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Why Don't We Have a Cure for Spinal Cord Injury? 2016

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    i am not talking about one commercial 17 years ago that shows an imaginary situation; of course that didn't end up helping... I am thinking about brutally honest and telling commercials about the realities of living with an sci and showing that clinical progress is achievable but we need help from the public... Multiple different commercials highlighting the many complications of sci and how real science is trying to alleviate it... All that stuff most likely will not fit in a commercial, so the commercials would have a link to a reputable glossy website on the internet so people could go and learn further... OK now back to my question that you refuse to answer and deflect for some reason: basically What avenues or trials would you like to see pursued... If any
    "That's not smog! It's SMUG!! " - randy marsh, southpark

    "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


    2010 SCINet Clinical Trial Support Squad Member
    Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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      Originally posted by lunasicc42 View Post
      i am not talking about one commercial 17 years ago that shows an imaginary situation; of course that didn't end up helping... I am thinking about brutally honest and telling commercials about the realities of living with an sci and showing that clinical progress is achievable but we need help from the public... Multiple different commercials highlighting the many complications of sci and how real science is trying to alleviate it... All that stuff most likely will not fit in a commercial, so the commercials would have a link to a reputable glossy website on the internet so people could go and learn further... OK now back to my question that you refuse to answer and deflect for some reason: basically What avenues or trials would you like to see pursued... If any
      Ok, so a series of commercials that that highlight the shitty side of SCI - that's fairly easy to do these days.

      In these commercials you also want to show clinical progress? What clinical progress do you want to show is achievable? Is something available to show clinicians and the public now?

      When you say "real science is trying to alleviate it" - what example would you use to show the public?

      When you say "reputable glossy website on the internet so people could go and learn further" - is this a new website or an existing one? What would the visitors of the website learn? Is this website collecting money? If it is collecting money how is that money going to be used? How will investment decisions be made? How much would you need to raise to really make a difference?

      I am not deflecting anything. I am just not going to spoon feed you information (that you already have at your fingertips) or my personal opinions. You have a brain and access to research papers/journals if you try a bit harder. Make your own mind up and then take the action which you see fit. You've been active here much longer than me and have attended numerous W2W meetings too. You're capable of some independent thought by now.

      PS this thread is titled "Why don't we have a Cure for Spinal Cord Injury". We do not have a cure as the research field doesn't know how to regenerate the adult human chronic spinal cord.
      Last edited by Fly_Pelican_Fly; 18 Nov 2017, 3:34 PM.

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        Originally posted by Fly_Pelican_Fly View Post

        Btw this was 17+ years ago. https://www.youtube.com/watch?v=c1zE5f_A5sY
        Watching that ad, and which is nearly 20 years old... don’t know, laugh or cry

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          call it what you want but still ducking and dodging and bobbin and weavin them questions like a true prize fighter... Look at him GO

          Anyway... There has been a little highlighting of the progress of epidural stimulation on news segments... But being kinda sketchy... The examples that I would want shown to the public are the works of people like wise, silver, alfhors and others, they can see the path to succeed but need help from the general public, not just the sci community .
          I think Jim has stated that they are preparing press stuff and videos for scinet and the public but I don't know what all it will entail
          Like the wingsforlife website is a pretty good one but nobody but "us" know to visit that website (thats where advertising comes in)
          Yes the website should ask for money... But not for a no good reason with no payoff... Talk about potential
          "That's not smog! It's SMUG!! " - randy marsh, southpark

          "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


          2010 SCINet Clinical Trial Support Squad Member
          Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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            Originally posted by lunasicc42 View Post
            call it what you want but still ducking and dodging and bobbin and weavin them questions like a true prize fighter... Look at him GO

            Anyway... There has been a little highlighting of the progress of epidural stimulation on news segments... But being kinda sketchy... The examples that I would want shown to the public are the works of people like wise, silver, alfhors and others, they can see the path to succeed but need help from the general public, not just the sci community .
            I think Jim has stated that they are preparing press stuff and videos for scinet and the public but I don't know what all it will entail
            Like the wingsforlife website is a pretty good one but nobody but "us" know to visit that website (thats where advertising comes in)
            Yes the website should ask for money... But not for a no good reason with no payoff... Talk about potential
            Ok so a series of commercials to show the shitty side of SCI, showcasing the work for Harkema, Young, Ahlfors and Silver and a call to action to the general public via a website to help fund those lines of research. Have I understood that correctly?

            How will the funds be allocated? Let's say you raise $200m through public donations.

            FYI Wings 4 Life has it's hefty PR/Marketing budget donated to it by Red Bull. They have the means to execute what you are proposing. However, they may not agree with all of your scientific choices.

