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    #31
    Originally posted by Josh017 View Post
    I am T-10 incomplete. As with b/b/s, I feel when I need to urinate but can only hold it in for up to about 2 minutes. I still have problems every once in a while of waking up and the bed is wet. Bowel I use suppositories every few days. If I have an upset stomach or something causes me to have to go, I definitely cannot hold it in at all to even have a chance to get to the bathroom in time. As for sexual function I have no feeling, no arousal at all.

    Thank you
    "That's not smog! It's SMUG!! " - randy marsh, southpark

    "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


    2010 SCINet Clinical Trial Support Squad Member
    Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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      #32
      Originally posted by Josh017 View Post
      Sorry for the late response as yesterday was my Mother's Birthday. I haven't had an ASIA test in about 2 years, but all of my current movement and function abilities I have documented in a video I posted on my blog page as of 2 weeks ago April 2015. The cost is $32,500 for treatment, and consists of multiple injections and physical therapy throughout the month. I have had physical therapy and time at the gym almost every day since my injury, so improvements will definitely be because of the stem cells as opposed to me just working on my legs and such during that month. And yes I was also disappointed in the others who went and didn't update on their progress, so I am hoping that what I am doing will be of benefit to many others
      Josh, if you want to be as thorough as possible, you should definitely get an ASIA exam. That video is not exact and reliable enough. An ASIA exam is much more thorough and valid, and a pre- and post-treatment ASIA score is something a lot of people can learn from.

      You say you've spent "time at the gym" but what did that consist of? Were you in a commercial gym using regular weight lifting machines? Or were you doing things like functional electrical stimulation and bodyweight supported locomotor training?

      Thank you for the answers to your questions so far and good luck to you.

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        #33
        Originally posted by tomsonite View Post
        Josh, if you want to be as thorough as possible, you should definitely get an ASIA exam. That video is not exact and reliable enough. An ASIA exam is much more thorough and valid, and a pre- and post-treatment ASIA score is something a lot of people can learn from.

        You say you've spent "time at the gym" but what did that consist of? Were you in a commercial gym using regular weight lifting machines? Or were you doing things like functional electrical stimulation and bodyweight supported locomotor training?

        Thank you for the answers to your questions so far and good luck to you.
        Ok I will see if I can get one before I leave and another when I return if that would be of more help! And I use just a normal gym, treadmill at slow speed and take a break every few minutes. I have no control of my right leg so most of the leg exercise machines I cant use even with no weights added. I use electrical stimulation every day for my right ankle, Bioness device to lift my ankle with each step. I wear it on the treadmill and whenever I leave the house using walker or crutches otherwise my foot just drags around. I have had the Bioness device for almost 3 years now and use it daily.

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          #34
          Originally posted by Josh017 View Post
          Ok I will see if I can get one before I leave and another when I return if that would be of more help! And I use just a normal gym, treadmill at slow speed and take a break every few minutes. I have no control of my right leg so most of the leg exercise machines I cant use even with no weights added. I use electrical stimulation every day for my right ankle, Bioness device to lift my ankle with each step. I wear it on the treadmill and whenever I leave the house using walker or crutches otherwise my foot just drags around. I have had the Bioness device for almost 3 years now and use it daily.
          Given how incomplete you are, have you considered going to a place where you can get intensive, high-volume activity based PT such as the Kennedy Kreiger Institute in Maryland, or Craig Hospital in Colorado? There are also places like the Rehab Institute of Chicago, the SCI center at the Rehab Institute of Michigan, and other private pay gyms where you can get customized workouts that are much more intensive than you can get in a gym. It would be worth considering travelling to a place like that before you spend all the extra money you'd need to in order to go to Panama. You might get some benefit without the "medical" procedures (and I put the quotes there on purpose, because I use that term VERY loosely for a place like the Panama stem cell institute).

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            #35
            Haaaaaaaa LOL!

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              #36
              Originally posted by tomsonite View Post
              Given how incomplete you are, have you considered going to a place where you can get intensive, high-volume activity based PT such as the Kennedy Kreiger Institute in Maryland, or Craig Hospital in Colorado? There are also places like the Rehab Institute of Chicago, the SCI center at the Rehab Institute of Michigan, and other private pay gyms where you can get customized workouts that are much more intensive than you can get in a gym. It would be worth considering travelling to a place like that before you spend all the extra money you'd need to in order to go to Panama. You might get some benefit without the "medical" procedures (and I put the quotes there on purpose, because I use that term VERY loosely for a place like the Panama stem cell institute).
              Tomsonite has anything negative happened at the Panama institute that you know of? Bad Press etc..

