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Right to Try and SCI?

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  • Right to Try and SCI?

    President Trump signed the Right to Try bill into law. What are everyone's thoughts? Will this affect us (SCI)? Good or Bad? Will researchers and/ or companies follow this route?

    http://thehill.com/policy/healthcare...y-ill-patients

  • #2
    I think this will be good for the SCI population! I could be wrong though!

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    • #3
      I was wondering and scouring the internet about this because it is still unclear to me that 'SCI' even falls under the scope of this bill
      "That's not smog! It's SMUG!! " - randy marsh, southpark

      "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


      2010 SCINet Clinical Trial Support Squad Member
      Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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      • #4
        We don't need this bill, expanded compassionate use has already been passed and will cover SCI therapies.

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        • #5
          https://www.cnn.com/2018/03/22/healt...ner/index.html
          http://spinalcordresearchandadvocacy.wordpress.com/

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          • #6
            Originally posted by Jim View Post
            We don't need this bill, expanded compassionate use has already been passed and will cover SCI therapies.
            thats kinda what I was thinking of
            "That's not smog! It's SMUG!! " - randy marsh, southpark

            "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


            2010 SCINet Clinical Trial Support Squad Member
            Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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            • #7
              How has that been applied? Nothing meaningful has successfully made it through the FDA pipeline.

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              • #8
                Originally posted by Skipow View Post
                How has that been applied? Nothing meaningful has successfully made it through the FDA pipeline.
                Thats what I am wondering. Even for existing technology used in an off label manner like the epidural implant they say it will take proof of effectiveness in hundreds of people before it?s availanle. They have done 15 people in Louisville in a decade!!!!!!!!!!

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                • #9
                  I haven’t seen anything that has changed from the expanded compassionate use. Nor have I read any scientists say they plan to utilize it. Just scinetusa but I don’t qualify which kind of defeats the purpose of expanded use imo.
                  Last edited by nphuskers; 05-31-2018, 08:48 PM.

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