAMMY's email updates then you should be. Best way to keep on top of what's going on in SCI cure research. Anyway, my oldest son is a microbiologist so I sent the link to him to read as well. Assuming that multiple treatments are an option that produces ongoing improvements...
          "I have great faith in fools; self-confidence my friends call it." - Edgar Allen Poe

          "If you only know your side of an issue, you know nothing." -John Stuart Mill, On Liberty

          "Even what those with the greatest reputation for knowing it all claim to understand and defend are but opinions..." -Heraclitus, Fragments

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          • #35
            Originally posted by Oddity View Post
            I signed my rat up for the news letter. He seems excited.
            I'm still in that "luck is when preparation meets opportunity" camp, as I'm not going to be the guy who is too atrophied to be a candidate for some future treatment.
            It's a long-long-shot in my lifetime, but the effort to be plugged in and in shape isn't that terrible.
            T3 complete since Sept 2015.

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            • #36
              And to think my last post on here was erased..... Agree 110% to the original post here. My email has been sent to Jim, still waiting for an email with "news" I am with others though, keep in shape and try not to atrophy just in "case" we ever see it

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              • #37
                Originally posted by Ajstevens View Post
                And to think my last post on here was erased..... Agree 110% to the original post here. My email has been sent to Jim, still waiting for an email with "news" I am with others though, keep in shape and try not to atrophy just in "case" we ever see it

                Why do you think was the reason your last post was erased? What was it?
                "That's not smog! It's SMUG!! " - randy marsh, southpark

                "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


                2010 SCINet Clinical Trial Support Squad Member
                Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

                Comment


                • #38
                  Originally posted by Mize View Post
                  Personally, if you're an SCI or have a loved one who is and you're not signed up for GRAMMY's email updates then you should be. Best way to keep on top of what's going on in SCI cure research.
                  Thank you Mize! I'm glad you appreciate the email updates. It makes me feel like the work and sharing it are worth the time spent following sci cure research.
                  http://spinalcordresearchandadvocacy.wordpress.com/

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                  • #39
                    I would be lost without them Grammy. I probably read at least half of them partially and some every unpronounceable word!
                    T3 complete since Sept 2015.

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                    • #40
                      Originally posted by Patrick Madsen View Post
                      Still have scars from a remedy burning moss on one's Chakras on the back.
                      Wow!! Back when I was first injured (35 years ago) I consented to allow a wackjob acupuncturist to burn mugwort directly on my skin including my lower back. That got old very fast.
                      stephen@bike-on.com

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                      • #41
                        Originally posted by funklab View Post
                        I like this.

                        Doctoring is mostly delaying the inevitable (death) as long as possible. Nowadays we as a society have figured out how to cure the easy stuff (bacterial infections) that used to kill most people and figured out how to manage some of the nastier viral infections (immunizations) and prevent a lot of both of those in the first place (sanitation, clean water, public healthy), so what we're left with is all of the chronic diseases (high blood pressure, diabetes, heart disease, COPD, etc).

                        So much of doctoring is just trying to bring someone's blood pressure down a few points, or lower their blood glucose, or decrease the number of hospitalizations for a COPD exacerbation from 3 a year to 2 a year, all of which forestall death just a little bit longer. Unless you're an infectious disease doctor there's not much to be "cured".

                        Surely there will be a cure for the simple stuff like type 2 diabetes or atherosclerosis or HIV long before SCI. Those are all infinitely simple and extraordinarily well understood diseases in comparison to regrowing and reattaching correctly each of one billion individual nerves in the broken spinal cord.
                        Well. . . I was diagnosed with chronic lymphocytic leukemia (CLL) in 2014. I was in "watch and wait" (active observation) for 3 years until I began to present symptoms (occasional night sweats). I was treated with a combination of novel (non-chemo) agents and got a complete remission. Am I cured? Only time will tell but even if I relapse it should be pretty easy to get me back to remission.
                        stephen@bike-on.com

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