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  • An update article on Darek Fidyka

    Here's a recent article updating everyone on the progress of Darek Fidyka. He's the gentleman that had the mucosa nose cell surgery with transplanted cells from the brain and a nerve bridge done by the surgeon in Poland. LINK
    http://spinalcordresearchandadvocacy.wordpress.com/

  • #2
    that was a long read, but didn't seem to say too much! The description of where the cells were mined from and why was interesting, as well as why he was such a good candidate for their first try.

    Had to go re-read the original thread.. to see if it changed any of the opinions.. https://www.carecure.net/forum/showt...hlight=Raisman

    Shame the BBC are so hopeless and won't just stream or allow youtube to archive those programs. Not like they really hold much value past their original broadcast date.

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    • #3
      Originally posted by NW-Will View Post
      that was a long read, but didn't seem to say too much! The description of where the cells were mined from and why was interesting, as well as why he was such a good candidate for their first try.

      Had to go re-read the original thread.. to see if it changed any of the opinions.. https://www.carecure.net/forum/showt...hlight=Raisman

      Shame the BBC are so hopeless and won't just stream or allow youtube to archive those programs. Not like they really hold much value past their original broadcast date.
      You've picked up on many of the things that were initially reported but the articles were so inaccurate because of the media attempts to hype the single patient story. I'm glad the author took the time to review the cell origin, the added nerve graft and clean knife wound to the cord for starters. When the story broke, luckily I put all the media links into one post so it wouldn't be spread throughout the blog pages. Many of internet webpages or youtube are ultimately deleted over time.
      http://spinalcordresearchandadvocacy.wordpress.com/

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      • #4
        Looks like they are recruiting for trials another couple of people to have this done. There is more info on it and an update on Darek here: http://www.bbc.co.uk/news/health-35660621

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        • #5
          This is in the news today and whilst it does not give information on how/if the treatment could be applied to a wider range of injuries, it does provide an update on Darek's progress:
          http://www.bbc.co.uk/news/health-35660621

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          • #6
            Originally posted by niallel View Post
            Looks like they are recruiting for trials another couple of people to have this done. There is more info on it and an update on Darek here: http://www.bbc.co.uk/news/health-35660621
            Yes, it says they are searching around the entire globe for 2 people that have this specific thin clean knife wound. Unfortunately the vast majority of all SCI do not have that type of wound. (That's why they're looking worldwide for their injury model).
            http://spinalcordresearchandadvocacy.wordpress.com/

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            • #7
              Good point.
              When you add to that the people with that injury have to be willing to let someone extract the olfactory bulb from the base of their brain - there are probably only 2 people in the world this could apply to.

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              • #8
                Originally posted by niallel View Post
                Good point.
                When you add to that the people with that injury have to be willing to let someone extract the olfactory bulb from the base of their brain - there are probably only 2 people in the world this could apply to.
                Yes, the cell extraction is pretty awful but they are also having to lay in and apply a sural nerve graft across too. There's lots of pieces to this. I heard awhile back that they would be looking for acute knife wounds to do this experiment on. There probably are not that many clean knife wounds out there and then add in the cell extraction surgery and sural nerve grafting and it gets complicated for sure.
                http://spinalcordresearchandadvocacy.wordpress.com/

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                • #9
                  When you say acute knife wound, do you mean acute as in less than 2 years after injury?
                  I think Darek was near 2 years after when he had the surgery.

                  What I like about this article/video is that they are telling people what they have done and what has worked. They are doing this without having to be published in the medical press beforehand.

                  Do they have something to loose by doing it this way?

                  If not I wish everyone would publish their findings in a way we can understand, seeing a bit of progress in the light of day is great and gives me a bit of hope that there will be a fix for us.
                  Last edited by niallel; 03-04-2016, 06:14 PM. Reason: grammar

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                  • #10
                    Does it only have to be a clean knife cut in order to prove a nerve regeneration? Let's say they try it on a few chronic complete subjects, and then all of them would show improvements, would this not be enough?

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                    • #11
                      no dirty knife wounds allowed

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                      • #12
                        Originally posted by niallel View Post
                        When you say acute knife wound, do you mean acute as in less than 2 years after injury?
                        I think Darek was near 2 years after when he had the surgery.

                        What I like about this article/video is that they are telling people what they have done and what has worked. They are doing this without having to be published in the medical press beforehand.

                        Do they have something to loose by doing it this way?

                        If not I wish everyone would publish their findings in a way we can understand, seeing a bit of progress in the light of day is great and gives me a bit of hope that there will be a fix for us.
                        I believe the study was published back a few years ago...

                        http://www.ncbi.nlm.nih.gov/pubmed/23561833
                        http://spinalcordresearchandadvocacy.wordpress.com/

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                        • #13
                          Originally posted by Silvio GS View Post
                          Does it only have to be a clean knife cut in order to prove a nerve regeneration? Let's say they try it on a few chronic complete subjects, and then all of them would show improvements, would this not be enough?
                          I think a lot of this was covered a couple years ago in this thread.

                          https://www.carecure.net/forum/showt...een-posted-yet

                          A clean cut with a knife or razor on a cord is different than making a SCI with an impactor machine that more closely resembles a human SCI. Most SCI is contusion injury so the axons have been stretched, broken and they receded back from the lesion site.
                          http://spinalcordresearchandadvocacy.wordpress.com/

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                          • #14
                            Originally posted by GRAMMY View Post
                            Here's a recent article updating everyone on the progress of Darek Fidyka. He's the gentleman that had the mucosa nose cell surgery with transplanted cells from the brain and a nerve bridge done by the surgeon in Poland. LINK

                            " the gentleman that had the mucosa nose cell surgery with transplanted cells from the brain"

                            WHAT???

                            So did he get the cells from "the mucosa nose" or "from the "brain"?

                            Please read the paper before posting misleading informations!
                            In God we trust; all others bring data. - Edwards Deming

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                            • #15
                              An article that appeared in the New Yorker Magazine in January:

                              http://www.newyorker.com/magazine/20...dicine-d-t-max

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