Announcement

Collapse
No announcement yet.

To the Governor General: Help us talk to RHF

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    To the Governor General: Help us talk to RHF

    As some people have told me, they have already sent a letter to the Governor General of Canada about talking with the Rick Hansen Foundation.

    So again, I've made it easy for you all.

    I didn't complain. I didn't accuse.
    I just asked the Governor General to use his influence as the patron of the Rick Hansen relay to see if we can have real dialogue with Rick Hansen Foundation.


    Actually, I just got two emails this morning from other 'cure' organizations that are holding real time webinars. And this morning in the Globe and Mail, they were holding a real time email Q&A, so the goal of meeting through skype or other forms of media is not crazy, others do it.

    Here is the link for the email and I hope you'll join me in sending it.
    Dennis Tesolat
    www.StemCellsandAtomBombs.blogspot.com

    "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
    Martin Luther King

    #2
    Acorda often sends 'webinar' dates.

    This one was sent. I've found government good to respond ... I didn't think you'd get anywhere from the Rick Hansen Foundation. Sad.
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

    Comment


      #3
      Looks like this one is getting more attention than the other ones.
      In about 20 hours 45 have come in, which is more than double the first day of the other two campaigns.
      Please let others know.

      The two top countries at the moment are:
      the USA at 19 and Canada at 11.

      Keep them coming.
      Dennis Tesolat
      www.StemCellsandAtomBombs.blogspot.com

      "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
      Martin Luther King

      Comment


        #4
        The email is now up in Italian.

        English: http://stemcellsandatombombs.blogspo...with-rick.html

        Italian: http://cellulestaminaliebombeatomich...go-con-la.html
        Dennis Tesolat
        www.StemCellsandAtomBombs.blogspot.com

        "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
        Martin Luther King

        Comment


          #5
          Let's see if this time we get more attention...

          Apparently there are other people not very happy about RHF. I was reading this article link about the kick off of the 25 anniversary relay and I have seen some interesting comments like:

          Frank Rigney

          4:23 PM on August 24, 2011
          This guy has the best scam going.

          Create your own foundation. Raise millions from kids every year. And pay yourself $500,000 annually.

          The next best thing to winning the lottery.

          You go Rick. Bernie Madoff could have learned a few tricks from you.


          and

          van54

          6:37 PM on August 24, 2011
          I don't get it.I remember 25 years ago when he passed through Edmonton how optimistic he was that cure was right around the corner.
          Well as far as I'm concerned there has been no progress in even inching close to a cure.........where has all the money gone and whos getting it and are they working together to find a cure.
          Please somebody tell me what has happened in the last 25 years and millions of dollars later to find a cure for paraylis and why I should give any money in the future.


          and

          Hal West

          9:59 AM on August 24, 2011
          Will Rick Hansen get his usual $10,000 appearance fee for any stops along the way on this relay?

          IF there is a 25 year scam here it is time to uncover I think.
          In God we trust; all others bring data. - Edwards Deming

          Comment


            #6
            It looks like people have questions that they want answered.
            Any real time dialogue is good for me.
            I hope the hear from them soon, and so should you.
            Dennis Tesolat
            www.StemCellsandAtomBombs.blogspot.com

            "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
            Martin Luther King

            Comment


              #7
              There's also a provincial (Ontario) election brewing for the fall. (FYI)
              Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

              T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

              Comment


                #8
                In the first video here the reporter and Rich Hansen talk about a cure as the goal of the man in motion tour:

                http://www.cbc.ca/news/canada/newfou...aunch-824.html

                How come they can't provide evidence they have invested money in research projects to find a cure?
                In God we trust; all others bring data. - Edwards Deming

                Comment


                  #9
                  https://www.facebook.com/photo.php?f...type=1&theater

                  Two Millions from McDonald's Canada...

                  That makes me think we could ask McDonald's around the world to do the same. I have always loved McDonald's BTW..
                  In God we trust; all others bring data. - Edwards Deming

                  Comment


                    #10
                    About 75 in already.
                    Italy in the lead with 26 followed by the USA and Canada
                    Dennis Tesolat
                    www.StemCellsandAtomBombs.blogspot.com

                    "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
                    Martin Luther King

                    Comment


                      #11
                      Send an email to your friends and ask for support!

