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Millions of Americans Living With Paralysis Provided Hope with the Introduction of the Christopher Reeve Paralysis Act of 2003

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    #46
    Awesome press conference with a comprehensive and collaborative package laid out. The proposal suggests that there be 5 US regions that will be used to gather info, prevent redundant research and to form a cohesive and collaborative effort.
    CR looked and sounded great and full of energy. Tom Harkin is sponsoring a Senate bill similar to the one in the house that was presented today as well. He says that with both Senate sponsore on the appropriations committee, there will be funding! Lets hold Spector and Harkin to their word!
    I will post the legislative numbers tomorrow as well as tect from the Congessional press release as well as Harkins press release.

    "Don't worry about the world coming to an end today.
    It's already tomorrow in Australia!"----- Charles Schultz

    Every day I wake up is a good one

    Comment


      #47
      mattc // DA

      Mattc seemed to regard an opinion
      of DA, that research outside humans, in others, is a waste of time,
      as just stupid.

      However had the same researches been done just in humans, it would have all straight referred to our kind. And the persons having been able to talk about what this or that is making them sense.
      So had the same experiments been done just within our kind, instead of unconsenting imprisoned women, men and children of brain-related kinds,
      indeed a lot might have gone very much faster.

      (Just given the atrociousness of many the crimes science committed,
      I doubt they'd dare to do the same to someone of our ape mammal kind.)

      Comment


        #48
        Hello,

        I just learned that Senate confirmed an acceptance of Slovakia into NATO. Everybody voted aye. Could anybody tell me when there will be a voting for Christopher Reeve Paralysis Act? Thank you.

        Joe
        2016

        Comment


        • #49
          I know that this has been posted before, but as a reminder, please go here. Just enter your zipcode and follow directions. Send this link to everybody you know.

          Comment


            #50
            We need to know if there is a member of this Forum who has a connection to Senator Gregg of New Hampshire, and would be willing to contact him regarding the Christopher Reeve Paralysis Act of 2003. He is a key Republican and we need his support on this bill.

            PN
            The test of success is not what you do when you are on top. Success is how high you bounce when you hit the bottom
            --General George Patton

            Complex problems need to be solved collectively.
            ––Paul Nussbaum
            usc87.blogspot.com

            Comment


              #51
              If there are any members from New Hampshire, it would be very helpful if you could write a letter to Senator Judd Gregg to urge his support of the Christopher Reeve Paralysis Bill. See the following topic for more information.

              Comment


                #52
                I just received a personal letter from Michael Bilirakis. Here's the gist of what he said:

                May 29, 2003

                Thank you for contacting me to express your support for H.R.1998, the Christopher Reeve Paralysis Act. I appreciate hearing from you.

                You will be pleased to know that I introduced H.R.1998 on May 7, 2003. I introduced this bipartisan legislation because I felt it was important to enhance our focus on paralysis research, particularly as it relates to paralysis caused by central nervous system trauma and stroke. My bill will help focus research, rehabilitation, and quality of life initiatives supported by the Department of Health and Human Services and the Department of Veterans Affairs.

                This bill has been referred to the Energy and Commerce Sunbcommittee on Health, of which I am Chairman. You may rest assured that I will continue working with my colleagues on a bipartisan basis to secure the enactment of this important legislation into law....

                Comment


                  #53
                  Here's the latest and time to take action. Take 30 minutes each time you log in, contact a couple of these folks, you'll have it done in a couple weeks. The impact will be great.


                  Please find below a list of Health, Education, Labor, and Pensions (HELP) Committee Members (Republicans and Democrats); as well as members of the Health Subcommittee of the House Energy and Commerce Committee. We are targeting both Committees for co-sponsorship.

                  IF ANY OF YOUR REPRESENTATIVES ARE ON THESE LISTS, PLEASE WRITE TO THEM ASKING FOR THEIR SUPPORT OF THE CHRISTOPHER REEVE PARALYSIS ACT. (If they are listed as co-sponsors, then write to thank them for their support.) After that, write as many more letters as you have time. Thanks!