            Comment


              Originally posted by Fly_Pelican_Fly View Post
              Ok so a series of commercials to show the shitty side of SCI, showcasing the work for Harkema, Young, Ahlfors and Silver and a call to action to the general public via a website to help fund those lines of research. Have I understood that correctly?

              How will the funds be allocated? Let's say you raise $200m through public donations.

              FYI Wings 4 Life has it's hefty PR/Marketing budget donated to it by Red Bull. They have the means to execute what you are proposing. However, they may not agree with all of your scientific choices.

              Well that comes back around to the original question that I tried to ask you: what avenues of research do you feel should be pursued
              "That's not smog! It's SMUG!! " - randy marsh, southpark

              "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


              2010 SCINet Clinical Trial Support Squad Member
              Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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                Originally posted by lunasicc42 View Post
                Well that comes back around to the original question that I tried to ask you: what avenues of research do you feel should be pursued
                Try harder Anthony. Here I am trying to get you to think for yourself.....waste of my time!

                So it sounds like you have a plan. I would propose you approach U2FP, Wings4Life, Miami Project or Reeve with the idea. I am sure they will be keen to hear from you. If you need any introductions let me know.

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                  it's a simple question... Regardless of you trying to get me to think for myself or whatever, I am confused about which avenue of research you would like to see followed through on and pursued. Thats the question that started this whole dialogue between us
                  "That's not smog! It's SMUG!! " - randy marsh, southpark

                  "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


                  2010 SCINet Clinical Trial Support Squad Member
                  Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

                  Comment


                    Originally posted by Fly_Pelican_Fly View Post
                    PS this thread is titled "Why don't we have a Cure for Spinal Cord Injury". We do not have a cure as the research field doesn't know how to regenerate the adult human chronic spinal cord.
                    This.

                    We have very little power of what goes on in a lab. Until some researcher can present the world with something tangeable, we're gonna keep sitting. Just keep sitting, just keep sitting ...
                    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

                    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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                      Then again, maybe it will come from somewhere completely unexpected:

                      https://spectrum.ieee.org/the-human-...l-lace-company
                      Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

                      T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

                      Comment


                        Originally posted by Fly_Pelican_Fly View Post
                        Dennis, I have no interest in engaging with you. You shouldn?t be surprised by this either.
                        No, not surprised at all. No one likes to be called out for trolling with questions you have no intention to answer or can't answer while demanding everyone first answer for you. Engaging with me would require you to answer up and have a true debate about ideas as opposed to pretending to know; that's why I'm not surprised
                        Dennis Tesolat
                        www.StemCellsandAtomBombs.blogspot.com

                        "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
                        Martin Luther King

                        Comment


                          Originally posted by StemCells&AtomBombs View Post
                          No, not surprised at all. No one likes to be called out for trolling with questions you have no intention to answer or can't answer while demanding everyone first answer for you. Engaging with me would require you to answer up and have a true debate about ideas as opposed to pretending to know; that's why I'm not surprised
                          Nope you missed the point. Did you conveniently forget your nasty unprovoked public facebook attacks on me last year?

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                            Okay, fly_pelican_fly, if you want to pretend you're smarter than everyone by trying to get them to "think for themselves" while avoiding their questions that's fine but I come here to read about possible cures and to see what others have to say on the subject not to see you cry about someone being mean to you on Facebook. Let's stick to the subject and leave our personal vendettas out of it.

                            Comment


                              Originally posted by Natto View Post
                              Okay, fly_pelican_fly, if you want to pretend you're smarter than everyone by trying to get them to "think for themselves" while avoiding their questions that's fine but I come here to read about possible cures and to see what others have to say on the subject not to see you cry about someone being mean to you on Facebook. Let's stick to the subject and leave our personal vendettas out of it.
                              m

                              Natto,
                              what does your post have to do with Cure?

                              Comment


                                Originally posted by nrf View Post
                                m

                                Natto,
                                what does your post have to do with Cure?
                                Originally posted by Fly_Pelican_Fly View Post
                                Make your own mind up and then take the action which you see fit.

                                PS: this thread is titled "Why don't we have a Cure for Spinal Cord Injury". We do not have a cure as the research field doesn't know how to regenerate the adult human chronic spinal cord.
                                Did I miss something? I thought the question was already answered several posts back last week. If a scientist thought they could regenerate the stubborn CNS, the problem would be closer to being solved. As far as I know, nobody in the research field mentioned above in this thread is making such a claim with their therapy proposals or saying they have the CNS regeneration figured out for a SCI.
                                http://spinalcordresearchandadvocacy.wordpress.com/

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