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Millions of Americans Living With Paralysis Provided Hope with the Introduction of the Christopher Reeve Paralysis Act of 2003

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    #31
    Originally posted by cheesecake:


    Has everyone seen the online chat with CR on the 9th regarding this Bill? If not I can post the chat time and link if people are interested.
    Please do.

    Thanks.

    Comment


      #32
      I received this "Invite" because I joined the Hope Network through CRPF. You can sign up and receive legislative updates, etc. by going to www.christopherreeve.org and selecting the Newsletters.
      Here is the info about the online chat.
      I am very excited to tell you that we are about to introduce the Christopher Reeve Paralysis Act, a comprehensive piece of legislation that will reach out to help people living with paralysis in a myriad of ways.

      And to mark this landmark step, I wanted to personally invite you to join my husband for a live Internet chat exclusively for Hope Network members on Friday, May 9th at 4 p.m. (Eastern Standard Time).

      Click here for more information on the chat.

      People living with paralysis, their caregivers and family members understand that while we all look forward to the day our loved ones walk again, their quality of life is of utmost importance.

      Christopher and I are asking our Hope Network friends to help us gain Congressional support for the Christopher Reeve Paralysis Act.

      The bill has four components:

      1) The bill advances cutting-edge medical research at the National Institutes of Health (NIH)

      2) The bill establishes a Paralysis Clinical Trials Network through the National Center for Medical Rehabilitation Research (NCMRR)

      3) The bill expands basic rehabilitation and health sciences research through the activities of the Veterans Health Administration.

      4) The feature of this Act closest to my heart is "Improving Quality of Life for Persons with Paralysis and Other Physical Disabilities." If passed, the legislation will call for The Centers for Disease Control and Prevention (CDC) to carry out projects and interventions to improve the quality of life and long-term health status of persons with paralysis and other physical disabilities. The CDC programs will focus on caregiver education, physical activity, prevention of secondary complications, and coordinate services to help remove environmental barriers.

      For more information on the bill, please visit our website.

      Thank you for your support and for helping us spread the word about the Christopher Reeve Paralysis Act.

      Dana Reeve

      "Don't worry about the world coming to an end today.
      It's already tomorrow in Australia!"----- Charles Schultz

      Every day I wake up is a good one

      Comment


        #33
        Since the "Click here" didn't work, I am copying it as well. In order to receive the invite you MUST join the Hope Network. You can join by going to http://www.christopherreeve.org/team/member.cfm


        Live Chat with Christopher Reeve


        April 22, 2003


        For Hope Network members only!



        Join us for a Live Chat with Christopher Reeve on Friday, May 9, 2003, at 4pm (EST) as Christopher discusses the introduction of the Christopher Reeve Paralysis Act and how it proposes to improve the lives of Americans living with paralysis, their caregivers and loved ones.

        We will email you all the information you'll need to listen to the Live Chat, including the internet address where you'll find it and information on RealPlayer (audio software you'll need to download if your computer does not already have it. The stream will be encoded for 28K, 56K and dual ISDN Internet connections).

        We'll also post this information here the day of the chat, so add this page to your Favorites option.

        But first, send in your questions now to Question@crpf.org. (We will make every best effort to answer your question, but due to the high number of submissions, we cannot guarantee your question will be selected.)

        For a summary of the Act, click here.
        http://www.christopherreeve.org/hope...fm?ID=504&c=68

        Tell a Friend! This chat is only for Hope Network members, however, so tell your friends to join now:

        Click here to join the Hope Network!
        http://www.christopherreeve.org/team/member.cfm

        Remember, add this webpage to your Favorites option and come back here on Friday, May 9th at 4:00 p.m. EST/1:00 p.m. PST!

        The Hope Network
        We Must. We Can. We Will.

        "Don't worry about the world coming to an end today.
        It's already tomorrow in Australia!"----- Charles Schultz

        [This message was edited by cheesecake on 05-01-03 at 08:59 AM.]

        [This message was edited by cheesecake on 05-01-03 at 09:03 AM.]
        Every day I wake up is a good one

        Comment


          #34
          bent, I think that you are confusing the "stem cells" that are being said to be used for blind people with pluripotent stem cells that would be needed to create neurons and other cells for injured spinal cords.

          Unfortunately, I cannot find where I have posted this before but I have posted an explanation before that the cells that are being used for corneal repair are *not* pluripotent stem cells. They are simply cells from another cornea that can help rebuild the cornea. I repeat, these are not pluripotent stem cells. The way these cells are being used is similar to the philosophy of using full-thickness skin grafts where you know that there are some cells in the skin that can produce more skin. Instead, they are simply isolating some of these cells that produce more corneal cells, calling them stem cells, and transplanting them to the people who need corneal repair.

          The words "stem cells" are being thrown around too loosely.

          Wise.

          Comment


            #35
            Originally posted by Wise Young:


            Unfortunately, I cannot find where I have posted this before but I have posted an explanation before that the cells that are being used for corneal repair are *not* pluripotent stem cells.
            Wise.
            Dr. Young, you briefly mention it here. I'm not sure if this is the explanation you're referring to.

            [This message was edited by seneca on 05-02-03 at 02:41 PM.]

            Comment


              #36
              Chris2 -- LOL, you're right but maybe I could donate some sperm first.

              DA -- thanks for your examples!

              who is "they"??, stem cells didn't work??, "they" refused to use OEG??
              What type of stem cells are you're referring to?? Embryonic, adult? Do a search on
              PubMed, you'll find that research on different stem cells and olfactory ensheathing glia is still ongoing. No one has definitively shown whether or not either of these will work or not. They both show promise.

