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Why Don't We Have a Cure for Spinal Cord Injury? 2016

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    #76
    8. Religion.

    Originally posted by BSgimp View Post
    Why Don't We Have a Cure for Spinal Cord Injury?

    1. Slow Methodologies of Medical Science
    2. Complexity of Nervous Systems
    3. Low number of people with SCI
    4. Lack of Monetary Incentives
    5. Lack of cooperation between Labs
    6. Lack of Social Awareness
    7. Big Pharma

    I wonder how fast thing would go if Mark Zuckerberg would get SCI. Or some other billionaire. I think the best bet is to inspire Bill Gates to help us out.
    BSgimp got to the point with his post but he left out number 8, religion.

    8. Religion. Religion in the United States of America.

    A cure for spinal cord injury will come from the East and not the USA because of religion is pro-life and God. Medical research in the United States you cannot play God with killing cells, stem cells, DNA, etc. In the East they are atheist and they can play God and use cells, stem-cells and mess with DNA.

    Also in the United States we are 8 years behind compared to research done in the East, China. Former President George W. Bush was pro-life personally but pro-choice as a president. President George W. Bush wrote an executive order to stop research on stem cells meaning he was pro-life. Just look at the Terri Schiavo case when Florida's governor Jeb Bush had to step in. Even former President George W. Bush commented, "Life is better than Death." Meaning he was pro-life.

    When President Barrack Obama was sworn in to office his first day he wrote an executive order to allow stem cells to be used for research, with that said we are 8 years behind on finding a cure compared to the East.

    There is more about this thread I'd like to add but I am going to keep my peace.

    We will have a cure for spinal cord injuries/diseases in 8 years from the East.


    Ti
    "We must overcome difficulties rather than being overcome by difficulties."

    Comment


      #77
      I call B.S. on the whole Religion/GW Bush put us back thing. In every other country they are injecting people with everything from Fetal stem cells to rat cum, and nothing. We are still just as close in the USA to finding a cure. If we could go back eight years and know exactly what we know now i don't believe there would be a full cure. Now having said that I do believe we would be closer. We are finding more peaces to the puzzle all the time but to blame it on Religion is a little bit overboard. We just simply don't understand enough about the human body. But hey what do I know.

      I believe all the different trials and doctors are figuring out that puzzle Dr Young, Dr Silver, can't spell the rest so I'm not even going to try lol. Each one seems to have something the other one doesn't and we don't know why.

      Comment


        #78
        And major money. Bill Gates funds Alzheimer's research due to personal experience with a family member.

        http://www.reuters.com/article/us-he...-idUSKBN1DD0S3
        Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

        T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

        Comment


          #79
          Originally posted by ctoom91 View Post
          .One last thing,we're not on the PC victims du jour list of Hollywood,academia,congress and the media. Billions spent every year on trivia and special interests,much of it wasted or redundant while the people trying to cure sci like Wise and Silver have to beg for funding,I don't see any change to the status quo anytime soon.
          So true!

          Comment


            #80
            Originally posted by Jim View Post
            The SCI Community has no one to blame but ourselves. We have not organized and demanded a cure. When is the last time we lobbied our representatives for increased funding? Researches are working their asses off while we as a collective do nothing.
            Also very true! With our current prime minister and overall government in Canada they have little time for curing SCI ( they would be more likely to side with the “I don’t need to be cured, that is insulting, I’m powerfully Differently abled blah blah crowd“), more focussed on reimbursing terrorist that go to Guant?namo Bay prison under American jurisdiction and are taken there by Americans yet Canadians pay them tens of millions! I think we’re on four now ( there was one who was a child when he went to Guant?namo he got 10 million, but recently I think three others recently released got a combined total of over $30 million, and right now there is another terrorist that went to Guant?namo that is suing the Canadian government for $50 million [ it seems to be becoming a trend now that they know it is possible and very lucrative]... what is sickening is when it comes to tort cases pain and suffering has a cap of - i believe 400,000-$500,000 doesn’t matter if you are a C1 quadriplegics or a brain injury because of poor roads, improper signs, etc).

