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    The hope for a cure

    I really hope that there will be a cure for SCI one day, but the way I've taken it from different articles and doctors over the years is that once a cure has been found for humans it will benefit the one's who have recently been injured. I was told once that the longer you've had a SCI the less likely a cure will work which makes sense to me. I'm 19 yrs post and would love to walk, pee, and poop on my own again, but I also am not afraid of reality. I hope for a cure so that one day when someone gets a SCI they may be back to normal within a short period of time and not have to roll thru life on a daily basis. Until such a cure and time, ppl should move on with their life and make the best out of their situation because if you sit around doing nothing but waiting on a cure your life will pass you by with very little to show for it.

    Face the facts and move on, but never give up hope!
    SCI Birthday: April 25, 1993
    T4,5,6 Incomplete
    Chair: TiLite TR3

    #2
    I agree totally. Excellent post.

    Comment


      #3
      Incoherent and pathetic post, IMO.
      Don't ask what clinical trials can do for you, ask what you can do for clinical trials.

      Fenexy: Proyecto Volver a Caminar

      http://www.fenexy.org (soon in english too)

      Comment


        #4
        Originally posted by stumpybushman View Post
        I really hope that there will be a cure for SCI one day, but the way I've taken it from different articles and doctors over the years is that once a cure has been found for humans it will benefit the one's who have recently been injured. I was told once that the longer you've had a SCI the less likely a cure will work which makes sense to me. I'm 19 yrs post and would love to walk, pee, and poop on my own again, but I also am not afraid of reality. I hope for a cure so that one day when someone gets a SCI they may be back to normal within a short period of time and not have to roll thru life on a daily basis. Until such a cure and time, ppl should move on with their life and make the best out of their situation because if you sit around doing nothing but waiting on a cure your life will pass you by with very little to show for it.

        Face the facts and move on, but never give up hope!
        Why, Why, Why come here then!
        "I'm manic as hell-
        But I'm goin' strong-
        Left my meds on the sink again-
        My head will be racing by lunchtime"

        <----Scott Weiland---->

        Comment


          #5
          Perhaps people are getting on with their lives but on the cure forum we are discussing cure.

          I'm not sure I have been told that the longer you're injured the less likely a cure will work.

          Comment


            #6
            That is exactly what the problem is with most, not all, people on this forum. After injury, their life came to an end and they dwell and wait and wait. They do nothing with their lives
            and wait for the day that may never come, or if it does come, will not apply to them because they have let their body go to waste.
            Just like the quad that wonders how he can get a girl or how a girl would be interested in him.
            If everyone after injury just accepted the cards dealt and play the best hand that they can, their life would be much better than dwelling on the shitty cards that have been dealt them.
            I am by no means a poster child, but I find it amazing all the people that I have met in the last 7 years who have said that I have done more with my life than any other person that they know.
            It is all about acceptance, not dwelling, and moving on with their life as normal as they can.
            And I write this knowing that there will probably be comments about my not knowing what the life is like for a quad or other. But, I do know about having it all and losing it all and building it back up again with "worn out tools."

            Comment


              #7
              These preaching threads belong in the life forum.

              And, yes, I think you are being selfish saying live life to the full to people who have worse injuries than yourself.

              What is the measure of who is living life to the full and who isn't? I certainly was living a great life before my accident and I have tried hard since my accident. Often I have done pretty well but not always.................

              Moderator, move this thread out of my sight to the life forum!!! LOL

              Comment


                #8
                Originally posted by Sebastiang View Post
                That is exactly what the problem is with most, not all, people on this forum. After injury, their life came to an end and they dwell and wait and wait. They do nothing with their lives
                and wait for the day that may never come, or if it does come, will not apply to them because they have let their body go to waste....
                May I ask on what you base this divine insight? I've never known anyone with true reasons for confidence to need to tear others down to affirm it.

                In other words, can't you find a way to express your philosophy of life for yourself without presuming you know others' philosophies, and judging them?

                Comment


                  #9
                  What if facing facts makes life pointless? Maybe to you or someone else there quality of life is so low its meaningless without a cure. you cant assume your perspective is universal. imagine taking hearing away from a musician, is it not cavalier to just say move on?

                  Comment


                    #10
                    Originally posted by Random View Post
                    May I ask on what you base this divine insight? I've never known anyone with true reasons for confidence to need to tear others down to affirm it.

                    In other words, can't you find a way to express your philosophy of life for yourself without presuming you know others' philosophies, and judging them?

                    Spot on.

                    Everyone handles it differently and everyone is obviously injured to a different degree. Stop judging people. If they want to focus on rehab and put their life on hold, thats their choice. If they want to ignore rehab and focus on putting their life back in order, thats their choice. If they want to sit around, eat junk food, and watch movies...thats their damn choice.

