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A fundrising video from the Reeve Foundation

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    #16
    the Christopher Reeves 2000 superbowl ad with the correct sound track.

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      #17
      Yikes.... after watching that video, I no longer fear death!

      The one above ^^^ was really good though, obviously made back before spinal cord injuries had become funny.








      .
      Last edited by Otter; 19 Dec 2011, 12:50 AM.

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        #18
        I couldn't bear to watch it all - as others have said it is so cringe-makingly awful - it really doesn't need to be out in the public domain as a CDRF video if it was only meant for the new director as a goofy welcome. Put it in the archive labelled 'useless waste of money'.

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          #19
          Originally posted by carbar View Post
          I couldn't bear to watch it all - as others have said it is so cringe-makingly awful - it really doesn't need to be out in the public domain as a CDRF video if it was only meant for the new director as a goofy welcome. Put it in the archive labelled 'useless waste of money'.

          Amen Carbar!
          My blog: Living Life at Butt Level

          Ignite Phoenix #9 - Wheelchairs and Wisdom: Living Life at Butt Level

          "I will not die an unlived life. I will not live in fear of falling or catching fire. I choose to inhabit my days, to allow my living to open me, to make me less afraid, more accessible, to loosen my heart until it becomes a wing, a torch, a promise. I choose to risk my significance; to live so that which comes to me as seed goes to the next as blossom and that which comes to me as blossom, goes on as fruit."

          Dawna Markova Author of Open Mind.

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            #20
            Originally posted by cheesecake View Post
            Come on Paolo and Folks:
            This wasn't a fundraising video but was a spoof for Peter Kiernan who took over as chairman of the board when Dana Reeve became ill. He was an award recepient at this years Gala. Peter K is a Glee fan so his family, friends and a few employees did the video for the Gala.

            If you listen to the rap, it talks about Peter's accomplishments and all that he has done for the Reeve Foundation. It was posted on the website after the Gala.

            If you had asked , I would have explained it to you.
            Cheescake,

            what Peter Kiernan has done for CDRF and people with SCI it is great and for sure we should thank him publicly and give him an award.
            Perhaps they should have considered a more "sober" way than a parody of "Glee" to do that.
            BTW I bet relatively few people knows what Glee is even if I am told it has had a great success.
            Keep also in mind people look at CDRF form everywhere in the world, not just the US, so people ask CDRF to constantly send out a message of urgency for a cure as this message can be used by SCI advocates around the world to drive more investments in finding a cure.

            So here it is again a big problem with communication. Unfortunatly that is not the only problem, but at least let's do better on this, it's easy.

            As a person living with SCI I think I have the right to express my non positive opinion about the messages CDRF sends out with the communication tools they use.. like this video BTW.

            I have received privately several messages of support about this thread other then the ones that have been posted by CC members above.

            Now CDRF people can decide to listen to what has been said or they can push their heads deeper into the sand.
            I think they will do the latter, but they can prove me wrond if they really care about what the SCI community want, A CURE ASAP!

            Paolo
            In God we trust; all others bring data. - Edwards Deming

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              #21
              Originally posted by cheesecake View Post
              The Super Bowl commercial was done by Christopher Reeve as a private citizen--as an actor. It was not part of the Foundation because I think it was made before there was a merger of Foundations.
              OK, but my point is that the superball commercial was powerful!
              CDRF should constantly send out messages like that which drive more investment in the field everywhere around the world.

              When that commercial was out got in TV also here in Italy many times just as a news, it had a tremendous impact.
              BTW that was several years before my SCI.

              What a great idea Christopher Reeve had!

              Paolo
              In God we trust; all others bring data. - Edwards Deming

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                #22
                I don't watch the Fox channel, so I had no idea what this "Glee" stuff was until I did a search. http://www.fox.com/glee/

                I admit sometimes I'm a mushroom.

                GLEE is a musical comedy about a group of eager and ambitious students who strive to outshine their singing competition to win Nationals while navigating the cruel halls of McKinley High.
                Last edited by GRAMMY; 19 Dec 2011, 4:37 PM.
                http://spinalcordresearchandadvocacy.wordpress.com/

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                  #23
                  Originally posted by carbar View Post
                  I couldn't bear to watch it all - as others have said it is so cringe-makingly awful - it really doesn't need to be out in the public domain as a CDRF video if it was only meant for the new director as a goofy welcome. Put it in the archive labelled 'useless waste of money'.
                  Well said Carbar! It is also my thought

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                    #24
                    Originally posted by NowhereMan View Post
                    Is paralysis some f---ing joke to those people? What the hell did I just watch?
                    I'm not too sure either!!
                    2010 SCINet Clinical Trial Support Squad Member
                    Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature.

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                      #25
                      Originally posted by paolocipolla View Post
                      OK, but my point is that the superball commercial was powerful!
                      CDRF should constantly send out messages like that which drive more investment in the field everywhere around the world.

                      When that commercial was out got in TV also here in Italy many times just as a news, it had a tremendous impact.
                      BTW that was several years before my SCI.

                      What a great idea Christopher Reeve had!

