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Heading to the Stem Cell Institute in Panama

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    #46
    I'd go in a second if they'd take me

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      #47
      Originally posted by Tbone57 View Post
      I'd go in a second if they'd take me
      Why?
      "That's not smog! It's SMUG!! " - randy marsh, southpark

      "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


      2010 SCINet Clinical Trial Support Squad Member
      Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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        #48
        I just wanted to let you all know I have made it to Panama safely and everything is really wonderful here! I have started my blog posts and will continue to post each day. If you have any questions for me, let me know and I will be happy to answer them www.joshsrecovery.blogspot.com

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          #49
          Good luck Josh!

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            #50
            Originally posted by Josh017 View Post
            I just wanted to let you all know I have made it to Panama safely and everything is really wonderful here! I have started my blog posts and will continue to post each day. If you have any questions for me, let me know and I will be happy to answer them www.joshsrecovery.blogspot.com

            Yeah, I don't expect anything but I still wish you the best
            "That's not smog! It's SMUG!! " - randy marsh, southpark

            "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


            2010 SCINet Clinical Trial Support Squad Member
            Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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              #51
              Originally posted by Tbone57 View Post
              Good luck Josh!
              Thank you!!

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                #52
                Show um, Josh, show um.
                I have had periodic paralysis all my life. I lost my ability to walk in 2011 beginning with a spinal block, which was used for a hip fracture caused by periodic paralysis.

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                  #53
                  Josh
                  Any update on your progress? your last Blog post was July 11, 2015

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                    #54
                    You're may possibly be more likely to get a response at his blog site through the listed "Contact Me" links than here at this forum...
                    http://spinalcordresearchandadvocacy.wordpress.com/

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                      #55
                      why won't they take you? i'm looking into treatment here but I'm worried they won't accept me because I might not be "injured enough" to their standards. I'm incomplete L4-5 but my only complaint is my spastic neurogenic bladder, however it runs everything in my life and I don't respond to any treatment, even botox, sadly.

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                        #56
                        Just had a look at his blog and it seems like he did get some improvements after his trip to Panama. Didn't expect that... but I still wonder if could only be due to the intensive PT, or the stem cell intervention might've actually worked?

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                          #57
                          I know we're desperate...but C'mon!
                          "That's not smog! It's SMUG!! " - randy marsh, southpark

                          "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


                          2010 SCINet Clinical Trial Support Squad Member
                          Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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                            #58
                            Nothing online since 11/2015.

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                              #59
                              Originally posted by 2drwhofans View Post
                              Nothing online since 11/2015.
                              Not that I believe the Stem Cell Institute does anything except take people's money, but if you go to Josh's blog, http://joshsrecovery.blogspot.com , and look on the right, you'll see a link to his Facebook profile. If you go there, you'll see that he's going back for a second treatment soon.

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                                #60
                                Originally posted by khmorgan View Post
                                Not that I believe the Stem Cell Institute does anything except take people's money, but if you go to Josh's blog, http://joshsrecovery.blogspot.com , and look on the right, you'll see a link to his Facebook profile. If you go there, you'll see that he's going back for a second treatment soon.
                                Looking at his pictures on Facebook I'd say he can afford it not a bother, and by the way, you couldn't even tell that he's SCI from his pics, thumb up.
                                If I'd be like Josh's level and incomplete like he is, I'd be happily waiting for as long as needed for some more genuine treatment...

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