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New Spinal Cord Procedure Offers New Hope To Patients(Dr.Huang)

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    #31
    I have wondered about Christopher Reeve's progress. Perhaps he did do something other than just the intensive exercise therapy. The more I think about it, the more plausible it seems. Has anyone else heard anything? I'm sure Dr. Steven Hinderer knows what he's talking about.

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      #32
      I can't believe that Christopher Reeve didn't contact Dr. Huang about his procedure. Today he probably knows if he is a good candidate for that treatment. Can you imagine the impact in USA if he receives that treatment and get some good functions returns? You know, he can go in Beijing without announcing it.
      It's just an opinion...

      Steve

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      • #33
        Steve, Christopher Reeve spoke directly with Dr. Huang the first week in September. Dr. Huang was in NJ to speak at Dr. Young's lab.

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          #34
          Thanks for your reply CJO"
          Do you know more about that meeting ?

          Have a nice weekends

          Steve

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            #35
            Steve, here's a summary of Dr. Huang's lecture at the Keck Center which Reeve attended.

            My notes from Dr. Huang's lectures

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              #36
              With CR, what progress, in case it meant lately ... Haven't kept track lately.

              With pics between 2000-2003, seemed to me right side not so damaged, nothing goes through, and left I don't recall ever getting C1 in quite neat.
              If him had stuck stuff in there, would it not have gotten ways differing there?
              But I don't really feel like thinking much about that now.

              Just hope, if him ever sticks stuff in there, he's having someone program around first and later, and be it Adam, or I don't really care who.

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                #37
                Hello,
                Does anyone can point me to the topic talking about consequences in being involved in Dr. Huang's surgery and possibilities to be involved or not in other future therapies like stem cells or else ?... I mean does the fact of being OEG transplanted today does (or does not) prevent of being stem cells transplanted in the future.
                Thanks in advance
                George

                Check out my little carecure forum in french at http://www.paratetra.net

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                  #38
                  Having Dr. Huang's procedure may disqualify you from being a clinical trial participant in the US, the researchers would need to be certain that their procedure was the cause of recovery if any, but it should not exclude you from receiving FDA approved treatments.

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                    #39
                    Bent

                    Dr Huang has told me he has had T7 Asia A go to Asia C after his treatment.

                    I debate whether that degree of improvement is worth it. What do you all think??

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                      #40
                      GIVING Back Hope

                      GIVING Back Hope
                      TIME - USA
                      ... That's just what Huang does, injecting fetal OEG cells into the damaged
                      spinal cord. ... it should take months for an axon to extend from the
                      point of injury to a ...
                      http://www.time.com/time/asia/magazi...682348,00.html
                      http://stores.ebay.com/MAKSYM-Variety-Store

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                        #41
                        Cool, Now we need that combo.

                        The Chaoyang hospital in central Beijing is an unlikely place to seek cutting-edge treatment. Orderlies in the shabby five-story building pile surplus furniture in the crowded hallways and push patients around on jerry-rigged gurneys made with bicycle wheels. Yet Nan Davis has traveled halfway around the globe to undergo a new procedure available only here. Six hours ago, Dr. Huang Hongyun injected 1.5 million fetal cells into her damaged spinal cord. Davis, a teacher from Ohio, hasn't walked since 1978 after a car crash left her paralyzed from the bottom of her rib cage down. Shortly after she awakens, Davis signals with a thumb and index finger that she can feel nearly two inches lower than before. "My goal," she says, "is to regain my stomach and back muscles enough to sit up straighter."

                        That might not sound like a breakthrough, but more strength in her trunk would significantly ease the pain in Davis' joints. And she's not alone in pinning her hopes on Huang. In three years, Huang says, his cell-transplant surgery has helped nearly 500 paraplegics and quadriplegics regain functions that received medical wisdom said were lost forever. Word of his success has spread, and Huang has already drawn 40 patients from the U.S., with about 200 more Americans on the waiting list. Near the hospital, a dozen recovering foreign patients have turned a hotel's fifth floor into a Hall of Miracles. Bob Wolfbauer of Michigan can use his index finger well enough to write his signature for the first time since a bicycle accident two years ago; Jake Giambrone of Alabama can move his right wrist for the first time since a wrestling injury four years ago; and Cade Richardson of Washington State can feel his rag-wool socks for the first time since his paraglider accident in 2001-"my feet itch," he says, "and it feels great.

