Why Don't We Have a Cure for Spinal Cord Injury? 2016

[JamesMcM]

Dennis, I have no interest in engaging with you. You shouldn?t be surprised by this either.

This pleases me immensely, I got a good chuckle from that.

[JamesMcM]

i am not talking about one commercial 17 years ago that shows an imaginary situation; of course that didn't end up helping... I am thinking about brutally honest and telling commercials about the realities of living with an sci and showing that clinical progress is achievable but we need help from the public... Multiple different commercials highlighting the many complications of sci and how real science is trying to alleviate it... All that stuff most likely will not fit in a commercial, so the commercials would have a link to a reputable glossy website on the internet so people could go and learn further... OK now back to my question that you refuse to answer and deflect for some reason: basically What avenues or trials would you like to see pursued... If any

He’s going to keep fixating on the aspect of “TV commercials”, you’re not going to get anywhere with him... but the fact is we need an arbiter that generates tremendous amount of Awareness and advocacy; basically somebody that would make people care. and isn’t afraid to say what needs to be said, no matter how embarrassing or degrading they are. I remember at one W2W A quadriplegic (whose name I cannot remember) made a very profound and sombre speech about the realities of living as a quadriplegic, remarking on just his morning routine, etc. for some reason he asked that his speech not be included in the video recordings. This is a barrier, The SCI community as a whole trying to pretend we are something we are not, trying to hide the dirty details, Focussing on garbage like call us “differently abled”, and worst of all the absolute lunatics that are out there screaming about how they “don’t need a cure”, and then ranting about how it’s offensive to suggest otherwise and speak with a dogmatism as if to imply they speak for disabilities - and those affected by them - as a whole.

Also keep in mind many of the researchers/labs do not want exactly what they are doing and working with to be public knowledge.

[JamesMcM]

PS this thread is titled "Why don't we have a Cure for Spinal Cord Injury". We do not have a cure as the research field doesn't know how to regenerate the adult human chronic spinal cord.

LMFAO to write in such a highfaluting manner, to conclude with this... If only it was as simple as just regenerating spinal tissue. The audacity is literally palpable.

[JamesMcM]

Nope you missed the point. Did you conveniently forget your nasty unprovoked public facebook attacks on me last year?

Ohhhh sweetheart... I’m sure you wouldn’t call that bitching either

[JamesMcM]

No, not surprised at all. No one likes to be called out for trolling with questions you have no intention to answer or can't answer while demanding everyone first answer for you. Engaging with me would require you to answer up and have a true debate about ideas as opposed to pretending to know; that's why I'm not surprised

He doesn’t know anything that is of any more important or predominant Then what many of us can provide, it’s exhibited through his Deflective and histerically arrogant tactics. I argued with this man for quite some time about how the device used in Louisville (which as we know was surgically implanted directly on the four patients spinal cord) was obsolete in comparison to Dr. Edgertons device being patented by NRT, which achieved better results with transcutaneous stimulation. He repeatedly just asked the same question “well how do you know it is any more advanced” in 10 different ways. Gee I don’t know: the results speak for itself in their case study, The fact that it’s far less invasive just as efficacious; if we want to be really simplistic just the amount of electrical leads and higher frequencies makes the device used in Louisville obsolete in comparison. It went on and on.

“ i’m not going to spoonfeed you” he says, The man wasn’t asking for help, nobody is looking to debate (other than him evidently). But that is his response to a simple question what particular research do you find most promising. I‘ve never seen anything like it on this fourm! Literally anyone else would just start cordially start listing off the particular research they find the most promising? Nope, not pelican he’s not going to spoonfeed us with his apotheosis of knowledge on the matter. This pleases me immensely.

He asks a few intentionally ambiguous questions, With the intention of being condescending. When someone takes the time to thoroughly answer the questions, to the point where he can not deflect or reject: “ i’m not going to talk to you, you were mean to me on Facebook A year ago”. LMAO. And then talks about convenience HAHAHAHA This is a completely useless thread, but man I am getting a laugh out of it.

[JamesMcM]

https://spinalcordresearchandadvocac...dvisory-board/

https://spinalcordresearchandadvocac...-shareholders/

Thank you, what is so personally fascinating about this is Dr. Fehlings colleague was my neurosurgeon ( before he murdered his wife) and at the time they were working with stem cells Inc. to start the first clinical trial for chronic SCI in Canada. I told Dr. Shamji about the work being done in Russia with autologous neural cells and how naturally they should be much more effective then the cells being developed by stem cells Inc. he took an interest into what I was telling him, gave me his personal contact… And then obviously what happened happened. But now here we are Dr. Fehlings, shut down the trail with stem cells Inc. before it even started, and now is going to work with Dr. Ahlfos instead. Very interesting, I can’t help but wonder if Dr. Shamji talked to him about our conversation… I was shocked at how much interest Shamji Took into what I was telling him, and his secretary was shocked when she was told to give me his private contact.

[GRAMMY]

The Fehlings lab would be a very obvious choice for the necessary animal replication work since the New World Laboratory is also located in Canada. I spoke with Dr. Fehlings over lunch at ISNR in California when they first consented to begin the rat studies (Dec 2015).

The killer surgeon, Shamji, murdered his wife and her body was found the following year on Dec 1st, 2016. Horrible thing...

