Announcement

Collapse
No announcement yet.

Is any real hope in near future?

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    #46
    Originally posted by Chaz19 View Post
    Is there anything we can do to speed it up? Govt for the people...
    For as large as the FDA is, their sci specialists are fewer than you'd suspect. The FDA announced this past year that they were reorganizing some things to better meet the needs of the public. I don't know when or how they plan to initiate all the changes. I'd read some of the proposals online about 6 months ago. I know they wanted more personnel in the budget from congress. Even when sci treatments get through the FDA, not everyone will be helped even though we desperately wish that. It will take decades to narrow down and better refine the field of proposed treatments in addition to new ones that come on the market. I'll relish the day when we have multiple options for multiple kinds of sci injuries. You can see by the sheer number of trials taking place around the globe that many options will make it to the markets everywhere around the world and they'll all have their countries regulating officials endorsements.

    How will you go about choosing what's best for you? I don't think most people will jump on the very first options out of desperation. In fact, many treatments and therapies won't even be relevant to their particular injuries. I think they'll be smart and peer inside and take a closer look because their health and their very lives depend upon it ... there is hope for the future so we need to push on in every way that we can to bring about cures for sci. We shouldn't sit passively by and expect the changes to miraculously occur without helping to make it happen.

    Last edited by GRAMMY; 15 Feb 2012, 7:01 PM.
    http://spinalcordresearchandadvocacy.wordpress.com/

    Comment


      #47
      chaz, what we know is that Wise Young told us first quarte of 2012 for fda approval for his therapy in the states. We know that it has been delayed; I don't quite underswtand why. We know that Stem Cell Inc started in Switzerland, I assume to circumvent fda delay. We know that Acorda and Sase Western will meet for their Chase srtegy. We also know that human trials, successful I might add, for heart, diabites, and others, are occurring now. Wise has said these trials are easier than spinal cord. what we need period is trial that shows benefits and the willingness onf the company conducting th etrials, to tell us an deveryone of th esuccess. UNtil we get to that point, we are in a hold. Our condition is painfully experienced everyday and the complexity of the solution is great. My recommendation is that we watch the acitivity currently going on and ask for results asap. We can't make results appear that are not here. companies conduicting the trials should be anxious to show any success. OUr job is to watch, ask, and follow. That is what we can do at this time.

      anthony

      Comment


        #48
        Desperation

        http://www.dailymail.co.uk/news/arti...friend-on.html

        Comment


          #49
          Originally posted by Marcus View Post
          Wow, that was sad. It is a reminder of why we need to push harder for a cure.

          Comment


            #50
            Buck, in the case of open information, do you actually own invivo stock? And if so, tell why you do or do not... Just wondering. Grammy has alluded to it correctly or incorrectly a few times... Set the record straight
            "That's not smog! It's SMUG!! " - randy marsh, southpark

            "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


            2010 SCINet Clinical Trial Support Squad Member
            Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

            Comment


              #51
              Originally posted by lunasicc42 View Post
              Buck, in the case of open information, do you actually own invivo stock? And if so, tell why you do or do not... Just wondering. Grammy has alluded to it correctly or incorrectly a few times... Set the record straight
              I find it hard to believe anyone actually thinks Buck is a inside trader trying to manipulate the value of a biotech stock here on CareCure.

              Comment


                #52
                Originally posted by 2TiRods View Post
                Wow, that was sad. It is a reminder of why we need to push harder for a cure.
                I feel the same way.

                Paolo
                In God we trust; all others bring data. - Edwards Deming

                Comment


                  #53
                  Originally posted by nrf View Post
                  I find it hard to believe anyone actually thinks Buck is a inside trader trying to manipulate the value of a biotech stock here on CareCure.
                  Actually it was observed comments made in a previous thread...it makes absolutely no difference at all. People support a cure for sci in any way that they wish and in many different ways. The fact remains that we don't have a therapy for chronic sci and we need to support the efforts for finding a cure. People across the board invest in all kinds of biotech's in the hopes that they can bring something to the market for us. Acorda was unable to bring Ampyra (4ap) to the market for a sci indication so people cannot get universal insurance coverage for that pharmacutical. The indication only ended up being for MS and a great disappointment for those wanting a sustained release formula. Geron tried to do an acute trial for sci and ran out of money, but people bought that stock with the idea they would be successful and eventually get around to the chronic population, but they did not... people purchase lots of those stocks in many many other biotechs. The point was that we are not on a "very near future" therapy with anything from InVivo or other biotechs that we're aware of, nor will every sci be helped by a single product.