                        "All you have to decide is what to do with the time that is given you."
                        Gandolf the Gray
                        http://justadollarplease.org/

                        2010 SCINet Clinical Trial Support Squad Member

                        "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

                        .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

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                          #42
                          wow,...200 more americans on the waiting list..
                          +150 euro. ppl.....(wihtout me)
                          --------------------------
                          =234 years +/-2years ?

                          that´s a long way to go!!!

                          dyonisos

                          be dazed and confused
                          be dazed and confused

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                            #43
                            Paralyzed Americans travel to Chinese doctor implanting fetal cells

                            Paralyzed Americans travel to Chinese doctor implanting fetal cells

                            BY MICHAEL A. LEV

                            Chicago Tribune


                            BEIJING - (KRT) - A Chinese neurosurgeon has been besieged by desperate Americans willing to pay $25,000 for an implant of cells from aborted fetuses, a controversial and scientifically unproven procedure that the doctor claims has helped patients with spinal injuries or the nervous-system disease known as ALS but has alarmed Western researchers
                            <A HREF="http://www.kansascity.com/mld/kansascity/news/world/9535057.htm" TARGET=_blank>
                            http://www.kansascity.com/mld/kansascity/news/world/9535057.htm[/url]


                            But top American researchers express deep concern that Huang is forging ahead without first testing the technique's safety or scientific basis in clinical trials with independent review.

                            They also are puzzled why some patients claim to see results within days when the body takes far longer to regenerate nerve endings. Without clinical proof, they warn that any improvements felt by patients could be the result of the placebo effect.

                            Both severe spinal cord injuries and amyotrophic lateral sclerosis (ALS) generally are considered irreversible, and Huang is treating people based on a laboratory theory that many researchers have failed to reproduce in rats, said Dr. Naomi Kleitman, a program director for spinal cord injury research at the National Institute of Neurological Disorders and Stroke.

                            "Snake oil is not too strong a word," said Dr. Jack Kessler, chairman of neurology at Northwestern University. Kessler, who began studying spinal injuries after his daughter was paralyzed in a skiing accident, said three patients with whom he has worked have gone to China to have Huang's treatment but he has seen no good evidence of its effectiveness.

                            "I'm ticked off because of what this does to patients," Kessler said. "It takes a desperate person and exploits them for financial gain. It puts them through an onerous process for no better reason than to line someone's pockets.

                            "I have a personal interest in this. If I thought there was anything to this, I'd be the first to defend it."

                            Many of the patients are traveling to China because they do not believe the treatment will become available in the United States any time soon. Religious and moral objections have slowed research into the use of fetal cells, and Huang's procedure harvests cells from second-trimester aborted fetuses.

                            In China there are fewer restrictions on this research, and Huang is being allowed to proceed without having conducted clinical trials that in the U.S. would take years.

                            American doctors "don't want to confront the political sensitivities of using fetal tissue," said Steve Byer of Dodgeville, Wis., whose 33-year-old son, Ben, has ALS and had the surgery in July. Byer says Ben has seen some improvement in his voice, chewing ability and balance, and his fingers have straightened.

                            Don Sacco, 48, who was left a quadriplegic by a 2001 car accident, had the surgery in June and says he has regained some movement in his hips and knees, and feeling has returned to one arm.

                            "I'm sweating, and I haven't sweated in 3 1/2 years," said Sacco, who owns a scrap yard in Alliance, Ohio.

                            As for the ethical issues, Sacco said, "All these baby huggers in this country ought to be in this (wheelchair) for a while."

                            A number of top American researchers said their concerns with Huang's practice go beyond questions of using fetal tissue or even whether Huang's most dramatic claims can be proved eventually. They warned that it is perilous to sacrifice the principle of testing because the next doctor's claim of a miracle could be bogus.
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                              #44
                              Interesting article. It quotes Dr. Young too.

                              *************
                              AB wife of T8 complete para
                              *************
                              AB wife of T8 complete para

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                                #45
                                Controversial Chinese neurosurgeon gives hope to paralysis patients

                                Controversial Chinese neurosurgeon gives hope to paralysis patients


                                BEIJING : When Leo Hallan woke up in a hospital and found out he was paralysed from his chest down from a motorcycle accident in 1976, he thought his life was over.

                                The 20-year-old had also lost sensation in both his arms and hands.

                                Doctors told him he would have to live with the disability for the rest of his life.

                                Sitting in a wheelchair in Dr Huang Hongyun's clinic in the Beijing Xishan Hospital recently, the 49-year-old American told of a miraculous moment when he was able to regain some of his sense for the first time in 29 years.