                    I know what I personally do and while sometimes I think I could do more, I am happy overall with my accomplishments, all things considering. Im sure you wouldn't approve, as I am very focused on a cure and on recovery rather than acceptance. I dont think Ill ever "accept" my wheelchair or anything that comes with it, but I dont presume to judge people who do.

                    Comment


                      #11
                      Here are two posts that I wrote last year that deal with adjustment/maladjustment and acceptance/non acceptance of our paralyzed life.
                      Cure is not only a scientific/economic/political question, but a question of mindset (and no, I don't mean mind over matter). Once you say, "I will be in this chair forever," you give up trying to struggle for a cure, and yes, I mean struggle. Hoping for cure is not very useful, but if you believe what science says, that regeneration of the injured spinal cord is possible, then you have to decide to work towards it and try to move it forward.

                      I hope you enjoy these posts.
                      Being a little nuts never killed no one
                      http://www.stemcellsandatombombs.blo...ed-no-one.html

                      The International Association for the Advancement of Creative Maladjustment http://www.stemcellsandatombombs.blo...ation-for.html
                      Dennis Tesolat
                      www.StemCellsandAtomBombs.blogspot.com

                      "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
                      Martin Luther King

                      Comment


                        #12
                        My point is that a person shouldn't sit around and dwell on a cure that will fix them while letting the rest of their life pass by because their so focused on a cure being found. Like I stated in my original post, I hope there is a cure one day but until then I'm going to live my life to the fullest and enjoy it to the max cause you never know what tomorrow will bring. I also believe that your mindset has a lot to do with the life you live and that if your happy you will feel good, but if your dwelling on something and not happy then your mind and body will feel bad along with life passing you by. A happy life is a healthy life!

                        Face the Facts and move on, but never give up hope!
                        SCI Birthday: April 25, 1993
                        T4,5,6 Incomplete
                        Chair: TiLite TR3

                        Comment


                          #13
                          Originally posted by stumpybushman View Post
                          My point is that a person shouldn't sit around and dwell on a cure that will fix them while letting the rest of their life pass by because their so focused on a cure being found. Like I stated in my original post, I hope there is a cure one day but until then I'm going to live my life to the fullest and enjoy it to the max cause you never know what tomorrow will bring. I also believe that your mindset has a lot to do with the life you live and that if your happy you will feel good, but if your dwelling on something and not happy then your mind and body will feel bad along with life passing you by. A happy life is a healthy life!

                          Face the Facts and move on, but never give up hope!
                          This is often down to the individual. For many it is about adapting and living life to the fullest whilst maintaining hope. But for some, living life to the fullest may involve in some way accomplishing achievements. And for a few, those achievements maybe advocating, lobbying, raising awareness or maybe even activism towards a Cure for paralysis. Why not? It's not a bad cause is it?

                          Let's support those that are willing to dedicate time to further the field, whether it is researchers, clinicians, fundraisers, advocates or activists.

                          Comment


                            #14
                            Originally posted by stumpybushman View Post
                            My point is that a person shouldn't sit around and dwell on a cure that will fix them while letting the rest of their life pass by because their so focused on a cure being found. Like I stated in my original post, I hope there is a cure one day but until then I'm going to live my life to the fullest and enjoy it to the max cause you never know what tomorrow will bring. I also believe that your mindset has a lot to do with the life you live and that if your happy you will feel good, but if your dwelling on something and not happy then your mind and body will feel bad along with life passing you by. A happy life is a healthy life!

                            Face the Facts and move on, but never give up hope!

                            Comment


                              #15
                              Originally posted by Fly_Pelican_Fly View Post
                              This is often down to the individual. For many it is about adapting and living life to the fullest whilst maintaining hope. But for some, living life to the fullest may involve in some way accomplishing achievements. And for a few, those achievements maybe advocating, lobbying, raising awareness or maybe even activism towards a Cure for paralysis. Why not? It's not a bad cause is it?

                              Let's support those that are willing to dedicate time to further the field, whether it is researchers, clinicians, fundraisers, advocates or activists.
                              No it's not a bad cause and I support all the ppl that are working towards a cure, but I'm just saying that the one's that do nothing but wait for a cure are letting the rest of their lives pass by. Get out and enjoy life in case a cure doesn't come in your lifetime. I'd much rather be able to look back on my life and say that even though it was tough I made the best of it and had full and fun life than to know that I sat on my ass the entire time waiting on a cure that never came or didn't apply to me and missed out on a lot of things.
                              SCI Birthday: April 25, 1993
                              T4,5,6 Incomplete
                              Chair: TiLite TR3

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