Canada joined as a recruiting site for the StemCells Inc. trial extremely late in the game. They had 2 locations of the 14 sites. In fact, I think they were the last designated sites to join. Fehlings did not shut down the StemCells Inc. trial, rather the company wound itself down. Fehlings was just a PI at the Toronto site.

Also keep in mind many of the researchers/labs do not want exactly what they are doing and working with to be public knowledge.

What witchcraft is this you speak of?

[Fly_Pelican_Fly]

Haha! Putting your thesaurus to good use there chap.

I’m pleased that you have now discovered Fortuna Fix has announced the trial in the West. How did you miss what was happening in your own back yard?

Travis Roy who spoke at W2W a few years ago is indeed a fierce advocate and is working very hard over there in Boston to accelerate the translation and commercialisation of discoveries.

I don’t mind what you think of me or how it makes you feel. I mostly only post here to call out misinformation, of which there is so much, so that newbies are not duped. I can stop doing that if you like.

re Dennis - he’s been injured as long as I have and has never taken an interest in the science or the commercial side of delivering technologies. He’s only interested in finding someone or something to agitate in order drive traffic to his blog. I don’t have the desire to enable him.

re Anthony - I have known Anthony and Paolo a long time. Neither will be offended or upset with me. So don’t worry.

You seem like a guy that wants to get involved and one with a thesaurus to boot. Maybe extract it from your ass and stop touting 3 year old partial information garnered from a couple of CEO phonecalls as current fact and get involved in a project local to you.

As for answering my two questions -

1) nobody is accountable for Cure as you cannot attach accountability to something that is undiscovered
2) there is no SCI community and therefore cannot have a value attached to it.

[Fly_Pelican_Fly]

LMFAO to write in such a highfaluting manner, to conclude with this... If only it was as simple as just regenerating spinal tissue. The audacity is literally palpable.

it doesn’t say just “spinal tissue” in my post.

[nrf]

Thank you, what is so personally fascinating about this is Dr. Fehlings colleague was my neurosurgeon ( before he murdered his wife) and at the time they were working with stem cells Inc. to start the first clinical trial for chronic SCI in Canada. I told Dr. Shamji about the work being done in Russia with autologous neural cells and how naturally they should be much more effective then the cells being developed by stem cells Inc. he took an interest into what I was telling him, gave me his personal contact… And then obviously what happened happened. But now here we are Dr. Fehlings, shut down the trail with stem cells Inc. before it even started, and now is going to work with Dr. Ahlfos instead. Very interesting, I can’t help but wonder if Dr. Shamji talked to him about our conversation… I was shocked at how much interest Shamji Took into what I was telling him, and his secretary was shocked when she was told to give me his private contact.

Are you really bragging that the fellow,who murdered his wife and hid the body for a year, found you fascinating?

[lunasicc42]

FPF, you are correct there. No hard feelings here

[lynnifer]

The Fehlings lab would be a very obvious choice for the necessary animal replication work since the New World Laboratory is also located in Canada. I spoke with Dr. Fehlings over lunch at ISNR in California when they first consented to begin the rat studies (Dec 2015).

The killer surgeon, Shamji, murdered his wife and her body was found the following year on Dec 1st, 2016. Horrible thing...

Canada joined as a recruiting site for the StemCells Inc. trial extremely late in the game. They had 2 locations of the 14 sites. In fact, I think they were the last designated sites to join. Fehlings did not shut down the StemCells Inc. trial, rather the company wound itself down. Fehlings was just a PI at the Toronto site.



What witchcraft is this you speak of?

I'm four hours away from Toronto but have exchanged tweets with Fehlings before. I'd love to tour his lab, but with winter coming it would have to wait until next Summer. Unless someone in Toronto wants to inquire??? The best way is to get someone from here to go 'there' and report back.

James? Something you would be able to do or no? If you don't want to - no biggie.

The victim of that despicable murder was from Tecumseh which is on the outskirts of where I live. Her family is still there

http://windsorstar.com/news/local-ne...r-slain-doctor

We had an anaethesiologist murder a nurse at a local hospital ... drive his Porsche down to the river and took his own life with meds he knew how to use. As a result, security has tripled at all of our medical places

[GRAMMY]

I'm four hours away from Toronto but have exchanged tweets with Fehlings before. I'd love to tour his lab, but with winter coming it would have to wait until next Summer. Unless someone in Toronto wants to inquire??? The best way is to get someone from here to go 'there' and report back.

This was on his twitter timeline. He's still working on this trial.

https://aospine.aofoundation.org/Str...arch&newsid=27

He also posted this latest publication a couple days ago.

https://www.ncbi.nlm.nih.gov/pubmed/29152227

A nice article again he published in Spine Universe on chronic SCI.

https://www.ncbi.nlm.nih.gov/pubmed/29152227

His TL is impressive.

[lynnifer]

I have a cousin working on Stem Cell Research at Michigan State .. I've not revealed that here before .. nothing to do with SCI though. His last publication was on the natural flora and fauna in a baby's digestive tract. lol

[GRAMMY]

We had an anaethesiologist murder a nurse at a local hospital ... drive his Porsche down to the river and took his own life with meds he knew how to use. As a result, security has tripled at all of our medical places

Why did the anaethesiologist killer want the nurse dead?