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"SCINet" or "Spinal Cord Injury Network": Does it really exist or yet to be founded?

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    #16
    Originally posted by Moe View Post
    I think I read that one of the criteria's were that the participant must be also a local resident... New Yorkers and Jerseyans. Makes sence to make this expensive trial to run as simple and efficient as possible... No more 'live too far' issues!!
    I haven’t seen that anywhere. You sure?

    Comment


      #17
      Originally posted by Moe View Post
      I think I read that one of the criteria's were that the participant must be also a local resident... New Yorkers and Jerseyans. Makes sence to make this expensive trial to run as simple and efficient as possible... No more 'live too far' issues!!
      The trial, including the physical rehab will be six months. Anyone can relocate for that time period, but will have to cover those costs. They will also have to come back for the follow-up exams.

      Comment


        #18
        Originally posted by Jim View Post
        Moe, I don't know the all the legalities, but can tell you this with complete confidence, no one involved will attempt to make a buck off this therapy. StemCyte, who has been existing hand-to-mouth for several years, is in this to help us. Their CEO, Dr. Jonas Wang is an honorable man. They want to pay for the trial, but we may need to raise additional funds because of the insane US costs. This is all being worked out now.

        Once we find a qualified company to process the cells, and certify that they can do it properly, (the most important part of the trial), we will get approval. We are planning for the first surgery to happen in the Fall.
        Jim thanks for the reassurance, but just in case my question got misunderstood, I did not question anybody's integrity. I'm sure everybody's honorable good hearted and all... but has nothing to do about my question about who owns the intellectual property, probably the question also was addressed to someone who knew the answer.

        EXAMPLE:
        Q: Who owns the intellectual property of AST-OPC1?
        A: Asterias Biotherapeutics, Inc.

        if its too much for a public forum fine, I understand. Why does it always have to lead to gratitude and judgment of characters beets me. Jesus...
        Last edited by Moe; 18 Jul 2018, 12:39 PM.
        "Talk without the support of action means nothing..."
        ― DaShanne Stokes

        ***Unite(D) to Fight Paralyses***

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          #19
          Originally posted by Moe View Post
          Jim thanks for the reassurance, but just in case my question got misunderstood, I did not question anybody's integrity. I'm sure everybody's honorable good hearted and all... but has nothing to do about my question about who owns the intellectual property, probably the question also was addressed to someone who knew the answer.

          EXAMPLE:
          Q: Who owns the intellectual property of AST-OPC1?
          A: Asterias Biotherapeutics, Inc.

          if its too much for a public forum fine, I understand. Why does it always have to lead to gratitude and judgment of characters beets me. Jesus...
          Moe, I didn't think you were pointing fingers, I just don't know the answer.

          Comment


            #20
            Jim, is it possible to provide an updated list of the hospitals that will likely participate in the trials
            "That's not smog! It's SMUG!! " - randy marsh, southpark

            "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


            2010 SCINet Clinical Trial Support Squad Member
            Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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              #21
              Luna,

              Hackensack University Medical Center, Jersey Shore University Medical Center, and New Jersey Medical School, Newark. When it's time to apply, those interested will apply directly to the hospitals.

              Comment


                #22
                Originally posted by Jim View Post
                The trial, including the physical rehab will be six months. Anyone can relocate for that time period, but will have to cover those costs. They will also have to come back for the follow-up exams.
                Maybe I misunderstood. I thought the patients after surgery would stay on premises for the 6 months. Do I not have that correct? Do they stay in a hotel or something? I thought it was all payed for.

                Comment


                  #23
                  Post surgery, there is six weeks of outpatient standing/walking, followed by 6 months of walking at a facility like PushtoWalkNJ. Travel and accommodations are not covered.

                  Comment


                    #24
                    thought this belongs the Spinal Cord Injury Network USA (SCINetUSA) thread. Complete change of subject, why not... no wonder the fourum is hard to follow and questions get repeated over and over...
                    Last edited by Moe; 18 Jul 2018, 4:56 PM.
                    "Talk without the support of action means nothing..."
                    ― DaShanne Stokes

                    ***Unite(D) to Fight Paralyses***

                    Comment


                      #25
                      BACK TO TOPIC

                      Originally posted by Moe View Post
                      Thank you Dr. Wise for answering and Jim for forwarding the message. Hopefully all goes well.

                      With all those countries mentioned, I'm curious to know who owns the intellectual property of this technology/trial? Could I assume Rutgers? Stemcyte? or open source? The researchers themselves?

                      EXAMPLE:
                      Q: Who owns the intellectual property of AST-OPC1?
                      A: Asterias Biotherapeutics, Inc.
                      Originally posted by Jim View Post
                      Moe, I didn't think you were pointing fingers, I just don't know the answer.
                      Allright, Its fine, how about the rest of the admins and everybody else involved, anybody knows?
                      "Talk without the support of action means nothing..."
                      ― DaShanne Stokes

                      ***Unite(D) to Fight Paralyses***

                      Comment


                        #26
                        Originally posted by Jim View Post
                        Post surgery, there is six weeks of outpatient standing/walking, followed by 6 months of walking at a facility like PushtoWalkNJ. Travel and accommodations are not covered.
                        Jim is the 6 month walking at a certain place or can you go to the nearest “PushtoWalk” type place?

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                          #27
                          It can be pretty much anywhere, but they need to be trained.

                          Comment


                            #28
                            Originally posted by Jim View Post
                            It can be pretty much anywhere, but they need to be trained.
                            That’s a good thing then! Makes it a lot easier on people I’m sure.

                            Comment


                              #29
                              Originally posted by #LHB# View Post
                              That?s a good thing then! Makes it a lot easier on people I?m sure.
                              Yes absolutely!! Hopefully the whole process goes as well and smooth as keeping things in topic in this tread...
                              "Talk without the support of action means nothing..."
                              ― DaShanne Stokes

                              ***Unite(D) to Fight Paralyses***

                              Comment


                                #30
                                Good way to avoid answering a question by letting people butt-in changing the subject...
                                "Talk without the support of action means nothing..."
                                ― DaShanne Stokes

                                ***Unite(D) to Fight Paralyses***

                                Comment

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