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    cure, cure, cure here, this is a cure, might be, potential, cure

    How many times have you heard of a cure, new cure, potential cure. may be, could result in or is a cure? How many potential cures have people seen in the last, say, 20 years? I am sick of all or any one 'new'magic bullet begin protrayed as a cure. All the fantastic hyped up discoveries like electric fields, 4-AP, magnets, schwann cells,stem cells, macrophages, excerise and lots more are not a cure on their own. Therefore, I wish that doctors, scientists, organizations, media,etc stop using the word 'cure' so liberally.I dont give a shit about your fund raising, science, research or membership numbers. Please stop giving me false hope and soliciting my money, support or whatever by using that word falsely.

    Fact, at this moment there is no cure for a chronic spinal cord injury. Now, don't argue to me with the potential or hopeful cures. There are lots of promising, potential and hopeful cures right now or on the drawing board at this moment. BUT, AT THIS MOMENT there is NO cure for chronic sci! Ifthere is stop keeping it a secret - tell us here and now. Damn, I pray there was or is!! Please support research and cures not those saying they have a cure but in x years time.

    As it stands we dont have the time. Some have worked, supported and donated theirs butts off and God praise you all and you have my thanks. I just wonder though? There is currently no cure. There are lots of treatments or therapies currently being developed or trialled. How much more money or time is needed before these are individually tested,approved, trialled, tried in clinical human trials? How much longer do we wait for the same to be done to these in combinations? Remember, there is NO, single magic bullet fix all cure. So, what are looking at? Another 2,5,10,20, before Im 50 or another 1, 5, 10, 50, 100 million dollars? After that how we going to quickly, efficiently dispense our cure?

    Now before people call me anti cure or negative well I am 110% for cure. I still donate, support etc. It's just that I'd like some answers and hope people are realistic. I think I have a right to ask and a right to have answers. Shit, I can see all the charities, curists and cure research groups gunning for me after reading this. Well, FACT is theres is NO CURE at this moment.Tell me otherwise and prove it. Anything less than, YES, there is a cure right now, tested tried and available now is irrelevant.

    #2
    i can understand your fustration all to weell

    as can so many others that come to this site.at times the posts feel very much like media hyp.your post though is a kinda slap in the face fr me .today, 3 years agoe tonight 7m ,i got hurt.that morning i was doing exactly what im doing now.watching the rain outside and trying to figure out this computer.still though with all the horse sh** posts on hear i still come to this site every morning and drink my coffee hoping ill see "the cure ".

    scott r
    scott r

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      #3
      oh man hehhehe i'm looking in a mirror
      but i understand what u are saying....it is so frustrating you hear they are close and then you dont hear anymore about it but "oh they are close over here now" almost doesnt count....or maybe it does cus it means they are trying and getting closer? trying how hard i dont know just wish i was science smart and then i would gget in the labs.

      is the glass half full or half empty? in my case i am damn thirsty so it is emptying fast and someone best do something to fill it up

      - i'll clean my room tomorrow - tomorrow never comes [img]/forum/images/smilies/smile.gif[/img]

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        #4
        A cure here, a cure there, a cure everywhere but not a drop of cure to drink (with apologies to the Walrus and the Carpenter). Bruno, you are right. Wise.

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          #5
          Were you born yesterday?!

          Of course there is no cure today, and everyone knows it. Otherwise what the hell are we all doing here? And there will be no cure until all the right people do the right thing at the right time, alright? So for today, how about a cold shower? [img]/forum/images/smilies/smile.gif[/img]

          Dmitriy

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            #6
            The Cure Rollercoaster...

            is not for the faint of heart. One day up, the next day down. One day the cure looks like it will be here before we know it, the next day it looks like it will be twenty years. We all have to temper our expectations when reading any article. And the more we know the more we will ask the hard questions about any potential therapy. This is the only way to smooth out the ride. It's either that or get off. Some people choose to check in here only once a month. Others every few months. That way hopefully there will be something new to uplift them. Others choose to come here daily and just hang on and endure the peaks and valleys. We all have to do what's right for us.

            It's going to be a long haul. We need to buckle down for it. Some people adopt a twenty year time frame in their mind in order to keep from being anxious and disappointed all the time. We all cope in our own ways. Anyway, I feel the same pain as everyone else. We want it yesterday.

            ~See you at the SCIWire-used-to-be-paralyzed Reunion ~
            ~See you at the CareCure-used-to-be-paralyzed Reunion ~

            Comment


              #7
              "CURE"

              If you belive in a cure you are already cured.
              I wish i could look into all of your eyes,curiosity,hate,love,anger.
              Place it in front of a mirror and nobody see the chair,only the human.
              It`s good to be here on this site today,learning.
              So if tomorrow don`t show up,make shure today worth it.

              There is only idiots who never
              make mistakes,progress can`t live without.

              Comment


                #8
                No argument here Bruno S.

