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"SCINet" or "Spinal Cord Injury Network": Does it really exist or yet to be founded?

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    "SCINet" or "Spinal Cord Injury Network": Does it really exist or yet to be founded?

    ChinaSCINet, IndiaSCINet, NorwaySCINet or AnywhereSCINet... Is this a real actual Network, a planned upcoming one or just a label?

    - If its an actual or upcoming one what's the advantage of having one vs independent?

    - How does the management work , Where is the main office and who are the officials behind it?

    - Which updated official countries are in so far and who are the representatives/participating Neurosurgeons of these countries?

    - Is there a risk that this network will regulate and monopolize spinal cord research or just the cord blood trials?

    - Is replicating the Umbilical Cord blood trials the only focus for the upcoming events ?

    - Is there any follow-up data of ANY volunteers of the completed previous trials in china? (P-1 & P-2) if not why?
    "Talk without the support of action means nothing..."
    ― DaShanne Stokes

    ***Unite(D) to Fight Paralyses***

    #2
    Originally posted by Moe View Post
    ChinaSCINet, IndiaSCINet, NorwaySCINet or AnywhereSCINet... Is this a real actual Network, a planned upcoming one or just a label?

    - If its an actual or upcoming one what's the advantage of having one vs independent?

    - How does the management work , Where is the main office and who are the officials behind it?

    - Which updated official countries are in so far and who are the representatives/participating Neurosurgeons of these countries?

    - Is there a risk that this network will regulate and monopolize spinal cord research or just the cord blood trials?

    - Is replicating the Umbilical Cord blood trials the only focus for the upcoming events ?

    - Is there any follow-up data of ANY volunteers of the completed previous trials in china? (P-1 & P-2) if not why?
    Good questions. Hope someone can answer you.

    Paolo
    In God we trust; all others bring data. - Edwards Deming

    Comment


      #3
      Moe has turned.....

      Comment


        #4
        Originally posted by Fly_Pelican_Fly View Post
        Moe has turned.....
        do you mean into a zombie
        "That's not smog! It's SMUG!! " - randy marsh, southpark

        "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


        2010 SCINet Clinical Trial Support Squad Member
        Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

        Comment


          #5
          Originally posted by Fly_Pelican_Fly View Post
          Moe has turned.....
          Originally posted by lunasicc42 View Post
          do you mean into a zombie
          Flying Pelican and Luna, seriously?? Got nothing better to do than butt-in with useless childish remarks?? I addressed this topic to SCINet officials, not you 2 clowns...
          Last edited by Moe; 24 Jun 2018, 11:02 PM.
          "Talk without the support of action means nothing..."
          ― DaShanne Stokes

          ***Unite(D) to Fight Paralyses***

          Comment


            #6
            Originally posted by Moe View Post
            Flying Pelican and Luna, seriously?? Got nothing better to do than butt-in with useless childish remarks?? I addressed this topic to SCINet officials, not you 2 clowns...
            Just returning the sarcasm you have been personally directing at the challengers of Wise/SCINetChina/UCBC over the last 7 years. Lost your sense of humour now eh?

            Comment


              #7
              Originally posted by Fly_Pelican_Fly View Post
              Just returning the sarcasm you have been personally directing at the challengers of Wise/SCINetChina/UCBC over the last 7 years. Lost your sense of humour now eh?
              PM me with your personal issues, you're derailing the tread.

              back to topic

              Dear SCINet official, (no regualar moderators please)

              ChinaSCINet, IndiaSCINet, NorwaySCINet or AnywhereSCINet... Is this a real actual Network, a planned upcoming one or just a label?

              - If its an actual or upcoming one what's the advantage of having one vs independent?

              - How does the management work , Where is the main office and who are the officials behind it?

              - Which updated official countries are in so far and who are the representatives/participating Neurosurgeons of these countries?

              - Is there a risk that this network will regulate and monopolize spinal cord research or just the cord blood trials?

              - Is replicating the Umbilical Cord blood trials the only focus for the upcoming events ?

              - Is there any follow-up data of ANY volunteers of the completed previous trials in china? (P-1 & P-2) if not why?
              "Talk without the support of action means nothing..."
              ― DaShanne Stokes

              ***Unite(D) to Fight Paralyses***

              Comment


                #8
                naw, all jokes aside, I see what Moes saying, I was just having a little fun because I am stuck between a rock and a hard place with my values... On one hand I was tired of always speculating or asking questions to get the typical non-answers no matter how you phrase a certain question or how many times you ask it but on the other hand I understand the importance of questioning to make sure the researchers are doing everything on the up-and-up and not wasting precious time and money
                "That's not smog! It's SMUG!! " - randy marsh, southpark

                "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


                2010 SCINet Clinical Trial Support Squad Member
                Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

                Comment


                  #9
                  So much useless interference...

                  back to topic

                  Dear SCINet official, (no regualar moderators please)

                  ChinaSCINet, IndiaSCINet, NorwaySCINet or AnywhereSCINet... Is this a real actual Network, a planned upcoming one or just a label?

                  - If its an actual or upcoming one what's the advantage of having one vs independent?

                  - How does the management work , Where is the main office and who are the officials behind it?

                  - Which updated official countries are in so far and who are the representatives/participating Neurosurgeons of these countries?

                  - Is there a risk that this network will regulate and monopolize spinal cord research or just the cord blood trials?

                  - Is replicating the Umbilical Cord blood trials the only focus for the upcoming events ?

