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If you had the funds...would you opt for any current therapies?

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  • #31
    Originally posted by ECUrach85 View Post
    Is there a way to get epidural stimulation in another country? Cuz I'd pretty much sell my house if there was a way. But yes, pretty much what you said is what I'd do
    Me as well.

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    • #32
      http://stemcelltreatmentnow.com/spinal-cord-injury/

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      • #33
        If I had won that 1/2 a billion dollar power ball drawing, I said to myself I would AT LEAST fund the SCInetUSA trial in full and give CDRF the rest of the funds they need for the epistem study. And try to talk them both into a seperate study that I would fund that would include both the epistem and the cells and such.

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        • #34
          I was there last year lol

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          • #35
            Originally posted by Tbone57 View Post
            Hey ECUrach85 go to this link you can get it in San Diego its out of pocket. I called there but I didn't discuss price with them

            http://health.ucsd.edu/specialties/n...imulation.aspx

            I went to San Diego last summer to talk with Dr. Justin Brown. He is a wonderful neurosurgeon in La Jolla, CA. I'm a c3/c4 ASIA B. Most insurances will cover the cost of the stimulator if you have a history of chronic pain. If I remember correctly it is a 2 or 4 channel stimulator. Nothing specialized for SCI like Kentucky is doing. He was still doing nerve transfers as of last summer. Unfortunately I didn't have enough preserved nerve function for the surgery to provide me any benefit.

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            • #36
              Originally posted by Silvio GS View Post
              I was there last year lol
              How did that work out for you?

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              • #37
                Originally posted by nrf View Post
                How did that work out for you?
                Everything was fine besides the efficacy of the treatment. Good experience though, one month holiday in Bangkok plus an extra stem cell shots which didn't work. I like to see it this way.
                There was a girl that got a combined treatment of stem cell and the electrical stimulator implant, she was the first having this operation at Beike. I don't think she got any significant improvements.

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                • #38
                  Originally posted by Silvio GS View Post
                  Everything was fine besides the efficacy of the treatment. Good experience though, one month holiday in Bangkok plus an extra stem cell shots which didn't work. I like to see it this way.
                  There was a girl that got a combined treatment of stem cell and the electrical stimulator implant, she was the first having this operation at Beike. I don't think she got any significant improvements.
                  Thank you Silvio. It's coming. It's coming.

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                  • #39
                    Stem cells alone Will not cause enough regeneration, in my opinion and there are numerous studies where they have tried and failed. Needs a scaffold technology or hydrogel etc definitely can't be intravenous needs to be directly at the injury site.

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                    • #40
                      Originally posted by JamesMcM View Post
                      Stem cells alone Will not cause enough regeneration, in my opinion and there are numerous studies where they have tried and failed. Needs a scaffold technology or hydrogel etc definitely can't be intravenous needs to be directly at the injury site.
                      I do believe the same that without a scaffold, bridging or something, using stem cell alone any substantial recovery is impossible.
                      But a year ago I didn't know as much about all this...and even so I chose to have only lumbar injections straight into the spinal cord. The idea of having intravenously shots was the same as massaging a prosthetic leg.

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                      • #41
                        Originally posted by JamesMcM View Post
                        Stem cells alone Will not cause enough regeneration, in my opinion and there are numerous studies where they have tried and failed. Needs a scaffold technology or hydrogel etc definitely can't be intravenous needs to be directly at the injury site.
                        What legitimate studies using what type of stem cells?

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                        • #42
                          I really doubt stem cells will "magically" recreate all of the strength that is lost. As well as coordination with that strength and your actual body. Stem cell may be or may not be a piece or the entire problem. But I seriously think it is only 1 piece out of a countless of other pieces to the entire process. Keep in mind EVERY single body on this planet is unique. We all are different. May me look the same on the outside, but extremely unique on the inside.

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                          • #43
                            Originally posted by Jim View Post
                            What legitimate studies using what type of stem cells?
                            Any Of the numerous bone marrow stem cell trials, stem cell inc trail, neuralstems trial... Actually any trial That only uses stem cells!! None of them have shown any big recovery, dr. Youngs trial included lithium, untethering surgery and I believe the most functional and intense rehab program on earth. And that how his trial has shown the most recovery involving stem cells alone at the injury. But let's face it these results were groundbreaking but not life changing. Even for the two who could use a walker outSide of their house A chair is still more functional, which means still greatly limiting life's potential via access. Not much sensation return meaning great disconnection from everything including own body, and sex is zapped. No hand, arm improvements meaning for completes still likely dependent. All in all not the regeneration were looking (or iam talking about should have been more specific my bad). Stem cells alone have at best achieved very minor regeneration.

                            But saddly our researchers in the field are starved for funds, affecting pace, ability and knowledge. Stem cell alone are (in my eyes) 1st gen attempts, 2nd gen involves scaffolds, epidural stim, 3rd maybe gene therapy...
                            Last edited by JamesMcM; 03-06-2015, 07:26 PM.

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                            • #44
                              Originally posted by rlmtrhmiles View Post
                              Originally Posted by [IMG]/forum/images/buttons/viewpost-right.png[/IMG]
                              This is a very complicated question. While waiting and waiting, believe it or not, you are allowing parts of your body to also degenerate that you are not even aware of. This is both physical and neurological. This waiting is retraining and rebuilding all of the coordination of the physical and neurological. A baby from time of birth is doing/learning all of these kind of things. A baby takes an awfully long time to become an adult. If magically our neurological system is "fixed", the things I have just stated are completely uncoordinated. There is countless number of things going on in our bodies from head to toes. There also is a visual component to this if you are not aware of that.

                              Originally posted by t8burst View Post
                              I really don't see that.
                              No? I got the following today from Miami Project:

                              "We are currently recruiting people with SCI at C5 to C7 to explore various issues about muscle function in relation to age (age at SCI, SCI duration, current age).

                              There are various surveys in the literature completed by individuals with SCI and they are reporting new muscle dysfunction (weakness, fatigue) at 45-50 years and we do not know why. This is earlier than seen for natural aging. Our experiments are looking at the underlying biology to understand what is happening so we can then design ways to try to reduce the deficits."

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                              • #45
                                It is similar to "post polio syndrome" and there is some decent data on it at MUSC in South Carolina in studies by Dr. Krause and funded by NIH.

                                Originally posted by tumbleweeds View Post
                                No? I got the following today from Miami Project:

                                "We are currently recruiting people with SCI at C5 to C7 to explore various issues about muscle function in relation to age (age at SCI, SCI duration, current age).

                                There are various surveys in the literature completed by individuals with SCI and they are reporting new muscle dysfunction (weakness, fatigue) at 45-50 years and we do not know why. This is earlier than seen for natural aging. Our experiments are looking at the underlying biology to understand what is happening so we can then design ways to try to reduce the deficits."

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