                Onward and Upward!

                Comment


                  #9
                  Da says...

                  ...the cure was here last Christmas and I for one believe him...hehe...not.

                  Good post Bruno...no flames from this guy.

                  Comment


                    #10
                    Bruno, I am confused as you are
                    4 years after my injury (t5-6), I still think of it as a
                    passing issue and one day I will wake up normal again. And then some days
                    later I know it is for a longshot. Trying to live my life as good as I can,
                    I still wait for the cure like crazy... and I am starting to doubt it.
                    But I hope.... Ahhhh, drives me crazy.
                    Anyway, lets play soccer in a few years? [img]/forum/images/smilies/smile.gif[/img])
                    Iddo

                    Comment


                      #11
                      Iddo

                      Hi Iddo
                      I am confused too why the word 'cure' has/is/will be been used so many times when in all the hype and so named cures have, till today, come no cure. At this moment there is no cure.
                      From your reply I can see what you expect a cure to be. I hope so too.
                      I accept your invitation to play soccer but may I ask a few years from when do you want to play?

                      Understand?

                      Comment


                        #12
                        Cure

                        Hi
                        This is my first posting, sorry because of my poor english, i hope you understand. I'm a C5/6 Quad since 1978. One of the first world i heared in the rehab was " cure - this word you should wipe out your brain" . In other words -forget it. Then I thought ok i'm disabled and i will be disabled for the rest of my life ( i was 19 year old). And if i want to enjoy my life i had to do a lot of to reach this aim. Now after nearly 25 years, i can say i enjoy my life and curiously i never think about a cure.
                        Last but not least i have had great luck. 5 weeks after my injury the first muscle funktion returned, after 4 month i was able to stand, and after 8 month i was a "walking quad". With a lot of training and energy i'm able to life without any help. Pherhaps if i would be complete i would think in an other way

                        Klaus klaus560@hotmail.com

                        Comment


                          #13
                          I've heard this for 20 years, the problem is, we don't scream enough to get everyones attention, thats why AIDS gets most of the money!
                          "Some people say that, the longer you go the better it gets the more you get used to it, I'm actually finding the opposite is true."

                          -Christopher Reeve on his Paralysis

                          Comment


                            #14
                            cure cure cure

                            Ok......here is my conspiracy theory.....
                            First off, I get mad as hell too especially when I go out on the web and read studies that are decades old, claiming to have scientific results to prove the case, and 30 years later they are still jerking around with cats and rats and whatever else. I can only imagine how some of you must feel after being in this game for many many years.

                            So here is what I think. Maybe the powers that be really don't want to find a cure. Maybe they want the world to think they are almost there to keep getting grant and research money. After all, once the puzzle is solved a lot of people will be without their nice cushy gig. What will they do? Go clerk @ Wal-Mart? Just look at the cancer machine. It's still going strong after all these years. If this is the case, perhaps the only thing that might break the cycle is greed. If a magic bullet does exist then who ever finds it will be a rich SOB for sure.
                            If no single bullet is out there to do the job, then things plod along as they have. We still get to stay in our chairs waiting to get our lives back. Science and medicine get to have their prominence and stature and $$$$. The rest of the able bodied world gets to look at us and be inspired by our determination. All the support industries that make chair and catheters, and suppositories still have sales calls. You see the matrix here?
                            I wish everyone from all over the globe, working on this, would just sit down and honestly pull their data together. Forget the aformention reasons not to find a solution, and fix it. Perhaps greed will be the one thing that ultimately
                            {

                            Comment


                              #15
                              cure cure cure!!!!!

                              Ok......here is my conspiracy theory.....
                              First off, I get mad as hell too especially when I go out on the web and read studies that are decades old, claiming to have scientific results to prove the case, and 30 years later they are still jerking around with cats and rats and whatever else. I can only imagine how some of you must feel after being in this game for many many years.

                              So here is what I think. Maybe the powers that be really don't want to find a cure. Maybe they want the world to think they are almost there to keep getting grant and research money. After all, once the puzzle is solved a lot of people will be without their nice cushy gig. What will they do? Go clerk @ Wal-Mart? Just look at the cancer machine. It's still going strong after all these years. If this is the case, perhaps the only thing that might break the cycle is greed. If a magic bullet does exist then who ever finds it will be a rich SOB for sure.
                              If no single bullet is out there to do the job, then things plod along as they have. We still get to stay in our chairs waiting to get our lives back. Science and medicine get to have their prominence and stature and $$$$. The rest of the able bodied world gets to look at us and be inspired by our determination. All the support industries that make chair and catheters, and suppositories still have sales calls. You see the matrix here?
                              I wish everyone from all over the globe, working on this, would just sit down and honestly pull their data together. Forget the aformention reasons not to find a solution, and fix it. Perhaps greed will be the one thing that ultimately finds a cure!

                              Comment

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