            Also let’s not forget that the Harper government gave $30 million to the Rick Hanson Institute And Canada still has not seen a real chronic spinal cord injury clinical trial. I am very curious where that money went! Dr. Fehlings was going to work with stem cells Inc. to start a phase 2 trial here, but of course that was cancelled years ago because the results were dismal to say the least. I talked to one of the best neurosurgeons in the country Dr. Mohammed Shamji about how the stem cell Inc. trial was futile and that if they were interested in a clinical trial with neural stem cells to look into New World laboratories Autologous neural stem cells... in fact I was in contact with J?rgen Thorball of OXventure Technologies who was working with Dr. Jan Ahlfors in the Russian trial currently in a phase of investment. She actually took interest and they were going to get in contact and willing to see where that would go! But Dr. Shamji Went AWOL and then ended up murdering his wife chopping her up throwing her in a suitcase and hurling it off a bridge into the Humber river.. it was around this time that Fehlings made a public announcement that they would be cancelling the stem cell Inc. trial before it even started.
            Last edited by JamesMcM; 15 Nov 2017, 2:58 AM.

            Comment


              #81
              Originally posted by lynnifer View Post
              I've heard this before and call BS. Remember the old stem cell Bush era thing and we all paid to send test tubes to Washington? Nothing ... the demonstrations in DC ... nothing.

              It needs to happen to another Chris Reeve, as sorry as I am to say that.
              remonstrate harder! Everything you stated eventually just fizzled out and gave up ( to be honest bushes ban on embryonic stem cells actually kind of helped discover other methods of harvesting stem cells that actually turned out to have more potential)! If we bitched as much as the perfectly healthy black community, LGBT Community, Muslim community etc. maybe something will come of it. I think the problem is twofold: first our situations especially the most severe injuries are to Sombre To gloomy, are ?inequalities? real and heart wrenching rather than the other people whining about trivial matters in comparison ( it’s also probably a problem that these kind of problems make those kind of ?problems? look trivial, the media might not like that given how much time they put towards that stuff). Also there are a bunch of other disabilities, including people with spinal cord injuries that lump us all together and crying about how they don?t need to be cured crap.

              Comment


                #82
                Originally posted by Mize View Post
                Hmmm... Tom Hanks would be an ideal candidate...
                No Justin Bieber! There’s no debating that

                Comment


                  #83
                  Originally posted by BSgimp View Post
                  Why Don't We Have a Cure for Spinal Cord Injury?

                  1. Slow Methodologies of Medical Science
                  2. Complexity of Nervous Systems
                  3. Low number of people with SCI
                  4. Lack of Monetary Incentives
                  5. Lack of cooperation between Labs
                  6. Lack of Social Awareness
                  7. Big Pharma

                  I wonder how fast thing would go if Mark Zuckerberg would get SCI. Or some other billionaire. I think the best bet is to inspire Bill Gates to help us out.
                  I sent a long email to Joe Bezos when he officially became the richest man in the world and subsequently went to Twitter and requested ideas for philanthropy. I gave my perspective on what was the best research , Explained that the most severe injuries are buried and almost unheard of and that many voluntarily resort to starvation used two real life examples. I got no response
                  Last edited by JamesMcM; 15 Nov 2017, 3:00 AM.

                  Comment


                    #84
                    Originally posted by August West View Post
                    Should they inflict spinal cord injuries on animals for research? Yes and no for different reasons. Yes to reduce human suffering. No for ethical reasons. I think the ethics prevail. I'm not saying this is the reason why we don't have a cure. But it is one factor that limits the degree of research.
                    Go find a PETA fourm for that crap, if you do want to talk about it you better be a C1 complete injury! They are rats there are too many of them and they are a serious pest problem all around the world leading to many diseases and other problems. You will never have to worry about them becoming endangered? Your argument is preposterous.
                    Last edited by JamesMcM; 15 Nov 2017, 3:01 AM.

                    Comment


                      #85
                      It's not really August West's argument .. a helluva lot of people feel that way James. Animal trials are expensive ... prohibitively expensive if what I've read around here throughout the years is true.

                      Everyone likes to blindly jump on the PETA wagon without really thinking about the human beings that suffer. When presented with this, I usually respond that I would rip out a baby monkey's spinal cord with my bare hands while it screams, if it would cure my paralysis. That usually shuts them up.