                      Paolo
                      Well Paolo, sorry to disappoint you but the super bowl commercial was not Chris Reeve's but the company that produced it for an investment firm or something. It was extremly controversial at the time and had a ton of people who hated it. I personally thought it was cutting edge. Ask Sue Pedndelton--she did an op-ed against Laura Hershey on what was then Can-Do the precessor to CareCure.
                      Every day I wake up is a good one

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                        #26
                        Originally posted by cheesecake View Post
                        Well Paolo, sorry to disappoint you but the super bowl commercial was not Chris Reeve's but the company that produced it for an investment firm or something. It was extremly controversial at the time and had a ton of people who hated it. I personally thought it was cutting edge. Ask Sue Pedndelton--she did an op-ed against Laura Hershey on what was then Can-Do the precessor to CareCure.
                        Ok,
                        whoever had the idea and whoever worked to get this commercial on TV during the superball did a great job IMO.
                        Then if we want to analize the meanings of images, colors, music & words used in the video we can for sure find questionable points, so I am not surprised there were people that hated it.
                        That's routine in communication, you just want to make sure you understand how people interpret words, images etc... to make sure the message you wanted to send got to destination correctly.
                        I think we want to make a cure happen ASAP, so messages should be trimmed to make this happen.

                        Now here things start to get complicated as we should get into "how do we make a cure happen sooner?" and "what's wrong with what is being done at the moment?"....so I would say to leave like that..

                        I will ask Sue.

                        ... and don't worry about desappointing me like this, that was actually useful for me

                        Paolo
                        In God we trust; all others bring data. - Edwards Deming

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                          #27
                          Lighten up people. I've never met Peter Kiernan, but was told he quit his job when Chris Reeve's wife died to keep the organization going and has put millions of his own money into it. He was apparantly one of the Reeve's closest friends.
                          I personally love the Foundation and its dual mission of care and cure. There is not one monolithic voice in the community and I don't agree with everything they post, but appreciate that they try. And it appears to me to cast a negative light on a tribute video, prepared for a dinner is mean spirited. They always get points for trying and they get resaerchers to share-- no small feat!
                          I've always loved the Nuveen ad and whoever said it was controversial at the time is correct. Reeve knew exactly what he was doing--he had a robust sense of humor and would have loved the glee tribute. We ought to channel our collective anger at scientists who promise us a cure at every meeting and never deliver.
                          I tried W2W, but they give voice to the liars. And they insult me because I don't buy it to their one size fits all dogma

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                            #28
                            @hopefulquad.

                            You must know who has produced the cure for humanity. Do tell!
                            Last edited by GRAMMY; 20 Dec 2011, 2:55 PM.
                            http://spinalcordresearchandadvocacy.wordpress.com/

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                              #29
                              @hopefulquad: Lighten up! We shouldn't call people names.

                              We do however get a charge out of SCI storytellers from time to time. One has to keep their robust sense of humor like you say and try not to be insulted when researchers get their points across and their feat has been accomplished. Some of it is odd.

                              October 17, 2009
                              Robert G. Grossman, MD


                              Dr. Grossman will present Clinical Trials of New Therapies for Spinal Cord Injury. His presentation will discuss therapies being tested in clinical trials and approaches being taken to insure the validity of the trials. In the past decade, Dr. Grossman has organized a network of hospitals in North America to test new therapies for spinal cord injury, funded by Christopher Reeve Foundation. (2004 NACTN Clinical Trials Initiated) ok...?

                              Dr. Grossman’s second talk will be The Assassination of John F. Kennedy - an Eyewitness Account - an account of the events in Trauma Room 1 at Parkland Hospital, a virtual tour of Dealey Plaza, and the sixth floor of the Texas Book Depository. Dr. Grossman and Dr. Kemp Clark were the two neurosurgeons at Parkland Hospital who examined President Kennedy in Trauma Room #1 at Parkland Hospital.

                              http://mcadams.posc.mu.edu/grossman.htm (The Phantom of Trauma Room One): the Neurosurgeon that 40 years later makes claims that he examined both JFK and Oswald but 15 eye witnesses testify otherwise. (Dr. Grossman loves Fox news and his 2003 PR team). Jackie was wearing a white dress and JFK was on a gurney instead of in a casket in the hall being wisked to the airport and then offers to change his story about the head wound. Nobody places him at the scene! A publicity published article gone bad. ok...?

                              Pretty funny TALL tales! Storytellers in the SCI field that are given a voice ... I would have loved to have heard both of these whoppers but Grossman hasn't ever been invited to speak at W2W. This is just another piece of the history (sometimes re-written) in all it's fame and glory...surely not a one size fits all dogma, but sometimes this is the stuff that happens when people get carried away and inject themselves into publicity and do speaking circuits. I mean, you can't make this stuff up! As of today, he's still out there telling these colorful stories to engage people in the disability culture after all these years (like SCI isn't bad enough already)...

                              I disagree that scientists should be collectively attacked, but perhaps some of them should stick to speaking engagements that are more based on scientific facts or useful information that can help SCI rather than old school entertainment. Some just got sidetracked many years ago, so we move on and listen to presentations of the best and brightest and ask them to give us all they've got rather than languish in the absurd.

                              http://www.bnasurg.com/annual-sympos...e-speakers.php
                              Last edited by GRAMMY; 21 Dec 2011, 2:09 PM.
                              http://spinalcordresearchandadvocacy.wordpress.com/

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                                #30
                                I actually don't like the current CDRF especially the cheerful 'how to live with paralysis' stuff and the 'best dad on wheels' nonesense etc etc

                                There are some good scientists associated with it though but are they a part of CDRF or reall independent and receiving funding help?

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