                  People donate lots of money into clinical trials and research as well.

                  I'll be as grateful as anybody if the biotechs can at least give us something for some people that will actually work and we'll take it whenever we can get it, no matter how many years it takes to get to the clinic!! Nothing wrong with that! We know the miracle cure isn't going to fall out of the sky in the next few days. Lots of hard work, money and time is needed to get us where we need to be.
                  Last edited by GRAMMY; 16 Feb 2012, 2:51 AM.
                  http://spinalcordresearchandadvocacy.wordpress.com/

                  Comment


                    #54
                    Originally posted by lunasicc42 View Post
                    Buck, in the case of open information, do you actually own invivo stock? And if so, tell why you do or do not... Just wondering. Grammy has alluded to it correctly or incorrectly a few times... Set the record straight
                    No, he doesn't! There are some of us who're actually really close to Majed and know he's not in bed with any corporation. He's not in bed with anyone, but I digress.

                    Some of you are treating this shit like a religion if you buy into one person or one standard that will cure us.

                    I don't delve into this topic as much as Majed does, but as he's explained to me, a for-profit therapy will likely be an excellent way to be cured. How that means he has stock in any one of these is beyond me when he is speaking generally and using that one specific team as a prime example. The pursuit of money and a business model are very practical, especially if all done in a legitimate fashion.

                    Comment


                      #55
                      Originally posted by Le Type Fran├žais View Post
                      No, he doesn't! There are some of us who're actually really close to Majed and know he's not in bed with any corporation. He's not in bed with anyone, but I digress.

                      Some of you are treating this shit like a religion if you buy into one person or one standard that will cure us.

                      I don't delve into this topic as much as Majed does, but as he's explained to me, a for-profit therapy will likely be an excellent way to be cured. How that means he has stock in any one of these is beyond me when he is speaking generally and using that one specific team as a prime example. The pursuit of money and a business model are very practical, especially if all done in a legitimate fashion.
                      You are exactly right. There won't be one discovery from one place that will help all sci. In fact, it's the biotechs with the deeper pockets right now, and academia is providing some fantatic research right now for all of them.
                      Last edited by GRAMMY; 16 Feb 2012, 12:31 AM.
                      http://spinalcordresearchandadvocacy.wordpress.com/

                      Comment


                        #56
                        Originally posted by Le Type Fran├žais View Post
                        He's not in bed with anyone, but I digress. .
                        It would break your sister's heart.

                        I don't own a dime of Invivo stock. I can't believe how stupid
                        some people are on this forum. People so desperate for a
                        treatment shouldn't give a shit where it comes from. This forum
                        gets more pathetic by the day.

                        Fortunately, I didn't waste my time, since a few people did
                        understand my point.

                        Comment


                          #57
                          Originally posted by nrf View Post
                          I find it hard to believe anyone actually thinks Buck is a inside trader trying to manipulate the value of a biotech stock here on CareCure.
                          LOL. Yeah, people think a little bit too much of this forum.
                          As if cc would send Invivo's stock soaring.

                          Comment


                            #58
                            Originally posted by Marcus View Post
                            Still no one can understand our feelings. Very shame for selfish world and very very sad story this is.

                            Comment


                              #59
                              The father and step mother seem rather reprehensible if this article is true
                              Last edited by Christopher Paddon; 16 Feb 2012, 6:39 AM.

                              Comment


                                #60
                                I hope none of that nasty talk was directed at me. I never said that I thought Buck owned invivo stock. I just pointed out that it has been alluded to a few times, and, if it's not true. To set the record straight
                                "That's not smog! It's SMUG!! " - randy marsh, southpark

                                "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


                                2010 SCINet Clinical Trial Support Squad Member
                                Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature

                                Comment

                                Working...
                                X