                      Please also let your friends know about the email if you signed it.

                      I made a simple letter that you can cut and paste to your friends to ask for their support.

                      ///////////////////////////////
                      I'm writing to let you know about an important activity that I've taken part in to make a CURE for spinal cord injury a priority.

                      I, along with others throughout the world, are currently writing to the Governor General of Canada in order to gain his support for direct talks between the paralyzed and the Rick Hansen Foundation (RHF). RHF is the largest, most well funded organization dealing with a cure for spinal cord injury in the world but when we've written directly trying to get an answer to how much funding is going to a cure and what research they have been working on, we haven't gotten a clear answer.

                      We hope that by writing the Governor General who is the patron of the current Rick Hansen Relay to raise funds and awareness for spinal cord injury, RHF will happily discuss with us and listen to our ideas.

                      We want to help make a cure for spinal cord injury an international priority and you can help by going to http://bit.ly/peBVki and sending an email. It will take you ten seconds.

                      Thank you.
                      Last edited by StemCells&AtomBombs; 27 Aug 2011, 12:12 AM. Reason: The grammar weren't well!
                      Dennis Tesolat
                      www.StemCellsandAtomBombs.blogspot.com

                      "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
                      Martin Luther King

                      Comment


                        #12
                        Originally posted by StemCells&AtomBombs View Post
                        About 75 in already.
                        Italy in the lead with 26 followed by the USA and Canada
                        I can't believe Italy is in the lead... it took me, Arcy and a few others a little work to keep people hot on that.

                        I think more and more that very few common people can really make a difference to cure SCI.

                        Gosh!! I am thinking to what I could do if my name was RICK HANSEN!!!
                        Last edited by paolocipolla; 27 Aug 2011, 5:45 PM.
                        In God we trust; all others bring data. - Edwards Deming

                        Comment


                          #13
                          Originally posted by StemCells&AtomBombs View Post
                          Please also let your friends know about the email if you signed it.

                          I made a simple letter that you can cut and paste to your friends to ask for their support.

                          ///////////////////////////////
                          I'm writing to let you know about an important activity that I've taken part in to make a CURE for spinal cord injury a priority.

                          I, along with others throughout the world, are currently writing to the Governor General of Canada in order to gain his support for direct talks between the paralyzed and the Rick Hansen Foundation (RHF). RHF is the largest, most well funded organization dealing with a cure for spinal cord injury in the world but when we've written directly trying to get an answer to how much funding is going to a cure and what research they have been working on, we haven't gotten a clear answer.

                          We hope that by writing the Governor General who is the patron of the current Rick Hansen Relay to raise funds and awareness for spinal cord injury, RHF will happily discuss with us and listen to our ideas.

                          We want to help make a cure for spinal cord injury an international priority and you can help by going to http://bit.ly/peBVki and sending an email. It will take you ten seconds.

                          Thank you.
                          I have posted a short version of that on:

                          CDRF FB page
                          CDRF PRC FB page

                          and of RH FB page!!

                          I couldn't post it on RHI FB page as I have been banned from them (BTW I am proud of that)...
                          Could someone post it on on RHI FB page?

                          Paolo
                          In God we trust; all others bring data. - Edwards Deming

                          Comment


                            #14
                            One hundred!
                            Dennis Tesolat
                            www.StemCellsandAtomBombs.blogspot.com

                            "Change does not roll in on the wheels of inevitability, but comes through continuous struggle. And so we must straighten our backs and work for our freedom."
                            Martin Luther King

                            Comment


                              #15
                              Originally posted by paolocipolla View Post
                              I have posted a short version of that on:

                              CDRF FB page
                              CDRF PRC FB page

                              and of RH FB page!!

                              I couldn't post it on RHI FB page as I have been banned from them (BTW I am proud of that)...
                              Could someone post it on on RHI FB page?

                              Paolo
                              Ok...I did it but unfortunatly you cannot write on his wall (or at least...i cannot...).
                              I post it as a comment to one of his posts.

                              Arcy

                              Comment

                              Working...
                              X