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PROGRESS AND PROSPECTS OF CHRONIC SPINAL CORD INJURY RESEARCH in 2014 and 2015

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    #16
    Originally posted by JamesMcM View Post
    I understand, but I was referring to the "thousands" you mentioned that have had similar stimulation on their arms in the past. They were doing something along thous lines when I was in rehab, I couldn't participate because of the severity of my injury. And a incomplete friend of mine did, and I've never heard or read of anything that has restored significant arm and/ or hand function. If it is there, I could have missed it that's why I asked. None the less I am very excited to hear about this.
    Hi JamesMcM, Just like you I look forward to the publication. I think that there is a big risk that people, in the SCI community, confuse the mere response of nerves and muscles to a machine (which might help living, especially for quads) and restoration of function. If nothing happens anymore after you turn the stimulator off, I would personally NOT speak about RESTORING function, but rather of some compensatory approach that, however useful it can be, should not be confused with recovery or regeneration. The problem here, is that we do not know! If some functions or some sensations remain present after turning off the device, then yes, it's new and it's interesting. So, bottom line, we need to see a publication!!! It is exactly the same in the case of CRDF big idea, please do document the claimed improvement of bladder, bowel and sexual improvement! Let us switch from anecdotes to scientific facts please!!! Quite some interesting progress claimed for many therapeutic strategies do lack underpinning or transparency. It's frustrating but we, patients, in the meantime, have to remain very critical of what is "sold" to us while also recognizing the potential of this progress and working for more!
    Corinne. EndParalysis foundation. www.endparalysis.org
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    Last edited by Corinne Jeanmaire; 12 Mar 2015, 2:38 PM. Reason: minor details
    www.endparalysis.org!

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