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# of posters, I need help, Ideas on what we should do

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  • #16
    I wish we had a leader or a committee. Someone who could make a decision. That's our problem. We all have good ideas. First of all, I am not an administrator on this site and I don't know if our attempts are inline with the mission of CareCure, or what legally we could or could not do as a group. I like the idea of individual letters, although it is extremely critical to send out a letter representing a large group. We need to be organized should we be contacted. We would then need a spokesperson for us whom we have faith in.

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    • #17
      Originally posted by bigbob:

      I wish we had a leader or a committee. Someone who could make a decision. That's our problem. We all have good ideas. First of all, I am not an administrator on this site and I don't know if our attempts are inline with the mission of CareCure, or what legally we could or could not do as a group. I like the idea of individual letters, although it is extremely critical to send out a letter representing a large group. We need to be organized should we be contacted. We would then need a spokesperson for us whom we have faith in.
      What is member forum Quest For CURE doing?

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      • #18
        We need a committee! Then members will realize we mean business. A committee with access to the email addresses of all OUR members to send them an email of our intentions, to get the occasional viewers interested.

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        • #19
          how about a roll on capital hill, or something like that. have a few thousand or 10 of thousands clog up capital hill or something. make it a mess for them get media attention. just a thought I would go there fly, drive , or take a train, it's the least I can do for my cause

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          • #20
            Bigbob,

            Here's a link to one of the more popular phone books. If we could get a nice front cover message, then it would most likly get into most homes and would be visable every time the phone book is used. It would lay a good foundation for the cause and with a well rounded ad stating the benefits verses the costs of paralysis, it would really get -people fired up. Especially if there was a special page on the internet for them to get involved. Most people have family who have some kind of disability that could benefit from better research. They just need to know where to vent and get involved. This could be the sand that shifts into an avalanche.

            http://verizon.superpages.com/prodse...ods/covers.jsp


            David

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            • #21
              At best the yellow book comes out once or twice a year. I myself don't use it. I use the internet yellow pages.

              We need a Leader!

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              • #22
                Aside from nominating Jeff, I would also nominate ChrisD to a committee to further our cause. Chris is very professional and is already testifying on a SCI related Bill. We need a spokesperson, someone that could be contacted after they hear from us. We need a committee, a phone number etc.

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                • #23
                  A leader is one who serves others. The yellow book is a statement 365 days a year. It is not a virtual image but it easily handled. People relate to that sad little girl sitting on the phone book. LOOKing up with those big brown eyes asking for you to pick up your phone in the comfort of their own home making things happen because they have a relative or a friend too that can be helped. They just need to know how to help. Not everyone has a computer and most that do, use a local phone book at least once.


                  David

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                  • #24
                    I believe there are two really effective things we can do.

                    1. Write letters. Maybe have a monthly 'target'. A couple people write sample letters. The address is posted. Deadline is set. Then we let it fly. Monthly would be good, because it's rare enough for people not to lose interest. Often enough to be effective.

                    2. Agree / organize one [and only one] yearly fundraising event. Like the AIDS ride. Attract one of the premier event coordinating and promoting companies. Go all out.

                    These two concrete tasks could serve to catalyze other tasks [advertising, advocating, testifying.]

                    Focusing on a very few, do-able, high-impact tasks is so important. Otherwise all we do is diluted.

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                    • #25
                      Exactly, now all we have is ideas all over the place. We need a committee, whatever direction they chose will at least give us a roadmap.

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                      • #26
                        bigbob, we've tried the committee idea in the past but to no avail.

                        Personally, having gone round and round on this subject in various threads months and years ago I have come to the conclusion that "if you want something done, do it yourself".

                        Sorry to disagree but there's way too many wannabe generals on this board and not enough soldiers willing to do the dirty work which is as simple as giving a talk, writing an article, visiting with local docs, using the phone, etc. Committees aren't needed for that.

                        As a member of Quest for the Cure our mission is simple therefore less time to argue, and debate over what direction is best.

                        If people really want to do something and not just provide lipservice then they need to extend themselves beyond the borders of CareCure.

                        Peace.

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                        • #27
                          I've been hesitant to use my experience to help others because I didn't want to create false hope. I am beginning to have more changes in sensation and I'm very optimistic for the coming months.

                          How can I use my personal testimony to help?

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                          • #28
                            I hear you Chris. But, maybe this time we could get somewhere. I would gladly be a soldier and go to the Keck ctr. and stuff envelopes, if that was asked of me.

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                            • #29
                              Chris, I went to the Quest for the Cure site and I clicked the link for New Jersey It's latest information was from 1999 when Whitman was still Governor. Is that the right site? If it is, it is related to CareCure. I don't understand the relationship.

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                              • #30
                                ChrisD said:"As a member of Quest for the Cure our mission is simple therefore less time to argue, and debate over what direction is best."

                                The Florida info is also old. I had e-mailed them once ( can't even find their e-mail address anymore ), and I did get a thank you note: that I would be contacted if they planned anything. Never heard from them again.

                                What is their mission and what are they doing?

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