                  - Is there any follow-up data of ANY volunteers of the completed previous trials in china? (P-1 & P-2) if not why?
                  "Talk without the support of action means nothing..."
                  ― DaShanne Stokes

                  ***Unite(D) to Fight Paralyses***

                  Comment


                    #10
                    Wise is out of the country and can't log in, asked me to post this-

                    Moe,

                    ChinaSCINet exists. It is located in Hong Kong Science Park. I recently stepped down from being the Director and CEO of ChinaSCINet and Professor Waisan Poon from the Chinese University of Hong Kong will be taking over. I remain the co-chair of the Board of Directors, to continue to help raise money for the trials.

                    IndiaSCINet exists. It is a charity and supports clinical trial networks in India. Stemcyte India is continuing to get the Phase II trial going in India. As soon as the institutional review boards of the participating hospitals are duly constituted and approve the protocol, we will submit the initial new drug (IND) application to the Deug Controller General of India (DCGI) for approval to start the trial.

                    I never started SCINetUSA. This was in part because the trial is being sponsored by Stemcyte and it is simply called US102d. I have been spending an enormous amount of time and effort getting the IND Approved and we just have one final issue to deal with before it is approved. Costs are rising rapidly. I suspect that the phase II trial will cost $10 million before it is done,

                    There is also supposed to be a NorwegianSCINet (NOSCINET) but the European network probably will not start until the phase III trial starts, hopefully in 2020. Many of us are working very hard to get all these trials going and raising the money for the trials.

                    Wise.

                    Comment


                      #11
                      Jim, I appreciate all Dr. Wise , you and all involved do for us. Thank you for all your efforts.

                      Comment


                        #12
                        Thank you Dr. Wise for answering and Jim for forwarding the message. Hopefully all goes well.

                        With all those countries mentioned, I'm curious to know who owns the intellectual property of this technology/trial? Could I assume Rutgers? Stemcyte? or open source? The researchers themselves?
                        "Talk without the support of action means nothing..."
                        ― DaShanne Stokes

                        ***Unite(D) to Fight Paralyses***

                        Comment


                          #13
                          Originally posted by JoeMonte View Post
                          Jim, I appreciate all Dr. Wise , you and all involved do for us. Thank you for all your efforts.
                          Hey Joe, thanking me is never necessary, I am fortunate to have the opportunity to be able to support Wise, Dr. Morton, and our Center. Wise is the one who dedicated the last 40 years of his life to improving our situations. He started as a neurosurgeon, was the 'guy' that would operate and stabilize our spines. He became frustrated telling families there wasn't anything else he could do, and decided to leave neurosurgery and focus on sci research. His mentor, NIH, and most of his colleages said, you are crazy, you can't fix SCI. Thank goodness he did.

                          Originally posted by Moe View Post
                          Thank you Dr. Wise for answering and Jim for forwarding the message. Hopefully all goes well.

                          With all those countries mentioned, I'm curious to know who owns the intellectual property of this technology/trial? Could I assume Rutgers? Stemcyte? or open source? The researchers themselves?
                          Moe, I don't know the all the legalities, but can tell you this with complete confidence, no one involved will attempt to make a buck off this therapy. StemCyte, who has been existing hand-to-mouth for several years, is in this to help us. Their CEO, Dr. Jonas Wang is an honorable man. They want to pay for the trial, but we may need to raise additional funds because of the insane US costs. This is all being worked out now.

                          Once we find a qualified company to process the cells, and certify that they can do it properly, (critical part of the trial), we will get approval. We are planning for the first surgery to happen in the Fall.
                          Last edited by Jim; 18 Jul 2018, 12:57 PM.

                          Comment


                            #14
                            Originally posted by Jim View Post
                            Hey Joe, thanking me is never necessary, I am fortunate to have the opportunity to be able to support Wise, Dr. Morton, and our Center. Wise is the one who dedicated the last 40 years of his life to improving our situations. He started as a neurosurgeon, was the 'guy' that would operate and stabilize our spines. He became frustrated telling families there wasn't anything else he could do, and decided to leave neurosurgery and focus on sci research. His mentor, NIH, and most of his colleages said, you are crazy, you can't fix SCI. Thank goodness he did.



                            Moe, I don't know the all the legalities, but can tell you this with complete confidence, no one involved will attempt to make a buck off this therapy. StemCyte, who has been existing hand-to-mouth for several years, is in this to help us. Their CEO, Dr. Jonas Wang is an honorable man. They want to pay for the trial, but we may need to raise additional funds because of the insane US costs. This is all being worked out now.

                            Once we find a qualified company to process the cells, and certify that they can do it properly, (the most important part of the trial), we will get approval. We are planning for the first surgery to happen in the Fall.
                            Hooray, and for God sake please expand that inclusion criteria to accept C4's and ill be there
                            "That's not smog! It's SMUG!! " - randy marsh, southpark

                            "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


                            2010 SCINet Clinical Trial Support Squad Member
                            Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

                            Comment


                              #15
                              Originally posted by lunasicc42 View Post
                              Hooray, and for God sake please expand that inclusion criteria to accept C4's and ill be there

                              I think I read that one of the criteria's were that the participant must be also a local resident... New Yorkers and Jerseyans. Makes sence to make this expensive trial to run as simple and efficient as possible... No more 'live too far' issues!!
                              "Talk without the support of action means nothing..."
                              ― DaShanne Stokes

                              ***Unite(D) to Fight Paralyses***

                              Comment

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