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  • #46
    Originally posted by Moe View Post
    I'm loosing track of what local sci organizations and foundations are really doing to help besides collecting donations.
    Some do wonderful things. Some don’t do diddly. Unfortunately some in the diddly category are the ones that raise the most money it seems.

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    • #47
      I moved off topic posts to Members Only. It is great having Dr. Silver post again, he doesn't need to be distracted by bs. I understand why some are frustrated at the pace of research and the fragmentation of our community, but lets talk about that in another thread. These researchers are working their asses off for US.
      Last edited by Jim; 08-17-2018, 09:24 PM.

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      • #48
        I just realized that NervGen Pharma is a Canadian Biotech corp located in British Colombia. Licence to use or full ownership of the peptide? Would that mean it's within Health Canada's approval and not the FDA meaning canadian trails?
        "Talk without the support of action means nothing..."
        ― DaShanne Stokes

        ***Unite(D) to Fight Paralyses***

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        • #50
          Dr Silver is a pretty smart guy who gets things done. Do you think he would be swindled by a biotech firm? I'm certain he did his research.
          Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

          T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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          • #51
            Originally posted by lynnifer View Post
            Dr Silver is a pretty smart guy who gets things done. Do you think he would be swindled by a biotech firm? I'm certain he did his research.
            I don't think anyone is suggesting that there is a scam going on here, so its unnecessary to introduce this into the conversation.

            Different organisations do different things based upon their objectives. I'm not saying this is the case with NervGen, but unfortunately commercial organisations don't have identical desires as people with an SCI.

            We want things available NOW. While they also want to see us cured they do things in a way that will ensure the best outcome for the company.

            Meeting in the middle is the best we should hope for.

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            • #52
              If you have the time, I'd recommend watching this.

              Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

              T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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              • #53
                Originally posted by lynnifer View Post
                If you have the time, I'd recommend watching this.
                Why?

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                • #54
                  Originally posted by lynnifer View Post
                  If you have the time, I'd recommend watching this.

                  Entirely off topic...

                  Comment


                  • #55
                    This life-saving/serving tech should ideally be in the public domain. How much does J.Silver want for his peptide recipe?

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                    • #56
                      Originally posted by Moe View Post
                      What's preventing sci's to reunite for a marathon of hope for a cure, something to fire up the media, lift out bans, remove unnecessary waiting time, regulations, etc.... is it true that it was UTFP's goal initially? unite sci's as a whole toward such visibility? Just asking. I find right now is a great time to happen. Sitting like ducks and cheering rockstars doesn't seem to work so far.

                      How about including a huge fleet of sci's on wheelchairs at the next Macy's parade? no violence, nice and simple, message givin, national or worldwide media reporting.... Done. not rocket science.

                      The Parade is in 3 months in NYC, imagine a huge convoy of wheelchairs and decorated trailers full of sci's waving at everybody... the world watching, we'd be on tv....
                      The disabled have equal rights to be included as far as I know, it calls for a potential proposal to the mayor of nyc and event organizers.

                      I'm loosing track of what local sci organizations and foundations are really doing to help besides collecting donations.

                      Also with reference to the last sentence of this post;
                      I too must wonder, with new 501(c)3's popping up each month, just what is purpose of such redundancy?
                      Surely there must be a point in time they tend to experience "flame-out"? Local contributors dry up?
                      Then what?

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                      • #57
                        Acute first. Just in case people were thinking that this was applicable to chronics. It isn't.

                        From NervGen Pharma:

                        "On behalf of Ernest Wong, our President & CEO, thank you so much for your message and interest in NervGen and our ISP compound for nerve regeneration. We have only recently launched the company and thus we are in the early stages of developing therapies for nerve regeneration and are driving hard to initiate clinical trials as soon as possible. Please be rest assured that the NervGen team wakes up each and every day with the goal of developing meaningful and life-changing therapies for people in need such as you.

                        Regarding near term plans, we will be focusing on acute and possibly sub-acute injuries. With success in the clinic and more work in product development, we will be able to push towards chronic injuries. Strategically, we need to show success in the clinic even if it is on a smaller segment of the injured population, and from there we can move to broader applications.


                        I will add you to our news dissemination list to make sure you are updated with our progress. Please monitor our website for further information (www.nervgenpharma.com) and stay in touch as we advance our compound towards the clinic.




                        Best wishes,


                        Bill Radvak

                        Executive Chairman"


                        Comment


                        • #58
                          Originally posted by Tayberry View Post
                          Acute first. Just in case people were thinking that this was applicable to chronics. It isn't.

                          From NervGen Pharma:

                          "On behalf of Ernest Wong, our President & CEO, thank you so much for your message and interest in NervGen and our ISP compound for nerve regeneration. We have only recently launched the company and thus we are in the early stages of developing therapies for nerve regeneration and are driving hard to initiate clinical trials as soon as possible. Please be rest assured that the NervGen team wakes up each and every day with the goal of developing meaningful and life-changing therapies for people in need such as you.

                          Regarding near term plans, we will be focusing on acute and possibly sub-acute injuries. With success in the clinic and more work in product development, we will be able to push towards chronic injuries. Strategically, we need to show success in the clinic even if it is on a smaller segment of the injured population, and from there we can move to broader applications.


                          I will add you to our news dissemination list to make sure you are updated with our progress. Please monitor our website for further information (www.nervgenpharma.com) and stay in touch as we advance our compound towards the clinic.




                          Best wishes,


                          Bill Radvak

                          Executive Chairman"


                          Imagine that......

                          Comment


                          • #59
                            Not for lower motor neuron injuries either I suppose...ho hum. The mice have all the luck.
                            "I have great faith in fools; self-confidence my friends call it." - Edgar Allen Poe

                            "If you only know your side of an issue, you know nothing." -John Stuart Mill, On Liberty

                            "Even what those with the greatest reputation for knowing it all claim to understand and defend are but opinions..." -Heraclitus, Fragments

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                            • #60
                              That message didn't say in any way that the treatment isn't for chronics... And the idea that the treatment is not to be applied to chronics is false... Worry not
                              "That's not smog! It's SMUG!! " - randy marsh, southpark

                              "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


                              2010 SCINet Clinical Trial Support Squad Member
                              Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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