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PROGRESS AND PROSPECTS OF CHRONIC SPINAL CORD INJURY RESEARCH in 2014 and 2015

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    PROGRESS AND PROSPECTS OF CHRONIC SPINAL CORD INJURY RESEARCH in 2014 and 2015

    Dear all,

    We just published a post providing a summary of the important developments in chronic spinal cord injury research last year (focussing on the research strategies which offer a good potential for clinical translation for chronic SCI). With regard to the progress yet to be accomplished, we also look at the research advocacy environment, we highlight some interesting initiatives by some of the larger SCI foundations and come back to the role and the uniqueness of the EndParalysis foundation in that context. Read the post here: http://endparalysis.org/spinal-cord-...ards-recovery/
    I hope you will find it informative.
    Corinne Jeanmaire on behalf of the EndParalysis foundation, with thanks to Grammy and to Ruth for their support ;-)

    Please like our Facebook page http://www.facebook.com/endparalysis
    and follow us on twitter http://www.twitter.com/endparalysis
    thanks!
    Corinne
    www.endparalysis.org!

    #2
    Nice blog. Good clear summary.

    Comment


      #3
      Thank you Silvio!
      Corinne
      www.endparalysis.org!

      Comment


        #4
        Nice read.
        Thank you

        Comment


          #5
          Excellent read ...

          I was under the impression that Dr Silver gave up on Ch'ase because of Acorda's patent and had developed his own peptide. I must be wrong?
          Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

          T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

          Comment


            #6
            Hi Lynnifer,
            Indeed Dr Jerry Silver mainly works on his peptide now, but he does still consider some combination including Ch'ase. Ch'ase, unlike the peptide so far, does work in chronic settings. However the main issue for Ch'ase is to fine-tune the delivery method and to make it safe. This is the purpose of the Chase-it project launched by Spinal Research in the UK.
            Corinne
            www.endparalysis.org
            www.facebook.com/endparalysis
            www.endparalysis.org!

            Comment


              #7
              Wow, very good! Is there any talk about The potential timeframe when Dr. Edgertons transcutaneous epidural stimulator progress will be published?

              Comment


                #8
                Originally posted by JamesMcM View Post
                Wow, very good! Is there any talk about The potential timeframe when Dr. Edgertons transcutaneous epidural stimulator progress will be published?
                Nobody knows. The study hasn't even opened for the NeuralRecovery Tech. human trial recruitment yet. ARM/HAND LINK & LEG LINK

                Additional information on Epidural Stimulation Clinical Trials and Future Planning would probably be found in this thread LINK when more information becomes available on it. Corinne's post was a compilation of all the SCI studies that were in the news last year.
                Last edited by GRAMMY; 16 Feb 2015, 2:32 AM.
                http://spinalcordresearchandadvocacy.wordpress.com/

                Comment


                  #9
                  Originally posted by GRAMMY View Post
                  Nobody knows. The study hasn't even opened for the NeuralRecovery Tech. human trial recruitment yet. ARM/HAND LINK & LEG LINK

                  Additional information on Epidural Stimulation Clinical Trials and Future Planning would probably be found in this thread LINK when more information becomes available on it. Corinne's post was a compilation of all the SCI studies that were in the news last year.
                  Huh, well that's weird if he has made the statement that he's seen significant recovery in patients with it already. Maybe they did something similar to the four paraplegics, wasn't much news on them getting recruited before.

                  Comment


                    #10
                    Originally posted by JamesMcM View Post
                    Huh, well that's weird if he has made the statement that he's seen significant recovery in patients with it already. Maybe they did something similar to the four paraplegics, wasn't much news on them getting recruited before.
                    It's no weird mystery and not a new phenomenon. Thousands of people have had peripheral nerves electrically stimulated on their hands and arms with all various types and brands of FDA approved devices over the years.
                    Last edited by GRAMMY; 16 Feb 2015, 7:38 PM.
                    http://spinalcordresearchandadvocacy.wordpress.com/

                    Comment


                      #11
                      Yes but have they restored significant function? And isn't dr. Edger looking at working with chronic injuries?

                      Comment


                        #12
                        Originally posted by GRAMMY View Post
                        The study hasn't even opened for the NeuralRecovery Tech. human trial recruitment yet. ARM/HAND LINK & LEG LINK
                        It's my understanding that Dr. Edgerton is impressed with results that he's seen so far. Both of the clinical trial links I already posted today said "Spinal cord injury 1 or more years prior". I don't know what you think that criteria would mean.
                        Last edited by GRAMMY; 16 Feb 2015, 7:43 PM.
                        http://spinalcordresearchandadvocacy.wordpress.com/

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                          #13
                          I understand, but I was referring to the "thousands" you mentioned that have had similar stimulation on their arms in the past. They were doing something along thous lines when I was in rehab, I couldn't participate because of the severity of my injury. And a incomplete friend of mine did, and I've never heard or read of anything that has restored significant arm and/ or hand function. If it is there, I could have missed it that's why I asked. None the less I am very excited to hear about this.

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                            #14
                            This is by far the best summary available. EndParaylsis is on it.

                            Comment


                              #15
                              Originally posted by Chaz19 View Post
                              This is by far the best summary available. EndParaylsis is on it.
                              Thank you Chaz19!
                              Please LIKE and SHARE our Facebook page! http://www.facebook.com/endparalysis
                              and follow us on twitter! http://www.twitter.com/endparalysis
                              Corinne
                              www.endparalysis.org
                              www.endparalysis.org!

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