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    Originally posted by Wills77 View Post
    On the downside my spasms have been way worse than normal the past few days.
    Others have reported this same side effect, right?
    Co-founder & CTO of MYOLYN - FES Technology for People with Paralysis - Empowering People to Move

    Comment


      Originally posted by Wills77 View Post
      I'm a c6 ais C 7 years post injury. Dull sensation everywhere, some core and leg movement, limited hand function with the left being stronger. I just noticed new movement in my ankle last month so I am still regaining new function. I also have an implanted stim device that is connected directly to my muscles, not my spinal cord.

      I've been experimenting and trying to replicate this the past 4 days. Using an Empi 300pv stim device on a pre programmed high volt pattern designed to increase circulation. Stim on for 15 sec, off for 5 for an hour a day. I place 1 2x3.5" stim pad horizontal on the back of my neck right below my hair line and the other pad 3-4" below that vertically right on my spine. Using anywhere from 10-20 MA depending how it feels.

      On my 3rd day without even trying I noticed I am able to open my left, stronger hand more than before! On my 4th day I feel like my right weaker hand is able to open more than before also! On the downside my spasms have been way worse than normal the past few days. I normally have really tight neck/trap muscles. After doing a session I feel much looser and my neck will crack like it does after getting a massage.
      That's awesome news. Are you able to set long widths? I know of cases where longer pulse width made a difference as well. Typically you should notice something when the stim is active too.
      T3 complete since Sept 2015.

      Comment


        Originally posted by Mize View Post
        That's awesome news. Are you able to set long widths? I know of cases where longer pulse width made a difference as well. Typically you should notice something when the stim is active too.

        Thanks! I am still pretty shocked that its working. I haven't notice a difference while the stim is on but I usually do it at night while I'm in bed.

        I'm able to set
        NMES or High Volt
        Polarity - negative or positive
        Rate of Pulse Per Second from 2 to 150
        On time/off time
        With NMES I can also change
        Waveform - symmetrical or asymmetrical
        Cycling - alternate or synchronus
        Ramp time
        Pulse width from 50 to 400

        Any advice on a pattern I should try next?
        c6 inc since 2-19-11
        ex pro-am motocross racer
        tilite aero z s2

        Comment


          I've got notes somewhere with the settings used on a Chattanooga stim unit that allowed a complete quad to move a leg. I know the pulse width was 340 but I have to find the rest. I know the frequency was 60Hz. If you go with asymmetrical you need to shorten the duration of the stim as that builds up charge at one electrode increasing the chances of a burn.
          T3 complete since Sept 2015.

          Comment


            The tragedy is that we are talking about using inferior equipment when there is something better that we can't get.

            Wills77, I hope you work it out with what you have, but imagine if you had what we all need.
            Are you able to go and test the NRT stuff? Have you asked them?
            It sounds like you are committed, so please PM me if you have been knocked back.

            Comment


              I couldn't agree more. Even if NRT's unit only helped 10% of SCIs, it's worth the Foundations kicking in to get it across the goal line for those 10%.
              T3 complete since Sept 2015.

              Comment


                Originally posted by Mize View Post
                I couldn't agree more. Even if NRT's unit only helped 10% of SCIs, it's worth the Foundations kicking in to get it across the goal line for those 10%.
                We are having some success with the Chattanooga. Asia As are able to move toes, legs and ankles volitionally. We are using it with the Total Gym and people are able to do partial squats at 30?. No residual anything after stim is turned off. I wonder how much better we could do with the NRT? We are also using the Chatanooga with the RTI in gate mode while treadmilling people, we are not sophisticated enough to measure changes scientifically but our trainers can feel the difference.

                Comment


                  Originally posted by Mize View Post
                  I couldn't agree more. Even if NRT's unit only helped 10% of SCIs, it's worth the Foundations kicking in to get it across the goal line for those 10%.
                  I'd take it even further, if there is a solution that only helps a single person use their hands surely they should have it.
                  But you are right, if it helped 10% of the people that would be massive. In a world where there are solutions for 0%.

