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  • Perhaps a mandatory, one time membership fee could be considered.[/QUOTE]

    Very good idea.

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    • In poker terms, I've been all in for a while and will remain all in.

      The SCINetUSA will establish the infrastructure for trying many types of waiting treatments.

      number one priority imo

      we need to build the enthusiasm for it
      http://justadollarplease.org/

      2010 SCINet Clinical Trial Support Squad Member

      "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

      .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

      Comment


      • I don't think it'd work. The membership would probably drop dramatically.

        Maybe have a 'paid member' option, for extra content vs. normal member. Without becoming a paid member, you can't access the Cure and Member forums. Just an idea.
        Originally posted by antiquity
        Perhaps a mandatory, one time membership fee could be considered.
        Originally posted by kivi66
        Very good idea.
        Please donate a dollar a day at http://justadollarplease.org.
        Copy and paste this message to the bottom of your signature.

        Thanks!

        Comment


        • I do not care 'bouth amateurs, but I tell ya, I can fix things.

          If some nead funding for efforts for cure efforts, I will fix.

          If the US and Europe is in, I can guarante money for all efforts!

          No problems.
          Last edited by Leif; 05-01-2010, 08:20 PM.

          Comment


          • Originally posted by lynnifer View Post
            I would like to see something global.

            It seems we have so many researchers, resources in Canada, the US, Australia, UK and other places ... it would be nice if they could collaborate.

            That won't happen though. Wouldn't want my call centre to 'collaborate' with another so some of us lose our jobs. The conundrum then.
            Global, do then.

            cc neads to put cure ppl first! Not lazy butt moderators.

            Comment


            • Originally posted by Leif View Post
              cc neads to put cure ppl first! Not lazy butt moderators.
              Ditto.
              Don't ask what clinical trials can do for you, ask what you can do for clinical trials.

              Fenexy: Proyecto Volver a Caminar

              http://www.fenexy.org (soon in english too)

              Comment


              • ... never mind ...

                I have submitted my resignation as moderator. I have also cut all ties to CareCure on my Facebook page. Sorry, but it's time for me to move on.

                Tired of the snarky, snide and unnecessarily rude comments on here. Good luck all.
                Last edited by lynnifer; 05-01-2010, 09:25 PM.
                Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

                T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

                Comment


                • Sigh. Now the newcomers get a first-hand look at the reason the old advocates learned to stay a step away from CareCure. I was beginning to hope things had changed. Somebody always gets their feelings and opinions stomped on, be it through excessive enthusiasm, paranoia, secret agendas, personal vendettas or whatever. This puts a bad taste in my mouth and gives me deja vu as well.

                  Lynnifer, you know you can resign as moderator and again enjoy the bliss that is the Ignore Function, right? I fully enjoy that feature that I wasn't allowed to use when I was a mod. Also, as a non-mod, you are once again allowed to defend yourself and your beliefs as opposed to rolling over and taking all the crap random jerks dish out. Believe me, it is glorious.

                  Leif-What. The. Fuck? You're gonna sober up and regret that. There aren't enough good ppl for you to go around alienating the ones participating in the convo! And you know perfectly well that the mods work hard, for free, for all our benefit. By definition, there are no lazy butt moderators...if they were lazy, they'd keep their free time for themselves. And without mods, there is no CareCure AT ALL. All those potential advocates worldwide, gone, the day the mods give up. Think about it.
                  Last edited by betheny; 05-01-2010, 11:27 PM.
                  Blog:
                  Does This Wheelchair Make My Ass Look Fat?

                  Comment


                  • Going back to the idea of recruiting new CC members, it seems to me the obvious way is to make the various rehab centers around the country, and the people who work there, aware of CC so they can tell the newly injured about the site.

                    For example, I started posting a while back at allnurses.com. That site has a forum for rehab nursing, and I promote CC there at any opportunity I get. There was also a thread a few months back in the general nursing forum called "What I Learned from My Quad Patient" in which I posted about CC. In response, several nurses wrote me that they were so glad I made them aware of this "incredible resource" and assured me they would tell all their SCI patients about it.

                    With some targeted email and even snail mail outreach (e.g. sending a flyer about CC and asking that it be posted in patient areas and on staff bulletin boards (according to every nurse I've talked with/nursing blog I read, there's one in every women's staff restroom at health care facilities), we can start to reach some of the new SCI/Ds out there.

                    Lynnifer, I'm sorry. You will be missed.
                    It is easier to find men who will volunteer to die, than to find those who are willing to endure pain with patience.

                    ~Julius Caesar

                    Comment


                    • Originally posted by Leif View Post

                      cc neads to put cure ppl first! Not lazy butt moderators.
                      WTH?? leif, get lost. i haven't read your posts much for a long time. i don't come here like i used to either. lynnifer, don't leave over ppl like this and ox whatever (whoever that is). although, i can't blame you. i only know about this thread from a pm and i haven't the stomach to read it.