              "Cancer drugs go to trials with 1 percent of the data needed for SCI." Where do you get your statistics?

              I don't have time to research when other drugs have been approved, but I'm sure there have been other drugs that have taken as long for approval... probably in the mental health field.

              Your arguments consist of broad, borderline conspiracy theory rhetoric. I think I know what DA stands for.....DumbAss!

              DA, some words to live by for you....
              It is better to remain silent and seem stupid than to open your mouth and remove all doubt.
              Matt

              Comment


                #37
                Mattc:
                I think I know what DA stands for.....DumbAss!
                This topic is about the passage of the CRPA bill, lets try to stay focused please.

                Thank you. [img]/forum/images/smilies/smile.gif[/img]

                Comment


                  #38
                  seneca, I just looked and could not find where I have posted it before. Perhaps it was an email that I had sent somebody. In any case, let me explain it again in another topic since it is off the subject.

                  Comment


                    #39
                    mattc...PubMed, you'll find that research on different stem cells and olfactory ensheathing glia is still ongoing. No one has definitively shown whether or not either of these will work or not.


                    ok newby. explain to dumbass why no one has shown whether oeg work or not in 10 years of research? then explain to dumbass why the rest of the world was jaw dropped at results of oeg and is rushing to do human trials...please explain to dumbass.

                    then explain to dumbass the results of the stem cells research done a few years back and point out to dumbass where i read wrong. i would also like to hear your thoughts on the old cedar stem cell protocal disaester and please set old dumbass straight.

                    Comment


                      #40
                      sorry seneca, i'll leave him alone.......

                      matt

                      Comment


                        #41
                        Oh Mattc, you don't have to leave him alone [img]/forum/images/smilies/wink.gif[/img](hehe, sorry DA), we'd just prefer that you attack the idea instead of the person. [img]/forum/images/smilies/smile.gif[/img]

                        Comment


                          #42
                          The Introduction of the Christopher Reeve Paralysis Act of 2003 is tomorrow at 2:30 in the Rayborn building. For those of you who received letters from your Senators as well as your Congressman saying the Bill had not been reintroduced, well tomorrow is the day to call and begin the Push Forward. While you are at it, Push for Senate Bill 303 Sponsored by Senator Hatch, Specter, Kennedy and Miller.

                          I will be attending tomorrow and will post if anything new surfaces. I will get a copy of the actual Bill for posting.

                          Start dialing at 2;30 EST......

                          "Don't worry about the world coming to an end today.
                          It's already tomorrow in Australia!"----- Charles Schultz

                          Every day I wake up is a good one

                          Comment


                            #43
                            Thank you Cheese.

                            Open this link and click on your state to get the phone numbers of your reps.

                            [This message was edited by seneca on 05-07-03 at 08:02 PM.]

                            Comment


                              #44
                              Christopher Reeve Backs Paralysis Bill in Congress

                              Christopher Reeve Backs Paralysis Bill in Congress
                              51 minutes ago Add Entertainment - Reuters to My Yahoo!


                              By Joanne Kenen

                              WASHINGTON (Reuters) - Paralyzed film star Christopher Reeve (news) came to Congress on Wednesday to push for a new bill that he said would be the first to provide a comprehensive approach to treating and eventually curing paralysis.



                              The $300 million package includes funds for research into paralysis and rehabilitation. It addresses access to treatment and quality of life issues for the 2 million Americans who have been paralyzed from spinal cord injuries, strokes and diseases such as multiple sclerosis.


                              Reeve, best known for playing 'Superman' in the movies, suffered a life-threatening spinal injury in a horse-riding accident event in May 1995. He now divides his time between directing film projects and working for a foundation that bears his name.


                              Paralyzed from the neck down, he has made astonishing progress recently. Some feeling has returned and he can breathe without a ventilator for up to a few hours at a time.


                              Reeve said science is making such rapid progress that a cure -- getting up from a wheelchair and walking -- is a 'realistic' goal. He also said that someone who suffered the same injury today that he endured eight years ago might have a very different prognosis, facing less damage.


                              'I certainly was not expected to live,' he recalled in an interview after a news conference with the bill's sponsors.


                              But some patients now being treated in trials with debris-eating cells called macrophages appear to have less damage and one patient was able to recover fully from a severe injury similar to his own, he said.


                              Reeve has come to Congress to lobby for several bills over the years with mixed results. He was part of the successful push for more funding for the National Institutes of Health (news - web sites). But broader federal funding for stem cell research which he supported did not pass.


                              This is the first time he has focused on specific legislation dealing with paralysis.


                              'This bill could do so much,' he said. 'It can help with research and also quality of life -- jobs, access, recreation.'


                              When not raising money or working for the Christopher Reeve Paralysis Foundation, Reeve still keeps his hands in the arts. This week he directed four messages filmed by celebrities as part of the new home for the U.S. Constitution to be opened in Philadelphia this July 4.



                              http://story.news.yahoo.com/news?tmp...lth_reeve_dc_1
                              http://stores.ebay.com/MAKSYM-Variety-Store

                              Comment


                                #45
                                OK - I went to this press conference today. It was awesome and everyone with CRPF is very confident that this Act will pass and the funding is in place for appropriation. So - anyone that reads this needs to get in touch with your Rep to convince them to support the Act. The easiest way to do this is at www.ChristopherReeve.org . I hope you do it right now as we have momentum.

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