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                #37
                Originally posted by Tbone57 View Post
                Tomsonite has anything negative happened at the Panama institute that you know of? Bad Press etc..
                Bad press in Costa Rica. Re-located to Panama. Same company.

                http://www.biospace.com/News/institu...an-stem/183075

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                  #38
                  Originally posted by tomsonite View Post
                  Given how incomplete you are, have you considered going to a place where you can get intensive, high-volume activity based PT such as the Kennedy Kreiger Institute in Maryland, or Craig Hospital in Colorado? There are also places like the Rehab Institute of Chicago, the SCI center at the Rehab Institute of Michigan, and other private pay gyms where you can get customized workouts that are much more intensive than you can get in a gym. It would be worth considering travelling to a place like that before you spend all the extra money you'd need to in order to go to Panama. You might get some benefit without the "medical" procedures (and I put the quotes there on purpose, because I use that term VERY loosely for a place like the Panama stem cell institute).
                  Yes I have looked into this and other rehab options, its just there's not much more I can do to improve if I cant control my left ankle or leg muscles. Now after the stem cell treatment if I regain control, then yes I will be definitely doing as much intense PT to build the muscles back up, etc. The past 2 years of PT I have only seen improvements in how long I can stand and how far I can walk without getting tired. I had return slowly for about 2 years but then it stopped. And another reason the stem cell therapy has my interested is the regain of my b/b/s which I cant get back from therapy.

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                    #39
                    Originally posted by 2drwhofans View Post
                    Bad press in Costa Rica. Re-located to Panama. Same company.

                    http://www.biospace.com/News/institu...an-stem/183075
                    https://www.carecure.net/forum/showt...em-Cell-Treatm
                    http://spinalcordresearchandadvocacy.wordpress.com/

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                      #40
                      I'd give it a shot but they won't treat me.

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                        #41
                        I removed off topic posts, please stop with the personal stuff.

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                          #42
                          Originally posted by Tbone57 View Post
                          Tomsonite has anything negative happened at the Panama institute that you know of? Bad Press etc..
                          I hadn't seen the article 2drwhofans posted - to answer your question, no, I haven't heard of any negative medical consequences due to the procedures that take place at the panama stem cell institute. However, I've never seen anything with even an ounce of evidence to make me believe that the stem cells at their institute do anything. Not one paper on any of their subjects. Not one randomized control trial. No well documented before and after data. Nothing but patient testimonials. Am I to believe that everyone who has gone there has gotten miraculous recovery for many different conditions that have delivered the same kind of stem cells through the same methods? Where are the testimonials of people who went and got nothing for their time and money? There is a client here at the gym where you used to go to who went to get stem cells in Panama, and got literally nothing back as a result.

                          The negative thing about the Panama Stem Cell institute is they are salesman above anything else. There is little, if any legitimate science behind what they claim. They don't even try to investigate, let alone guess how and/or why the stem cells get the results they claim. Essentially, they just throw autologous stem cells at any old problem and hope for the best results, not caring how it works. This doesn't sound very scientific or medical to me.

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                            #43
                            David Brafman Guest Post: A Look Inside a Stem Cell Clinic Infomercial Event

                            This was posted in Paul Knoepfler Lab Stem Cell Blog and an interesting read...
                            http://spinalcordresearchandadvocacy.wordpress.com/

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                              #44
                              I wouldn't go there. From all the testimonials i have heard, it's not effective, just clowns praying off desperate people . Stop this nonsense
                              "That's not smog! It's SMUG!! " - randy marsh, southpark

                              "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


                              2010 SCINet Clinical Trial Support Squad Member
                              Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

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                                #45
                                Originally posted by lunasicc42 View Post
                                I wouldn't go there. From all the testimonials i have heard, it's not effective, just clowns praying off desperate people . Stop this nonsense

                                Know someone that went there twice. Absolutely no results besides the face he eliminated himself from any upcoming trial.

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