The Working 2 Walk Experience Can Be Yours!

[GRAMMY]

WORKING 2 WALK 2014 SCIENCE AND ADVOCACY SYMPOSIUM

REGISTRATION LINK, ROOM RESERVATIONS, TRAVEL GRANTS INFORMATION AND AN UPDATED SPEAKERS LIST !!

REGISTRATION FOR THE SYMPOSIUM HAS NOW OPENED. EARLY BIRD DISCOUNT REGISTRATIONS WILL CONTINUE TO SEPTEMBER 15TH.

[muskie]

Hi Grammy, unfortunately I won't be able to attend this year. But I am very interested in what Dr Sadowsky has to say. We are fighting insurance companies to pay for ABRT and we will have a hearing soon. We are paying for this out of our own pockets I will not be able to pay for this much longer as I am losing my job in January. Do you have an email address for her?

[GRAMMY]

Hi Grammy, unfortunately I won't be able to attend this year. But I am very interested in what Dr Sadowsky has to say. We are fighting insurance companies to pay for ABRT and we will have a hearing soon. We are paying for this out of our own pockets I will not be able to pay for this much longer as I am losing my job in January. Do you have an email address for her?

Sending you P.M. Will miss you this year. Best of luck.

[Sue Pendleton]

Muskie, we'll be there so if you have specific questions for someone I'll try to corner them for an answer. Just PM me the list. We'll miss you guys!

I see the dueling scientists will be together again. Grammy, maybe you could arrange a mud wrestle to raise even more funds?

[lunasicc42]

Honestly, I wasn't planning on attending this year until I read that wise young is a speaker...

And GRAMMY, about that news in your blog that the Epidural stimulation patients got BBS back and it is confirmed ... OMG WANT NOW

So far that is probably the best news that I have heard in my entire life...can't understand why the community isn't buzzing up a storm!!!

[muskie]

Thanks Sue, I got the info I needed. Thanks again Grammy. Where is W2W next year?

[lunasicc42]

Thanks Sue, I got the info I needed. Thanks again Grammy. Where is W2W next year?

I am pretty sure seattle

[GRAMMY]

@Muskie: You're welcomed. I don't believe that 2015 has been etched in stone. This year of course is Seattle in October, so maybe East Coast next year (alternating)
@Lunasicc42: Dr. Reggie Edgerton will be speaking at Seattle this year. Should be good to hear and ask questions on upcoming trials.
@Sue: OMG T-shirt vendors just went out the window. You're bad. Really bad.

[lunasicc42]

so GRAMMY : am I getting it right about the Epidural stimulation trials and BBSF coming back being confirmed or am I Jumping the gun? Please tell me how you see this ...

[lynnifer]

I missed that .. very exciting. Any links?

[mamadavid]

http://www.cnn.com/2014/07/31/health...ion/index.html

[lynnifer]

Thanks how are you!?

I meant published material, not media related but thanks though! .. thought I saw in my reading a $6mill grant from NIH for further study but can't find it.

[lunasicc42]

Thanks how are you!?

I meant published material, not media related but thanks though! .. thought I saw in my reading a $6mill grant from NIH for further study but can't find it.

I haven't read any published material either ...I read it in GRAMMYs blog

http://spinalcordresearchandadvocacy...nt-as-walking/

We need to know more about this ....

[JamesMcM]

I want to go, but Seattle's a pretty far drive, and flying sounds ridiculously difficult for a quadriplegic. I'm going to check the roster see if that can convince me.

[tomsonite]

http://pcsrf.org.au/about-perry/
James, look at this guy's story. He's C2 vent dependent, and last year made a 54 hour journey from Sydney, Australia to Boston for W2W. If anyone can give advice on travelling as a quad, it's probably him.