                  In the House of Representatives: HR1998
                  In the Senate: S1010

                  Senate HELP Committee

                  Judd Gregg (R-NH)
                  Bill Frist (R-TN) http://frist.senate.gov/contact.cfm
                  Michael Enzi (R-WY)Senator@enzi.senate.gov
                  Lamar Alexander (R-TN)
                  http://alexander.senate.gov/contact/index.cfm
                  Christopher Bond(R-MO)
                  http://bond.senate.gov/contact/contactme.cfm
                  Mike DeWine (R-OH) http://dewine.senate.gov/
                  Pat Roberts(R-KS)
                  http://roberts.senate.gov/email.htm
                  Jeff Sessions (R-AL)senator@sessions.senate.gov
                  John Ensign(R-NV)
                  http://ensign.senate.gov/contact_joh...ohn_email.html
                  Lindsey Graham (R-SC) -- co-sponsor of CRPA,
                  John Warner (R-VA)
                  Telephone:
                  (202) 224-2023
                  (202) 224-6295 FAX
                  *****************************

                  Edward Kennedy (D-MA) -- co-sponsor of CRPA
                  http://kennedy.senate.gov/index_high.html
                  Christopher Dodd (D-CT) -- co-sponsor of CRPA
                  http://dodd.senate.gov/webmail/form-opinion.html
                  Tom Harkin (D-IA) -- co-sponsor of CRPA
                  http://harkin.senate.gov/contact/contact.cfm
                  Barbara Mikulski (D-MD)
                  http://mikulski.senate.gov/mailform.htm
                  Jeff Bingaman (D-NM)
                  http://bingaman.senate.gov/Contact_Me/e-mail_form.htm
                  Patty Murray (D-WA)
                  http://murray.senate.gov/contact/contact.cfm
                  Jack Reed (D-RI)
                  http://reed.senate.gov/form-opinion.htm
                  John Edwards (D-NC)
                  http://edwards.senate.gov/mailform.html
                  Hillary Rodham Clinton (D-NY)
                  http://clinton.senate.gov/email_form.html
                  James Jeffords (I-VT) -- co-sponsor of CRPA
                  http://jeffords.senate.gov/contact-form.html

                  House Health Subcommittee (Energy and Commerce Committee)

                  Michael Bilirakis (R-FL) -- co-sponsor of CRPA
                  Joe Barton (R-TX)
                  http://joebarton.house.gov/Contact.asp
                  Fred Upton (D-MI)

                  Jim Greenwood (R-PA) -- co-sponsor of CRPA
                  http://www.house.gov/greenwood/contact.html
                  Nathan Deal (R-GA) -- co-sponsor of CRPA
                  http://www.house.gov/deal/contact/default.shtml
                  Richard Burr (R-NC)
                  Richard.BurrNC05@mail.house.gov

                  Edward Whitfield (R-KY)
                  http://www.house.gov/whitfield/whitf...m/index2.shtml
                  Charles Norwood (R-GA)

                  Barbara Cubin (R-WY)
                  http://www.house.gov/cubin/zip_auth.html
                  Heather Wilson (R-NM)
                  http://wilson.house.gov/Contact.asp
                  John Shadegg (R-AZ)
                  http://johnshadegg.house.gov/index.c...n=Home.Contact
                  Charles Pickering (R-MS)

                  Steve Buyer (R-IN)

                  Joseph Pitts (R-PA)
                  http://www.house.gov/pitts/service/correspond.htm
                  Ernest Lee Fletcher (R-KY)

                  Michael Ferguson (R-NJ)

                  Michael Rogers (R-MI)

                  Sherrod Brown (D-OH) -- co-sponsor of CRPA
                  sherrod@mail.house.gov
                  Henry Waxman (D-CA) -- co-sponsor of CRPA
                  http://www.house.gov/waxman/contact.htm
                  Ralph Hall (D-TX)
                  http://www.house.gov/ralphhall/contact/contact.html
                  Edolphus Towns (D-NY) -- co-sponsor of CRPA
                  http://www.house.gov/towns/offices.shtm
                  Frank Pallone (D-NJ)
                  http://www.house.gov/pallone/contact.shtml
                  Bart Gordon (D-TN) -- co-sponsor of CRPA

                  Anna Eshoo (D-CA) -- co-sponsor of CRPA
                  http://www.house.gov/eshoo/communicate.html
                  Bart Stupak (D-MI)
                  http://www.house.gov/stupak/contact.htm
                  Eliot Engel (D-NY) -- co-sponsor of CRPA
                  http://www.house.gov/engel/contact.htm
                  Gene Green (D-TX) -- co-sponsor of CRPA
                  http://www.house.gov/green/
                  Ted Strickland (D-OH) -- co-sponsor of CRPA

                  Diana DeGette (D-CO)

                  Lois Capps (D-CA)

                  Chris John (D-LA)


                  Thanks Patricia and all.

