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    #31
    Originally posted by Fly_Pelican_Fly View Post
    Only because you laughed today Paolo!
    Thanks for reposting your analysis of the situation. I agree with what you say and I hope people will read it carefully and add constructive inputs or ask questions if somthing is not clear.

    I have been wondering for a while how to make changes you suggest (or at least to begin with some) happen.
    I still have no practical solutions because we have no orgs with this mindset nor we have a big enough SCI Community on the same line of thinking to have a significant impact on the situation etc..

    At the moment our only hope is that some good researchers will be also very lucky while perhaps an SCI org will see the light and will start leading people to do something useful.

    Paolo
    In God we trust; all others bring data. - Edwards Deming

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      #32
      yeah but its just too bad all this has been repeated over and over for the past 40-50 years... Its getting boring. Flying pelican needs to come up with new material and stop repeating himself... Have another laugh, I bet he'll repeat again going full tin foil...
      Last edited by Moe; 26 Jun 2018, 12:04 AM.
      "Talk without the support of action means nothing..."
      ― DaShanne Stokes

      ***Unite(D) to Fight Paralyses***

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        #33
        Suck it up man! Or alternatively, maybe increase the dosage of the pills that those unscrupulous wealthy men are selling to your poor whiny paralysed ass.

        Comment


          #34
          Illuminati...? ��
          and no I don’t believe the earth is flat lol

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            #35
            The Labyrinth of Science: Wings for Life http://www.wingsforlife.com/en/latest/the-labyrinth-of-science-3507/
            http://spinalcordresearchandadvocacy.wordpress.com/

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              #36
              Originally posted by GRAMMY View Post
              Its a good description, although they forgot to include Obstacle 5 - Bringing it to market.
              Or we could rephrase that as Obstacle 5 - Foundations don't care about Commercialisation.

              Comment


                #37
                Originally posted by lurch View Post
                Well thanks for all the piss take replies. This is the exactly sort of defeatist attitude and lack of imagination that keeps us in chairs. Are you seriously telling me that in the year 2018 with One Billion dollars in your pocket that you could not somehow circumvent some of the red tape and legislation that is in place? I know this was not a "serious" thread but to be honest I expected more from some of you.
                I was out of the country for many years and just come back to USA. I am very interested in this thread about finding a cure for chronic SCI. I have a question and hope someone can have an answer. I suffered T-11 incomplete SCI from removing a schwanomma tumor in my spine in the year of 2006. What can I do to improve my condition. Can you give me any recommendations ? Thanks for your input.

                Steve

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                  #38
                  (Sorry for my entry into the Cure Forum).

                  Not one person mentioned forced hypothermia. That would be number one for me. #KevinEverett

                  ETA info about Kevin Everett.

                  Dr. Barth Green, neurological surgery department chair at the University of Miami School of Medicine, said "based on our experience, the fact that he's moving so well, so early after such a catastrophic injury means he will walk again." When asked about Everett's chances for full recovery, Green replied that, while "not 100 percent predictable," it was "feasible that he could lead a normal life," and credited the hypothermic treatment of intravenous ice-cold saline, administered within minutes of Everett's injury, as having been a significant factor in minimizing the damage. Green referred to this method as an "ice-pack for his spinal cord."

                  https://en.wikipedia.org/wiki/Kevin_...ury_and_impact

                  A doctor mentioned this in emerge when I went paralzyed in 1985 ... I wish it had been done. Like electrical stim, something that's been played around with for decades.
                  Last edited by lynnifer; 7 Aug 2018, 4:10 AM.
                  Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

                  T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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                    #39
                    Originally posted by niallel View Post
                    Its a good description, although they forgot to include Obstacle 5 - Bringing it to market.
                    Or we could rephrase that as Obstacle 5 - Foundations don't care about Commercialisation.
                    I guess this is my point with the premise of this hypothetical scenario. As a billionaire the treatment wouldn't need to be "brought to market". It would only need to be brought to you...so what would you do?

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                      #40
                      Its crazy to think we have to fantasize about being a billionaire so we can get proper healthcare to have the best chance at recovery!

                      Comment


                        #41
                        unfortunately money didn't save Chris Reeve... and as far as I know with all the donation money and connections with researchers its not getting Rick Hansen walking neither... My point is I don't think a wealthy person would have that much of a greater chance for a treatment to return function in the market today... if it would it would be nice though of course, but everybody would of heard about it imo...
                        Last edited by Moe; 6 Aug 2018, 2:00 PM.
                        "Talk without the support of action means nothing..."
                        ― DaShanne Stokes

                        ***Unite(D) to Fight Paralyses***

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                          #42
                          A: Reeve didn't have that much personal wealth (billionaire not millionaire). B: that was 20+ years ago. You've got a billion today what do you? (in secret if necessary)

                          Comment


                            #43
                            Originally posted by lurch View Post
                            A: Reeve didn't have that much personal wealth (billionaire not millionaire). B: that was 20+ years ago. You've got a billion today what do you? (in secret if necessary)
                            14 years ago actually, not 20+..., Henson's alive today and since decades still collecting donations, in my observation, it didn't change his condition not one bit...thousands, milions, bilions or kazilions the real question perhaps is does money buy a cure in reality? if it does where? If the answer would be 'yes' and told where it is, then nobody needs to do research anymore, right? just sharing a point of view, not trolling you Lurch... Hey I'd benefit as well if such place existed... in the near future maybe?
                            "Talk without the support of action means nothing..."
                            ― DaShanne Stokes

                            ***Unite(D) to Fight Paralyses***

                            Comment


                              #44
                              Originally posted by Moe View Post
                              14 years ago actually, not 20+..., Henson's alive today
                              Who is Henson? Not trolling either, just wondering if there is a billionaire out there with an sci.

                              Comment


                                #45
                                Originally posted by niallel View Post
                                Who is Henson? Not trolling either, just wondering if there is a billionaire out there with an sci.
                                Hansen, sorry typo... Rick Hansen

                                Not a Bilionaire but a Canadian Paraplegic who's been raising funds as a foundation for sci for decades like Reeve did, my point was that to my knowledge, all the money collected plus connections to research centers hasn't got him walking yet neither. Money doesn't seem buy a "cure" anywhere, at least not yet imo. Apparently there's clinics out there that claims results but are a potential scam... frustrating
                                Last edited by Moe; 7 Aug 2018, 8:26 PM.
                                "Talk without the support of action means nothing..."
                                ― DaShanne Stokes

                                ***Unite(D) to Fight Paralyses***

                                Comment

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