                      Too funny - I responded to Bezos too when he asked for ideas.
                      Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

                      T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

                      Comment


                        #86
                        Originally posted by lynnifer View Post
                        It's not really August West's argument .. a helluva lot of people feel that way James. Animal trials are expensive ... prohibitively expensive if what I've read around here throughout the years is true.

                        Everyone likes to blindly jump on the PETA wagon without really thinking about the human beings that suffer. When presented with this, I usually respond that I would rip out a baby monkey's spinal cord with my bare hands while it screams, if it would cure my paralysis. That usually shuts them up.

                        Too funny - I responded to Bezos too when he asked for ideas.
                        Well those people are stupid, rats total net population is Close to that of humans (ants are number 1). Well I am sad he didn’t respond to either of us, I volunteered to use my body as a guinea pig and go around the FDA because he wanted something that was a quick fix… I proposed the glial scar surgically removed by an eastern doctor ( dr. Young has explained that in China they are quite capable of doing this and far less hesitant then doctors here) put RMx matrix in the now empty cavity, recieve the autologous neural cells afterwords proceed to engage in a myriad of training programs/exercise equipment (kumming walking program, biofeedback, giger MD, Bioness for hands, vibration therapy for sensory function, etc) In between each new injection that takes place quarterly for two years obviously along with a specific nutrition program very high in B vitamins and magnesium plant proteins etc. At the same time with fasting which has been shown to help neurological function. And then periodically engage in NRTs transcutaneous epidural stimulator I know that they have already developed specific algorithms to stimulate specific functional outcomes obviously you would outwardly stimulate whatever function be it hand, gait, etc. With an additional piece of equipment well you stimulate the spinal cord. Likely incorporate a potassium channel blocker if necessary And much more… would be a daily 24 seven ordeal.

                        Comment


                          #87
                          I don't think anyone is there yet ... close, but not yet. You're a young man though and I'm certain you'll see improvement in your lifetime.
                          Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

                          T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

                          Comment


                            #88
                            Originally posted by JamesMcM View Post
                            Well those people are stupid, rats total net population is Close to that of humans (ants are number 1). Well I am sad he didn’t respond to either of us, I volunteered to use my body as a guinea pig and go around the FDA because he wanted something that was a quick fix… I proposed the glial scar surgically removed by an eastern doctor ( dr. Young has explained that in China they are quite capable of doing this and far less hesitant then doctors here) put RMx matrix in the now empty cavity, recieve the autologous neural cells afterwords proceed to engage in a myriad of training programs/exercise equipment (kumming walking program, biofeedback, giger MD, Bioness for hands, vibration therapy for sensory function, etc) In between each new injection that takes place quarterly for two years obviously along with a specific nutrition program very high in B vitamins and magnesium plant proteins etc. At the same time with fasting which has been shown to help neurological function. And then periodically engage in NRTs transcutaneous epidural stimulator I know that they have already developed specific algorithms to stimulate specific functional outcomes obviously you would outwardly stimulate whatever function be it hand, gait, etc. With an additional piece of equipment well you stimulate the spinal cord. Likely incorporate a potassium channel blocker if necessary And much more… would be a daily 24 seven ordeal.
                            James, the population of rats is irrelevant, they are not collected from cities and used for experiments. Rats are bred soley for research and make the ultimate sacrifice for us.

                            Dr. Young and his colleages in China would never remove a glial scar, it is unnecessary. Common sense tells me you can not do multiple laminectomies at the same site.

                            Comment


                              #89
                              Originally posted by Jim View Post
                              James, the population of rats is irrelevant, they are not collected from cities and used for experiments. Rats are bred soley for research and make the ultimate sacrifice for us.

