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Kate's Working 2 Walk 2014 Seattle Blog is now LIVE!

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  • Kate's Working 2 Walk 2014 Seattle Blog is now LIVE!

    Good Golly Miss Molly our own Kate Willette is ready to ROCK!

    Bookmark and follow along all week with Kate on her live blog!
    http://working2walk2014blog.wordpress.com/

    #‎W2WSEATTLE is the hashtag for following along on Twitter.




    http://spinalcordresearchandadvocacy.wordpress.com/

  • #2
    Yup. We're going to keep doing this, peeps, until we get it right!

    Comment


    • #3
      We will be in the hotel bar or restaurant in about 32 hours, give or take. Kate, start doing the dry runways dance tomorrow morning. I hate skidding stops.
      Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

      Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

      Comment


      • #4
        I'll see y'all there!
        Www.rachellefriedman.com

        Follow me on Facebook at
        www.facebook.com/rachelleandchris

        Follow me on twitter at
        www.twitter.com/followrachelle

        Www.wheelstrong.com

        sigpic

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        • #5
          remember ...

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          • #6
            Originally posted by ECUrach85 View Post
            I'll see y'all there!
            Hope y'all have a good time Rach. Hope to hear positive stuff. Maybe I will get a chance to go one year.

            Comment


            • #7
              Originally posted by ECUrach85 View Post
              I'll see y'all there!
              No resting that arm then!?

              Already disappointed in Silver's stuff. Only because I'm selfish and it isn't happening fast enough. lol Thanks Kate!
              Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

              T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

              Comment


              • #8
                Originally posted by lynnifer View Post
                No resting that arm then!?

                Already disappointed in Silver's stuff. Only because I'm selfish and it isn't happening fast enough. lol Thanks Kate!
                Ive got a handy dandy mom to push me around and talk behind my back. ��
                AND I met a doctor who does tendon and nerve transfers in the arm/hand. She was a huge help !
                Www.rachellefriedman.com

                Follow me on Facebook at
                www.facebook.com/rachelleandchris

                Follow me on twitter at
                www.twitter.com/followrachelle

                Www.wheelstrong.com

                sigpic

                Comment


                • #9
                  Originally posted by lynnifer View Post
                  No resting that arm then!?

                  Already disappointed in Silver's stuff. Only because I'm selfish and it isn't happening fast enough. lol Thanks Kate!
                  I moderated the silver breakout. He was still talking data and strategies with everyone long after the evening reception had started. Much to talk about, but too much to report via my tablet. You'll be surprised.
                  http://spinalcordresearchandadvocacy.wordpress.com/

                  Comment


                  • #10
                    Wish you give some real hope for the breakthrough therapy this year Grammy. God bless you and remember my questions too.

                    Comment


                    • #11
                      Thanks Kate. I followed your blog these past few days and came away encouraged and angry. Encouraged because it seems like many scientists are so close to finding treatments that will both restore function and improve quality of life. Angry because the $$ and advocacy for $$ is still lacking. That said, congrats to you and the W2W folks... again this was top notch information transmitted from researchers to the public.

                      Comment


                      • #12
                        Originally posted by GRAMMY View Post
                        I moderated the silver breakout. He was still talking data and strategies with everyone long after the evening reception had started. Much to talk about, but too much to report via my tablet. You'll be surprised.
                        I'm all ears and I hope so! It's just frustrating working on rats, then cats ya know? Long way away from humans. I didn't see him mention respiratory therapies? I worry that we're going to start losing people if that isn't corrected soon. I remember the media commenting that 9yrs was the lifespan for a vent dependent quad and that's how long Reeve lasted. We have many exceptions to the rule around here .. but still.

                        It feels odd to have Silver as the rockstar last year and now Edgerton has taken that spot for me .. to be recruiting for second human trials already is huge. Just hope they don't eff it up by, "We must fine tune." For every year taken to fine tune, I wonder how many paralyzed people die. And yes, I worry that I'll be one of them.

                        I take it back - I just read the breakout session with Edgerton. I understand wanting to make money from this .. I understand having to fine tune. I do - I get it - I just hate that it's costing patient health and time and suffering. Wish there was a bone to throw some of us NOW. Five years - I almost laughed out loud.
                        Last edited by lynnifer; 10-19-2014, 06:07 AM.
                        Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

                        T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

                        Comment


                        • #13
                          Originally posted by ECUrach85 View Post
                          Ive got a handy dandy mom to push me around and talk behind my back. ��
                          AND I met a doctor who does tendon and nerve transfers in the arm/hand. She was a huge help !

                          That's excellent news ... and I'm glad you got some answers and hope it helps!!! Definitely worth the trip for you then.
                          Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

                          T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

                          Comment


                          • #14
                            Originally posted by lynnifer View Post
                            I'm all ears and I hope so! It's just frustrating working on rats, then cats ya know? Long way away from humans. I didn't see him mention respiratory therapies? I worry that we're going to start losing people if that isn't corrected soon. I remember the media commenting that 9yrs was the lifespan for a vent dependent quad and that's how long Reeve lasted. We have many exceptions to the rule around here .. but still.

                            It feels odd to have Silver as the rockstar last year and now Edgerton has taken that spot for me .. to be recruiting for second human trials already is huge. Just hope they don't eff it up by, "We must fine tune." For every year taken to fine tune, I wonder how many paralyzed people die. And yes, I worry that I'll be one of them.

                            I take it back - I just read the breakout session with Edgerton. I understand wanting to make money from this .. I understand having to fine tune. I do - I get it - I just hate that it's costing patient health and time and suffering. Wish there was a bone to throw some of us NOW. Five years - I almost laughed out loud.
                            I hear yeah... Overall how did you guys think the symposium went? Are we moving towards future treatments? With Substantial recovery?

                            Comment


                            • #15
                              May be we will be moving James but will take again and again many years it looks. So bad

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