                  [This message was edited by Leo on 06-18-03 at 05:19 PM.]

                  [This message was edited by Leo on 06-18-03 at 07:24 PM.]

                  [This message was edited by Leo on 06-29-03 at 01:47 PM.]

                  [This message was edited by Leo on 06-29-03 at 01:51 PM.]

                  [This message was edited by Leo on 06-29-03 at 01:56 PM.]

                  [This message was edited by Leo on 07-28-03 at 06:06 PM.]
                  http://justadollarplease.org/

                  2010 SCINet Clinical Trial Support Squad Member

                  "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

                  .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

                  Comment


                    #54
                    Cure's Now

                    [This message was edited by Leo on 06-29-03 at 01:53 PM.]
                    http://justadollarplease.org/

                    2010 SCINet Clinical Trial Support Squad Member

                    "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

                    .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

                    Comment


                      #55
                      Bent, maybe it's just stupid thoughts of me,
                      but somehow with eyes and stemcells I'd be some less worried with "mutations".

                      With the eyes (or nearby there) there seems no vital system nearby.
                      Alone with C1 the brainstem would be straight next, not that I am sure a mutating cell can spread it's kind into there, to wildly proliferate in there, too.


                      But I get the criticism concerning double standards.


                      (With eyes I am also not sure, if there are other methods ...
                      as with spine glial stuff, or that Isreali method.

                      Although I heard an eerie story / rumour in context with organ theft in India, of someone sort of having his eyes stolen and them used for transplant.
                      Though I ain't know how much there was to that.)

                      Comment


                        #56
                        Got Senate contact info done, now it's so easy a gimp can do it.
                        http://justadollarplease.org/

                        2010 SCINet Clinical Trial Support Squad Member

                        "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

                        .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

                        Comment


                          #57
                          Hey, Leo
                          My email and letter to Senator Gregg were both sent back to me because I didn't have a New Hampshire address. Actually, if I were a senator I'd probably do the same. But you seem to have gotten through to some people. What's your secret?

                          Comment


                            #58
                            I am shocked that they sent the letter back. That is so strange. After all, he is a senator that is deciding on legislation that affects all Americans. How in the world can they return mail when it is not from his state? Wise.

                            Comment


                              #59
                              Hi Kilgore,

                              Here's an email address that might work. I would bet though if we are not from his state that we'll get a reply. But he will get the message.
                              mailbox@gregg.senate.gov


                              Here's his web form comment page,
                              http://gregg.senate.gov/sitepages/e-mail.htm

                              I just sent one to him we'll see if I get confirmation.
                              http://justadollarplease.org/

                              2010 SCINet Clinical Trial Support Squad Member

                              "You kids and your cures, why back when I was injured they gave us a wheelchair and that's the way it was and we liked it!" Grumpy Old Man

                              .."i used to be able to goof around so much because i knew Superman had my back. now all i've got is his example -- and that's gonna have to be enough."

                              Comment


                                #60
                                Yeah,
                                That's where I sent it and this is what I got:

                                "Thank you for contacting my office. I appreciate the opportunity to respond individually to every letter, phone call and e-mail message sent to my office by residents of New Hampshire. My office has a policy of sending a prompt postal response to New Hampshire residents. Your message was not received by my office due to a missing postal address.
                                Please resubmit the original text of your message with a New Hampshire postal address included at the top of the body of the message."

                                Maybe he's the only one ignoring out-of-staters. Have you gotten through to anybody else?

                                By the way, I talked to someone on my Representative's staff. He looked at the sponsors said he'd never seen such diverse support for a bill.

                                Comment

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