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Fast-tracked 2017 e-stim?

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  • #46
    Awesome!
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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    • #47
      Thank You! I am continuing my upward trend, hoping after this left foot clears up, all will be a whole lot better, now out the door I go.lots to do here again. At least the snow is being downgraded too.

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      • #48
        I don't understand why medicine does not help more people? It has been proven Epidural Stimulation and other types of Stimulators can help in Spinal Cord Injury. Why is it not available for more people who are currently suffering? To me it's rather nasty of the medical community to do this to people who need help. Why don't more of us get the help we need? Since I've been injured going on 35 years now I've had to do everything for myself, never really got much help from Doctors or the medical community with anything. I'm currently in the middle tweaking my FES machine to a different resolver angle to get a better leg workout. My legs are in great shape and the rest of my body not bad for a 57 year old man, did 25 miles yesterday on the handcycle pushing really hard mostly against the wind, so heart is in good shape. Since day one though of my injury back on May 9th of 1981 the Medical Community has down nothing for me. Paralysis is still exactly the same, no sensation or movement from the nipple line down. Yet my legs are very strong and when I spasm push hard still. Too me it is downright mean to put out there about the four guys who did so well after the epidural implant and never offer it to others, I really hate all those researchers and foundations involved in the whole scam. Not putting down Pathmaker here with the Myoregulator because at least they are trying but I am putting down others who see fit to run endless trials and just keep trying to raise more and more funding.
        Last edited by Curt Leatherbee; 03-19-2016, 01:30 PM.
        "Life is about how you
        respond to not only the
        challenges you're dealt but
        the challenges you seek...If
        you have no goals, no
        mountains to climb, your
        soul dies".~Liz Fordred

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        • #49
          Take it to the media Curt. Anty will never see this and that pisses me off.
          Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

          T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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          • #50
            I agree with you Curt. You have been hurt a long time. It appears to me that the Reeve foundation recruits people based on their ability and enthusiasm to raise money almost like the requirement that a politician be a narcissist. It's not about helping those injured but challenging able bodied people to get out there and raise more money (primary goal) to help those injured (secondary goal). I really don't give a shit if someone stands to dance at their wedding reception (lol!) but I would really like to see you (and lynnifer) stand voluntarily without braces whenever you wish. As a citizen I do contribute tax proceeds that help fund this research.

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            • #51
              Has anyone heard of Better Being Hospital in Bangkok,doing stem cell and epidural transplant?

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              • #52
                Welp it's 2017 now!

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                • #53
                  That's what I was thinking too! lol
                  Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

                  T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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                  • #54
                    Originally posted by lynnifer View Post
                    http://www.bizjournals.com/boston/bl...akers-non.html

                    PathMaker Neurosystems, a Boston company that's been developing a cure for neurological motor disabilities using electrical pulses since last year, has earned an FDA designation that could speed up approval.
                    The company announced Thursday that it received an expedited access pathway. The designation, established by the federal agency in April 2015, is for devices that help treat a life-threatening or debilitating condition, and meets an unmet need...
                    April 2016 Update:

                    http://www.feinsteininstitute.org/20...e-contraction/

                    PathMaker also announced that it has received positive confirmation from the U.S. Food and Drug Administration (FDA) that clinical trials for MyoRegulator constitute non-significant risk (NSR) device studies. NSR designation by the FDA allows clinical trials to proceed in the U.S. without the need to submit for approval an Investigational Device Exemption (IDE) application, because the trials, as assessed by FDA, are not considered to present a potential for serious risk to the health, safety or welfare of a subject. PathMaker's MyoRegulator was also one of the first products designated for FDA's Expedited Access Pathway (EAP), a new FDA pathway intended for breakthrough products to facilitate patients gaining more rapid access to critical medical devices by expediting their development, assessment and review.

                    MyoRegulator is a first-in-class, non-invasive device for treating patients with spasticity using our proprietary DoubleStimTM technology for multi-site neurostimulation. Spasticity is a common and disabling condition found in many patients with stroke, cerebral palsy, multiple sclerosis, spinal cord injury, brain injury and other neurological conditions, and there are over 15 million patients worldwide affected by spasticity. Patients with spasticity have damaged neural pathways that give rise to hyperexcitable spinal circuits, and our DoubleStimTM technology has been shown in published animal studies to able to suppress the hyperexcitability, thereby leading to reduced muscle spasticity. MyoRegulator is an investigational device and is limited by United States law to investigational use only.

                    http://pmneuro.com/news/in-the-news/

                    Last edited by GRAMMY; 01-07-2017, 01:30 AM. Reason: added the news video
                    http://spinalcordresearchandadvocacy.wordpress.com/

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                    • #55
                      I just had an appointment withy neurisurgeon about a month ago and I straight up told him that I wanted to get the screws and shit out of my back so that I could try some of this stim stuff, and he flat out told me that it didn't work yet. what god damned liar...

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                      • #56
                        Nauticalmike, I was thinking along those lines this morning, just a couple of hours ago. A day or so after my accident, doctors were ready to operate on my broken back. Another issue came up, causing that surgery not to take place. I've always known that that surgery MIGHT have given me a little function back. But only recently, I've been thinking about it being nice that I don't have metals in my body.
                        Female, T9 incomplete

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                        • #57
                          Originally posted by Jackijb View Post
                          Has anyone heard of Better Being Hospital in Bangkok,doing stem cell and epidural transplant?
                          Yes...and
                          Attached Files
                          "That's not smog! It's SMUG!! " - randy marsh, southpark

                          "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


                          2010 SCINet Clinical Trial Support Squad Member
                          Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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                          • #58
                            Did someone tell you that you had to have the metal removed? I have metal and I took part in one of the trials for this equipment

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                            • #59
                              Originally posted by Tbone57 View Post
                              Did someone tell you that you had to have the metal removed? I have metal and I took part in one of the trials for this equipment

                              Can you please say which trial you participated in. What you had done to you and any results?
                              "That's not smog! It's SMUG!! " - randy marsh, southpark

                              "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


                              2010 SCINet Clinical Trial Support Squad Member
                              Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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                              • #60
                                I'm going to chime in but feel free to correct me -- my OT says you can't stim over something like a PACEMAKER due to conflicting electrical currents. Don't think it's actually the metal.

                                yeah, they need to get the show on the road w this! Just got my first pump last month and I HATE IT! I've promised myself I won't need the replacement in 5-7 yrs cuz there'll be something better.

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