                  I've spoken with the large foundations about this and the feedback you get is "We invested in the research, thats where we stop."
                  There is no plan for the foundations to help get the cures out of research to the people (unless you count lying about it)

                  Comment


                    Maybe NRT should look at licensing their technology to a big company before a big company comes out with something similar and leaves NRT in the dust?

                    Comment


                      Originally posted by nrf View Post
                      Maybe NRT should look at licensing their technology to a big company before a big company comes out with something similar and leaves NRT in the dust?
                      NRT has the patents (or exclusive license of them) as well as the accumulated know how regarding frequencies and waveforms so I don't think a big company will leave them in the dust. If this were applicable to a larger market the big corps would infringe then countersue them into Oblivion. But it's a tiny market.

                      That said, a bigger company could fund the final push in exchange for an exclusive license of sorts.
                      T3 complete since Sept 2015.

                      Comment


                        Originally posted by Mize View Post
                        NRT has the patents (or exclusive license of them) as well as the accumulated know how regarding frequencies and waveforms so I don't think a big company will leave them in the dust. If this were applicable to a larger market the big corps would infringe then countersue them into Oblivion. But it's a tiny market.

                        That said, a bigger company could fund the final push in exchange for an exclusive license of sorts.
                        That would be the way to go to make some money and help some people. If a big company is interested.

                        Comment


                          The question is how much money is needed?

                          I spent over a decade learning about the injury, research and failed attempts. This seems like a tool that could help immediately with rehabilitation.

                          I always ask myself what would Christopher Reeve have done. He would've pursued this with a vengeance. Hell, he pursued moving his finger with the vigor of any Olympian.

                          We need a figure in the community that can push for this change. I feel like I've been watching paint dry for too long. I have seen too many people in the community give up hope because of false promises. For good reason ? we have been promised and so many promises have come up incredibly short.

                          Imagine if we could get all different foundations to come up w/ a consensus. The problem I see is convincing the egos in charge of various foundations agreeing upon anything.

                          Comment


                            Originally posted by niallel View Post
                            The tragedy is that we are talking about using inferior equipment when there is something better that we can't get.

                            Wills77, I hope you work it out with what you have, but imagine if you had what we all need.
                            Are you able to go and test the NRT stuff? Have you asked them?
                            It sounds like you are committed, so please PM me if you have been knocked back.
                            Yes I do. I'm in the gym a couple days a week and when I'm not, I'm handcycling or kayaking. My surface stim pads don't stick good to my neck or middle of my back especially when I'm moving around which is why I do it while I'm laying in bed.
                            I emailed them a few months ago explaining my injury, function, etc and asked what I would need to do to try it out but I didn't get a reply. At this point they might not let me anyways because I'm enrolled in other studies.
                            c6 inc since 2-19-11
                            ex pro-am motocross racer
                            tilite aero z s2

                            Comment


                              Since there are a few DIY users here i wanted to see if anyone would want to trade notes or insites for tDCS

                              http:///forum/showthread.php?262768-...35#post1859335

                              Comment


                                Originally posted by Chaz19 View Post
                                The question is how much money is needed?

                                I spent over a decade learning about the injury, research and failed attempts. This seems like a tool that could help immediately with rehabilitation.

                                I always ask myself what would Christopher Reeve have done. He would've pursued this with a vengeance. Hell, he pursued moving his finger with the vigor of any Olympian.

                                We need a figure in the community that can push for this change. I feel like I've been watching paint dry for too long. I have seen too many people in the community give up hope because of false promises. For good reason ? we have been promised and so many promises have come up incredibly short.

                                Imagine if we could get all different foundations to come up w/ a consensus. The problem I see is convincing the egos in charge of various foundations agreeing upon anything.
                                Good pointing. It’s absolutely ridiculous what’s happening :/ that f paint, never dries

                                Comment

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