                      Comment


                      • Originally posted by Wise Young View Post
                        ... There is no problem with shortage of subjects in China. In the meantime, I am heading to Norway at the end of May to discuss the possibility of clinical trials there but I must emphasize that Norway may want to test their own therapies and not become a mirror of ChinaSCINet or SCINetUSA. I would do everything that I can to help them.

                        Wise.
                        Thank you Dr. Young, -we will do our best, and might I suggest, you can move over here, -I personally will buy a house for you -a small one that is, since you will have to be busy with the others : )

                        Comment


                        • Originally posted by betheny View Post
                          Sigh. Now the newcomers get a first-hand look at the reason the old advocates learned to stay a step away from CareCure. I was beginning to hope things had changed. Somebody always gets their feelings and opinions stomped on, be it through excessive enthusiasm, paranoia, secret agendas, personal vendettas or whatever. This puts a bad taste in my mouth and gives me deja vu as well.

                          Lynnifer, you know you can resign as moderator and again enjoy the bliss that is the Ignore Function, right? I fully enjoy that feature that I wasn't allowed to use when I was a mod. Also, as a non-mod, you are once again allowed to defend yourself and your beliefs as opposed to rolling over and taking all the crap random jerks dish out. Believe me, it is glorious.

                          Leif-What. The. Fuck? You're gonna sober up and regret that. There aren't enough good ppl for you to go around alienating the ones participating in the convo! And you know perfectly well that the mods work hard, for free, for all our benefit. By definition, there are no lazy butt moderators...if they were lazy, they'd keep their free time for themselves. And without mods, there is no CareCure AT ALL. All those potential advocates worldwide, gone, the day the mods give up. Think about it.
                          All work for free, me included! I'm just so very feed up with naysayers. Sorry.

                          Comment


                          • Originally posted by cass View Post
                            WTH?? leif, get lost. i haven't read your posts much for a long time. i don't come here like i used to either. lynnifer, don't leave over ppl like this and ox whatever (whoever that is). although, i can't blame you. i only know about this thread from a pm and i haven't the stomach to read it.
                            I don't care, but if you want to work for a sci cure, -do so. -Enough ppl here saying they don't believe in it or it will not help them! -You are a engineer so you should know where "I'm coming from." And that does not mean I don't care for ppl with terrible sci, -I just don't care for naysayers or for that matter, myself, -I'll live. We really have to fix this sci for the others not doing so good. I mean this, and I am seriously pissed by reading some cure comments here. Super pissed, I am. There has been enough bogous. I don't post much like life stuff in the life forums, but I have long known friends recently dead due to complications of sci, and none will stand in my way to ease this for others, none! And, actually, in some such ways, our friend DA is right. It is about time ppl understand we have to do something, something that can make a change. And I think we could, if we get serious about the issue. -This is personal, it is not about day-to-day politics and so on, it is personal. It is 100 percent personal.
                            Last edited by Leif; 05-02-2010, 01:55 AM.

                            Comment


                            • Originally posted by Leif View Post
                              I don't care, but if you want to work for a sci cure, -do so. -Enough ppl here saying they don't believe in it or it will not help them! -You are a engineer so you should know where "I'm coming from." And that does not mean I don't care for ppl with terrible sci, -I just don't care for naysayers or for that matter, myself, -I'll live. We really have to fix this sci for the others not doing so good. I mean this, and I am seriously pissed by reading some cure comments here. Super pissed, I am. There has been enough bogous. I don't post much like life stuff in the life forums, but I have long known friends recently dead due to complications of sci, and none will stand in my way to ease this for others, none! And, actually, in some such ways, our friend DA is right. It is about time ppl understand we have to do something, something that can make a change. And I think we could, if we get serious about the issue. -This is personal, it is not about day-to-day politics and so on, it is personal. It is 100 percent personal.
                              Leif, I take it you are not a people person? Calling people 'lazy butts' isnt going to help apart from alienating those who are already finding it difficult to soldier on with whatever little advocacy they are participating in. Maybe you are right about what needs to be done but you need to deliver the message in a more tactful way. Maybe you should leave the "motivational" speaking to others!

                              Comment


                              • So everyone at CC is not perfect and we have fights. I personally regret that this fight, for lack of a better word, has occurred, and I hope Lynnifer comes back to CC. I think Lief has apologized as much as he can right now.

                                But, for those CC members interested in doing something for a cure, we have to keep the bigger picture in mind and keep moving forward, knowing that there will always be disagreements when you try to accomplsih something that is very difficult.

                                I hope CC members with an interest will keep posting what they want from the CC membership to accomplish in regard to a cure and what we should do to meet the goal. There have to be many more members of CC with this interest, and I personally want to hear from you as do others.

                                Let's all try to keep this simple and big picture. If someone posts something you disagree with, let's try to resolve that later.

                                Thanks for letting me take up your time.
                                2012 SCINetUSA Clinical Trial Support Squad Member
                                Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature.

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