                                Shortly after Huang injected Olfactory Ensheathing Cells (OEC) into his spinal cord, he started noticing changes - within a week, he started perspiring below his chest and could feel the chill of the wind for the first time when he went outdoors in his wheelchair.

                                "When I was outside, I felt cold in my arm, the hair of my arm was moving, I had to look down to believe it," said a cheerful-looking Hallan. "Words cannot express my emotions.

                                "It was total amazement, just unbelievable," he said. "Twenty-nine years ago ... many doctors said I'd never walk again. At least now I can say there is quite a bit of hope."

                                Hallan is just one of some 800 patients who have been seen by Huang, whose controversial approach to treating Amyotrophic Lateral Sclerosis (ALS) and spinal cord injuries by injecting cells from aborted foetuses has been sceptically received by many western medical experts.

                                Almost all of his patients are foreign, from countries including Spain, Germany, France, Japan, New Zealand, Singapore and Pakistan, though most are from the United States.

                                Huang's centre said most of its spinal cord injury patients have regained some sensory and motor function, as well as the control of urine and bowel movement, while most ALS patients had seen indefinite stabilisation in their neurological function.

                                "Most of our patients have obtained significant functional improvement to various degrees and about 70 percent of the patients have obtained some improvement in the quality of their lives," his centre's website said.

                                But Huang's Western sceptics say the effectiveness of his approach has not gone through rigorous tests and some even accuse him of exploiting desperate patients as laboratory mice.

                                "I haven't come across anyone in the field who considers his procedures safe and effective," said Professor Geoffrey Raisman at the Institute of Neurology, University College of London, who is pioneering research on OECs.

                                "He is the only one who claims it works, other people who have examined some of his patients said they saw no improvement."

                                Moreover, western doctors say Huang doesn't systematically keep track of his patients so there is no statistical data on how many experience lasting benefits, and he fails to perform controlled studies considered necessary in western circles.

                                But that doesn't bother his hopeful patients.

                                Hallan, who had been told by western doctors his condition would never improve, swore by Huang's treatment.

                                He said didn't mind "at all" being a laboratory mouse and that many other patients like him were desperate to try out new treatments, even if they had not undergone enough tests.

                                "The fact that this has moved on from rat (to human) is one of the most exciting prospects," he said. "There is risk in anything. You have more chance of dying just walking on the street."

                                From his spartan office decorated with calligraphy extolling his work ("Miracle hands bring back life"), an exasperated Huang argued impassionately and defensively against the criticisms.

                                He said the placebo-controlled trials that some critics say he should conduct were unethical and not permitted under Chinese law because it would mean effectively deceiving patients into believing they had been treated when they hadn't.

                                "For someone like Mr Hallan who had been ill for 29 years, it would be cruelty to let him have that done to him," Huang said.

                                "What is the priority here? Science or the patients?"

                                He also lashed out at the hyprocrisy of those who criticise him for his use of nasal linings of aborted foetuses, arguing that western countries such as the US are already using embryonic cell implants to treat Parkinsons disease.

                                "So only you are allowed to do this and we are not allowed to do this?" he said.

                                Another American patient, Doug McGuiness, who had two tiny holes drilled into his skull and then an injection of two million OEC cells, said even if his improvements were only temporary, the US$20,000 treatment fee would still be worth it.

                                Eight years after being diagnosed with ALS, the 59-year-old engineer was overjoyed when he could button his own shirt and raise his legs without help just two days after the operation.

                                "This is a terminal disease, it's worth it even if it is three months, six months, a year," he said, remarking that most ALS patients only have three years to live.

                                Even though it is still unknown exactly how the foetal tissue might work on damaged brains and spinal cords, Huang argued that this shouldn't stop the technique being used when it has been proven to work.

                                "Why do we need to eat and sleep, do we know? Is that a reason to stop eating?" he challenged.

                                Huang put the wide scepticism down to discrimination.

                                "They have a prejudiced attitude. They think it is implausible that a developing country like China can develop something that America and European countries haven't done yet.

                                "They can't accept that China is ahead of them."

                                With more trials of combinations of different techniques, Huang said it might be a possibility for his patients to walk in the future, but carefully emphasised that this was only one step in a very long process.

                                "Maybe eventually, but we don't have the solution here right now," Huang said.

                                But his critics remain unconvinced.

                                "I would be delighted if he would present evidence his OECs are working in his patients and ... it would have enormous impact on the field," Raisman said.

                                "But unless he can provide data to convince other experts in the field, it is pointless." -



                                http://www.channelnewsasia.com/stori...180679/1/.html
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