                              Dr. Young and his colleages in China would never remove a glial scar, it is unnecessary. Common sense tells me you can not do multiple laminectomies at the same site.
                              I have talked with Dr. Young about this very issue: the glial scar is most certainly an obstacle to next generation spinal treatments. I never implied multiple laminectomies at once, the procedure that I am proposing would be done in one go even if you surgically remove a glial scar it will be back in 24 hours therefore you would have to put the regeneration matrix ( or any other technology like a scaffolding from invivo therapeutics, or the collagen scaffolding that is being tested in China, in fact that’s exactly what they were doing removing the scar then implanting the scaffolding before they decided to focus on acute injuries and suddenly went into obscurity, however we don’t get a lot of information out of China especially in terms of scientific research) into the cavity as soon as possible (the RMx has been proposed to not only regenerate tissue, but to regenerate it in its proper form though the lab is apparently looking at it being more practical for acutes now). Also I know that the people working on the Russian trial are looking at different message to administer the neural stem cells every three months without performing a laminectomy, as it stands right now the few patients that have been treated have had the first injection directly to the injury site and the following are done by Intrathecal injection but from what I’ve got from talking to the individual I stated above they are looking at different message- again to administer it directly to the injury say site for potentially more efficiency… In fact one of the technology he mentioned is actually very interested I’m not going to talk about it though, I was trusted with information whether he would mind or not I do not know and he is no longer working with the lab ( everything is currently on hold they are in a phase of investment).
                              Last edited by JamesMcM; 16 Nov 2017, 3:34 AM.

                              Comment


                                #90
                                Originally posted by lynnifer View Post
                                I don't think anyone is there yet ... close, but not yet. You're a young man though and I'm certain you'll see improvement in your lifetime.
                                Oh but they are the results that have been achieved with the autologous Neural stem cells are already impressive in humans, people laying on their back able to lift their own legs Which was shown at one of the earlier W2W And there was many other recoveries some of which I was briefly privy to and others not so much, and there are so many things they are still trying to work out: dosage, method to get the injection every three months for two years directly to the injury site, best methodology for functional daily training to stimulate regeneration ( they are not the only labs and/or researchers including Dr. Young stating that this is of pivotal importance in the search for a treatment of chronic spinal cord injury, but on this board it is probably the number one thing that is disregarded: We are fools if we ever think a chronic spinal cord injury will be healed without at least a year if not years of intensive albeit functional movement conducted on a daily basis), incorporating other treatments like neurotrophic drugs, getting rid of the glial scar, etc.

                                The epidural stimulators, especially NRTs transcutaneous has shown very impressive results on its own in case studies again on humans ( to that pelican guy, I’m not going to debate with you go back to our previous conversation years ago… But to anyone else the stimulator used in the Louisville trial was essentially nothing more than a glorified tens unit, NRT’s Device is far more complicated and eloquent with more leads, more settings higher frequencies etc. etc. which is evident by the fact that it was able to achieve better results without being implanted directly on the spinal cord, And the company is continuously developing new algorithms that incorporate various frequencies to hopefully stimulate and target specific functions! The trial in Louisville literally just flooded the spinal cord with electric stimulus and look at the results they Achieved with such a primitive method in comparison.

                                Again I’m sorry Jim, I’m sorry Dr. Young I respect you immensely and I believe your work is of great importance and is the first significant step so I am not disregarding it at all… However umbiblical cord blood cells are inferior compared to neural stem cells or even olfactory cells. As Dr. Young explained though they are cheap and readily available and safe. But look at the results that were achieved with them in combination with the walking program and untethering surgery most importantly I would say the walking program, given that Dr. Young is looking at other pieces of equipment to train other functions like hand function, and sensory function I have briefly talked to him with what technologies he believes are the best for these that we currently have available and his stance on how imperative functional training and stimulus is after a treatment of any kind for chronic spinal injury I think that is safe to say, he would likely agree ( however their next trial will determine that without equivocation). Something as intensive like I stated above has not even remotely been tested, stem cell inc. they were one treatment it was not collaborative and their program for training afterwords was dismal… In fact in most cases the patients just laid in bed and then went about their life in a wheelchair surprise surprise they barely had any results, but even so there was some minor sensory return in terms of the stem cell Inc. trial and those cells are obsolete as they came from donated fetuses… The trial in Russia extracts from our bone marrow and reprograms them into neural cells directly from our own body. Dr. Ahlfor’s Is a specialist in regeneration, and in terms of his past credentials in education and just overall upbringing he is basically a prodigy... The problem is the technology he is working with is incredibly expensive and is state-of-the-art!
                                Last edited by JamesMcM; 16 Nov 2017, 3:37 AM.

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